Annie Alonso, Psy.D, MSW Myrna Quiñones, MD

Transcription

1 Profile of the children served in the Autism Center in First year of service in Puerto Rico, our experience in the process Annie Alonso, Psy.D, MSW Myrna Quiñones, MD

2 General Objectives Describe the characteristic of children age - and their families served in the Puerto Rico Autism Center; Discuss some challenges of the health service system in Puerto Rico to deliver timely services for identification of children with autism.

3 Important Data PR It is a densely populated island, with 3.9 million residents ( US Census), or,4 per square mile, two-thirds of whom live in the greater San Juan metropolitan area in the Northeastern sector, % of its population is under 8 y/o of age. Percent of children living in poverty (family annual income below $,3): US-.%; PR- 6.6% Median family income: US $9,7 ; PR $9,68 Kids Count Natural Council de la Raza 3

4 Teen birth rate 6. birth per,. High school drop out, US 7. % ; PR 6.% Low birth weight (9).4% Preterm births 7.6% Cesarean birth 48.% Autism Prevalence /6

5 Universidad de Puerto Rico Recinto de Ciencias Médicas Escuela Graduada de Salud Pública Instituto de Deficiencias en el Desarrollo Centro Universitario de Excelencia en Educación, Investigación y Servicio Instituto de Deficiencias en el Desarrollo Centro Universitario de Excelencia en Educación, Investigación y Servicio

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7 Methodology: Record Revision From, 7 children were evaluated by the pediatrician, social worker and psychologist as a first step to an autism diagnosis. A total children were diagnosed with autism.

8 Children Age in month Puerto Rico Autism Center Frequency (.9%) (9.%) 7 (3.7%) 7 7 (3.%) (3.%) 4 (7.7%) (3.8%) (.9%) (.9%) (.9%) (.9%) Age Range in Months

9 Income Sources of Parents of Children Diagnosed with ASD in Puerto Rico Autism Center April, - August, (69.%) 3 Frequency 9 (36.%) 7 (3.%) (3.8%) Work of Mother or Father Government Financial Aids Income Sources Family Financial Aids Alimony

10 Marital Status of Mothers of Children Diagnosed with ASD in Puerto Rico Autism Center April, - August, 3 Number of Mothers (8.8%) (4.3%) (3.8%) (.%) (3.8%) (.9%) n= Married Coexsistence (Unmarried Couple) Divorced Separated Single Widow Marital Status

11 With which parent(s) do the child lives? Children Diagnosed with ASD in the Puerto Rico Autism Center April, - August, (6.4%) Number of Children 3 6 (3.7%) n= (3.8%) Child lives with Mother, her husband (and brothers and Sisters) Child lives with both Parents (and brothers and sisters) With which parent(s) do the child lives? Child lives with mother (and brothers and sisters)

12 Do You Consider that Your House is Adequate for Your Child Living? Children Diagnosed with ASD in the Puerto Rico Autism Center April, 3 - August, (8.7%) N= Number of Parents' Answers (7.3%) Not Adequate Adequate Do You Consider that Your House is Adequate for Your Child Living?

13 How would you describe the community where you live? Children diagnosed with ASD in the Puerto Rico Autism Center April, - August, n= 34 (6.4%) Number of Parents' Answers 3 6 (.%) (.9%) (3.9%) 4 (7.7%) (9.6%) Insecure Unkown Risky Regular Secure Peaceful How would you describe the community where you live?

14 Geographical Location of Children Diagnosed with Autism in PR-Autism Center 4 43 (8.7%) 4 3 n= Number of Children 3 9 (7.3%) Rural Geographical Location Urban

15 Referrals sources Number of Children (3.7%) 9 (7.3%) 6 (.%) 4 (7.7%) 3 (.7%) (9.6%) (3.8%) (.9%) 7 (3.%) n= (3.8%) (.9%) How you heard about about the Autism Center Services?

16 Maternal Age Distribution of Mothers of Children Diagnosed in the Puerto Rico Autism Center (34.6%) (8.8%) n= Frequency 8 6 (9.6%) 9 (7.3%) (9.6%) 4-4 y/o -9 y/o 3-34 y/o 3-39 y/o 4-44 y/o Range of Maternal Age

17 Frequency Age Distribution of Fathers of Children Diagnosed in the Puerto Rico Autism Center (3.%) (8.8%) 4 (7.7%) 4 (7.7%) 7 (3.%) (3.8%) n= (.9%) 7 (3.7%) Not available Range of Paternal Age

18 Highest Academic Degree Achieved by Mother of Children Diagnosed with Autism Frequency (.9%) (9.6%) 7 (3.7%) (9.%) (3.8%) (3.%) n= (9.6% Doctoral Degree Master Degree Bachelor Degree Associate Degree Technical Course High School Diploma Less than High School Diploma Highest Academic Degree Achieved by Mother

19 Highest Academic Degree Achieved by Father of Children Diagnosed in Puerto Rico Autism Center (4.7%) n=3 Frequency (.9%) (.7%) 7 (%) 6 (7.%) (.7%) (.9%) Doctoral Degree Master Degree Bachelor Degree Associate Degree Technical Course High School Diploma Highest Academic Degree Achieved Less than High School Diploma

20 How was administered MCHAT Questionnaire to Parents? Children Diagnosed in Puerto Rico Autism Center (67.3%) 3 n= Number of Children (.9%) 6 (.%) 6 (.%) 4 (7.7%) Staff of Autism Center interviewed parents and MCHAT questionnaire Parents answered MCHAT questionnaire and Staff of Autism Center scored it Parents answered MCHAT questionnaire and Pediatrician/Staff scored it Test not Administered due to Age Pediatrician interviewed parents and completed ASQ-3 questionnaire How was administered MCHAT Questionnaire to Parents?

21 How was administered ASQ-3 Questionnaire to Parents? Children Diagnosed in Puerto Rico Autism Center (7.%) n= Number of Children 3 (.9%) Staff of Autism Center interviewed parents and completed ASQ-3 questionnaire 8 (.4%) Parents answered ASQ-3 Parents answered ASQ-3 questionnaire and Staff of questionnaire and Autism Center scored it Pediatrician/Staff scored it How was Administered ASQ-3 Questionnaire to Parents? 6 (.%) Pediatrician interviewed parents and completed ASQ-3 questionnaire

22 Medical Insurance of Children Diagnosed with Autism Puerto Rico Autism Center 3 3 n= 3 (9.6%) Number of Children (3.8%) (.9%) (.9%) 4 (7.7%) (.9%) (3.%) Insurance Name

23 Children with Autism whose parents Reported that they have a Primary Care Physician- Puerto Rico Autism Center 6 (98%) Number of Children 4 3 n= (%) No Your child has a primary care physician? Yes

24 Who scored the ASQ-3 Questionnaire of Children diagnosed with ASD in the Puerto Rico Autism Center? Number of children (7%) Autism Center Who scored the ASQ-3 Questionnaire? 3 (%) Pediatrician n=

25 Questions?

26 Gracias!