Overall aim Improving the access to and the quality of health and social services for marginalised people

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1 Overall aim Improving the access to and the quality of health and social services for marginalised people To tackle health inequalities and to improve prevention, care and treatment services, targeting blood-borne infectious diseases (BBID s), in particular Hepatitis C and HIV/AIDS among vulnerable and high risk populations

2 Why? Acces to health services is limited Quality of services is not sufficiant Policies are not targeted Health problems of marginalised groups and people are a threat for public health and welfare!

3 How? Creating a platform for mutual exchange Collecting and reviewing existing evidence Implementing innovative approaches Addressing the policy level: Translation of outcomes and results towards the policy level

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7 DPIP project 2013/14

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9 Partner 30 partner from 15 countries 08 universities / health institutes 15 service provider (NGO's) 02 drug user organisations 05 European Networks Observer: EMCDDA, ECDC, WHO

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11 Aims improve knowledge improve capacities Influence policies

12 Working streams WS 0 Coordination FRG WS 1 Evaluation CIAR WS 2 Inventory CIAR WS 3 Peer training SDUU WS 4 Literature review CHIP WS 5 Policy & Advocacy APDES

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15 Liver or Die To inform and to be informed To learn and to teach Ett projekt som drivs av Svenska Brukarföreningen, med stöd av Smittskyddsinstitutet

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17 Feedback hard to access young drug user lack of competence of health care professionals to communicate with patients test kits not available wrong information: cut and paste from HIV info - great need of hep c support groups - systemic barriers: opening/appointment hours no services on the country side fear of side effects no information or only negative ones waiting lists for access active drug user are not treated, alcohol sober for 2 years

18 Workstream 2 Inventory of effective interventions Rationale * Testing for HCV and referral to HCV treatment are key interventions * In practice testing rates are low, except from substitution treatment * PWUD are often not aware about risk of HCV infection * Low-threshold services assume that most PWUD are tested in prison THUS HCV testing needs to be increased in particular in low-threshold services

19 Guidelines Compilation of the most recent guidelines for HCV testing and antiviral treatment Aim Guidelines as indicators for assessment and evaluation of good practice in HCV testing, pre- and post-test counselling and referral to treatment services Delivered to active drug users

20 Interviews drug users Interviews with 50 clients of the low-threshold drug services Method: Structured questionnaire Access: through services that participate in the monitoring Topics: risk awareness and risk behaviour previous HCV testing willingness to uptake HCV testing experiences with pre- and post-test counselling acceptance of HCV treatment

21 Interviews staff In services which implemented the monitoring tool Qualitative face-to-face interviews Objective > To identify possibles barrierrs barriers to testing and referral to treatment at different levels > Structure - limited staff > Economic limited funding for testing > Individual clients not want to get tested

22 Results Study results and toolkit Toolkit with templates 4 national events: Portugal, Finland, Germany, Romania

23 Results resource centre peer training manual policy & advocacy strategy Literature review Study results and toolkit

24 Workstream Policy Activities: 1. Mapping, analyzing and comparing existing national and European Hepatitis C action plans, strategies, recommendations and guidelines. 2. Development and implementation of 1 European and 4 national advocacy strategies. 3. Organising 1 European Parliamentary meeting and 4 national policy dialogue meetings. 4. Setting up a sustainable Hepatitis C and drug use platform of experts and stakeholders.

25 Next year Facebook campaign Hepatitis policy event EP, autumn 2014 final conference Berlin, October 2014

26 Get involved!