PCORI Awarded Research Projects: California

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1 PCORI Awarded Research s: January 2018 Total Number of s: 143 Total Awarded in State: $252,659,454 Title Organization Awarded Type Budget Implementation of Childbirth-Specific Patient-Reported Outcomes Measures in the Hospital Setting Cedars-Sinai Medical Center $437, Research Dissemination and Implementation Comparative Effectiveness of System Interventions to Increase UCLA School of Public $6,568, Research HPV Vaccine Receipt in Federally Qualified Health Centers Health Comparative Effectiveness of Health System-based versus Regents of the University $13,605, Research Community-based Dementia Care of, Los Angeles Rapid Cycle Research: Hepatitis C (Observational Study) PORTAL CDRN $441, Optimizing Palliative Care for Patients with Brain Cancer & Their Families $50, Engagement in Research SHARE LA: Setting HPV-Activated Research Engagement Priorities in Los Angeles County Ambulatory Care Network: Research and Innovation, $50, Engagement in Research Los Angeles County Department of Health Services (DHS) Team Building Around Lupus to Leverage Social Media to Identify Stanford School of $50, Engagement in Research Patient-Reported Concerns Comparative Effectiveness of Pain Cognitive Behavioral Therapy and Chronic Pain Self-Management within the Context of Opioid Reduction County EMBRACES Maternal Depression A Naturalistic Experiment Evaluating the Impact of Medicaid Treatment Reimbursement Changes on Opioid Prescribing and Patient Outcomes Among Patients with Low Back Pain Population-Based Comparison of Evidence-Based, Patient- Centered Advance Care Planning Interventions on Advance Directive Completion, Goal Concordant Care and Caregiver Outcomes for Patients with Advanced Illness Medicine Stanford University School of Medicine, a Division of Kaiser Foundation Hospitals Regents of the University of, Los Angeles $8,808, Research $249, Engagement in Research $5,699, Research $8,400, Research

2 A Non-Inferiority Comparative Effectiveness Trial of Physician-Led vs. Nurse-Led Home-Based Palliative Care in Older Adults with Advanced Illness and Their Family Caregivers, a Division of Kaiser Foundation Hospitals $14,000, Research Nonpharmacologic Approaches to Relieve Pain and Symptom Distress among Diverse Hospitalized Cancer Patients $2,780, Research Optimizing Care for Patients with Dementia: A Comparison of $4,722, Research Two Non-Pharmacological Treatment Approaches Exploring Survivorship Care Plan Options - Tier III Zero Breast Cancer $50, Engagement in Research Familias Unidas: Pre-diabetes Diagnosis and Treatment - Tier III NCLR/CSULB Center for $50, Engagement in Research Latino Community Health, Evaluation and Leadership Training Developing Meaningful Research for Adolescents and Young Adults with Chronic Conditions - Tier III Comparative Effectiveness of Online Peer Support for Diabetes Treatment Approaches - Tier III Let's Talk: Fostering a Patient-Driven Research Agenda for Atopic Dermatitis - Tier III Success in Early Recovery (SIER) - Tier II Child and Adolescent Chronic Illness Center - Tier II Spreading Ideas-Improving Outcomes: Driving Innovation in State & Local Health Systems The Coachella Valley Community Research Initiative for Healthy Aging with HIV Patients' Awareness of Coronary Calcium Quantification and Engagement in Cardiovascular Risk Reduction in Populations Undergoing Lung Cancer Screening - Tier III Natural Experiments Coordinating Center CCCC 2017 Palliative Care Summit $50, Engagement in Research Dignity Health $50, Engagement in Research Public Health Foundation $49, Engagement in Research Enterprises, Inc. Matrix Institute on $25, Engagement in Research Addictions The Regents of the $24, Engagement in Research e.republic, Inc. $150, Engagement in Research Regents of the University $249, Engagement in Research of, Riverside Campus University of San Regents of the University of, Los Angeles Coalition for Compassionate Care of $49, Engagement in Research $419, $48, Engagement in Research

3 Real World Data Research Readiness: Engaging the Prader-Willi Syndrome Community Foundation for Prader-Willi Research $30, Engagement in Research The Future of Patient-Centered Medical Education Stanford University $249, Engagement in Research Building Capacity for Patient, Family Member and Researcher Engagement in PCOR in Hospital Medicine University of San $250, Engagement in Research Health and Research Ambassador (HARA) PCOR/CER Training Program National Alopecia Areata Foundation $159, Engagement in Research Improving Patient-Centered Communication in Primary Care: A Palo Alto Medical $5,870, Research Cluster Randomized Controlled Trial of the Comparative Effectiveness of Three Interventions Foundation Research Institute Acupressure Intervention to Reduce Treatment-Related $2,514, Research Symptoms in Children with Cancer Integrating the Patient Voice into a Comparative Effectiveness Trial of Communication Strategies in the Management of Chronic Pain A Stakeholder-Driven Comparative Effectiveness Study of Treatments to Prevent Coronary Artery Damage in Patients with Resistant Kawasaki Disease Expanding Access to Home-Based Palliative Care through Primary Care Medical Groups Building Momentum Through Congenital Muscular Dystrophy Stakeholder Participation PCOR Dissemination at Work: How Employers Use Evidence to Make Employee Health Investment Decisions A Gathering of Good Minds: Engaging Native Americans in Wellness Child and Adolescent Chronic Illness Center - Tier I Success in Early Recovery (SIER) - Tier I Comparative Effectiveness of Treatment Options for Genital Herpes Infection in Pregnant Women to Reduce Adverse Pregnancy Outcomes The HOMBRE Trial: Comparing Two Innovative Approaches to Reduce Chronic Disease Risk among Latino Men Cedars-Sinai Medical Center University of San Diego $2,065, Research $2,326, Research $4,980, Research Cure CMD $250, Engagement in Research Center for Workforce $246, Engagement in Research Health and Development Regents of the University $249, Engagement in Research of, Riverside The Regents of the $15, Engagement in Research Matrix Institute on $14, Engagement in Research Addictions Palo Alto Medical Foundation Research Institute $2,732, Research $1,997, Research

4 Comparing the Benefits and Harms of Medicines for Long-Term $3,440, Research Treatment of Blood Clots Fostering Successful Aging: Demonstrating the Impact of an Innovative Shared Medical Appointments Model - Tier III Palo Alto Medical Foundation $50, Engagement in Research The Patient-Centered Primary Care Council in the Highland Hospital Adult Medicine Clinic: Strengthening Primary Care Organization Patient- Centered Primary Care $50, Engagement in Research Together - Tier III (PCPC) Team, K-6 Adult Medicine Clinic, Highland Hospital" Empowering Patients and Their Families to Improve Outcomes That Are Most Important to Them after Surgery and Other UC Davis Medical Center, Section of General Thoracic $50, Engagement in Research Therapies for Lung Cancer - Tier III Surgery Lowering Barriers to Access HIV Care in a Geographically and Economically Diverse Area - Tier III Loma Linda University $49, Engagement in Research MoPAC - Moving from Pediatric to Adult Care - Tier III Spina Bifida San Diego $50, Engagement in Research Healthy Outcomes for Former Foster Youth - Tier III Engaging Patients with Celiac Disease in Patient Centered The Role of Breast Density in Decision Making for Breast Cancer Screening and Diagnostic Testing Familia Unidas (United Families): Pre-diabetes Diagnosis and Treatment - Tier II Loma Linda University Center for Comparative Effectiveness and $49, Engagement in Research Celiac Disease Foundation $250, Engagement in Research $7,628, Research Davis NCLR/CSULB Center for $25, Engagement in Research Latino Community Health, Evaluation and Leadership Training Resiliency in African American Men (RAAM) - Tier II Healthy African American Families II $25, Engagement in Research Exploring Survivorship Care Plan Options - Tier II Zero Breast Cancer $25, Engagement in Research Developing Meaningful Research for Adolescents and Young Adults with Chronic Conditions - Tier II $24, Engagement in Research Comparative Effectiveness of Online Peer Support for Diabetes Treatment Approaches - Tier II Sutter Health $25, Engagement in Research Letâ s Talk: Fostering a Patient-Centered Research Agenda for Pediatric Eczema - Tier II Public Health Foundation Enterprises, Inc. $24, Engagement in Research

5 Partnering with Adolescents to Ready the Newest Engaged Researchers (PARTNER) Partnering to Advance Pediatric Health Equity through Research Engagement Improving Care for Veterans with PTSD: Comparative Effectiveness of Medications to Augment First-line Pharmacotherapy Resilience Against Depression Disparities (RADD) Public Health Institute $214, Engagement in Research University of San $250, Engagement in Research $1,245, Research Regents of the University $2,582, Research of, Los Angeles Novel Stakeholder Engagement for Nemaline Myopathy, Patient Centered Research A Foundation Building Strength for Nemaline $159, Engagement in Research Myopathy Increasing Knowledge and Use of Birth Control among Latina $2,002, Research Adolescents Using a Computer-Based App Latino Health Riverside Regents of University of, Riverside $249, Engagement in Research Community Partnered Participatory Research Network (CPPRN) Regents of the University of, Los Angeles $1,658, Research Infrastructure The Health eheart Alliance, Phase II $2,076, Research Infrastructure PRIDEnet: A Participant-Powered Research Network of Sexual and Gender Minorities $2,062, Research Infrastructure patient-centered SCAlable National Network for Effectiveness Research (pscanner) University of San Diego $9,679, Research Infrastructure Kaiser Permanente & Strategic Partners Patient Outcomes Research to Advance Learning (PORTAL), a $9,404, Research Infrastructure Division of Kaiser Foundation Hospitals Stakeholders' Substance Use Research and Treatment Information Exchange (SSURTIE) University of at Los Angeles $249, Engagement in Research National Alopecia Areata Foundation Patient Support Conference National Alopecia Areata Foundation $49, Engagement in Research Familias Unidas (United Families): Pre-Diabetes Diagnosis and Treatment Long Beach Department of Health and Human Services $15, Engagement in Research Resiliency in African-American Men (RAAM) Healthy African American Families II $15, Engagement in Research Exploring Survivorship Care Plan Options Zero Breast Cancer $15, Engagement in Research

6 Building a Community to Promote Stakeholder Engagement in Research for Adolescents with Spinal Cord Injuries $14, Engagement in Research Comparative Effectiveness of Online Peer Support for Diabetes Treatment Approaches Sutter Medical Foundation $15, Engagement in Research Let's Talk: Fostering a Patient-Driven Research Agenda for Severe Childhood Eczema $14, Engagement in Research Visual Displays of Qualitative Data to Advance PCOR $1,470, Research Clinician Language Concordance and Interpreter Use: Impact of a $2,528, Research Systems Intervention on Communication and Clinical Outcomes Healthy Outcomes for Former Foster Youth - Tier II Loma Linda University Center for Comparative $24, Engagement in Research Effectiveness and Fostering Successful Aging: Demonstrating the Impact of an Innovative Shared Medical Appointments Model - Tier II Palo Alto Medical Foundation $25, Engagement in Research Lowering Barriers to Access HIV Care in a Geographically and Economically Diverse Area - Tier II Loma Linda University $25, Engagement in Research Empowering Patients and Their Families to Improve Outcomes That Are Most Important to Them after Surgery and Other Therapies for Lung Cancer - Tier II The Patient-Centered Primary Care Council in the Highland Hospital Adult Medicine Clinic: Strengthening Primary Care Together - Tier II Sepsis Survivors Engagement (SSEP) - Tier II Supporting Latino Families with Children with Spina Bifida - Tier II Pragmatic Trial of More versus Less Intensive Strategies for Active Surveillance of Patients with Small Pulmonary Nodules Enabling a Paradigm Shift: A Preference-Tolerant RCT of Personalized vs. Annual Screening for Breast Cancer UC Davis Medical Center, Section of General Thoracic Surgery Patient-Centered Primary Care (PCPC) Team, K-6 Adult Medicine Clinic, Highland Hospital Loma Linda University Center for Comparative Effectiveness and Spina Bifida San Diego (University of San Diego as Fiscal Agent), a Division of Kaiser Foundation Hospitals $25, Engagement in Research $25, Engagement in Research $25, Engagement in Research $25, Engagement in Research $13,925, Research $14,076, Research

7 Propensity Score-Based Methods for CER Using Multilevel Data: What Works Best When Causal Analyses of Electronic Health Record Data for Assessing the Comparative Effectiveness of Treatment Regimens Patient-Centered Physical Activity Coaching to Improve Outcomes in COPD: A Pragmatic Trial Improving Specialty-Care Delivery in Chronic Skin Diseases Aligning the Visit Priorities of Complex Patients and Their Primary Care Providers Expanding PROMIS Item Bank Development to the Pregnant Population Treating Depression in Older Latino Adults Prescription Opioid Management in Chronic Pain Patients: A Patient-Centered Activation Intervention Patient and Provider Engagement and Empowerment Through Technology (P2E2T2) Program to Improve Health in Diabetes The Comparative Impact of Patient Activation and Engagement on Improving Patient-Centered Outcomes of Care in Accountable Care Organizations Sepsis Survivors Engagement (SSEP) ^ ^ Cedars Sinai Medical Center The Regents of the Davis University of Berkeley Loma Linda University Center for Comparative Effectiveness and Palo Alto Medical Foundation $1,114, Research $1,096, Research $4,662, Research $2,132, Research $1,520, Research $769, Research $1,479, Research $1,975, Research $2,068, Research $2,097, Research $14, Engagement in Research YOU COMPLETE ME! Demonstrating the Efficacy of an Innovative Medical Appointment Model to Support Aging Patients $15, Engagement in Research Addressing Obesity in Latino Adolescents with Spina Bifida Spina Bifida San Diego $15, Engagement in Research Creating the Patient-Centered Primary Care Council in the Patient-Centered Primary $15, Engagement in Research Highland Hospital Adult Medicine Clinic: Strengthening Primary Care (PCPC) Team, K-6 Care Together Adult Medicine Clinic, Empowering Patients and Their Families to Improve Outcomes That Are Most Important to Them after Lung Cancer Surgery Lowering Barriers to Access HIV Care in a Geographically and Economically Diverse Area Highland Hospital UC Davis Medical Center, Section of General Thoracic Surgery $15, Engagement in Research Foothill AIDS $15, Engagement in Research

8 Healthy Outcomes for Older Foster Youth Improving Delivery of Patient-Centered Cardiac Rehabilitation The Health eheart Alliance Randomized Trial to Increase Adherence to Cervical Cancer Screening Guidelines for Young Women UCSF CT Radiation Dose Registry to Ensure a Patient-Centered Approach for Imaging Preparing Spanish-speaking Older Adults for Advance Care Planning and Medical Decision Making Creating a Patient-Centered Tool to Help Medicare Beneficiaries Choose Prescription Drug Plans Interactive Personal Health Records: Use of a Web-Portal by Patients with Complex Chronic Conditions Comparing Effectiveness of Treating Depression With and Without Comorbidity to Improve Fetal Health Patient-Centered Support for Contraceptive Decision Making Balancing Treatment Outcomes and Medication Burden among Patients with Symptomatic Diabetic Peripheral Neuropathy Is MyPlate.gov Approach to Helping Overweight Patients Lose Weight More Patient-Centered? Comparing Strategies to Help Latino Children with Asthma in Imperial County, Kaiser Permanente & Strategic Partners Patient Outcomes Research To Advance Learning (PORTAL) Network Patient-Oriented Scalable National Network for Effectiveness Research (pscanner) Working with Bilingual Community Health Worker Promotoras to Improve Depression and Self-Care among Latino Patients with Long-Term Health Problems A Patient-Centered Strategy for Improving Diabetes Prevention in Urban American Indians Health Coaching to Reduce Disparities for Patients with Chronic Obstructive Pulmonary Disease Loma Linda University Center for Comparative Effectiveness and University of San University of San University of Los Angeles ^ University of San University of San Stanford University School of Medicine University of San University of Los Angeles San Diego State University Research Foundation University of San Diego Stanford University School of Medicine $14, Engagement in Research $1,891, Research $1,013, Research Infrastructure $2,180, Research $2,145, Research $2,153, Research $2,138, Research $2,021, Research $2,098, Research $1,968, Research $1,936, Research $1,991, Research $4,066, Research $6,207, Research Infrastructure $6,238, Research Infrastructure $1,377, Research $1,648, Research $2,163, Research

9 Sustainable Methods, Algorithms, and Research Tools for Delivering Optimal Care Study (SMART DOCS) Researching the Effectiveness of a Decision-Support Tool for Adult Consumers with Mental Health Needs and their Care Managers Ovarian Cancer Patient-Centered Decision Aid Comparison of Peer-Facilitated Support Group and Cognitive Behavioral Therapy for Hoarding Disorder Developing Patient-Centered Outcomes for Dementia: Goal Setting and Attainment The Handling of Missing Data Induced by Time-Varying Covariates in Comparative Effectiveness Research Involving HIV Patients Methods for Analysis and Interpretation of Data Subject to Informative Visit Times Computer-Administered Animation as a New Method for Measuring Young Children's Health Outcomes Semiparametric Causal Inference Methods for Adaptive Statistical Learning in Trauma Patient-Centered A Patient-Centered Intervention to Increase Screening of Hepatitis B and C Among Asian-Americans Peer Health Navigation: Reducing Disparities in Health Outcomes for the Seriously Mentally Ill Pilot : Improving Patient Care by Helping Patients and Doctors Communicate Better Pilot : Helping Patients Make Health Decisions with Support from a Health Coach Pilot : Helping Physical Therapists Understand Patient Movement Goals in Physical Therapy Pilot : Getting Patients' Views about the Effectiveness of Services Provided by Community Health Centers Pilot : Does the MySupport Survey Help Patients Talk to Their Doctors about Their Pain? Pilot : Using Feedback to Help Doctors Avoid Ordering Unneeded Medical Tests Pilot : Using Parent Preferences in Decisions about Childhood Vaccines Stanford University School of Medicine Family Service Agency of $2,149, Research $1,455, Research University of Irvine $1,967, Research University of San $2,130, Research University at Los $1,102, Research Angeles Stanford University $802, Research University of San University of Irvine University of Berkeley University of San Palo Alto Medical Foundation Research Institute State University Los Angeles Davis Kaiser Permanente Northern ^ $915, Research $837, Research $990, Research $2,201, Research $1,289, Research $673, Research $671, Research $422, Research $308, Research $609, Research $687, Research $641, Research

10 Pilot : Creating an App to Help Patients Understand and Manage Their Multiple Sclerosis Pilot : Understanding Healthcare Professionals' Involvement in Advocating for Better Patient Care Policies Long-Term Outcomes of Community Engagement to Address Depression Outcomes Disparities University of at School of Social Work Los Angeles $580, Research $662, Research $2,342, Research

The Academy Capitol Forum: Meet the Experts. Diagnosing Which Health Treatments Improve Outcomes: A PCORI Overview and How to Get Involved

The Academy Capitol Forum: Meet the Experts Diagnosing Which Health Treatments Improve Outcomes: A PCORI Overview and How to Get Involved Presenter: Gregory Martin, Deputy Directory of Stakeholder Engagement