Growing Up: Being a Teen with Hearing Loss. By Anna & Melissa Wagner 2015 Annual EHDI Meeting Louisville, KY
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1 Growing Up: Being a Teen with Hearing Loss By Anna & Melissa Wagner 2015 Annual EHDI Meeting Louisville, KY
2 Hi! I m Anna!
3 In the beginning Normal pregnancy (Our 2 nd child) Typical full term birth March 3, 2000 She s here!! 8.5lbs, 20 inches long and a full head of thick black hair! Anna failed 3 screens before leaving the hospital/no tangible info available and limited OB staff knowledge Mom s intuition June 12, 2000 Where our road takes a turn and the celebration that followed
4 A little about me! I was born with moderate to severe sensorineural hearing loss and I wear hearing aids in both ears. Diagnosed at 4 months, aided at 4.5 months. I have 3 siblings. A biological brother with normal hearing. My other brother and sister are adopted from China, my sister has atresia & microtia. Early Intervention started at 6 months. Mom tried a lot of baby sign and getting my attention to watch her face for cues. Mom s best kept secret: Wig tape!
5 Early Intervention is KEY By age 2, I was enrolled in a developmental preschool because there weren t any programs designed for kids like me who had been identified so early. By age 4, I had attended 3 different schools and most teachers weren t aware I was hard of hearing. My hair covered my hearing aids so they just thought I was a loud kid! My parent s goal was to always keep me mainstreamed. We live in a rural area of Michigan, so resources are limited. I attended my first EHDI conference in 2005 in Atlanta and my desire to help other families started there.
6 My family in China
7 Electronics and Technology I m currently wearing Phonak aids and they are my 4th set I tried an icom and liked it but it was a struggle to remember and connect. So, I still listen to my ipod/iphone with a regular headset. I used an FM system for 6 years and didn t really care for it. No matter how great new gadgets are, it won t change HOW I hear things. Closed Captioning. Always on. No negotiations.
8 Friends, Teachers, School and Activities Friends change, interests change It s OK! I have concert band friends, cheerleading friends, track friends. All know I have a hearing loss and don t even notice it. Teachers aren t aware of my hearing unless I say something. I no longer have an IEP. I take a foreign language and it s going well! If I have issues with a class it s typically not related to my hearing. It s because the class is difficult or I don t like it. I participate in a lot of school activities: cheerleading, band, SADD, track, student council. So yeah, a normal teenager.
9 My BFF Emma and me
10 Listening vs Hearing
11 Humor is a must FM and the bathroom Being in the shower The light switch at the bottom of the stairs The McDonald s lady Anna says What?
12 Mom and me
13 Dating??? Anna: YES!!! Mom: NO!!!
14 Dance Time!
15 Being an advocate and using your voice
16 Wrap up/questions? Parents! You are experts, you know your kids best. Do what you feel is right! Most professionals are there to help, if you find one that doesn t find another one! You need to be on the same team! Professionals: As our kids get older, we need your help to make wearing hearing aids and CI s cool! Please work with parents and listen to what we say. We see our kids 24/7 and know what works. Questions? Comments? Please feel free to contact us!
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