Una mirada bioética a los cuidados paliativos: cultura, humanización y espiritualidad en la atención de enfermos
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1 5 SIMPOSIO DE INTERDISCIPLINARIEDAD EN BIOÉTICA Una mirada bioética a los cuidados paliativos: cultura, humanización y espiritualidad en la atención de enfermos Viernes 15 de junio de 2018
2 PAL-LIFE Project An International Advisory Working Group on Diffusion and Development of Palliative Care in the World Nunziata Comoretto, MD, PhD, LRS Pontifical Academy for Life Scientific Section (Vatican City)
3 Outline Pontificia Academia pro Vita (PAV) Origin & mission The PAL-LIFE Project Background Aim Methods Strategy 3
4 PAV Origin & mission Established by Pope John Paul II in 1994, for the promotion and defense of the value of human life and of the dignity of the person. Academic Task Social Task Communication Task More on: 4
5 The PAL-LIFE Project - The background Magisterium of the Catholic Church has intervened several times in recent years to emphasize the dignity and preciousness of each human being, even of those who are afflicted with a serious or terminal illness. Special appreciation is shown for the approach offered by PC. «palliative care is a special form of disinterested charity. As such it should be encouraged» (Catechism of the Catholic Church, n. 2279)
6 The PAL-LIFE Project - The background «Here it is necessary to stress once again the need for more palliative care centres which provide integral care, offering the sick the human assistance and spiritual accompaniment they need. This is a right belonging to every human being, one which we must all be committed to defend» (Pope Benedict XVI, Message for the 15 th World Day of the Sick, 11 February 2007)
7 The PAL-LIFE Project - Two recent PAV General Assemblies Aging and Disability (2014) Assisting the Elderly and Palliative Care (2015)
8 The PAL-LIFE Project - The background «Palliative care is an expression of the truly human attitude of taking care of one another, especially of those who suffer. [ ] I encourage professionals and students to specialize in this type of assistance which is no less valuable for the fact that it is not life-saving. Palliative care accomplishes something equally important: it values the person». (Pope Francis, Message to the XXI General Assembly of PAV, 5 March 2015)
9 The PAL-LIFE Project - The aim To stimulate the social and cultural attention on the reality of PC and to promote, at different levels, the dialogue and cooperation between the various stakeholders in the realization of concrete projects of PC.
10 The PAL-LIFE Project - The method To promote greater sensitivity in ecclesial realities toward the need to develop good PC in different areas of the world. To stimulate the attention by nonecclesial institutions, NGO s and association working with similar aim. To act as an interlocutor for academic and scientific institutions.
11 The PAL-LIFE Project - The advisory group Selection of the experts The expert group was selected considering diverse geographical regions and professional backgrounds and professing different faiths. The PAV initially chose three experts in PC advocacy with global expertise in PC development. In a second step, additional experts were added to the group through a snowball process of recommendations by at least two peer experts reaching a total of thirteen persons considered to be experts in PC advocacy ( ad hoc group ).
12 The PAL-LIFE Project - The advisory group Al-Sirafy, Samy Bruera, Eduardo Centeno, Carlos De Lima, Liliana Luyirika, Emmanuel Mosoiu, Daniela Pettus, Katherine Puchalski, Christina Rajagopal, MR Sitte, Thomas Yong, Jin-Sun
13 The PAL-LIFE Project - The strategy 1 st Meeting PAL-LIFE (2017) PAL-LIFE Questionnaire Regional events Involvement of other Vatican Dicasteries Study Commissions Seminars Advocacy Activities White Paper for global PC advocacy
14 The PAL-LIFE Project - The strategy 1 st Meeting PAL-LIFE Vatican, April A basic PC strategy for the PAV 2. The writing of a White Paper for Global PC Advocacy 3. A big event in the Vatican was also proposed
15 1 st Meeting PAL-LIFE The PAL-LIFE Project - The strategy
16 PAL-LIFE Questionnaire The PAL-LIFE Project - The strategy Intended to gather information about the medical, social and cultural realities of PC in a Catholic context.
17
18 PAL-LIFE Public Launch The PAL-LIFE Project - The strategy Pontifical Academ y for Life PALLIATIVE CARE: EVERYWHERE & BY EVERYONE Palliative Care in every region. Palliative Care in every religion or belief th st Rom e February 28 - March WORKSHOP PROGRAM
19 PAL-LIFE Public Launch The PAL-LIFE Project - The strategy Pontifical Academ y for Life PALLIATIVE CARE: EVERYWHERE & BY EVERYONE Palliative Care in every region. Palliative Care in every religion or belief th st Rom e February 28 - March WORKSHOP PROGRAM
20 The PAL-LIFE Project - The strategy Involvement of Vatican Dicasteries and Episcopal Conferences Dicastery for Integral Human Development Dicastery for the Laity, Family and Life Secretariat of State To provide accurate information about PC in the world, in order to enable the relevant Dicasteries to develop strategies for further introduction of PC.
21 The PAL-LIFE Project - The strategy Regional events: Background PC is cultural sensitive, as it deals with critically important existential meanings such as death and dying. Barriers to and opportunities for PC vary according to geography and culture. Different regions develop original models of integration of PC into the care of the dying according to their culture.
22 The PAL-LIFE Project - The strategy Regional events: Objective To promote cooperation with governmental entities. To promote professional PC training through onsite programs and international cooperation. To promote a culture of inclusion.
23 The PAL-LIFE Project - The strategy Regional events: Current activities Co-operative venture with the CHAI (India) to promote concrete implementation strategies for PC in Catholic healthcare facilities. Joint activity with Georgetown University in Doha and the PCU of the National Center for Cancer Care and Research at the Hamad Medical Corporation in Doha, Qatar. Cultural event to advocate for PC, at the Texas Medical Center, Houston - TX. Regional events: Planned activities PAL-LIFE Spain Murcia (Nov 2018). PAL-LIFE Italy Rome (Feb 2019). PAL-LIFE Latin America Brazil? (2019).
24 The PAL-LIFE Project - The strategy Regional events: PAL-LIFE India Delegation from PAV attended NHC 2017
25 The PAL-LIFE Project - The strategy Regional events: PAL-LIFE India
26 The PAL-LIFE Project - The strategy Regional events: PAL-LIFE India
27 The PAL-LIFE Project - The strategy Regional events: PAL-LIFE Arabic countries
28 The PAL-LIFE Project - The strategy Regional events: PAL-LIFE US Week s agenda Sep 14-15, MD Anderson Cancer Center 22nd Annual Interdisciplinary Conference on Supporting Care Hospice and Palliative Medicine Sep 16-18, Houston Methodist Hospital PCSLife Conference & Maria Luisa Lectureship for Life Award Sep 19, Dallas CMA pre-conference forum on end of life issues
29 The PAL-LIFE Project - The strategy Regional events: PAL-LIFE US More on:
30 The PAL-LIFE Project - The strategy Regional events: PAL-LIFE US Agenda Sept 16, 2018 Cultural events (open) Sept 17, 2018 PCSLife Conference (open) Maria Luisa Lectureship for Life Award Sept 18, 2018 PCSLife Study Groups (close) Group #1: Development of an integrated model of PC in the TMC Group #2: Communication in/on PC Group #3: How can religions support PC practice and culture? Closure: A joint declaration on PCSLife by the Catholic Church and the United Methodist Church
31 The PAL-LIFE Project - The strategy Study Commissions Ad hoc commissions might be set up to study specific issues. Particular attention will be given to ethical issues.
32 The PAL-LIFE Project - The strategy Seminars Integrating Spiritual Care into Palliative Care: A Whole Person Approach, Christina Puchalski, 24th of August watch?v=wuktfzlicbe
33 The PAL-LIFE Project - The strategy Advocacy Activities The Pontifical Academy for Life participates in events that promote PC.
34 Advocacy Activities The PAL-LIFE Project - The strategy
35 Advocacy Activities The PAL-LIFE Project - The strategy
36 The PAL-LIFE Project - The strategy White Paper for Global PC Advocacy A document to be used by on-site personnel as a working document for the implementation of PC. See next speech
37 The PAL-LIFE Project Thank you for your attention
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