End of Life Bibliography 2012

Transcription

1 End of Life Bibliography rd Canadian Consensus Conference on Diagnosis and Treatment of Dementia (2006). Clinical practice guidelines for severe alzheimer s disease. Topic 6: Clinical practice guidelines for severe alzheimer s disease, Albinsson, L., & Strang, P. (2002). A palliative approach to existential issues and death in end stage dementia care. Journal of Palliative Care 18(3), Allen, R.S., Burgio, L.D., Fisher, S. E., Hardin, J. M., Shuster, J.L. (2005). Behavioural characteristics of agitated nursing home residents with dementia at the end of life. The Gerontologist, (45(5), Alzheimers Society of BC. (2010). Caring for people with dementia at end of life: putting people first Alzheimer s Association. (2007). Dementia Care Practice: Recommendations for assisted living residences and nursing homes phase 3 end of life care. Retrieved from: Badger, F., Thomas, K., & Clifford, C. (2007). Raising standards for elderly people dying in care homes. European Journal of Palliative Care, 14(6), Blagrave, P. (2010). To feed or not to feed that is the question. Canadian Nursing Home, 21(3), Birch, D. & Draper, J. (2008). A critical literature review exploring the challenges of delivering effective palliative care to older people with dementia. Journal of Clinical Nursing, 17, Davidson, K. M., & Schoenfelder, D.P. (2011). Family preparedness and end of life support before the death of a nursing home resident: evidence based practice guideline. Journal of Gerontological Nursing, 37(2), Di Giulio, P., Toscani, F., Villani, D., Brunelli, C., Gentile, S., & Spandin, P. (2008). Dying with advanced dementia in long term care geriatric institutions: a retrospective study. Journal of Palliative Medicine, 11(7),

2 Doody, R. S., Pavlik, V., Massman, P., Rountree, S., Darby, E., & Chan, W. (2010). Predicting progression of alzheimer s disease. Alzheimer s Research and Therapy, 2(2), 1 9. GSF Care Home Briefing Paper (2009). The gold standards framework in care homes: a framework to enable a gold standard of care for all people nearing the end of life, 1 8. Gabany, J. M. (2000). Factors contributing to the quality of end of life care. Journal of the American Academy of Nurse Practitioners, 12, Gawande, A. (2010, August 2). Letting go: what should medicine do when it can t save your life? The New Yorker, Gibson, M.C., Gutmanis, I., Clarke, H., Wiltshire, D., Feron, A., & Gorman, E. (2008). Staff opinions about the components of a good death in long term care. International Journal of Palliative Nursing, 14( 8), Hancock, K., Chang, E., Johnson, A., Harrison, K., Daly, J., Easterbrook, S., Noel, M., Luhr Taylor, M., & Davidson, P. (2006) Palliative care for people with advanced dementia: The need for a collaborative, evidence based approach. Alzheimer s Care Quarterly, 7(1), Hays, N.P., & Roberts, S. B. (2006). The anorexia of aging in humans. Physiology and Behavior, 88, Hewison, A., Badger, F., Clifford, C., & Thomas, K. (2008). Delivering gold standards in end of life care in care homes: a question of teamwork? Journal of Clinical Nursing, 18, Herman, N., & Gauthier, S., & Lysy, P.G. (2007). Clinical practice guidelines for severe alzheimer s disease. Alzheimer s & Dementia, Johnson, A., Chang, E., Harrison, K., Daly, J., Noel, M., Hancock, K., & Easterbrook, S. (2009). The communication challenges faced in adopting a palliative approach in advanced dementia. International Journal of Nursing Practice, 15, Jones, C. B., Speck, V.M., Tookman, A., & King M. (2012). Spiritual and religious interventions for well being of adults in the terminal phase of disease (review). The Cochrane Collaboration. 5, 1 52

3 Kim, K.Y., Yeaman, P.A., & Keene, R.L. (2005). End of life care for persons with alzheimer s disease. Practical Geriatrics: Psychiatric Services, 56(2) Kruse, R. L. et al. (2004). Does hospitalization impact survival after lower respiratory infection in nursing home residents? Medical Care, 42(9), Levy, C., Morris, M., & Kramer, A. (2008). Improving end of life outcomes in nursing homes by targeting residents at high risk of mortality for palliative care: program description and evaluation. Journal of Palliative Medicine, 11(2), Lloyd Williams, M., Kennedy, V., Sixsmith, A., & Sixsmith, J. (2007). The end of life: a qualitative study of the perceptions people over the age of 80 on issues surrounding death and dying. Journal of Pain and Symptom Management, 34(1), Long, C. (2009). Palliative Care for advanced dementia. Journal of Gerontological Nursing, 35(11), Koopmans, R.T.C.M., van der Sterren, K. J., & van der Steen, J. T., (2007). The natural endpoint of dementia: death from cachexia or dehydration following palliative care? International Journal of Geriatric Psychiatry, 22, Mitchell, S. L., Kiely, Miller, S.C., Connor, S.R., Spence, C., & Teno, J.M. (2007). Hospice care for patients with dementia. Journal of Pain and Symptom Management. 34(1), Mitchell, S.L., et al. (2010). The clinical course of advanced dementia. The New England Journal of Medicine, 361(16), Morely, J.E., Thomas, D. R., & Wilson, M.G. (2006). Cachexia: pathophysiology and clinical relevance. American Journal of Clinical Nutrition, 83, Munn, J.C., Hanson, L.C., Zimmerman, S., Sloane, P.D., Mitchell, C. M. (2006). Is hospice associated with improved end of life care in nursing homes and assisted living facilities? Journal of the American Geriatrics Society, 54(3), Namba, NM., Morita, T., Imura, C., Kiyohara, E, & Hirai, K. (2007). Terminal delirium; families experience. Palliative Medicine, 21, NHS National End of Life care Programme. (2010). Care toward the end of life for people with dementia: an online resource guide. Author. Retrieved from:

4 NHS National End of Life Care Programme. (2007). Building on firm foundations improving end of life care in care homes: examples of innovative practice. Author. Retrieved from: National Council for Palliative Care. (2009). End of life care for people with dementia, Peacock, S. (2008). The moral challenges involved in palliative end of life dementia care. Palliative Dementia Care, 19(3), Pleschberger, S. (2007). Dignity and the challenge of dying in nursing homes: the residents view. British Geriatrics Society, Age and Ageing, 36, Poehlman, E. & Dvorak, R. V. (2000). Energy expenditure, energy intake, and weight loss in alzheimer disease. American Journal of Clinical Nutrition, 71, 650S 5S. Powers, B.A., & Watson, N. M. (2008). Meaning and practice of palliative care for nursing home residents with dementia at end of life. American Journal ofalzheimers Disease and Other Dementias, 23(4), Ruder, S. (2009). Incorporating spirituality into the care of persons with alzheimer s disease. Alzheimer s Care Today, 10(4), Rutman, D. & Parke, B. (1992). Palliative care needs of residents, families and staff in longterm care facilities. Journal of Palliative Care, 8(2), Savina, C., Donini, L. M. & Cannella, C. (2007). Anorexia of aging. Nova Publishers, Small, N. (2007). Living well until you die: quality of care and quality of life in palliative and dementia care. School of Health Studies, University of Bradford, UK, Tilly, J. Reed, P., Gould, E., & Fok, A. (2008). End of life care practice recommendations for assisted living residences and nursing homes serving individuals with dementia. Alzheimer s Care Today, 9(2), Todd, D. (2010). Dementia: how to help those cursed with living only in the moment for the rest of their lives. Vancouver Sun, pp. 1 3.

5 Voisin, T, & Vellas, B. (2009). Diagnosis and treatment of patients with severe alzheimer s disease. Drugs Aging, 26(2) Volicer, L. (2008). End of life care for people with dementia in long term care settings. Alzheimer s Care Today, 9(2), Wallace, J. B., & Prevost, S. S., (2006). Two methods for predicting limited life expectancy in nursing homes. Journal of Nursing Scholarship, 38(2), White, Y., & Fitzpatrick, G. (2006). Dialysis: prolonging life or prolonging dying? Ethical, legal and professional considerations for end of life decision making. European Dialysis and Transplant Nurses Association/European Renal Care Association Journal, Woytkiw, T. D. (2010). Advance care planning making the best choices for the future. Canadian Nursing Home, 21(3), Wowchuk, S. M., McClement, S., & Bond, J. (2007). The challenge of providing palliative care in the nursing home part ii: internal factors. International Journal of Palliative Nursing, 13(7),