1. Demonstrate how each of the question sets have been applied in a variety of settings and across the clinical pathway:

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1 Item b NHS GRAMPIAN CANCER PATIENT EXPERIENCE QPI REPORTING TEMPLATE of papers Tumour Type: Colorectal. Demonstrate how each of the question sets have been applied in a variety of settings and across the clinical pathway: Patients were asked to complete a questionnaire about their oncology clinic appointment. The aim of the questionnaire was to identify how the patient felt about the care that they received that day. Responses were given on a scale from Strongly Agree to Strongly Disagree. Any additional comments were also recorded.. Provide an overview of key findings: Questionnaire One Results 9 responses were received for questionnaire one. Looking at the results of the questionnaire, the overall experience of attending the colorectal cancer clinic was positive, with the each question achieving a majority score of Strongly Agree. The responses are outlined in Table below. In question one, each respondent felt that the healthcare professional introduced themselves to the patient. respondents strongly agreed with this statement with the remaining respondents agreeing. The majority of respondents also felt that able to hear the words being used by the health care professional, with respondents strongly agreeing with this statement and a further agreeing. One respondent disagreed with this statement indicating that it was not an English doctor so it was a bit difficult to understand the accent. In regards to being told everything that they wanted to know about both their condition and their treatment, respondents felt this was a positive aspect of their visit to the clinic. Looking at condition (question ), we can see that respondents strongly agreed with this statement and a further agreed, whereas in regards to treatment (question ), respondents strongly agreed and a further agreed. These statements are backed up by the responses to question which helps to identify whether the healthcare professional helped the patient understand their condition and treatment respondents strongly agreed with this statement while the remaining repondents agreed. Although the outcome is still positive, in regards to being given advice on how to manage their condition at home (question 8), there was an increase in number of respondents only agreeing with this statement. respondents agreed whereas strongly agreed. There were also that did not respond to this question. This trend can also be seen in question in regards to healthcare professionals from the hospital and the respondent s GP having a common understanding of their condition and treatment plans in order to avoid repetition. Here, we can see that respondents strongly agreed with this statement, whereas a further 8 respondents agreed. Looking at the table below, we can also identify that very positive feedback was given in regards to the respondent s questions being answered clearly, the respondent having enough time with the

2 healthcare professional and being told who to contact with any further questions. In each of these statements, respondents strongly agreed and the remaining agreed. In regards to having a family member, carer or friend involved in the discussions (question ), again we can see a positive response. respondents strongly agreed with this statement and a further agreed. There were that did not respond to this question with each respondent stating that this question was not applicable to them. The majority of respondents also felt that the healthcare professional was open and honest and that any information discussed was done in a sensitive manner. In each instance, respondents strongly agreed with these statements and the remaining respondents agreed. However, in regards to talking about things that mattered to the patient (e.g. emotions, money or work concerns) we can see that only respondents strongly agreed with this statement whereas agreed. There was also no response. Finally, we can see that each respondent felt they had enough privacy to discuss their health care with the healthcare professional. respondents strongly agreed that this was the case with the remaining respondents agreeing. Although not directly related to any question in particular, one respondent commented that over a three month period of treatment and care at ARI, I have nothing but compliments for the staff and consultants at all levels who deserve praise. I include in these remarks the admin members of staff who were always most pleasant to approach. Well done ARI.

3 Questionnaire One Responses The health care professional introduced themselves to me.. I was able to hear the words being used by the health care professional.. I was told all I wanted to know about my condition.. I was told all I wanted to know about my treatment.. The health care professional helped me understand my condition and treatment. Strongly Agree Agree Disagree Strongly Disagree. My worries and fears or concerns were listened to today. No Response. The health care professional involved me in discussions about my care. 8. I was given advice on ways to manage my condition at home. 9. My questions were answered in a way I could easily understand.

4 Questionnaire One Responses (Continued) I had enough time with the health care professional.. I know who to contact if I have any further questions.. Health care professionals gave me consistent information about my condition.. Health care professionals from the hospital and my GP had a common understanding of my condition and treatment plans so that I. My family member, carer or friend were involved in discussions with health care professionals as much as I wanted them to be.. Health care professionals were open and honest. 8 Strongly Agree Agree Disagree Strongly Disagree No Response. I feel any information discussed was done in a sensitive manner.. I felt comfortable to talk about things that mattered to me, e.g. money or work concerns, my emotions. 8. I had enough privacy to discuss my health care with the health care professional.

5 Questionnaire Two Results responses were received for questionnaire two. Looking at question, respondents felt positively that they received information to help them understand what would happen at the appointment. 9 respondents strongly agreed with this whereas a further agreed. There was no response. There was a similar response to question regarding being given enough information about the condition. Again, 0 respondents strongly agreed with this statement and the remaining respondents agreed. We can also see a positive response in regards to being given enough information and supporting materials on treatments. 0 respondents strongly agreed with this statement with a further respondents agreeing. respondent disagreed with this statement. Looking at the results, we can also identify that the information given was easy for the patient to understand. This was examined in question. We can see that 0 respondents strongly agreed that this was the case with a further respondents agreeing. respondent disagreed with this statement however, stating that [the health care professional] spoke too fast. Looking at question, we can see that respondents strongly agreed that the healthcare professional explained fully everything that the patient wanted to know about their condition, treatment and care. A further respondent agreed with this statement while the remaining respondents provided no response. In regards to being offered information on how to access other support services, we can see that this may not have been relevant to all of those involved. Although respondents strongly agreed with this statement, respondent agreed, disagreed and there was no responses. comments were also provided stating that it was not required and not applicable. The questionnaire asked if the patient knew who to contact out of hours if they are worried about their condition. From the results, respondents strongly agreed that they knew who to contact out of hours, with a further respondents agreeing. Again, there were no responses to this statement. Alternatively, respondents stated that they strongly agreed that they knew who to contact if they needed more information about their condition or treatment with a further respondents agreeing. There were no responses to this question. We can see slightly different results when looking at whether the patient was given details of other approved sources of information. Only respondents strongly agreed with this statement with a further respondents agreeing. respondent also disagreed with this statement and a further did not provide a response. Looking at questions, again we can see a positive response. For each of these questions (which include feeling included in discussions about care, having the health care professional explain the risk and benefits of treatment in an understandable way and having the patients views taken into account by the health care professional), respondents strongly agreed with each of these statements with a further respondents agreeing. In each instance, there were a further no responses.

6 In regards to feeling that the healthcare professional knew enough about the case to provide good clinical care, this received a positive response. respondents strongly agreed that this was the case with respondent agreeing. respondent disagreed with this statement. This figure is similar to that of question where the patient was asked if they felt their personal circumstances were taken into consideration during the consultation. respondents strongly agreed that this was the case with the remaining respondents agreeing. Finally, when asked if a family member, carer or friend was involved in decision with the healthcare professionals as much as the patient wanted them to be, respondents strongly agreed with this statement with a further respondents agreeing. There were no responses with two comments stating that this was either not applicable or not relevant. One respondent also provided a comment on the treatment they received as a whole. The comment read: I would like to take this opportunity to say the treatment and care I received during and after my treatment was first class and could not fault anything.

7 Questionnaire Two Responses I received information to help me understand what would happen at today s appointment.. I was given enough information about my condition I was given enough information and supporting materials on my treatment, including information about possible side effects. 0. The information I was given today was easy to understand. 0 Strongly Agree. I was offered information in a format that suited me, e.g. large print, Braille, another language etc.. The health care professional explained fully everything I wanted to know about my condition, treatment and care.. I was offered information on how to access other support services, e.g. financial advice or support groups. 8. I felt able to ask about the results of any tests or ongoing treatment. 9. I know who to contact out of hours if I m worried about my condition. 0. I know who to contact if I need more information about my condition or treatment. Agree Disagree Strongly Disagree No Response

8 Questionnaire Two Responses (Continued) I have been given details of other approved sources of information.. I felt included in discussions about my treatment and care.. The health care professional explained the risks and benefits of treatment(s) in an understandable way.. I was given enough information to help me make an informed choice.. My views were taken into account by the health care professional.. I had enough time to reach my decision.. I was involved in decisions as much as I wanted to be. 8. I was told about possible side effects and how to manage them. 9. I felt that the health care professional I saw today knew enough about my case to provide good clinical care. Strongly Agree Agree Disagree Strongly Disagree No Response 0. I feel my personal circumstances where taken into consideration.. My family member, carer or friend were involved in decisions with health care professionals as much as I wanted them to be. 8

9 . Provide evidence of activities undertaken to improve patient experience including patients involvement in identifying and prioritising actions for improvement: As the feedback detailed in this report is largely positive and from a small sample size, there have not been any actions identified as necessary at this time but the aim going forward is to maintain these standards and continue positive results at the next cycle, potentially extending to a wider sample of Grampian colorectal cancer patients by incorporating other specialties within the pathway.. Demonstrate how patient experience has improved: This section will be completed fully upon retesting at the next three year QPI reporting cycle and the results detailed in this report will be used as a benchmark. Initial contact for queries: Jenna Bews, MCN Support Manager, NHS Grampian jenna.bews@nhs.net 9