Nurturing knowledge creation:

Transcription

1 Nurturing knowledge creation: The Scottish Health Ethnicity Research Strategy and Steering Group (SHERSS) Andrew Millard, Scottish Public Health Observatory

2 SHERSS and its aims SHERSS achievements Research background to SHERSS Policy background: the equality framework in Scotland and the UK SHERSS learning points The future for SHERSS.

3 Voluntary sector: Scottish Refugee Council, Scottish Health Council, REACH community health project West of Scotland Health and Ethnicity Research Network (WHEN) Public Health doctors and specialists: NHS Health Scotland SHERSS (started late 2010) Health delivery organisations: Public Health doctor (Edinburgh) and researcher (Glasgow) Edinburgh Ethnicity and Health Research Group (EEHRG) Scottish Government: Public Health Analytical services Academic Public Health staff: Edinburgh and Glasgow

4 SHERSS aims Coordinate Promote secure data linkage Improve routine health data Encourage specific research

5 SHERSS Achievements Influenced policy Encouraged better hospital recording Held a successful conference in 2012 Prioritised research activities Led many groundbreaking national and international research projects through its members

6 Selected Publications Bansal, N., Fischbacher, C. M., Bhopal, R. S., Brown, H., Steiner, M. F., Capewell, S., & on behalf of the Scottish Health and Ethnicity Linkage Study 2013, "Myocardial infarction incidence and survival by ethnic group: Scottish Health and Ethnicity Linkage retrospective cohort study", BMJ Open, vol. 3, no. 9 Link Bansal N, Bhopal R, Netto G, Lyons D, Steiner MFC, Sashidharan SP. Disparate patterns of hospitalisation reflect unmet needs and persistent ethnic inequalities in mental health care: the Scottish health and ethnicity linkage study. Ethnicity & Health 2013 Jul 11;1-23. DOI LINK. Fischbacher CM, Cezard G, Bhopal RS, Pearce J, Bansal N. Measures of socioeconomic position are not consistently associated with ethnic differences in cardiovascular disease in Scotland: methods from the Scottish Health and Ethnicity Linkage Study (SHELS). International Journal of Epidemiology 2013 Dec 19. Link. Millard A, Guthrie C, Fischbacher C, Jamieson J. Pilot ethnic analysis of routine hospital admissions data and comparison with census linked data: CHD rates remain high in Pakistanis. Ethnicity and Inequalities in Health and Social Care 2013;5(3): Link. Christie B. Scotland introduces record of ethnicity on death certificates. BMJ 2012;344(e475). Link. Liu, J., Davidson, E., Bhopal, R., White, M., Johnson, M., Netto, G., Deverill, M., & Sheikh, A. 2012, "Adapting health promotion interventions to meet the needs of ethnic minority groups: mixed-methods evidence synthesis.", Health Technology Assessment, vol. 16, no. 44, pp Link

7 Research Background 1960s: Vitamin D deficiency 1980s, 90s 00s: special issues focus continued Professor Bhopal 2000s: common conditions were included 2009: Review of research needs led to SHERSS. Professor Gruer

8 Policy background - Scotland s equality framework Equality Act 2010 protects against discrimination Protected characteristics: Socio-economic health inequality: Scottish Government Task Force NHS Health Scotland

9 Learning points Limitation to central Scotland (Glasgow-Edinburgh axis) Discontinuity in representation Proposal for a survey of ethnic minorities health was impacted by austerity Succession planning

10 Initial thinking on the new Expand remit strategy Exploit routine data Transfer success models Encourage small qualitative studies Mental health, Child health, barriers for people from ethnic minorities who wish to practice as health professionals? Build research capacity.

11 Any Suggestions? Thank you for listening. I would be interested to hear about: any experience of developing similar initiatives and the national contexts that have influenced them how the SHERSS model might be applied elsewhere. Further information: SHERSS web materials are hosted by NHS Health Scotland, see: and for information on ethnicity in Scotland:

12 Latest draft strategic priorities (June 2014) 1. Strengthen leadership, capability and collaborative infrastructure between the academic and public sectors for knowledge exchange in order to influence policy, practice and further enquiry, reflecting the changing population make-up of Scotland [and countries of comparative interest]. 2. Harness the emerging possibilities of research linkage in enabling populationwide, comparative and intersectional research, reflecting the determinants of health for all ethnic groups. 3. Identify and advocate priorities for health research relating to ethnic minority and migrant groups. Early priorities in the context of ethnic and migrant health will be to address the gaps in knowledge and understanding of children s comparative health and wellbeing, and intergenerational studies. 4. Encourage and conduct further service related research including person-centred studies; health needs assessment; access to, moving through and outcomes from services; implications of diversity for the public sector workforce, including as employees in fair employment, as migrant workers and as service providers. 5. Review and refocus the governance of the group to reflect changing leadership, scope and focus of research, specifically to include the health and needs of migrants.