Making Measurements Meaningful

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1 Making Measurements Meaningful Brian J. Zikmund-Fisher, PhD University of Michigan Department of Health Behavior & Health Education Department of Internal Medicine Center for Bioethics & Social Sciences in Medicine Health Informatics

2 Assumptions In Science Communication Assumption: People Lack Information (The Deficit Model) Assumed Solution: Give them more!

3 Literacy Language Barriers Numeracy Emotionality of Health Situations Volume of Relevant Information

4 More Better!

5 Evaluability

6 Good or Bad? Amend B. Welcome to Jasorassic Park, 1998, p.36.

7 Good or Bad? Amend B. Welcome to Jasorassic Park, 1998, p.36.

8 Evaluability of Risk Information

9 Imagine Robert

10 Imagine Robert Your 10-year risk of cardiovascular disease is: 11.22%

11 Am I at high risk, or not?

12 Evaluability of Laboratory Test Results

13 Can Patients Use This?

14 What Is Out of Range?

15 What Is Out of Range?

16 Am I at high risk, or not?

17 Evaluability of Exposure Information

18 Buying a Home Radon: 6 pci/l

19 Drinking Water Lead: 7 ppb

20 Am I at high risk, or not?

21 Problem #1: Numbers

22 Problem #2: Lack of Meaning

23 So now what? What can we do to help?

24 Step 1: Visual information

25 Created at iconarray.com Robert s Risk

26

27 Tables Zikmund-Fisher BJ, et al. Graphics help patients distinguish between urgent and non-urgent deviations in laboratory test results. Journal of the American Medical Informatics Association 2017;24(3):

28 Table vs. Number Line Zikmund-Fisher BJ, et al. Graphics help patients distinguish between urgent and non-urgent deviations in laboratory test results. Journal of the American Medical Informatics Association 2017;24(3):

29 Lines with More Meaning Zikmund-Fisher BJ, et al. Graphics help patients distinguish between urgent and non-urgent deviations in laboratory test results. Journal of the American Medical Informatics Association 2017;24(3):

30 Near-Normal Results vs. Extreme Results Near-Normal Extreme Zikmund-Fisher BJ, et al. Graphics help patients distinguish between urgent and non-urgent deviations in laboratory test results. Journal of the American Medical Informatics Association 2017;24(3):

31 % with No Difference in Perceived Urgency Platelets (135 vs 25 x10 9 /L) ALT (80 vs 360 U/L) Creatinine (2.2 vs 3.4 mg/dl) Table Simple Line Block Line Gradient Line Zikmund-Fisher BJ, et al. Graphics help patients distinguish between urgent and non-urgent deviations in laboratory test results. Journal of the American Medical Informatics Association 2017;24(3):

32 Step 2: Gist-full information

33 Fuzzy Trace Theory (Brainerd and Reyna, 1995) Verbatim memory vs Gist

34 Fuzzy Trace Theory (Brainerd and Reyna, 1995) Verbatim memory vs Gist What the heck is gist?

35

36 Know Your Commander s Intent Heath & Heath, Made to Stick, 2007

37 Cancer Screening Test Decisions

38 Colorectal Cancer Screening

39 Colorectal Cancer Screening at age 50

40 Colorectal Cancer Screening at age 50 vs. at age 75 (with multiple comorbidities)

41 Benefits vs. Harms Image from study materials for Promoting Veteran-Centered Colorectal Cancer Screening (I01 HX ); SD Saini, PI.

42 Gist Processing Image from study materials for Promoting Veteran-Centered Colorectal Cancer Screening (I01 HX ); SD Saini, PI.

43 Setting the Context in Visual Displays

44 Hemoglobin A1c Unpublished graphic from 1 R01 HS021681, BJ Zikmund-Fisher, Principal Investigator.

45 Same (?!?) Result Unpublished graphic from 1 R01 HS021681, BJ Zikmund-Fisher, Principal Investigator.

46 Scale Matters Unpublished graphics from 1 R01 HS021681, BJ Zikmund-Fisher, Principal Investigator.

47 Test Results for Diagnosed Patients

48 Goals for Test Results Scherer AM, Witteman HO, Solomon J, Fagerlin A, Exe NL, Zikmund-Fisher BJ. Improving understanding of test results by substituting (not adding) goal ranges. Poster presentation to the Society for Medical Decision Making, Vancouver, BC, Canada, October 23, 2016.

49 Goals for Test Results Scherer AM, Witteman HO, Solomon J, Fagerlin A, Exe NL, Zikmund-Fisher BJ. Improving understanding of test results by substituting (not adding) goal ranges. Poster presentation to the Society for Medical Decision Making, Vancouver, BC, Canada, October 23, 2016.

50 Goals for Test Results Scherer AM, Witteman HO, Solomon J, Fagerlin A, Exe NL, Zikmund-Fisher BJ. Improving understanding of test results by substituting (not adding) goal ranges. Poster presentation to the Society for Medical Decision Making, Vancouver, BC, Canada, October 23, 2016.

51 Goals for Test Results Scherer AM, Witteman HO, Solomon J, Fagerlin A, Exe NL, Zikmund-Fisher BJ. Improving understanding of test results by substituting (not adding) goal ranges. Poster presentation to the Society for Medical Decision Making, Vancouver, BC, Canada, October 23, 2016.

52 Test Results for Monitoring

53 Harms Alanine Aminotransferase (ALT): 80 IU/L Standard Range: 10-40

54 Showing the Possible Range Zikmund-Fisher BJ, Scherer AM, Witteman HO, Solomon J, Exe NL, Fagerlin A. Providing harm anchors in visual displays of test results can mitigate patient perceptions of urgency about near-normal values. Journal of Medical Internet Research, 2018.

55 Harm Anchors Zikmund-Fisher BJ, Scherer AM, Witteman HO, Solomon J, Exe NL, Fagerlin A. Providing harm anchors in visual displays of test results can mitigate patient perceptions of urgency about near-normal values. Journal of Medical Internet Research, 2018.

56 Harm Anchors Many doctors are not concerned until here Zikmund-Fisher BJ, Scherer AM, Witteman HO, Solomon J, Exe NL, Fagerlin A. Providing harm anchors in visual displays of test results can mitigate patient perceptions of urgency about near-normal values. Journal of Medical Internet Research, 2018.

57 Increased Sensitivity with Harm Anchors 6 5 Perceived Alarm Near Value Simple Extreme Value Harm Anchor Zikmund-Fisher BJ, Scherer AM, Witteman HO, Solomon J, Exe NL, Fagerlin A. Providing harm anchors in visual displays of test results can mitigate patient perceptions of urgency about near-normal values. Journal of Medical Internet Research, 2018.

58 One Last Example

59 Hemoglobin A1c Percent Months

60 Hemoglobin A1c Percent Central Message: Varies Months

61 Percent Months

62 12 10 Percent 8 Percent Months =? Months

63 12 10 Percent Months =? Percent Percent Months Months

64 12 10 Percent Varies! Months =? Percent Percent Months Months

65 12 10 Stable! Percent Varies! Months =? Percent Percent Months Months

66 12 10 Stable! Percent Varies! Months =? Percent Percent Months High! Months

67 12 10 Stable! Percent Varies! Months Scaled to data variations =? Percent Percent Months High! Months

68 Scaled to population variations Stable! Percent Varies! Months Scaled to data variations =? Percent Percent Months High! Months

69 Scaled to population variations Stable! Percent Varies! Months Scaled to data variations =? Scaled to zero Percent Percent Months Months High!

70 12 11 Good or Bad?

71 12 11 Good or Bad? Standard Range

72 Good or Bad? Target Range for Patients with Type 2 Diabetes

73 My Commander s Intent

74 We need to design for the way people ARE, not the way we wish they were - Holly O. Witteman

75 People only process or remember one thing

76 You can t change this fact!

77 BUT

78 BUT You get to choose!

79 Use context to create ONE message based on THEIR needs

80 Thank

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