Dr Sylvie Lambert, RN, PhD
|
|
- Kevin Stewart
- 6 years ago
- Views:
Transcription
1 Is it the most frequent unmet supportive care needs that predict caregivers anxiety and depression? Results from Australia s Partners and Caregivers Longitudinal Well-being Study Dr Sylvie Lambert, RN, PhD Assistant Professor, Ingram School of Nursing, McGill University, Montreal Research Associate, St. Mary s Research Centre, Montreal Fonds de Recherche du Québec-Santé (FRQS) Research Scholar Junior 1
2 Impact of cancer on caregivers Historically, informal caregivers have always played a major role in providing cancer care Worldwide, as the burden of cancer care is no longer manageable through formal care settings alone, there is a gradual shift towards community-based care In this context, caregivers are an essential extension of the formal health care system and provide 70%-80% of patients care Economic value of this support estimated in the billions Caregivers involvement not only reduces the demands on health care system, but positively impacts on how well patients adjust to the illness Despite their value, caregivers remain largely a hidden workforce operating with little to no formal support This comes at a particularly high cost to caregivers health
3 Physical health problems (e.g., fatigue, pain, loss of physical strength, loss of appetite, weight loss) Burden related to responsibilities (e.g., assisting with mobility, managing patient s symptoms) Social problems (e.g., hard to concentrate at work, balancing multiple roles, difficulty to pay bills, change in employment status) Impact of cancer on partners and caregivers Emotional problems and reactions (e.g., anxiety and depression) Stenberg et al. (2010). Review of the literature on the effects of caring for a patient with cancer. Psycho-Oncology, 19(10),
4 1 The responsibility that caregivers take on has prompted in-depth documentation into the kind of support they need 2 3
5 ????????? Limitations of current research Cross-sectional Small samples Focus on caregivers of women with breast cancer or men with prostate cancer United States, Europe & Canada Partners & Caregivers Well-being Study Longitudinal study of partners and caregivers of patients diagnosed with one of the 8 most common cancers in Australia Main aim: Describe changes in anxiety, depression, quality of life, and unmet needs and identify variables associated with these outcomes
6 Partners & Caregivers study Wave 1 6 months (n=547) Wave 2 1 year (n=521) Wave 3 2 years (n=442) Wave years (n= 386) Wave 5 5 years (n=350) Multi-dimensional outcomes: Self-administered scannable survey Anxiety: Hospital Anxiety & Depression Scale Depression: Hospital Anxiety & Depression Scale Perceived needs: Supportive Care Needs Survey- Partners & Caregivers Quality of life: SF-12 Coping: Brief Cope Social support: MOS Social Support Survey Caregiver burden, role involvement and financial strain Demographics, patient disease and treatment characteristics
7 Supportive Care Needs Survey Partners and Caregivers Girgis, A., Lambert, S., Lecathelinais, C. (2010). The Supportive Care Needs Survey for Partners and Caregivers of Cancer Survivors: Development and Psychometric Evaluation. Psycho-oncology.
8 Demographics (n=219) Demographics % Gender: Female 73 Age: Country of origin: Australia 80 Marital Status: Married 93 Relationship to cancer patient: Partner 91 Education: Primary school/secondary not completed 17 Secondary school 24 Trade, TAFE, University 48 Employment: Employed/student 49 Unemployed/retired 34 Household duties 8 Current Household Income: <$500 pw 24 $500-$799 pw 25 $800-1,000 pw 15 >$1,000 pw 21
9 Diagnosis of the patients (n= 219) Leukemia 1% Head and neck 8% Colorectal 12% Lung 2% NHL 14% Melanoma 12% Breast 16% Colorectal Breast Prostate Melanoma Lung NHL Head and neck Prostate 35% Leukemia
10 % Sample How many caregivers need more help with at least one unmet need? 100 Average number of unmet needs reported % 50.7% 41.1% 34.7% 40.6% Wave #1 Wave #2 Wave #3 Wave #4 Wave #5 Wave #1 6 months Wave #2 1 year Wave #3 2 years 7.0 (SD= 10.00) 4.3 (SD = 7.8) 3.2 (SD = 6.4) Wave #1 Wave #2 Wave #3 Wave #4 Wave #5 6 months 1 year 2 years 3.5 years 5 years Waves Wave #4 3.5 years Wave #5 5 years 2.9 (SD = 7.0) 4.2 (SD = 8.7)
11 What kind of help do caregivers need? 30 Standardized average number of unmet needs Unmet need domains Information need Health services need Work need Emotional need 5 0 Wave #1 Wave #2 Wave #3 Wave #4 Wave #5 6 months 1 year 2 years 3.5 years 5 years Wave
12 What kind of help do caregivers need? Top unmet needs at 6 months (Wave 1) 35 30% Wave 1
13 What kind of help do caregivers need? Top unmet needs at 1 year (Wave 2) Wave 1 Wave 2
14 What kind of help do caregivers need? Top unmet needs from 6 months and 5 years Wave 1 Wave 2 Wave 3 Wave 4 Wave 5 Core, stable unmet needs
15 What kind of help do caregivers need? Core, stable unmet needs across time Core unmet needs 14-Reduce stress in the person with cancer 31-Manage concerns cancer coming back 32-Impact cancer had on relationship 33-Experience of person with cancer 34-Balance needs 35-Adjust changes in person s body 36-Addres problems with sex life 39-Work through feelings about death
16 Top unmet needs from 6 months and 5 years Wave 1 Wave 2 Wave 3 Wave 4 Wave 5 Prevalent unmet needs
17 Are the most frequent unmet supportive care needs the best predictors of caregivers anxiety and depression?
18 Implications Unmet needs Identify most prevalent unmet supportive care needs Caregiver intervention Developed often to address most prevalent unmet supportive care needs Efficacy of caregiver interventions Anxiety Depression Stress Distress Burden
19 Hospital Anxiety and Depression Scale (HADS) 7-item anxiety and depression subscale Subscale scores range from 0-21 Scores > 7-8 are clinically significant Minimal clinically significant difference = 1.5
20 Are the most prevalent needs those most associated with caregivers anxiety and depression at 6 months? % of caregivers needing more help with a need item Top 10 Results of PLS % VIP (PLS) 6 months
21 Are the most prevalent needs those most associated with caregivers anxiety and depression at 1 year? % of caregivers needing more help with a need item Top 10 Results of PLS % VIP (Wave 2)
22 Subset of 11/44 unmet needs with a value < 1 Not prevalent 1-Access information on carer needs 18-Access info fertility problems 2-Access information on prognosis 20-Find accessible hospital parking 9-Be involved in person s care 10-Discuss concerns with MDs 11-Feel confident MDs talking to each other 12-Ensure case manager coordinate services 24-Obtain life and/or travel insurance 25-Access legal services 43-Explore spiritual beliefs
23 Subset of 33/44 unmet needs further considered for regression analyses Core unmet needs Prevalent Not prevalent 14-Reduce stress in the person with cancer 15-Look after your own health 38-Get emotional support for loved ones 30-Handle topic of cancer in social situations 31-Manage concerns 37-Get emotional 26-Communicate with person 5-Access info person s physical cancer coming back support for self caring for needs 32-Impact cancer had 42-Make decisions in 27-Communicate with the 6-Access info treatment side-effects on relationship context of uncertainty family 33-Experience of 40-Deal with lack of 8-Access health care services person with cancer acknowledgment 34-Balance needs 44-Find meaning 4-Access info alternative therapies 35-Adjust changes in 41-Cope person s recovery 13-Make sure complaints addressed person s body not as expected 36-Addres problems 7-Obtain best medical care 3-Access info services for carers with sex life 39-Work through feelings about death 23-Find financial support 16-Obtain adequate pain control 22-Impact of cancer on carer working life 21-Adapt changes person s working life 28-Get support from your family 29-Talk to other carers 19-Care on a practical level, e.g., bathing 17-Fears about deterioration
24 Regression analysis: Depression - All unmet needs lead to a difference greater than 1.5 ( ) 6 months 1 year 2 year 3.5 years 5 year 42-Make decisions in context of uncertainty 22- Impact of cancer on carer working life 42-Make decisions in context of uncertainty 15-Look after your own health 40-Deal with lack of acknowledgment 17 - Address fears about deterioration 41-Cope with recovery not as expected 23-Find financial support 15-Look after your own health 42-Make decisions in context of uncertainty
25 Regression analysis: Anxiety - All unmet needs lead to a difference greater than 1.5 ( ) 6 months 1 year 2 year 5 year 3.5 years 42-Make decisions in context of uncertainty* 21-Adapt changes person s working life 39-Work through feelings about death 17 - Address fears about deterioration 22- Impact of cancer on carer working life* 15-Look after your own health* 39-Work through feelings about death 31-Manage concerns cancer coming back 31-Manage concerns cancer coming back 37-Get emotional support for self 14-Reduce stress in the person with cancer 23-Find financial support*
26 Summary final results 6 months 1 year 2 years 3.5 years 5 years Core, stable unmet needs 14-Reduce stress in the person with Few core, stable Anxiety cancer unmet needs, are 31-Manage concerns cancer coming Anxiety Anxiety back associated with All prevalent 39-Work through feelings about death Anxiety anxiety (none Anxiety Prevalent, unmet needs needs are 15-Look after your own health with depression) at some Anxiety point Depression Depression 37-Get emotional support for self significantly Anxiety 42-Make decisions in context of Anxiety Depression associated with Depression uncertainty Depression Not prevalent, but depression important 17 - Address fears about deterioration Anxiety and/or anxiety Depression 21-Adapt changes person s working Anxiety life 22- Impact of cancer on carer working life 23-Find financial support 40-Deal with lack of acknowledgment 41-Cope with recovery not as expected Less prevalent unmet needs were significant at selected waves Anxiety Depression Depression Depression Anxiety Depression
27 Caregiver Intervention Implications Main modules - Reduce stress in the person with cancer - Manage concerns cancer coming back - Work through feelings about death - Look after your own health - Get emotional support for self - Make decisions in context of uncertainty Optional modules based on assessment - Address fears about deterioration - Adapt changes person s working life - Impact of cancer on carer working life - Find financial support - Deal with lack of acknowledgment - Cope with recovery not as expected Outcomes Anxiety Depression
28 Dr. Sylvie Lambert, PhD Assistant Professor, Ingram School of Nursing Room 400, Wilson Hall Thank You
The American Cancer Society National Quality of Life Survey for Caregivers
The American Cancer Society National Quality of Life Survey for Caregivers Rachel S. Cannady Strategic Director, Cancer Caregiver Support Atlanta, GA Agenda Definition and prevalence of cancer survivorship
More informationQuality of Life Instrument - Breast Cancer Patient Version
NATIONAL MEDICAL CENTER AND BECKMAN RESEARCH INSTITUTE Dear Colleague: Quality of Life Instrument - Breast Cancer Patient Version The Quality of Life Instrument (BREAST CANCER PATIENT VERSION) is a forty-six
More informationAddressing Health Disparities to Improve the Care of African-American Women Affected by Breast Cancer
Addressing Health Disparities to Improve the Care of African-American Women Affected by Breast Cancer Moderator: Patricia K. Bradley, PhD, RN, FAAN Associate Professor, Villanova University College of
More informationAddressing relationships following a breast cancer diagnosis: The impact on partners, children, and caregivers
Addressing relationships following a breast cancer diagnosis: The impact on partners, children, and caregivers Shoshana M. Rosenberg, ScD, MPH Dana-Farber Cancer Institute April 5, 2018 Why is it important
More informationCANCER CONNECT NZ A peer support service for people living with cancer
CANCER CONNECT NZ A peer support service for people living with cancer Dr Rae Noble-Adams (RGON, BSc Hons, PhD) Liz Horn (Support Services Manager) and Meg Biggs (Information Nurse) Canterbury/West Coast
More informationQuality of Life Questionnaire for a Patient with an. Ostomy (QOL-O) Grant, M., Ferrell, B. R., Dean, G., Uman, G., Chu, D., & Krouse, R.
Instrument Title: Quality of Life Questionnaire for a Patient with an Ostomy (QOL-O) Instrument Author: Grant, M., Ferrell, B. R., Dean, G., Uman, G., Chu, D., & Krouse, R. Cite instrument as: Grant, M.,
More informationProf Marion Eckert Rosemary Bryant AO Research Centre
Willingness of cancer survivors to complete patient reported outcomes (PRO) surveys: a pilot study at Flinders Centre for Innovation in Cancer (FCIC), South Australia Prof Marion Eckert Rosemary Bryant
More informationCancer Survivorship Consortia International Research & Clinical Priorities: Australia
Cancer Survivorship Consortia International Research & Clinical Priorities: Australia Afaf Girgis PhD Centre for Health Research & Psycho-oncology (CHeRP) Cancer Council NSW, University of Newcastle, Hunter
More informationQuality of Life at the End of Life:
Quality of Life at the End of Life: Evaluating the Clinical Utility of the QUAL-EC in Patients with Advanced Cancer 13 th Australian Palliative Care Conference 2015 Melbourne, Australia October 1 st 4
More informationThe GA Cancer Survivorship Workgroup Survey Results
The GA Cancer Survivorship Workgroup Survey Results CAM ESCOFFERY, PHD, MPH, CHES ROLLINS SCHOOL OF PUBLIC HEALTH Georgia Center for Oncology Research and Education s Cancer Survivorship: Up Close & Personal
More informationDeveloping a sustainable and efficacious coping skills intervention for patients with cancer and their caregivers
Developing a sustainable and efficacious coping skills intervention for patients with cancer and their caregivers Dr Sylvie Lambert, N, PhD Assistant Professor, Ingram School of Nursing Context for my
More informationEconomics of cancer from the patient (and family) perspective
Economics of cancer from the patient (and family) perspective Linda Sharp, Paul Hanly, Alan O Ceilleachair, Mairead Skally, Aileen Timmons linda.sharp@ncri.ie NCIN Economics of cancer workshop October
More informationLynne S. Padgett PhD Rehabilitation Psychologist, Consultant
Lynne S. Padgett PhD Rehabilitation Psychologist, Consultant lynnepadgett@gmail.com WHAT HOW Financial challenges + Missed work + Dating/sexuality + Fatigue + Dizziness + Cognitive symptoms = National
More informationPrevalence, Evolution and Risk Factors of Insomnia Comorbid with Cancer Over a 10-Month Period
Prevalence, Evolution and Risk Factors of Insomnia Comorbid with Cancer Over a 10-Month Period Josée Savard, Ph.D. Professor School of Psychology, Université Laval and Laval University Cancer Research
More informationBreast and Cervical Cancer Early Detection BEST PRACTICES AND MODELS
Breast and Cervical Cancer Early Detection BEST PRACTICES AND MODELS PRESENTED BY: LATHANHARRIS, INC. PRESENTATION OBJECTIVES Describe disparity issues for African American women Describe barriers African
More informationA 3-Factor Model for the FACIT-Sp
A 3-Factor Model for the FACIT-Sp Reference: Canada, Murphy, Fitchett, Peterman, Schover. Psycho-Oncology. Published Online: Dec 19, 2007; DOI: 10.1002/pon.1307. Copyright John Wiley & Sons Ltd. Investigators
More informationThe SALVEO Study Improving mental health in the workplace
The SALVEO Study Improving mental health in the workplace SALVEO is one of the largest studies on mental health conducted to date in Canada. It considers individual and organizational factors that contribute
More informationWellness along the Cancer Journey: Palliative Care Revised October 2015
Wellness along the Cancer Journey: Palliative Care Revised October 2015 Chapter 2: Palliative Care Palliative Care Rev. 10.8.15 Page 352 Group Discussion True False Not Sure 1. Palliative care is only
More informationAdjustment to Retirement: The Moderating Role of Attachment. Dikla Segel, Peter Bamberger
Adjustment to Retirement: The Moderating Role of Attachment Dikla Segel, Peter Bamberger Introduction: Adjustment to Retirement Retirement has become a long and meaningful phase in the older adult s life
More informationNihal Mohamed, Ph.D. Michael A. Diefenbach, Ph.D. Mount Sinai School of Medicine Department of Urology & Oncological Sciences, New York
Differences between African American and white men in worries and expectations about prostate cancer treatment, need for information, and decisional regret Nihal Mohamed, Ph.D. Michael A. Diefenbach, Ph.D.
More informationUnmet supportive care needs in Asian women with breast cancer. Richard Fielding Division of Behavioural Sciences School of Pubic Health, HKU
Unmet supportive care needs in Asian women with breast cancer Richard Fielding Division of Behavioural Sciences School of Pubic Health, HKU Service Access and affordability Remoteness Insurance coverage
More informationValidity and reliability of a 36-item problemrelated distress screening tool in a community sample of 319 cancer survivors
Validity and reliability of a 36-item problemrelated distress screening tool in a community sample of 319 cancer survivors Melissa Miller 1, Joanne Buzaglo 1, Kasey Dougherty 1, Vicki Kennedy 1, Julie
More information>6,600 Patients per day receiving care in one of these hospices. Symptom Experience. Symptom Management and Quality of Life at the End of Life
Symptom Management and Quality of Life at the End of Life Susan C. McMillan, PhD, ARNP, FAAN Professor, College of Nursing Center for Hospice, Palliative Care and End of Life Studies at USF A coalition
More informationNational Survivorship and QoL Research:
National Survivorship and QoL Research: Impact on Interventions, Guidelines, and Resources Kevin D. Stein, PhD, Vice President, Behavioral Research, Director, Behavioral Research Center, American Cancer
More informationSustained employability in cancer survivors: a behavioural approach
Sustained employability in cancer survivors: a behavioural approach Dr. Saskia Duijts VU University Medical Center / Department of Public and Occupational Health The Netherlands Cancer Institute / Division
More informationNational Update: Living With and Beyond Cancer Implementing Strategic Priority 4 of the National Cancer Taskforce
National Update: Living With and Beyond Cancer Implementing Strategic Priority 4 of the National Cancer Taskforce Duleep Allirajah Head of Policy, Macmillan Cancer Support Total Prevalence - now Total
More informationCITY OF HOPE NATIONAL MEDICAL CENTER QUALITY OF LIFE QUESTIONNAIRE FOR PATIENTS WITH AN OSTOMY
ID # CITY OF HOPE NATIONAL MEDICAL CENTER QUALITY OF LIFE QUESTIONNAIRE FOR PATIENTS WITH AN OSTOMY In advance, thank you for taking the time to complete this questionnaire. We want to ensure that your
More informationDevelopment and pilot testing of a comprehensive support package for bowel cancer survivors
Development and pilot testing of a comprehensive support package for bowel cancer survivors Michael Jefford, Carl Baravelli, Megan Rogers, Penelope Schofield, Kerryann Lotfi-Jam, Meinir Krishnasamy, Carmel
More informationNew Approaches to Survivor Health Care
New Approaches to Survivor Health Care May 14, 2007 Survivorship Care Models Mary S. McCabe, RN Ms. McCabe is the Director of the Cancer Survivorship Program at Memorial Sloan-Kettering Cancer Center.
More informationHealth Resource Review - Section 2.4
Table 1. Median Age of Cancer Patients at Diagnosis, 2000-2003 Men Women Cancer site Median Age Number Median Age Number Breast 67 1,720 61 212,920 Colon 71 49,220 75 57,460 Corpus uteri -- -- 63 41,200
More informationThe financial impact of a cancer diagnosis
The financial impact of a cancer diagnosis Linda Sharp Aileen Timmons National Cancer Registry Ireland With the support of: Harry Comber, Director, National Cancer Registry (NCR) Noeleen Donnelly, Human
More informationInfluence of Personal and Contextual Factors and Cognitive Appraisal on Quality of Life over Time in Persons Newly Diagnosed with Cancer
Influence of Personal and Contextual Factors and Cognitive Appraisal on Quality of Life over Time in Persons Newly Diagnosed with Cancer Theresa A. Kessler, PhD, RN, ACNS-BC, CNE Valparaiso University,
More informationMai-Nhung Le, Dr.PH, MPH; Giang Nguyen, MD, MPH; Fidelia Butt, MD; Roxanna Bautista, MPH, CHES; and Mavis Nitta, MPH, CHES
Mai-Nhung Le, Dr.PH, MPH; Giang Nguyen, MD, MPH; Fidelia Butt, MD; Roxanna Bautista, MPH, CHES; and Mavis Nitta, MPH, CHES Asian American Studies Department San Francisco State University, San Francisco
More informationAre touchscreen computer surveys acceptable to medical oncology patients?
Southern Cross University epublications@scu School of Education 1997 Are touchscreen computer surveys acceptable to medical oncology patients? Sallie Newell Southern Cross University Rob William Sanson-Fisher
More informationSocial determinants of mental health among Inuit youth in Nunavik: a multilevel analysis
Social determinants of mental health among Inuit youth in Nunavik: a multilevel analysis Andrew Gray CPHA conference June 26, 2015 occupied Coast Salish territory (Vancouver) Image: Angela Larose 2009
More informationINFORMATION AND SUPPORTIVE CARE NEEDS OF INDIVIDUALS WITH BLADDER CANCER
INFORMATION AND SUPPORTIVE CARE NEEDS OF INDIVIDUALS WITH BLADDER CANCER ROBIN MORASH APN, URO-ONCOLOGY JUNE 23, 2018 www.ottawahospital.on.ca Affiliated with Affilié à PRESENTATION CONTENT Overview of
More informationOverview of Some Cultural Considerations
Overview of Some Cultural Considerations Mark Lazenby PhD FAAN Associate Professor of Nursing, Divinity, & Middle East Studies The Term Culture The ideas, customs, and social behavior of a particular people
More informationPatient Input Template for CADTH CDR and pcodr Programs
Patient Input Template for CADTH CDR and pcodr Programs Name of the Drug and Indication Name of the Patient Group Author of the Submission Name of the Primary Contact for This Submission Email Herceptin-Perjeta
More informationIs cancer a chronic disease? Prof. Dace Baltina Riga East University Hospital Ministry of Health
Is cancer a chronic disease? Prof. Dace Baltina Riga East University Hospital Ministry of Health Cancer survival statistics 50% of adult cancer patients diagnosed in 2010-2011 in England and Wales are
More informationWHO Collaborating Centre
Mental Health and disability key concepts Rachel Jenkins Mental health, mental illness, causes, consequences, interventions Mental health and healthy lifestyles Mental disorder, Prevalence, symptoms and
More informationAnxiety and depression among long-term survivors of cancer in Australia: results of a population-based survey
Anxiety and depression among long-term survivors of cancer in Australia: results of a population-based survey Allison W Boyes, Afaf Girgis, Alison C Zucca and Christophe Lecathelinais Cancer is a life-changing
More informationRICHARD FIELDING SCHOOL OF PUBLIC HEALTH, HKU, & JOCKEY CLUB INSTITUTE OF CANCER CARE, HONG KONG
TOWARD INTEGRATING DISTRESS MANAGEMENT INTO ROUTINE CANCER CARE: EXPERIENCES AMONG THE ASIAN PACIFIC PSYCHO- ONCOLOGY NETWORK UNDERSTANDING THE DISTRESS FOLLOWING A CANCER DIAGNOSIS RICHARD FIELDING SCHOOL
More informationMYTH 1 WE DON T NEED TO TALK ABOUT CANCER
MYTH 1 WE DON T NEED TO TALK ABOUT CANCER WORLD CANCER DECLARATION TARGET 1 Health systems will be strengthened to ensure sustained delivery of effective and comprehensive, people-centred cancer control
More informationThe Needs of Young People who have a Sibling with Cancer.
This research focussed on exploring the psychosocial needs of young people (aged 12-24) who have a sibling with cancer. The study involved interviewing young people to find out what their needs were and
More informationASSOCIATION ALZHEIMER MAURITIUS WIN EVENT 26 TH SEPTEMBER 2013 DEMENTIA A JOURNEY OF CARING DR AMEENAH SOREFAN
ASSOCIATION ALZHEIMER MAURITIUS WIN EVENT 26 TH SEPTEMBER 2013 DEMENTIA A JOURNEY OF CARING DR AMEENAH SOREFAN ALZHEIMER MONTH 21 September International Day for Alzheimer s Disease Launch of World Report
More informationAttitudes and Beliefs of Prostate Cancer Patients Towards Out-of-Pocket Payment
Attitudes and Beliefs of Prostate Cancer Patients Towards Out-of-Pocket Payment By Olivia S. Jung Mentor: Justin E. Bekelman, MD Supported by LDI Pilot Grant August 12, 2011 Increasing costs of cancer
More informationThe Road to Survivorship Living After Cancer Treatment
The Road to Survivorship Living After Cancer Treatment Voices of Strength Living After Cancer Treatment I AM ANN MARY I LIVE STRONG CANCER SURVIVOR Header subheader You are not alone. Body More Vestibulum
More informationHealth Behavioral Patterns Associated with Psychologic Distress Among Middle-Aged Korean Women
ORIGINAL ARTICLE Health Behavioral Patterns Associated with Psychologic Distress Among Middle-Aged Korean Women Hye-Sook Shin 1, PhD, RN, Jia Lee 2 *, PhD, RN, Kyung-Hee Lee 3, PhD, RN, Young-A Song 4,
More informationwere here to help Macmillan Cancer Information and Support Centre Wexham Park Hospital, Slough
were here to help Macmillan Cancer Information and Support Centre Wexham Park Hospital, Slough If you ve been diagnosed with cancer, you can use this booklet to request information In partnership with
More informationI MAY NOT HAVE ALL THE ANSWERS BUT AT LEAST I HAVE THE QUESTIONS TO GET THE PROPER. care guidelines
I MAY NOT HAVE ALL THE ANSWERS BUT AT LEAST I HAVE THE QUESTIONS TO GET THE PROPER care guidelines Hi, Being diagnosed with breast cancer is tough at any age, but being diagnosed when you re young makes
More informationAppendix F- Edmonton Symptom Assessment System (ESAS), Canadian Problem Checklist, and Distress Thermometer for Cancer Patients
Appendix F- Edmonton Symptom Assessment System (ESAS), Canadian Problem Checklist, and Distress Thermometer for Cancer Patients Screening Cancer Patients for Distress in Nova Scotia with the ESAS, CPC,
More informationFamily Conflict and Chronic Illness Management
ECOSCIM Family Conflict and Chronic Illness Management H. Soubhi, Ph.D Groupe de Recherche Interdisciplinaire en Santé Department of Family Medicine University of Montreal ECOSCIM CONTEXT OF THE STUDY
More informationCAP Lung Cancer Medical Writers Circle
Emotional Effects of Lung Cancer on Survivors and Their Spouses Cindy L. Carmack, Ph.D. Associate Professor, The University of Texas M. D. Anderson Cancer Center Receiving a lung cancer diagnosis and undergoing
More informationUseful Self Assessment tools to help identify your needs and how you are feeling for patients and their family/caregivers
Useful Self Assessment tools to help identify your needs and how you are feeling for patients and their family/caregivers 114 115 Needs Assessment Tool Patients & Families [NAT-P&F] The topics below are
More informationLIVING WITH AND IMPLANTABLE CARDIOVERTER- DEFIBRILLATOR; IT S MORE THAN A SHOCK Perceived control and quality of life
LIVING WITH AND IMPLANTABLE CARDIOVERTER- DEFIBRILLATOR; IT S MORE THAN A SHOCK Perceived control and quality of life BENGT FRIDLUND, RNT PHD FESC PROFESSOR, DIRECTOR JÖNKÖPING UNIVERSITY, SWEDEN BENGT.FRIDLUND@HHJ.HJ.SE
More informationLIVESTRONG Cancer Navigation Services with Athan Schindler, Emotional Support Counselor
LIVESTRONG Cancer Navigation Services with Athan Schindler, Emotional Support Counselor This is the date that changed the cancer world. This was the date that a 25- year old Lance Armstrong was diagnosed
More informationDeath at work: Improving support for families
Death at work: Improving support for families Survey of family members: Summary report Lynda R Matthews, Daniel Kimber, Maria McNamara, Philip Bohle, & Michael Quinlan Work and Health Research Team Ageing,
More informationSurvivorship. - Norman Vincent Peale
Survivorship Become a possibilitarian. No matter how dark things seem to be or actually are, raise your sights and see possibilities - always see them, for they re always there. - Norman Vincent Peale
More informationCommunicating Title with Your Healthcare Team to Get the Care You Want. Click to edit Master text styles
Communicating Title with Your Healthcare Team to Get the Care You Want Click to edit Master text styles Lori Ranallo, Title RN, MSN, ARNP-BC, CBCN Click to edit Master text styles Breast Cancer Nurse Practitioner
More informationImpact of Cancer Scale Tool
Impact of Cancer Scale Tool This tool is provided courtesy of Brad Zebrack, PhD, University of Southern California School of Social Work. The Impact of Cancer Scale Tool has 82 items that cover 10 different
More informationOncology Nursing Society Registry in Collaboration with CE City 2015 Performance Measure Specifications
1 ONSQIR 1 Non-PRQS Measure Oncology Nursing Society Registry in Collaboration with CE City 2015 Performance Measure Specifications Performance Measure Name: Symptom Assessment 1-o1a Symptom Assessment
More informationThe Road Ahead. Living After Cancer Treatment
The Road Ahead Living After Cancer Treatment I AM PAMELA I LIVE STRONG CANCER SURVIVOR You are not alone. More than 10 million cancer survivors live in the United States today, and 3 out of 4 families
More informationWhat do We Know about Uncertainly in Illness?
特別講演 What do We Know about Uncertainly in Illness? Merle H. Mishel, RN, PhD. FAAN Kenan Professor School of Nursing University of North Carolina at Chapel Hill Chapel Hill, NC,. USA When I began my original
More informationRehabilitation services and patient needs
Rehabilitation services and patient needs National Research Center of Cancer Rehabilitation Research Unit of General Practice Institute of Public Health Dorte Gilså Hansen, MD, PhD Head of Center Research
More informationThe impact of depression and anxiety on quality of life in Chinese cancer patientfamily caregiver dyads, a cross-sectional study
LI et al. Health and Quality of Life Outcomes (2018) 16:230 https://doi.org/10.1186/s12955-018-1051-3 RESEARCH Open Access The impact of depression and anxiety on quality of life in Chinese cancer patientfamily
More informationPsychosocial support and communication needs in BC patients
ECIBC Plenary Improving BC screening,diagnosis and care in Europe Italy, Dec 9-11, 2015 Communication in person-centered services: Psychosocial support and communication needs in BC patients Luzia Travado,
More information13 th Annual Midwest Conference on Problem Gambling and Substance Abuse. Megan Petra, PhD, MSW
13 th Annual Midwest Conference on Problem Gambling and Substance Abuse Megan Petra, PhD, MSW Addictions are tough on families Effects: Disruption, chaos Financial Legal Household tasks / care-giving Associated
More informationSamantha Artherholt, PhD. Jean C. Yi, PhD. University of Washington Seattle Cancer Care Alliance. Fred Hutchinson Cancer Research Center
Jean C. Yi, PhD Fred Hutchinson Cancer Research Center Samantha Artherholt, PhD University of Washington Seattle Cancer Care Alliance What we ll talk about The latest research on caregivers and stress
More informationViolence Prevention A Strategy for Reducing Health Inequalities
Violence Prevention A Strategy for Reducing Health Inequalities Professor Mark A Bellis Centre for Public Health Liverpool John Moores University WHO Collaborating Centre for Violence Prevention Overview
More informationFellowship Program Director: Dr. Annette Granich
Consultation-Liaison Psychiatry Fellowship Name of institution: McGill University Health Center Type of Fellowship: Consultation-Liaison Psychiatry Number of fellowship positions requested: 1-2 Duration
More informationFrom the Clinic to Home: The Shift to Oral Oncolytic Therapy
From the Clinic to Home: The Shift to Oral Oncolytic Therapy Eric Vachon, BSN, RN Michigan State University, College of Nursing Disclosure I do not have anything to disclose. Objectives Oral oncolytics
More informationCancer Survivorship in the U.S.A: Models of Follow-up Care
National Cancer Institute U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES National Institutes of Health Cancer Survivorship in the U.S.A: Models of Follow-up Care Julia H Rowland, PhD, Director Office of
More informationPatient Intake Assessment Tools for Navigation
Patient Intake Assessment Tools for Navigation Review and utilize the following with new patient referrals to the Navigation program: Psychosocial Distress Screening Tool : Commission on Cancer Standard
More informationAssessment of Mental Health Status of Middle-Aged Female School Teachers of Varanasi City
ISPUB.COM The Internet Journal of Health Volume 5 Number 1 Assessment of Mental Health Status of Middle-Aged Female School Teachers of Varanasi City M Singh, G Singh Citation M Singh, G Singh. Assessment
More informationEffects of Dementia First Aid training on knowledge and attitude of family carers of people with Dementia: findings of a feasibility study
Effects of Dementia First Aid training on knowledge and attitude of family carers of people with Dementia: findings of a feasibility study Dr Arun Jha FRCPsych Consultant Old Age Psychiatrist Hertfordshire,
More informationStage-Based Educational Interventions for Promoting Early Screening Mammography Use among Korean-American Women
Stage-Based Educational Interventions for Promoting Early Screening Mammography Use among Korean-American Women Jin H. Kim, PhD. RN Associate Professor Chamberlain College of Nursing Funded by NIH/NINR
More informationSurvivorship Care Plans in Gynae-oncology an interactive discussion
Survivorship Care Plans in Gynae-oncology an interactive discussion Nicole Kinnane Project Manager Australian Cancer Survivorship Centre Nurse Co-ordinator Gynae-oncology Peter Mac Survivorship Care Plans
More information(RGN, BN,FETC,MA,Independent Prescriber)
Nicola West (RGN, BN,FETC,MA,Independent Prescriber) Consultant Nurse/ Lecturer Cardiff Breast Unit University Health Board Wales School of Healthcare Sciences Cardiff University Quality of Life-The patients
More informationCancer and Relationships
Cancer and Relationships Being given a diagnosis of cancer can be very emotionally difficult. It is very common for both you and the people around you to find this upsetting or hard to cope with. This
More informationEmotional Response, Recovery, & Consequences of Traumatic Injury
Emotional Response, Recovery, & Consequences of Traumatic Injury Tania Calle Williams College MENTOR: Therese S. Richmond, PhD, CRNP, FAAN University of Pennsylvania School of Nursing Associate Dean for
More informationAims for todays session
Aims for todays session To provide a brief overview of psychological interventions with carers of people with Dementia and to consider the existing evidence base. To explore the theoretical basis for the
More information1 Information about the Patient Advocacy Group
1 Information about the Patient Advocacy Group Name of the drug and indication(s): Name of registered patient advocacy group: Yervoy (Ipilimumab) First Line Save Your Skin Foundation Contact person: Title:
More informationCancer. Can be manageable, even curable. Can bring emotional and difficult decisions. Mary Martin. Cancer 11/22/2010
Friend Survivor Cancer Patient Coping with Cancer at the End of Life Made possible by a grant from the centers for Medicare and Medicaid Services Relative Caregiver Cancer Can be manageable, even curable
More informationThe Relationship of Pain, Uncertainty, and Hope in Taiwanese Lung Cancer Patients
Vol. 26 No. 3 September 2003 Journal of Pain and Symptom Management 835 Original Article The Relationship of Pain, Uncertainty, and Hope in Taiwanese Lung Cancer Patients Tsui-Hsia Hsu, MS, Meei-Shiow
More informationA RANDOMISED CONTROLLED TRIAL OF CONQUER FEAR DELIVERED IN A GROUP FORMAT
A RANDOMISED CONTROLLED TRIAL OF CONQUER FEAR DELIVERED IN A GROUP FORMAT Nina Moeller Tauber, MSc. in psychology and Ph.D. fellow 1, Professor Robert Bobby Zachariae 1, Associate Professor Mia Skytte
More informationBy Lora A. Connor B.A., 2008, California State University, Long Beach
By Lora A. Connor B.A., 2008, California State University, Long Beach A Thesis Proposal December 2014 Committee Members: James Amirkhan, Ph.D. (Chair) Courtney Ahrens, Ph.D. Young-Hee Cho, Ph.D. Agenda
More informationINDIVIDUALS ARE COPING ALL THE TIME.
Coping Strategies INDIVIDUALS ARE COPING ALL THE TIME. COPING (CONTENDING) Coping: Is the behavior that protects us from becoming psychologically and physiologically disorganized. Usually incorporates
More information3 The definition of elder physical abuse is any action by a caregiver that is meant to cause harm or fear in another person. Physical abuse includes pain or injury, hitting, pushing, pinching, and
More informationThe Chinese University of Hong Kong The Nethersole School of Nursing. CADENZA Training Programme
The Chinese University of Hong Kong The Nethersole School of Nursing CTP003 Chronic Disease Management and End-of-life Care Web-based Course for Professional Social and Health Care Workers Copyright 2012
More informationTherapeutic Benefits of Caregiver Interventions
Therapeutic Benefits of Caregiver Interventions Laura N. Gitlin, Ph.D. Professor, Department Community Public Health, School of Nursing Director, Center for Innovative Care in Aging Johns Hopkins University
More informationPsychological and Relationship Challenges and Management
Psychological and Relationship Challenges and Management Brad Zebrack, PhD, MSW, MPH Associate Professor University of Michigan School of Social Work What it s like to be an adolescent or young adult with
More informationGuidelines for the psychological management of chronic kidney disease patients (for the Psychologist)
Indian J Nephrol 2005;15, Supplement 1: S103-S108 S 103 Guidelines for the psychological management of chronic kidney disease patients (for the Psychologist) Introduction With increasing levels of sophistication
More informationALLIED TEAM TRAINING FOR PARKINSON
ALLIED TEAM TRAINING FOR PARKINSON PSYCHOSOCIAL CHALLENGES IN EARLY STAGE PD Elaine Book, M.S.W. 1 Learning Objectives Examine the role of social work in the provision of psycho-social treatment for individuals
More informationDynamics of Disease. Elizabeth Archer-Nanda, PMHCNS-C. Collaborators: Mary Helen Davis, MD Sarah Parsons, DO Rose Vick, PMHNP-C
Dynamics of Disease Elizabeth Archer-Nanda, PMHCNS-C Collaborators: Mary Helen Davis, MD Sarah Parsons, DO Rose Vick, PMHNP-C 1 Norton Cancer Institute Louisville Oncology Med/Hem Onc Gyn Onc Ortho Onc
More informationCancer survivorship and labor market attachments: Evidence from MEPS data
Cancer survivorship and labor market attachments: Evidence from 2008-2014 MEPS data University of Memphis, Department of Economics January 7, 2018 Presentation outline Motivation and previous literature
More informationPsychological benefits for cancer patients and their partners participating in mindfulness-based stress reduction (MBSR)
Psycho-Oncology Psycho-Oncology 19: 1004 1009 (2010) Published online 16 November 2009 in Wiley Online Library (wileyonlinelibrary.com)..1651 Brief Report Psychological benefits for cancer patients and
More informationLearning about Conflict
Learning about Conflict Information for people living with cancer and their family caregivers This brochure was produced by The EPEC Project at Northwestern University. Thanks to The Lance Armstrong Foundation
More information5/3/2016 SEXUALITY: KNOWLEDGE OPENS THE DOOR OBJECTIVES DEFINITIONS CONT. DEFINITIONS
SEXUALITY: KNOWLEDGE OPENS THE DOOR TO COMMUNICATION JILL LIBBESMEIER BSN, RN, OCN OBJECTIVES Understand the differences between sexuality, intimacy, sexual health, and sexual dysfunction Identify how
More informationEND-OF-LIFE CARE RESEARCH GROUP
END-OF-LIFE CARE RESEARCH GROUP ACHIEVING THE BEST PALLIATIVE AND END-OF-LIFE CARE Director Prof. dr. Luc Deliens The 10th EAPC World Congress is a special edition for the End-of-Life Care Research Group.
More informationHealthcare Reform and Cancer Survivorship: Implications for Care & Research
Healthcare Reform and Cancer Survivorship: Implications for Care & Research Julia H. Rowland, Ph.D., Director Office of Cancer Survivorship National Cancer Institute National Institutes of Health DHHS
More information