DEFINING QUALITY DEMENTIA CARE alz.org

Transcription

1 DEFINING QUALITY DEMENTIA CARE alz.org

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3 2018 Alzheimer s Disease Facts and Figures: General Report Special Report on Financial and Personal Benefits of Early Diagnosis

4 The Alzheimer s Dementia Epidemic Continues to Grow million Americans of ALL ages will have Alzheimer s dementia in

5 In 2018, an estimated 700,000 people in the U.S. age 65 and older will have Alzheimer s when they die. 5

6 From , Alzheimer s Deaths Increased By 123% While Deaths From Other Major Diseases Decreased. 6

7 Alzheimer s is One of the Costliest Conditions to Society and the U.S. Economy 7

8 Defining Quality Care: Dementia Care Practice Recommendations

9 Quality Care: History Guidelines for Dignity Key Elements of Dementia Care Dementia Care Practice Recommendations

10 Quality Care: Today Evidence-based practices 56 recommendations by 27 expert authors Applicable to various care settings and throughout the disease continuum Published as a supplement to Feb 2018 issue of The Gerontologist Foundation for quality person-centered care

11 Dementia Care Practice Recommendations Detection and Diagnosis Transition and Coordination of Services Assessment and Care Planning Supportive and Therapeutic Environment Person-Centered Focus Medical Management Workforce Ongoing Care for BPSD and Support for ADLs Information, Education and Support

12 PERSON CENTERED FOCUS Know the person Person s reality Meaningful engagement Authentic, caring relationship Supportive community Evaluation of care practices Recommendations

13 DETECTION AND DIAGNOSIS Information about brain health and cognitive aging Signs and symptoms of cognitive impairment Concerns, observation and changes Routine procedures for assessment and referral Brief mental status test when appropriate Diagnostic evaluation follow-through Better understanding of diagnosis Recommendations

14 ASSESSMENT AND CARE PLANNING Regular, comprehensive, person-centered assessments and timely interim assessments Information gathering, relationship building, education and support Collaborative, team approach Accessible documentation and communication systems Advance planning Recommendations

15 MEDICAL MANAGEMENT Holistic, person-centered approach Role of medical providers Common comorbidities of aging Non-pharmacologic interventions Pharmacological interventions when necessary Person-centered plan for possible medical and social crises End-of-life care discussions Recommendations

16 INFORMATION, EDUCATION AND SUPPORT Preparation for the future Work together and plan together Culturally sensitive programs Education, information and support during transition Technology to reach more families Recommendations

17 ONGOING CARE: ADLs Support for ADL function Person-centered care practices Recommendations Dressing dignity, respect, choice; process; environment Toileting also health and biological considerations Eating also adaptations and functioning; food, beverage and appetite

18 ONGOING CARE: BPSD Social and physical environmental triggers Non-pharmacological practices Investment for implementation Protocols Evaluation of effectiveness Recommendations

19 WORKFORCE Orientation and training, and ongoing training Person-centered information systems Teamwork and interdepartmental/interdisciplinary collaboration Caring and supportive leadership team Relationships Continuous improvement Recommendations

20 SUPPORTIVE AND THERAPEUTIC ENVIRONMENT Sense of community Comfort and dignity Courtesy, concern and safety Opportunities for choice Meaningful engagement Recommendations

21 TRANSITION AND COORDINATION OF SERVICES Education about common transitions in care Timely communication of information between, across and within settings Preferences and goals of the person living with dementia Strong inter-professional collaborative team to assist with transitions Evidence-based models Recommendations

22 Quality Care: Perspectives from People Living with Dementia

23 Perspectives from Individuals living with Dementia Encourage early detection and diagnosis Share appropriate information and education Get to know the person Maximize independence Practice patience and compassion Personalize care to meet individual needs and preferences Adjust care approaches to reflect day-to-day needs and abilities Provide ongoing opportunities for engagement that have meaning and purpose Ensure coordination among those who provide care Train staff on the most current disease information and practice strategies Inform and include the individual in new interventions as appropriate Create a safe and supportive environment that reflects the person

24 Practice to Policy

25 National Alzheimer s Project Act Signed into law in 2011 Advisory Council on Alzheimer s Research, Care and Services National Alzheimer s Plan annually updated Five goals are the foundation of the plan: Prevent and Effectively Treat Alzheimer s Disease by 2025 Enhance Care Quality and Efficiency Expand Pubic Supports for People Living with the Disease and their families Enhance Public Awareness and Engagement Track Progress and Drive Improvement

26 National Alzheimer s Plan Research on Care and Services Goal 2 - Enhance care quality and efficiency All persons living with Alzheimer s disease and related dementias, regardless of location, race, ethnicity, sexual orientation or socioeconomic class, should receive high quality person/familycentered by well-trained practitioners and workers from detection and diagnosis through end-of-life, across all health care and long-term services and supports Endpoint Alz. Association National Plan Care and Support Milestone Workgroup

27 Care Summit Website Final Report Next Meeting Save the Date March 24-25, 2020 Natcher Conference Center Bethesda, MD

28 Dementia Care Practice Recommendations Detection and Diagnosis Transition and Coordination of Services Assessment and Care Planning Supportive and Therapeutic Environment Person-Centered Focus Medical Management Workforce Ongoing Care for BPSD and Support for ADLs Information, Education and Support

29 Quality Care in Long-Term & Community-Based Care Dementia Care Practice Recommendations INFLUENCERS Federal and State Policies National Provider Member Organization Partnerships PROGRAMS Organization-Wide Consultative Coaching Curriculum Review essentialz Certification IMPACT Number of Covered Lives Number of Organizations Outcomes Research Accreditation Bodies Project ECHO Dementia Care Provider Roundtable Dementia Care In-Person Training

30 DEFINING QUALITY DEMENTIA CARE alz.org/qualitycare Doug Pace, NHA Director, Mission Partnerships

31 Questions? We re here. All day, every day. 24/7 Helpline: alz.org