Claire Severgnini Chief executive - National Osteoporosis Society

Transcription

1 Claire Severgnini Chief executive - National Osteoporosis Society 22 nd June 2016

2 Strategy and Aims 2

3 Our core values We are caring, innovative, excellent, influential, ethical and passionate in all that we do Our vision is a future without fragility fractures Our mission is to work together for a brighter future for people with or at risk of osteoporosis and fragility fractures across the UK, putting an end to preventable broken bones and helping people to live without pain and disability Our vision Our ultimate ambition Our mission The strategy that will make our vision a reality Our aims are: 1) To prevent future fractures 2) To help and support people with osteoporosis now Our current aims 3

4 Our Strategic Aims Aim 1: Every person aged over 50 who breaks a bone is assessed for osteoporosis and managed appropriately. Aim 2: People are empowered to make choices and manage their condition in ways that best meet their own needs. Aim 3: Primary Prevention of osteoporosis Other aims can be developed as needed Overall mission and vision of the National Osteoporosis Society Aim 4: Cure for osteoporosis ENABLERS 4

5 Listening to our Beneficiaries 5

6 Listening to our Beneficiaries Life with Osteoporosis (2014) A landmark study to find out more about the true emotional and physical impact of osteoporosis and fragility fractures on people s lives. A Good Life with Osteoporosis (2015) To help develop new ways for the Charity to help and support people with the osteoporosis (over 3,500 people). 6

7 A Good Life with Osteoporosis What areas of information and support would be useful? Top 5 areas 78% 78% 81% 83% 86% Preventing Fractures Understanding the condition Exercise Healthy eating for bones Osteoporosis Medication 7

8 A Good Life with Osteoporosis Where do people look for information and support? Top 5 sources of information Top 5 sources of support 66% of people want to visit an osteoporosis support group to hear a health professional talking about an osteoporosis related matter. 65% of people want face-to-face contact with a health professional to help with managing their condition 8

9 Our Strategic Aims Aim 1: Every person aged over 50 who breaks a bone is assessed for osteoporosis and managed appropriately. Aim 2: People are empowered to make choices and manage their condition in ways that best meet their own needs. Aim 3: Primary Prevention of osteoporosis Other aims can be developed as needed Overall mission and vision of the National Osteoporosis Society Aim 4: Cure for osteoporosis ENABLERS 9

10 Osteoporosis Patient Journey Map 10

11 National Osteoporosis Society Priorities Aim 1: Every person aged over 50 who breaks a bone is assessed for osteoporosis and managed appropriately Priority 1: Extend coverage of Fracture Liaison Services Priority 2: Improve quality of Fracture Liaison Services and osteoporosis services

12 Priority 1: Extend coverage of Fracture Liaison Services 12

13 A National Approach to FLS FLS Implementation Group UK FLS Clinical Standards FLS Implementation Toolkit FLS Implementation Workshops Fracture Prevention Practitioner (FPP) Training Peer Review Service Delivery Team

14 UK FLS Standards Endorsed by:

15 FLS Implementation Toolkit Launched February 2015 Over 52 hospital trusts have used/using the Toolkit to develop or improve an FLS Instrumental in securing funding Endorsed by 6 leading professional bodies Currently being reviewed by NHSE and NICE for endorsement

16 FLS Benefits Calculator Additional resource within the FLS-IT Designed for use by hospitals, community services and commissioning organisations to help develop an FLS Estimates the benefits in terms of reduced fragility fracture incidence and cost savings that can be realised in a local health economy as a result of implementing an effective FLS.

17 FLS Cost Calculator Additional resource within the FLS-IT Designed for use by clinicians and Health Boards to help develop an FLS Provides the cost side of a cost/benefit table for the FLS business case Uses estimates of fracture numbers either from local audit or from using the FLS Benefits Calculator Outputs: the numbers of staff, DXA, follow-ups etc. required, bespoke to the service.

18 FLS Implementation Workshops 3 workshops in 2015: - Newmarket (March) - Derby (June) - Manchester (Nov) Attended by over 67 healthcare professionals Engaged with over 25 hospital trusts

19 FLS Implementation Workshops Dr Madhavi Vindlacheruvu, Consultant Orthogeriatrician, Cambridge University Hospitals: Excellent to be able to present 1st draft of business case. Great expertise and support, really well organised. 4 workshops planned for 2016: Southwest, South Central, London, North Rebecca Gear, Osteoporosis specialist nurse practitioner, CareUK: I feel confident in going forward and have a plan in mind. A must have workshop when wanting to start an FLS.

20 FLS Champions Network Share knowledge, expertise and best practice Over 207 registered Includes HPs from primary/secondary care and commissioners FLS Champions Summit 116 delegates Fundamental in driving standards of FLS 90% felt motivated to develop an FLS or improve the service in their Trust.

21 FLS Champions Summit Two events planned for 2016: 5 th February 2016, London Summer 2016 TBC (check website) Anyone with an interest/work in fracture prevention would greatly benefit from attending FLS Champions Summit. Gained invaluable information/facts/others experiences in how to take our FLS service forward. - Sharon Smith, FLS/DXA Nurse, Mid Essex Hospital Services NHS Trust. The NOS help me feel less isolated and give me 'currency' to the work I am doing through the networking and resource opportunities. - Diana Calcraft, FLS Nurse, Royal Surrey County Hospital.

22 Fracture Prevention Practitioner (FPP) Training Officially launched April BSR 385 healthcare professionals registered 84 accredited FPPs Accessed by 81 different hospital trusts and GP practices Endorsed by 10 leading educational and professional bodies Accessed from across 15 different countries (US, AUS, NZ, SA, CA, ROI, FR)

23 FPP Training Endorsed by:

24 Priority 2: Improve quality of Fracture Liaison Services and osteoporosis services 24

25 How we Help Facilitate stakeholder engagement Help establish patient/care pathway Project manage commissioning/funding: o o o The economic and business case Service specification Resource and capacity planning Work with commissioners to ensure services are sustained.

26 How we Help Provide input to enable the development of an FLS which meets the UK FLS Clinical Standards Help establish data collection, analysis, evaluation and reporting Identify gaps in service provision, put in place improvement plans and monitor against agreed actions Peer review

27 Activity to date SDT Activity England NI/IOM Scotland Wales UK Supporting New Service Development Supporting Quality Improvement Early Engagement with additional sites Totals New services commissioned Existing service improved (commissioning) Totals

28 Area Population Cohort (50+) FLS Benefits Hip fractures prevented* *Over a 5 year period Total benefits (of hip fractures prevented)* Bradford 459, , ,991,822 Colchester 332, , ,400,084 East Surrey 177,566 63, ,154,335 East Sussex 374, , ,161,972 Epsom 405, , ,066,895 Rotherham 258,781 96, ,540,356 Salisbury 202,770 83, ,412,992 Stoke-on-Trent 214,991 88, ,466,432 Vale of York 348, , ,142,848 Total 2,774,793 1,015, ,337,736

29 Plans for 2016 Continue to extend coverage & improve quality of FLS Vertebral fracture identification & management Falls pathway FLS effectiveness study

30 Osteoporosis Patient Journey Map 30

31 Claire Severgnini Chief executive - National Osteoporosis Society 22 nd June 2016