How Does Your EHDI Intervention System Measure Up? States Experiences Using the JCIH EHDI System Self-Assessment

Transcription

1 How Does Your EHDI Intervention System Measure Up? States Experiences Using the JCIH EHDI System Self-Assessment March March National National EHDI EHDI Conference Conference San San Diego, Diego, CA CA

2 Nicole Brown, MSN, PHN, CPNP -Minnesota Department of Health Anna Paulson, M.Ed., - Coordinator of Educational Advancement & Partnerships, Commission of Deaf, DeafBlind and Hard of Hearing Minnesotans (MNCDHH) Marcia Fort, AuD, CCC-A, - EHDI Coordinator, North Carolina Department of Health and Human Service Pam Dawson, M.Ed.- Executive Director, Hear ME Now, Maine -EI program Kelly Hermanns, Au.D. - State EHDI Coordinator, Georgia Department of Public Health

3 Candace Lindow Davies Hands & Voices Diane Behl, M.Ed. - NCHAM Alyson Ward, M.S. CHES, IA- NCHAM Christine Yoshinaga-Itano, Ph.D., CCC-A, CED - University of Colorado, Boulder Members of the Joint Committee on Infant Hearing

4 Self Assessment Tool & Background - Supplement to the JCIH 2007 Position Statement Panel Use of JCIH EHDI Self-Assessment Tool within four different collaborative groups Process Lessons Learned Discussion How can Self-Assessment guide your quality improvement activities?

5 Optimal outcomes for children who are deaf or hard of hearing JCIH wanted a focus on the end product If outcomes are the purpose, then we should be measuring outcomes and the factors that impact it.

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7 Where are we now and where do we wish to be?

8 A reflective process in which stakeholders explore their state s EHDI system and work collaboratively to develop strategies to enhance policies, procedures and practices. Additional way to assess needs and gaps. Help capture your system vulnerabilities. Help identify what strategies to test using QI methodology.

9 Stakeholder Feedback Modeled after existing tools Testing of tool Draft EHDI Self Assessment Tool

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11 Minnesota Collaborative Planning Anna Paulson, M.Ed., - Coordinator of Educational Advancement & Partnerships, Commission of Deaf, DeafBlind and Hard of Hearing Minnesotans (MNCDHH)

12 Commission for Deaf/DeafBlind/Hard of Hearing Department of Education Low Incidence Project Recruitment and Retention Specialist Part C Coordinator Department of Health EHDI Coordinator Epidemiologist MN Hands and Voices Deaf Mentor Family Programs Deaf/Blind Project Early Interventionists

13 Prior review of assessment tool for agreement on goal structure, definitions, rating scale. Review of goals to identify priority goals for review. Priority Feasibility chart to select goal for action plan. On our own write the history and the current process for goal 1 -from the Minnesota systems view.

14 All Children who are D/HH and their families have access to timely and coordinated entry into an EI programs supported by a data management system capable of tracking families and children from confirmation of H.L. to enrollment into EI services.

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16 Develop a mechanism that ensures family access to all available resources and information that is accurate, well-balanced, comprehensive, and conveyed in an unbiased manner. But where do we start?

17 Reviewed and mapped process Developed Driver Diagram Divided into workgroups Materials Accurate / Up to Date Process for dissemination Developed AIM Statements

18 JCIH Goals will take time to review and assess as a team. Collaborative Stakeholders must agree on definitions of terms and processes. Stakeholders must commit to the process of assessing using JCIH Recommendation and to the identified and taking next steps to achieving goals.

19 Anna Paulson Coordinator of Educational Advancement & Partnerships Commission of Deaf, DeafBlind and Hard of Hearing Minnesotans (MNCDHH) Voice: Cell: Nicole Brown MSN, PHN, CPNP EHDI Coordinator (Long Term Follow-up) Minnesota Department of Health Voice:

20 Marcia Fort, Au.D.,., CCC-A Early Hearing Detection and Intervention Coordinator North Carolina Department of Health and Human Services

21 Infant-Toddler Program (Part C Lead Agency) Early Learning Sensory Support Program Parents NC School for the Deaf Department of Public Instruction BEGINNINGS for Parents of Children Who Are Deaf or Hard of Hearing Hospital Newborn Hearing Screening Coordinator Military Audiologist Pediatric Audiologist Cochlear Implant Program University Speech/Hearing Training Program Early Hearing Detection and Intervention (EHDI)

22 Facilitator from the IDEA Data Center/Early Childhood Technical Assistance Center Overview of Self-Assessment Tool 3 Groups Completed Strength, Weakness, Opportunity Assessment for 4 of the 12 Goals Participant Gallery Walk through Remaining Goals Debriefing Prioritization of Goals

23 Screen Diagnostic Intervention

24 Goal 2: timely access to service coordination with skills related to D/HH Goal 3: timely access to diagnosis that leads to referral and access to providers with skills related to D/HH Goal 4: timely access for children who are D/HH with additional disabilities/ conditions

25 EHDI Advisory Committee, EHDI System Self- Assessment Workgroup, EHDI Staff Retreat Completed Strengths, Weaknesses, and Opportunities Assessment of Hearing Screening/Re-Screening, Diagnostic and Intervention Processes Reviewed Existing Program Materials and Activities

26 Collaborative Quality Improvement Teams to Identify Specific Strategies for Improvement on Selected Goals Utilization of Evidence-Based Systems Change Practices to Guide Change Periodic Re-Evaluation of Goals and Objectives to Establish Program Priorities

27 Lessons Learned

28 Marcia Fort, Au.D.,., CCC-A EHDI Coordinator NC Department of Health and Human Services

29 A Northern New England Regional Analysis Maine, New Hampshire and Vermont Pam Dawson, Executive Director of hear ME now Early Intervention Linda Hazard, Program Director VT EDHI 29

30 30 The Need for a Regional Approach Low Incidence disability under 200 identified annually in all three states Rural population Unmet Family Need: Access to consistent, nonbiased information Access to qualified providers Parent to parent support

31 A Collective Approach State Programs Families Early Interventionists Part C Coordinators Parent Volunteers hear ME now (Maine) EHDI Coordinator & Screening Director Nine East Networks (Vermont) State School for the Deaf (Maine only) State Hands & Voices Chapters Multisensory Intervention through Consultation and Education MICE (New Hampshire)

32 Technology to Collaborate over Distance 32 For Meetings: ZOOM video conferencing with screen sharing To Share Information: Google Drive MATERIALS JCIH Goals EDHI Parent Survey 1 State EDHI Month Flow Chart 1 Part C Indicator 1 "Data Timely Service Delivery" 2 Part C Process Roles and Responsibilities Part C Process Documents (binders, materials and processes informing family of hearing loss, audiological information, communication options, child/language development and resources upon diagnosis) State Special Ed Guidelines State EI Certificates & Endorsements 2, 3, 4, 7 2, 3, 4, 7 3, 4 3, 4 EI Competencies & Certifications Specific to Hearing Loss 3, 4

33 A Regional Gap Analysis Project Goals Conduct a gap analysis to identify the barriers in the Family Journey from newborn screening through early intervention enrollment Develop an outline for one or more collaborative improvement strategies 27

34 34 JCIH Goal 1, Recommendation 1.2 Goal: All Children who are D/HH and their Families have Access to Timely and Coordinated Entry into EI Programs Supported by a Data Management System Capable of Tracking Families an Children From Confirmation of Hearing loss to Enrollment in to EI Services Individual State Progress Ratings New Hampshire Vermont Maine Nothing in Place X Just Beginning X Making Good Progress Established Practice X Recommendation: Develop a mechanism that ensures family access to all available resources and information that is accurate, wellbalanced, comprehensive and conveyed in an unbiased manner Opportunity for Regional Collaboration Rating No Opportunity Significant Opportunity

35 Next Steps: A Collaborative Improvement Strategy 35 Regional Northern New England Website: General information on HL and links to existing national resources State Specific Resources: Housed on each state s Hands and Voices website (as well as existing state Part C websites) Social Media (parent to parent support): Maintained in collaboration with state Hands and Voices Chapters * first, develop a process/rubric for identifying resources that meet JCIH recommendation 1.2

36 Lessons Learned: Wilder Collaborative Inventory 2006 Useful, positive outcome: A much needed collaboration with a reasonable goal: useful joint website. Outcome will benefit many people and improve ongoing collaboration. Cross-section of participants, perspectives, systems: Has been helpful. It's unusual for all perspectives of the Early Intervention process to communicate so regularly. Multi State collaborative with a variety of agencies/families represented will ensure a balanced project. 27

37 Ways to Improve Meet in person: It seems most productive and effective when all parties meet in person, so any way to increase in-person attendance and participation would be great. (Rules for virtual meetings) How to represent stakeholder group, but acknowledge personal belief system 28

38 Thank You Pam Dawson, M.Ed Executive Director hear ME now. Linda Hazard, Ed.D Program Director VTEHDI 27

39 Kelly Hermanns, Au.D., MPH Early Hearing Detection and Intervention Coordinator Office of Chief of Staff GEORGIA S EXPERIENCE

40 Why? Conducting a long term follow-up study on children who are D/HH Outcome data suggests children who are D/HH in Georgia are not academically successful

41 A Collective Approach State Programs Families Interventionists and Auxiliary Part C Coordinator & Provider Relations Manager Hands & Voices GA Pathway to Language and Literacy Coordinator SKI-HI Coordinator & Program Manager Guide By Your Side Atlanta Speech School EHDI Coordinator & Screening Director DPH Family Engagement Coordinator Auditory Verbal Center

42 Process Established and agreed to rating definitions Private self rating system (1) Nothing in Place The EHDI system has not yet begun to address this component (2) Just Beginning The EHDI system for this component is at an early stage or period (3) Making Good Progress The EHDI System for this component has made satisfactory development, growth, or advancement (4) Established Practice The EHDI System for this component conforms to accepted standards

43 Group Discussion Benefits Learned from another Collaboration opportunities Training Discovered additional agencies/programs working in tandem

44 Strategic Planning Averaged ratings submitted Wrote each goal with average score separately on easel sheet Two step selection Overall Goal Sub Goals

45 Results and Next Steps Results: Framework developed for the strategic plan for improving intervention systems of care for D/HH children Have baseline on Georgia s intervention systems Next Steps: Organize sub committees for each activity and start developing plans and activities to achieve goals

46 Lessons Learned Helpful to have all primary intervention stakeholders Regret not inviting additional intervention providers such as Children s Medical Services and external maternal and child health programs/providers Agree on the underlying objective for goals

47 Kelly Hermanns, Au.D., MPH EHDI Coordinator Office of Chief of Staff

48 Nicole Brown, MSN, PHN, CPNP - EHDI Coordinator, Minnesota Department of Health Anna Paulson, M.Ed., - Coordinator of Educational Advancement & Partnerships, Commission of Deaf, DeafBlind and Hard of Hearing Minnesotans (MNCDHH) Marcia Fort, Au.D., CCC-A, - EHDI Coordinator, North Carolina Department of Health and Human Service Pam Dawson - Executive Director, Hear ME Now, Maine -EI program Kelly Hermanns, Au.D. - State EHDI Coordinator, Georgia Department of Public Health