Image: Wade, S. (2012) Victorian Autism Conference, 2012

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1 Image: Wade, S. (2012) Victorian Autism Conference, 2012

2 Introduction Before: Preparing to share During: Sharing the diagnosis After: Building understanding Reflections on the process Questions

3 [diagnosis] allows teachers and others to disengage from otherwise unhelpful labels, such as lazy, rude, defiant (Jordan, 2003, p.212) Image: Wade, S. (2012) I'm glad I have a label. My label helps me to understand who I am and why I function as I do we can view it as informing (Lawson, 2008, p.98) Self-understanding, self-management & self-advocacy Jordan, 2003; Lawson, 2008; Shore, 2004; Whitaker, 2006

4 achievements Asperger s Abilities, Achievement & the Autism Spectrum autism capacity creativity education gifted high abilities intelligence interest learning strengths successes talent twice-exceptional Seeking participants Adults on the autism spectrum (with a diagnosis) & people with knowledge of individuals on the autism spectrum (any age with a diagnosis) who can help us learn about high abilities and achievements. To find out more Follow link to the online questionnaire & full study details: Adults with ASD Parents Teachers Psychologists Mentors Coaches Or contact the researcher: Susan.Wade@monash.edu This research has obtained ethics clearance from the Monash University Ethics Committee CF11/

5 Felt part of a community Increased self-worth Explained difference If only I had it earlier Advantages Disadvantages Defines the person Does not guarantee help Possible low expectations Useful for selfadvocacy Source: Unpublished data from my PhD study Abilities, Achievement & the Autism Spectrum under the supervision of Dr. Leonie Kronborg, Faculty of Education, Monash University

6 Parent of a 10yo boy with Asperger s. USA My child has always known of his diagnosis. We have explained that it just like us being Hispanic, it is a large part of who you are as a person but it is not all of who you are. It brings with it some good things and some bad things. Some people will judge you by it which is unfair but just how things go. It is not an excuse for not trying your best. Most people have difficulty thinking outside of their box but he can not only think outside the box but travel in his own Tardis [Dr. Who time machine] and explore the world and be brilliant. Source: Unpublished data from my PhD study Abilities, Achievement & the Autism Spectrum under the supervision of Dr. Leonie Kronborg, Faculty of Education, Monash University

7 Image: Wade, S. (2012)

8 Help with weaker areas Building on strengths Advocacy & education Image: Wade, S. (2010)

9 Introduction Before: Preparing to share During: Sharing the diagnosis After: Building understanding Reflections on the process Questions

10 Image: Wade, S. (2012) Talking, writing, exercise and TIME!

11 Ross W. Greene, PhD (The Explosive Child, p. 88)... If you haven t already, you may have to come to grips with the fact that your child a little different. Yours is not a business as usual child. So if you were hoping for the standard, easygoing child, it s not in the cards....luckily, the definition of good parenting (and good teaching) is being responsive to the hand you ve been dealt.

12 Image: Wade, S. (2012) Reading & listening

13 Image: Wade, S. (2011) Age, need-to-know, & ability to understand

14 Image: Wade, S. (2012) Self-knowledge, self-descriptive language

15 Image: Wade, S. (2012) Individual differences, strengths & weaknesses

16 Image: Wade, S. (2012) Personalised, interactive & fun

17 Introduction Before: Preparing to share During: Sharing the diagnosis After: Building understanding Reflections on the process Questions

18 Black & white Likes routines thinker to Liked be the reading same transport books at kinder Shades of grey Happy with thinker changes Liked to pretend routines play at kinder Statements developed in part from the Autism Quotient (AQ-Child) (Auyeung, Baron-Cohen, Wheelwright & Allison, 2008) Appeals to motivation & strengths

19 Child paints a picture of themselves, a pattern is revealed

20 Adapted from the Attribute s Activity (Attwood, 2006)

21 Image: Wade, S. (2012) Hoopman, K. (2006). All cats have Asperger syndrome.

22 What we did Words we prefer to use What we said Words we prefer not to use Providing a summary to key people

23

24 Introduction Before: Preparing to share During: Sharing the diagnosis After: Building understanding Reflections on the process Questions

25 Initial talk Strengths Disability / Difference TV Characters Problems Child initiated, resources ready

26 Very smart! Likes telling people what he knows. Loves science experiments. Hates being out in bad weather. Conquered a fear through learning about something. weennee. (2010) Dibo and Dragon birthday party: Flickr. Cro from Dibo the Gift Dragon

27 C-3PO Rune Hakko called Professor Always telling people answers Very smart Worries a lot! Sio Bibble Image: Wade, S. (2012) Grumpy when things don t go to plan Likes to follow rules Jumps to conclusions Misinterprets what others say Star Wars characters

28 Image: Wade, S. (2012) Disability & difference

29 Introduction Before: Preparing to share During: Sharing the diagnosis After: Building understanding Reflections on the process Questions

30 Image: Wade, S. (2012) Timing, individualised, positive focus, & preparation

31 Image: Wade, S. (2012) Refine See Me activity, discuss complexity

32 + -

33

34 Attwood, T. (2006). The complete guide to Asperger's syndrome. London: Jessica Kingsley Publishers. Auyeung, B., Baron-Cohen, S., Wheelwright, S., & Allison, C. (2008). The Autism Spectrum Quotient: Children s Version (AQ-Child). Journal of Autism and Developmental Disorders, 38(7), doi: /s z Baron-Cohen, S. (2000). Is Asperger's syndrome/high-functioning Autism necessarily a disability?, Retrieved from Eisenmajer, R. (2006). Imagine having Asperger's Syndrome - a first consultation. Melbourne: PerformArts Pty Ltd. Greene, R. W. (2005). The Explosive Child: A new approach for understanding and parenting easily frustrated, chronically inflexible children. New York, Harper. Hoopman, K. (2006). All cats have Asperger syndrome. London: Jessica Kingsley Publishers. Kerr, K. (2005). Sharing the diagnosis. The Spectrum, 1(4), 4-8. Lawson, W. (2008). Concepts of normality: The autistic and typical spectrum. London: Jessica Kingsley Publishers. Shore, S. (Ed.). (2004). Ask and tell: Self-advocacy and disclosure for people on the autism spectrum. Shawnee Mission, KS: Autism Asperger Publishing Co. Whitaker, P. (2006). 'Why's it all so difficult?' Sharing the diagnosis with the young person. In D. Murray (Ed.), Coming out Asperger: Diagnosis, disclosure and self-confidence (pp ). London: Jessica Kingsley Publishers. I would like to acknowledge the outstanding professional support that Dr. Richard Eisenmajer has provided our family as we have navigated our way from the point of diagnosis. His insightful and empathetic understanding of the autism spectrum has helped our family immeasurably.

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