education & training around end-of-life care and dementia

Transcription

1 education & training around end-of-life care and dementia

2 Changing Minds An initiative of the IHF to promote excellence in end of life care for people with dementia (co-funded with Atlantic Philanthropies) The programme has six projects : 1. Advocacy and engagement with health leaders and civic society 2. Education and development for those caring for people with dementia 3. Promotion of good evidence-based models of care 4. Introduction of systems to support the palliative care needs of people at home 5. Extension/adaptation of tools and resources used in acute hospitals into other settings 6. Encouraging people to engage in early advance planning 2

3 Education and development The context for the Irish Hospice Foundation s work is end-of-life care The focus of Changing Minds is end-of-life care for people with dementia So what is that, in real life?

4 Typical trajectory towards EOL with dementia FAMILY/ CARERS Family notice symptoms; encourage consult GP Family a significant part in provision of day-to-day care Family members access home help Family members can not care for person at home Family = key partner in caring for and advocating for person Bereavement support P E R S O N WELL AT HOME SYMPTOMS EVIDENT REFERRAL & DIAGNOSIS GREATER CARE NEEDS AT HOME DECLINING HEALTH/ SIGNIFICANT CARE NEEDS ADMISSION TO NURSING HOME LIVING IN NURSING HOME DEATH Coroner GP Visit to GP / Memory Clinic/ Specialist GP tracks impact of illness, both on both person and on carer(s). GP assists family to access help for person and for themselves May be multiple GP visits/admissions to acute hospital throughout this period Mild cognitive impairment Moderate cognitive impairment Terminal phase of illness

5 The target groups STAFF WORKING IN RESIDENTIAL CARE FAMILIES (FRIENDS AND RELATIVES) OF RESIDENTS EOLC for PEOPLE WITH DEMENTIA GENERAL PRACTITIONERS 5

6 Targeted education and training WHAT MATTERS TO ME a day-long workshop on end of life care, including advance care discussions and working with families, for residential care staff. Since 2012, over 2,000 staff have completed this workshop. COMMUNICATING WITH PEOPLE WITH DEMENTIA a new half-day workshop SUPPORTING FAMILIES A new programme of four consecutive sessions for family members (relatives and friends) of residents FAMILIES (FRIENDS AND RELATIVES) OF RESIDENTS STAFF WORKING IN RESIDENTIAL CARE EOLC for PEOPLE WITH DEMENTIA GPs Plan to scope new educational input to support GPs to provide end-oflife care to residents, including those with dementia 6

7 Communicating with People with Dementia Workshop covers: A new half-day workshop for staff working in residential care A D u b lin stu d y (Cahill an d D ia z-p o n ce, Jo u rn a l of Ag in g an d M e n ta l H e a lth, Ju ly 2011) co n clu d e d : The findings support the evide nce tha t pe ople with a cognitive im pa irm e nt and eve n those with adva nce d de m e ntia ca n ofte n still com m unica te the ir vie ws and pre fe re nce s about wha t is im porta nt to the m End-of-life care, communication and personcentredness Communication what helps and hinders The impact of dementia on communication ability Models of dementia care and how to communicate Tips and techniques for communicating with people with dementia 7

8 Supporting Families A new programme of four 90-minute sessions, run over four consecutive weeks, for family members (relatives and friends) of residents. 1. When someone you care about is in a nursing home 2. How to have a good visit with a relative/friend with dementia 3. Family involvement in thinking ahead and decision making in end-of-life care 4. When someone you love/know is dying

9 To find out more If you are interested in finding out more about any of these workshops, please contact Claire Banks in the IHF We are especially interested in hearing from any GPs who might collaborate with us in the development of the new education/ training intervention designed to support GPs in their delivery of end-of-life care into residential care centres 9

10 Useful Resources/Website Includes access to information on education courses, training programmes, library and resources, including free videos and Prompts for Good Practice (two-page handouts on different aspects of end-of-life care) 10

11 THANK YOU living to the end