Wisconsin Longitudinal Study Codebook

Transcription

1 In Person: Health KHEALTH Health Module OVERVIEW Participants were first asked to report on their health during the 1994 collection wave, when - as a complement to the primary telephone interview - they were asked to complete a self-administered mail questionnaire that included a health section. For the 2005 wave, coverage of health information was further expanded such that we collected health data through both the mail questionnaire and a newly added telephone interview module. The 2011 Health Module, although (in most cases) conducted in-person, generally replicates its predecessor from the 2005 telephone interview; as in 2005, it was complemented by a section in the mail questionnaire. Information about the participant s health was collected as follows: To assess the participant s health-related quality of life, we first asked them to report on the health attributes comprising the Health Utilities Index Mark 3 (HUI3): vision, hearing, speech, ambulation, dexterity, emotion, cognition, and pain. We then asked for information about the participant s experiences dealing with various health conditions; for each condition the participant reported having been diagnosed with, we determined the timing of diagnosis, extent to which the condition interferes with enjoyable activities, and - in some cases - how the condition was or is being treated. The following conditions were asked about: high blood pressure; high blood sugar; diabetes; cancer; heart problems; strokes; joint pain, stiffness, or swelling; and mental illnesses. Finally, we asked all participants to report on any long-term physical or mental conditions that previously limited or currently limit their activities. Additionally, two series of questions were asked only to participants belonging to randomly selected sub-samples. The first set of questions, which was administered to participants who belonged to a 75% random sub-sample and also reported having been diagnosed with one or more targeted conditions, focused on experiences searching for information about health conditions. The second set of questions, which was administered to a 50% random sub-sample, asked participants to rate the health of other people based on hypothetical descriptions. While the 2011 Health Module is generally comparable to its 2005 predecessor, several noteworthy changes were made between collection waves: (1) questions about physical height, weight, weight management, and cigarette smoking were removed from the module, although such topics continue to be covered in the mail questionnaire; (2) questions about the participant s experiences receiving personal health care from a family member or friend were moved to a newly introduced module, Activities of Daily Living (ADL); (3) questions about the extent to which diagnosed conditions interfere with enjoyable activities were added to the module; (4) detailed questions about treatment and complications of diabetes and cancer were added to the module for participants reporting such diagnoses; (5) for participants reporting activity-limiting long-term physical or mental conditions, questions about specific diagnoses and their timing were moved from the Employment Module to the Health Module; (6) a series of questions about searches for information about selected health conditions was added to the module; and (7) health vignettes were administered to both graduate and sibling participants, rather than just siblings

2 Data for the 2011 collection wave were primarily compiled from in-person (CAPI) and - more rarely - telephone (CATI) interviews, as well as from self-administered questionnaires that participants were asked to complete and mail back after being interviewed. Sometimes participants who were unwilling to be interviewed in-person or by telephone indicated they would be willing to return a self-administered questionnaire (SAQ). Thus we created a unique version of the SAQ and mailed it to participants who did not complete an in-person or telephone interview: the "mail-only self-administered questionnaire" (MOSAQ). In addition to replicating all content in the original 2011 SAQ, the MOSAQ also contained questions analogous to those asked in selected CAPI modules: Marriage, Cohab, and Dating; Children; Health; Employment; Income and Pensions; and Assets. Since MOSAQ data contributed to THIS module, users should pay special attention to analysis variable values of 9 and -30. Values of 9 (left blank on MOSAQ) mean that the information contained within a CAPI variable was asked of but not answered by a MOSAQ participant while values of -30 (not part of MOSAQ) mean that comparable information was not asked of MOSAQ cases. For information about the nature of the Health Module and our health data at prior collection waves, please see Appendix M (cor814, cor847, cor932, and cor966). No new documentation about health data was added to the appendix for the 2011 collection wave. BRIEF VARIABLE DESCRIPTIONS Variable ranges reference dataset/codebook order and are not necessarily alphabetical. KHLTSTAT-KHLTREL: KX201RE: KX202ARE: KX203LRE-KX210SRE: KX301RE-KX339RE: KX341RE-KX341REB: KX346RE-KX347REB: KX342RE-KX343REB: KX344RE-KX377RE: KX348RE-KX350GRE: Module-Level Status Variables Self-Reported General Health Health Utilities Index Mark 3 (HUI3) Summary Score HUI3 Component Dimension Levels and Scores Individual HUI3 Items High Blood Pressure/Hypertension: Timing of Diagnosis and Extent of Interference with Enjoyable Activities High Blood Sugar: Timing of Diagnosis and Extent of Interference with Enjoyable Activities Diabetes: Timing of Diagnosis and Extent of Interference with Enjoyable Activities Diabetes Complications and Treatment Details Cancer: Timing of Diagnosis, Extent of Interference with Enjoyable Activities, and Site(s) of Occurrence - 2 -

3 KX378RE-KX389RE: Cancer Treatment Details and Side Effects KX351RE-KX390REB: KX352RE-KX353RE: KX354RE-KX394RE: KX356RE-KX358RE: KX359RE: KX361RE-KX398RE: KX230RE-KF603RE: KX700RE-KX709RE: KX710RE-KX713REC: Heart Problems: Timing of Diagnosis and Extent of Interference with Enjoyable Activities Timing of Any Myocardial Infarctions (Heart Attacks) Heart Treatments and Surgeries Strokes: Timing, Number of Occurrences, After Effects, and Extent of Interference with Enjoyable Activities Pain, Stiffness, or Swelling in Joints Mental Illness: Specific Diagnosis and Age at First Diagnosis Limiting Long-Term Physical or Mental Conditions: Specific Diagnosis, Timing of Diagnosis, and Persistence Experiences Searching for Information About a Diagnosed Health Condition (Administered to Eligible Members of 75% Random Sample) General Health Vignettes (50% Random Sample): Ratings of a Fictional Person s Health Based on Hypothetical Descriptions khltstat: Was the Health Module completed by Participant alone, with help, or by proxy? Source variables: y_hltproxy1, y_hlthelp0, capiproxy, y_proxy, y_ivwloc - 3 -

4 1 R COMPLETED ALONE R COMPLETED ALONE WITH SOMEONE ELSE IN THE ROOM R RECEIVED A LITTLE HELP R RECEIVED A LOT OF HELP HELPER RESPONDED TO ALL ITEMS MODULE PROXY WHOLE INTERVIEW DONE BY PROXY Note: For many cases a participant s spouse or other family member was present during the interview. This sometimes resulted in the participant relying on the other person for help in answering some or many of the questions. At the end of each module the interviewer indicated the amount of help the participant received and who provided that help. That assessment is covered by codes 1 through 5. Additionally, a code of 7 indicates that the entire interview was administered to a proxy while a code of 6 indicates that this particular module was answered by a proxy but other modules were answered by the participant. khltrel: Relationship of Health Module helper or proxy to Participant. Source variables: khltstat, y_hltproxy1, y_hlthelp0, y_hlthelp1, y_hlthelp2_hfn, y_hlthelp3, y_h1fn-y_h4fn, y_pfn, prxyfnam, y_p1fn-y_p5fn, y_prel, prxyrel, y_p1rel-y_p5rel - 4 -

5 -4 NOT ASCERTAINED Inappropriate Inap, (Sampled skip or khltstat=1,2,-3) SPOUSE BROTHER DAUGHTER GRANDDAUGHTER ROMANTIC PARTNER SISTER SISTER-IN-LAW SON Note: If this module was administered via proxy or if the participant received help answering the questions in this module then we record the relationship of the proxy/helper to the participant. Although most participants relied on only one helper or proxy for the interview, some had more than one. Thus the value of the relationship code may vary across the modules. kx201re: Participant s self-rating of their general health. Source variables: y_x1-5 -

6 -3 REFUSED EXCELLENT VERY GOOD GOOD FAIR POOR kx202are: Participant s Health Utilities Index Mark 3 summary score. Source variables: kx203lre, kx204lre, kx205lre, kx206lre, kx207lre, kx208lre, kx209lre, kx210lre (DID NOT VALIDLY ANSWER ALL APPLICABLE HUI3 QUESTIONS)

7 Note: A summary score was only computed for participants who validly answered all of the HUI3 questions applicable to them (i.e. they never responded with "don t know" or refused to answer). In a departure from the 2005 collection wave, no modified versions of this variable relying on the imputation of valid answers for responses of "don t know" and refusals have been recreated (see CX202BRE and CX202BMA from the 2005 wave). This is the case because, upon review, it was determined that the imputation procedure used was not uniformly justified for all HUI3 items. For more information on how imputation was used to construct HUI3 summary scores in 2005, see cor814 in Appendix M. For an overview of the Health Utilities Index Mark 3, click here. kx203lre: Participant s Health Utilities Index Mark 3 vision level. Source variables: kx301re-kx305re - 7 -

8 Inappropriate (Did Not Validly Answer All Applicable Vision Questions) Able to see well enough to read ordinary newsprint and recognize a friend on the other side of the street, without glasses or contact lenses. Able to see well enough to read ordinary newsprint and recognize a friend on the other side of the street, but with glasses. Able to read ordinary newsprint with or without glasses but unable to recognize a friend on the other side of the street, even with glasses. Able to recognize a friend on the other side of the street with or without glasses but unable to read ordinary newsprint, even with glasses. Unable to read ordinary newsprint and unable to recognize a friend on the other side of the street, even with glasses Unable to see at all Note: This variable provides a summary measure spanning the past four weeks, as based on the participant s self-report. A level was only computed for participants who validly answered all of the vision questions applicable to them (i.e. they never responded with "don t know" or refused to answer). See HUI3 Documentation for more information on the index to which this measure contributes. kx203sre: Participant s Health Utilities Index Mark 3 vision score. Source variables: kx203lre - 8 -

9 Inappropriate (kx203lre < 1) SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL Note: This variable provides a summary measure spanning the past four weeks, as based on the participant s self-report; scores were assigned solely on the basis of the participant s computed vision level (see KX203LRE). For more information on scoring, as well as the index to which this measure contributes, see HUI3 Documentation. kx204lre: Participant s Health Utilities Index Mark 3 hearing level. Source variables: kx306re-kx309re - 9 -

10 Inappropriate (Did Not Validly Answer All Applicable Hearing Questions) Able to hear what is said in a group conversation with at least three other people, without a hearing aid. Able to hear what is said in a conversation with one other person in a quiet room without a hearing aid, but requires a hearing aid to hear what is said in a group conversation with at least three other people. Able to hear what is said in a conversation with one other person in a quiet room with a hearing aid, and able to hear what is said in a group conversation with at least three other people, with a hearing aid. Able to hear what is said in a conversation with one other person in a quiet room, without a hearing aid, but unable to hear what is said in a group conversation with at least three other people even with a hearing aid. Able to hear what is said in a conversation with one other person in a quiet room with a hearing aid, but unable to hear what is said in a group conversation with at least three other people even with a hearing aid Unable to hear at all Note: This variable provides a summary measure spanning the past four weeks, as based on the participant s self-report. A level was only computed for participants who validly answered all of the hearing questions applicable to them (i.e. they never responded with "don t know" or refused to answer). See HUI3 Documentation for more information on the index to which this measure contributes. kx204sre: Participant s Health Utilities Index Mark 3 hearing score. Source variables: kx204lre

11 Inappropriate (kx204lre < 1) SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL Note: This variable provides a summary measure spanning the past four weeks, as based on the participant s self-report; scores were assigned solely on the basis of the participant s computed hearing level (see KX204LRE). For more information on scoring, as well as the index to which this measure contributes, see HUI3 Documentation. kx205lre: Participant s Health Utilities Index Mark 3 speech level. Source variables: kx310re-kx314re

12 Inappropriate (Did Not Validly Answer All Applicable Speech Questions) Able to be understood completely when speaking with strangers or friends. Able to be understood partially when speaking with strangers but able to be understood completely when speaking with people who know me well. Able to be understood partially when speaking with strangers or people who know me well. Unable to be understood when speaking with strangers but able to be understood partially by people who know me well. Unable to be understood when speaking to other people (or unable to speak at all) Note: This variable provides a summary measure spanning the past four weeks, as based on the participant s self-report. A level was only computed for participants who validly answered all of the speech questions applicable to them (i.e. they never responded with "don t know" or refused to answer). See HUI3 Documentation for more information on the index to which this measure contributes. kx205sre: Participant s Health Utilities Index Mark 3 speech score. Source variables: kx205lre

13 Inappropriate (kx205lre < 1) SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL Note: This variable provides a summary measure spanning the past four weeks, as based on the participant s self-report; scores were assigned solely on the basis of the participant s computed speech level (see KX205LRE). For more information on scoring, as well as the index to which this measure contributes, see HUI3 Documentation. kx206lre: Participant s Health Utilities Index Mark 3 ambulation level. Source variables: kx315re-kx322re

14 Inappropriate (Did Not Validly Answer All Applicable Ambulation Questions) Able to walk around the neighbourhood without difficulty, and without walking equipment. Able to walk around the neighbourhood with difficulty but does not require walking equipment or the help of another person. Able to walk around the neighbourhood with walking equipment, but without the help of another person. Able to walk only short distances with walking equipment, and requires a wheelchair to get around the neighbourhood. Unable to walk alone, even with walking equipment; able to walk short distances with the help of another person, and requires a wheelchair to get around the neighbourhood Cannot walk at all Note: This variable provides a summary measure spanning the past four weeks, as based on the participant s self-report. A level was only computed for participants who validly answered all of the ambulation questions applicable to them (i.e. they never responded with "don t know" or refused to answer). See HUI3 Documentation for more information on the index to which this measure contributes. kx206sre: Participant s Health Utilities Index Mark 3 ambulation score. Source variables: kx206lre

15 Inappropriate (kx206lre < 1) SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL Note: This variable provides a summary measure spanning the past four weeks, as based on the participant s self-report; scores were assigned solely on the basis of the participant s computed ambulation level (see KX206LRE). For more information on scoring, as well as the index to which this measure contributes, see HUI3 Documentation. kx207lre: Participant s Health Utilities Index Mark 3 dexterity level. Source variables: kx323re-kx326re

16 Inappropriate (Did Not Validly Answer All Applicable Dexterity Questions) Full use of two hands and ten fingers Limitations in the use of hands or fingers, but does not require special tools or help of another person. Limitations in the use of hands or fingers, but is independent with use of special tools (does not require the help of another person). Limitations in the use of hands or fingers, requires the help of another person for some tasks (not independent even with use of special tools). Limitations in use of hands or fingers, requires the help of another person for most tasks (not independent even with use of special tools). Limitations in use of hands or fingers, requires the help of another person for all tasks (not independent even with use of special tools) Note: This variable provides a summary measure spanning the past four weeks, as based on the participant s self-report. A level was only computed for participants who validly answered all of the dexterity questions applicable to them (i.e. they never responded with "don t know" or refused to answer). See HUI3 Documentation for more information on the index to which this measure contributes. kx207sre: Participant s Health Utilities Index Mark 3 dexterity score. Source variables: kx207lre

17 Inappropriate (kx207lre < 1) SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL Note: This variable provides a summary measure spanning the past four weeks, as based on the participant s self-report; scores were assigned solely on the basis of the participant s computed dexterity level (see KX207LRE). For more information on scoring, as well as the index to which this measure contributes, see HUI3 Documentation. kx208lre: Participant s Health Utilities Index Mark 3 emotion level. Source variables: kx330re-kx332re Inappropriate (Did Not Validly Answer All Applicable Emotion Questions) Happy and interested in life Somewhat happy Somewhat unhappy Very unhappy So unhappy that life is not worthwhile

18 Note: This variable provides a summary measure spanning the past four weeks, as based on the participant s self-report. A level was only computed for participants who validly answered all of the emotion questions applicable to them (i.e. they never responded with "don t know" or refused to answer). See HUI3 Documentation for more information on the index to which this measure contributes. kx208sre: Participant s Health Utilities Index Mark 3 emotion score. Source variables: kx208lre Inappropriate (kx208lre < 1) SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL Note: This variable provides a summary measure spanning the past four weeks, as based on the participant s self-report; scores were assigned solely on the basis of the participant s computed emotion level (see KX208LRE). For more information on scoring, as well as the index to which this measure contributes, see HUI3 Documentation. kx209lre: Participant s Health Utilities Index Mark 3 cognition level. Source variables: kx336re, kx337re

19 Inappropriate (Did Not Validly Answer All Applicable Cognition Questions) Able to remember most things, think clearly and solve day to day problems. Able to remember most things, but have a little difficulty when trying to think and solve day to day problems. Somewhat forgetful, but able to think clearly and solve day to day problems. Somewhat forgetful, and have a little difficulty when trying to think or solve day to day problems. Very forgetful, and have great difficulty when trying to think or solve day to day problems. Unable to remember anything at all, and unable to think or solve day to day problems Note: This variable provides a summary measure spanning the past four weeks, as based on the participant s self-report. A level was only computed for participants who validly answered all of the cognition questions applicable to them (i.e. they never responded with "don t know" or refused to answer). See HUI3 Documentation for more information on the index to which this measure contributes. kx209sre: Participant s Health Utilities Index Mark 3 cognition score. Source variables: kx209lre

20 Inappropriate (kx209lre < 1) SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL Note: This variable provides a summary measure spanning the past four weeks, as based on the participant s self-report; scores were assigned solely on the basis of the participant s computed cognition level (see KX209LRE). For more information on scoring, as well as the index to which this measure contributes, see HUI3 Documentation. Note: The inversion of cognition levels #2 and #3 is not a mistake; level #3 scores higher than level #2. kx210lre: Participant s Health Utilities Index Mark 3 pain level. Source variables: kx338re, kx339re Inappropriate (Did Not Validly Answer All Applicable Pain Questions) Free of pain and discomfort Mild to moderate pain that prevents no activities Moderate pain that prevents a few activities Moderate to severe pain that prevents some activities Severe pain that prevents most activities

21 Note: This variable provides a summary measure spanning the past four weeks, as based on the participant s self-report. A level was only computed for participants who validly answered all of the pain questions applicable to them (i.e. they never responded with "don t know" or refused to answer). See HUI3 Documentation for more information on the index to which this measure contributes. kx210sre: Participant s Health Utilities Index Mark 3 pain score. Source variables: kx210lre Inappropriate (kx210lre < 1) SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL SCORE CORRESPONDING TO LEVEL Note: This variable provides a summary measure spanning the past four weeks, as based on the participant s self-report; scores were assigned solely on the basis of the participant s computed pain level (see KX210LRE). For more information on scoring, as well as the index to which this measure contributes, see HUI3 Documentation. kx301re: During the past four weeks, has Participant been able to see well enough to read ordinary newsprint without glasses or contact lenses? Source variables: y_x2, inmosaq, y_health10nw

22 9 LEFT BLANK ON SAQ DON T KNOW YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs. kx302re: During the past four weeks, has Participant been able to see well enough to read ordinary newsprint with glasses or contact lenses? Source variables: kx301re, y_x3, inmosaq, y_health11nw 9 LEFT BLANK ON SAQ (KX301RE = 1) DON T KNOW / DIDN T WEAR GLASSES OR CONTACT LENSES YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs. kx303re: During the past four weeks, has Participant been able to see at all? Source variables: kx302re, y_x4, inmosaq, y_health12nw

23 9 LEFT BLANK ON SAQ (KX301RE = 1 KX302RE = 1) YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs. kx304re: During the past four weeks, has Participant been able to see well enough to recognize a friend on the other side of the street without glasses or contact lenses? Source variables: kx303re, y_x5, inmosaq, y_health13nw 9 LEFT BLANK ON SAQ (KX303RE = -3, -1, OR 2) DON T KNOW YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs. kx305re: During the past four weeks, has Participant been able to see well enough to recognize a friend on the other side of the street with glasses or contact lenses?

24 Source variables: kx304re, y_x6, inmosaq, y_health14nw 9 LEFT BLANK ON SAQ (KX303RE = -3, -1, OR 2 KX304RE = 1) DON T KNOW / DIDN T WEAR GLASSES OR CONTACT LENSES YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs. kx306re: During the past four weeks, has Participant been able to hear what is said while in a group conversation with at least three other people without a hearing aid? Source variables: y_x7, inmosaq, y_health15nw 9 LEFT BLANK ON SAQ DON T KNOW YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs

25 kx307re: During the past four weeks, has Participant been able to hear what is said while in a group conversation with at least three other people with a hearing aid? Source variables: kx306re, y_x8, inmosaq, y_health16nw 9 LEFT BLANK ON SAQ (KX306RE = 1) DON T KNOW / DID NOT WEAR HEARING AID YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs. kx307rea: During the past four weeks, has Participant been able to hear at all? Source variables: kx307re, y_x9, inmosaq, y_health17nw 9 LEFT BLANK ON SAQ (KX306RE = 1 KX307RE = 1) YES Note: See HUI3 Documentation for more information on the index to which this item belongs

26 kx308re: During the past four weeks, has Participant been able to hear what is said in a conversation with one other person in a quiet room without a hearing aid? Source variables: kx307rea, y_x10, inmosaq, y_health18nw (KX306RE = 1 KX307REA = 2) DON T KNOW YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs. kx309re: During the past four weeks, has Participant been able to hear what is said in a conversation with one other person in a quiet room with a hearing aid? Source variables: kx308re, y_x11, inmosaq, y_health19nw (KX306RE = 1 KX307REA = 2 KX308RE = 1) DON T KNOW / DID NOT WEAR HEARING AID YES NO

27 Note: See HUI3 Documentation for more information on the index to which this item belongs. kx310re: During the past four weeks, have people who do not know Participant understood Participant completely when they speak? Source variables: y_x12, inmosaq, y_health20nw 9 LEFT BLANK ON SAQ REFUSED DON T KNOW YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs. kx311re: During the past four weeks, have people who do not know Participant understood Participant partially when they speak? Source variables: kx310re, y_x13, inmosaq, y_health21nw -3 REFUSED (KX310RE = 1) DON T KNOW YES NO

28 Note: See HUI3 Documentation for more information on the index to which this item belongs. kx312re: During the past four weeks, have people who know Participant well understood Participant completely when they speak? Source variables: kx310re, y_x14, inmosaq, y_health22nw -3 REFUSED (KX310RE = 1) DON T KNOW YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs. kx313re: During the past four weeks, have people who know Participant well understood Participant partially when they speak? Source variables: kx312re, y_x15, inmosaq, y_health23nw -3 REFUSED (KX310RE = 1 KX312RE = 1) DON T KNOW YES NO

29 Note: See HUI3 Documentation for more information on the index to which this item belongs. kx314re: During the past four weeks, has Participant been able to speak at all? Source variables: kx313re, y_x16, inmosaq, y_health24nw -3 REFUSED (KX310RE = 1 KX312RE = 1 KX313RE = 1) DON T KNOW YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs. kx315re: During the past four weeks, has Participant been able to bend, lift, jump and run without difficulty and without help or equipment of any kind? Source variables: y_x17, inmosaq, y_health25nw

30 9 LEFT BLANK ON SAQ REFUSED DON T KNOW YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs. kx316re: During the past four weeks, has Participant been able to walk around the neighborhood without difficulty and without help or equipment of any kind? Source variables: kx315re, y_x18, inmosaq, y_health26nw (KX315RE = 1) DON T KNOW YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs. kx317re: During the past four weeks, has Participant been able to walk around the neighborhood with difficulty but without help or equipment of any kind?

31 Source variables: kx316re, y_x19, inmosaq, y_health27nw (KX315RE = 1 KX316RE = 1) DON T KNOW YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs. kx318re: During the past four weeks, has Participant been able to walk at all? Source variables: kx317re, y_x20, inmosaq, y_health28nw (KX315RE = 1 KX316RE = 1 KX317RE = 1) DON T KNOW YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs

32 kx319re: During the past four weeks, has Participant needed mechanical support, such as braces or a cane or crutches, to be able to walk around the neighborhood? Source variables: kx318re, y_x21, inmosaq, y_health29nw 9 LEFT BLANK ON SAQ REFUSED (KX315RE = 1 KX316RE = 1 KX317RE = 1 KX318RE = 2) DON T KNOW YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs. kx320re: During the past four weeks, has Participant needed the help of another person to walk? Source variables: kx318re, y_x22, inmosaq, y_health30nw

33 9 LEFT BLANK ON SAQ (KX315RE = 1 KX316RE = 1 KX317RE = 1 KX318RE = 2) YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs. kx321re: During the past four weeks, has Participant needed a wheelchair to get around the neighborhood? Source variables: kx317re, y_x23, inmosaq, y_health31nw (KX315RE = 1 KX316RE = 1 KX317RE = 1) DON T KNOW YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs. kx322re: During the past four weeks, has Participant needed the help of another person to get around in the wheelchair? Source variables: kx321re, y_x24, inmosaq, y_health32nw

34 (KX315RE = 1 KX316RE = 1 KX317RE = 1 KX321RE = 2) DON T KNOW YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs. kx323re: During the past four weeks, has Participant had full use of both hands and all ten fingers? Source variables: y_x25, inmosaq, y_health33nw 9 LEFT BLANK ON SAQ YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs. kx324re: During the past four weeks, has Participant needed the help of another person because of limitations in the use of their hands or fingers? Source variables: kx323re, y_x26, inmosaq, y_health34nw

35 9 LEFT BLANK ON SAQ (KX323RE = 1) YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs. kx325re: During the past four weeks, has Participant needed the help of another person with some tasks, most tasks, or all tasks due to limitations in the use of their hands or fingers? Source variables: kx324re, y_x27, inmosaq, y_health35nw 9 LEFT BLANK ON MOSAQ Inappropriate (kx323re = 1 kx324re = 2) SOME TASKS MOST TASKS ALL TASKS Note: See HUI3 Documentation for more information on the index to which this item belongs. kx326re: During the past four weeks, has Participant needed special equipment, for example, special tools to help with dressing or eating, because of limitations in the use of their hands or fingers?

36 Source variables: kx323re, y_x28, inmosaq, y_health36nw (KX323RE = 1) YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs. kx327re: During the past four weeks, has Participant been able to eat, bathe, dress and use the toilet without difficulty? Source variables: y_x29, inmosaq, y_health37nw 1 YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs. kx328re: During the past four weeks, has Participant needed the help of another person to eat, bathe, dress or use the toilet? Source variables: kx327re, y_x30, inmosaq, y_health38nw

37 (KX327RE = 1) YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs. kx329re: During the past four weeks, has Participant needed special equipment or tools to eat, bathe, dress or use the toilet? Source variables: kx327re, y_x31, inmosaq, y_health39nw (KX327RE = 1) YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs. kx330re: During the past four weeks, has Participant been feeling happy or unhappy? Source variables: y_x32, inmosaq, y_health40nw

38 9 LEFT BLANK ON MOSAQ REFUSED DON T KNOW HAPPY UNHAPPY Note: See HUI3 Documentation for more information on the index to which this item belongs. kx331re: During the past four weeks, would Participant describe self as having felt happy and interested in life, or somewhat happy? Source variables: kx330re, y_x33, inmosaq, y_health41nw 9 LEFT BLANK ON MOSAQ REFUSED Inappropriate (kx330re = 2) DON T KNOW HAPPY AND INTERESTED IN LIFE SOMEWHAT HAPPY Note: See HUI3 Documentation for more information on the index to which this item belongs. kx332re: During the past four weeks, would Participant describe self as having felt somewhat unhappy, very unhappy, or so unhappy that life was not worthwhile?

39 Source variables: kx330re, kx331re, y_x34, inmosaq, y_health42nw 9 LEFT BLANK ON MOSAQ REFUSED Inappropriate (kx331re = 1 or 2) DON T KNOW SOMEWHAT UNHAPPY VERY UNHAPPY SO UNHAPPY THAT LIFE IS NOT WORTHWHILE Note: See HUI3 Documentation for more information on the index to which this item belongs. kx333re: During the past four weeks, did Participant ever feel fretful, angry, irritable, anxious or depressed? Source variables: y_x35, inmosaq, y_health43nw -3 REFUSED DON T KNOW YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs

40 kx334re: During the past four weeks, how often did Participant feel fretful, angry, irritable, anxious or depressed? Source variables: kx333re, y_x36, inmosaq, y_health44nw 9 LEFT BLANK ON MOSAQ Inappropriate (kx333re!= 1) DON T KNOW RARELY OCCASIONALLY OFTEN ALMOST ALWAYS Note: See HUI3 Documentation for more information on the index to which this item belongs. kx335re: During the past four weeks, did Participant feel extremely fretful, angry, irritable, anxious or depressed, to the point of needing professional help? Source variables: kx333re, y_x37, inmosaq, y_health45nw

41 9 LEFT BLANK ON SAQ REFUSED (KX333RE!= 1) DON T KNOW YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs. kx336re: During the past four weeks, how would Participant describe their ability to remember things? Source variables: y_x38, inmosaq, y_health46nw 9 LEFT BLANK ON MOSAQ DON T KNOW ABLE TO REMEMBER MOST THINGS SOMEWHAT FORGETFUL VERY FORGETFUL UNABLE TO REMEMBER ANYTHING AT ALL Note: See HUI3 Documentation for more information on the index to which this item belongs

42 kx337re: During the past four weeks, how would Participant describe their ability to think and solve day to day problems? Source variables: y_x39, inmosaq, y_health47nw -3 REFUSED DON T KNOW ABLE TO THINK CLEARLY AND SOLVE PROBLEMS HAD A LITTLE DIFFICULTY HAD SOME DIFFICULTY HAD A GREAT DEAL OF DIFFICULTY UNABLE TO THINK OR SOLVE PROBLEMS Note: See HUI3 Documentation for more information on the index to which this item belongs. kx338re: During the past four weeks, has Participant had any trouble with pain or discomfort? Source variables: y_x40, inmosaq, y_health48nw 9 LEFT BLANK ON SAQ YES NO Note: See HUI3 Documentation for more information on the index to which this item belongs

43 kx339re: During the past four weeks, how many of Participant s activities were limited by pain or discomfort? Source variables: kx338re, y_x41, inmosaq, y_health49nw 9 LEFT BLANK ON MOSAQ Inappropriate (kx338re = 2) DON T KNOW NONE A FEW SOME MOST ALL Note: See HUI3 Documentation for more information on the index to which this item belongs. kx341re: Has a doctor ever told Participant they have high blood pressure or hypertension? Source variables: y_x1a2-43 -

44 -3 REFUSED DON T KNOW YES NO kx341rea: Year Participant was first diagnosed with high blood pressure or hypertension. Source variables: kx341re, y_x1a2a -4 NOT ASCERTAINED (KX341RE!= 1) DON T KNOW

45 kx341reb: Extent to which Participant s high blood pressure or hypertension currently interferes with what they like to do. Source variables: kx341re, y_x1a3b -4 NOT ASCERTAINED (KX341RE!= 1) DON T KNOW NOT AT ALL A LITTLE SOME QUITE A BIT A GREAT DEAL kx346re: Has a doctor ever told Participant they have high blood sugar? Source variables: y_x1a3g -3 REFUSED DON T KNOW YES NO

46 kx347re: Year Participant was first diagnosed with high blood sugar. Source variables: kx346re, y_x1a3h -4 NOT ASCERTAINED (KX346RE!= 1) DON T KNOW kx347reb: Extent to which Participant s high blood sugar currently interferes with what they like to do. Source variables: kx346re, y_x1a3s

47 -4 NOT ASCERTAINED (KX346RE!= 1) NOT AT ALL A LITTLE SOME QUITE A BIT A GREAT DEAL kx342re: Has a doctor ever told Participant they have diabetes? Source variables: y_x1a3-3 REFUSED DON T KNOW YES NO kx343re: Year Participant was first diagnosed with diabetes. Source variables: kx342re, y_x1a3a

48 -4 NOT ASCERTAINED (KX342RE!= 1) DON T KNOW kx343reb: Extent to which Participant s diabetes currently interferes with what they like to do. Source variables: kx342re, y_x1aa2-48 -

49 -4 NOT ASCERTAINED REFUSED (KX342RE!= 1) DON T KNOW NOT AT ALL A LITTLE SOME QUITE A BIT A GREAT DEAL kx344re: In order to treat or control their diabetes, is Participant currently taking medication that they swallow? Source variables: kx342re, y_x1a3e -4 NOT ASCERTAINED (KX342RE!= 1) YES NO

50 kx345re: In order to treat or control their diabetes, is Participant currently using insulin shots or a pump? Source variables: kx342re, y_x1a3f -4 NOT ASCERTAINED (KX342RE!= 1) YES NO kx363re: Type of diabetes Participant was diagnosed with. Source variables: kx342re, y_x1aa1-50 -

51 -4 NOT ASCERTAINED Inappropriate (kx342re!= 1) DON T KNOW TYPE TYPE BORDERLINE PRE-DIABETES GESTATIONAL OTHER kx365rea: Does Participant manage their diabetes by testing their blood sugar at home? Source variables: kx342re, y_x1aa3_a -4 NOT ASCERTAINED (KX342RE!= 1) YES NO

52 kx365reb: Does Participant manage their diabetes by using diet control? Source variables: kx342re, y_x1aa3_b -4 NOT ASCERTAINED (KX342RE!= 1) DON T KNOW YES NO kx365rec: Does Participant manage their diabetes by exercising regularly? Source variables: kx342re, y_x1aa3_c -4 NOT ASCERTAINED (KX342RE!= 1) DON T KNOW YES NO

53 kx365red: Does Participant manage their diabetes by checking for sores or irritation on their feet? Source variables: kx342re, y_x1aa3_d -4 NOT ASCERTAINED (KX342RE!= 1) YES NO kx365ree: Does Participant manage their diabetes by taking aspirin regularly? Source variables: kx342re, y_x1aa3_e -4 NOT ASCERTAINED (KX342RE!= 1) YES NO

54 kx365ref: Does Participant manage their diabetes by measuring their blood pressure at home? Source variables: kx342re, y_x1aa3_f -4 NOT ASCERTAINED (KX342RE!= 1) YES NO kx366rea: Numeric component for how often Participant manages diabetes by testing their blood sugar. Source variables: kx342re, kx365rea, y_x1aa6_a

55 (KX365REA!= 1) DON T KNOW kx366reb: Units corresponding to numeric component for how often Participant manages diabetes by testing their blood sugar. Source variables: kx342re, kx365rea, kx366rea, y_x1aa6_b

56 Inappropriate (kx366rea < 0) TIMES PER DAY TIMES PER WEEK TIMES PER MONTH kx367rea: Numeric component for how often Participant manages diabetes by checking for sores or irritation on their feet. Source variables: kx342re, kx365red, y_x1aa7_a (KX365RED!= 1) DON T KNOW

57 kx367reb: Units corresponding to numeric component for how often Participant manages diabetes by checking for sores or irritation on their feet. Source variables: kx342re, kx365red, kx367rea, y_x1aa7_b Inappropriate (kx367rea < 0) TIMES PER DAY TIMES PER WEEK TIMES PER MONTH kx368rea: Numeric component for how often Participant manages diabetes by taking pills. Source variables: kx342re, kx365ree, y_x1aa5_a

58 (KX365REE!= 1) kx368reb: Units corresponding to numeric component for how often Participant manages diabetes by taking pills. Source variables: kx342re, kx365ree, kx368rea, y_x1aa5_b Inappropriate (kx368rea < 0) TIMES PER DAY TIMES PER WEEK TIMES PER MONTH

59 kx369rea: Numeric component for how often Participant manages diabetes by taking insulin. Source variables: kx342re, y_x1aa4_a -7 USES INSULIN PUMP NOT ASCERTAINED (KX342RE!= 1) DON T KNOW Note: Participants who reported using an insulin pump were assigned values of "-7." kx369reb: Units corresponding to numeric component for how often Participant manages diabetes by taking insulin. Source variables: kx342re, kx369rea, y_x1aa4_b

60 Inappropriate (kx369rea < 0) TIMES PER DAY TIMES PER MONTH kx370re: In the past year, has a doctor examined Participant s feet for sores or irritations? Source variables: kx342re, y_x1ab1-4 NOT ASCERTAINED (KX342RE!= 1) DON T KNOW YES NO kx371re: Number of times Participant has seen a doctor or other health care professional for diabetes in the past year. Source variables: kx342re, y_x1ab2-60 -

61 -4 NOT ASCERTAINED Inappropriate (kx342re!= 1) DON T KNOW NONE

62 kx372re: Has Participant s doctor or other health care professional talked to them about a treatment plan for managing diabetes? Source variables: kx342re, y_x1ab3-4 NOT ASCERTAINED (KX342RE!= 1) YES NO kx373re: How often would Participant say that their blood sugar is well controlled? Source variables: kx342re, y_x1ab4-62 -

63 7 NOT ASKED OF PROXY NOT ASCERTAINED Inappropriate (kx342re!= 1) DON T KNOW ALL OF THE TIME MOST OF THE TIME SOME OF THE TIME A LITTLE OF THE TIME NONE OF THE TIME Note: Participants for whom this variable was applicable were informed, "by well controlled we mean a recent hemoglobin A one C result of 7.5 or less, or an average fasting blood test of 140 or less." kx374re: Does Participant have any problems with their feet as a result of their diabetes? Source variables: kx342re, y_x1ab5-63 -