Mo Family-to-Family Network A Statewide Collaboration to Support Families
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1 Mo Family-to-Family Network A Statewide Collaboration to Support Families Michelle Sheli Reynolds, SIB, PhD Director of Individual Advocacy and Family Supports UMKC-Institute for Human Development, UCEDD May 9,
2 Statewide Partnership UMKC-IHD, University Center on Excellence Missouri DD Council Division of Developmental Disabilities Title V, Bureau of Special Health Care Needs HRSA Family-to-Family Health Information Center
3 Why: Perspective of Families Families Feel Alone Systems hard to navigate Not always Family Friendly Inconsistent message Information overload or hard to find
4 Why: Need to Reach More Families Person with DD Est. Number of Persons with DD 4.7 Million Receiving Formal DD Services. Million (5%) Supported by Family and other informal supports.5 Million (75%) *Lakin, C., Larson, S., Salmi, P. & Webster, A. (). Residential Services for Persons with Developmental Disabilities: Status and Trends Through 9. Institute on Community Integration, Minneapolis, MN.
5 Goal of MO FF Network Create a network of family-centered, seamless, and integrated lifespan supports for families and individuals with disabilities Tools for Discovery and Navigation Individualized Info & Referral Information Clearinghouse Website LifeCourse Webinars and Materials Sharing Our Strengths Peer Support Leadership Development and Opportunities
6 Network Elements Committed FF Stakeholders Consistent brand and message Folders Rack Cards (Brochures) LifeCourse Resources (Booklets/Handouts/Web) Seamless Access Direct Referral Process Internal Access Joint Recruitment/Training Family Leader
7 Network: Systems Level Division of Developmental Disabilities Family Support Coordinators Title V Special Health Care Needs 4 Family Partners
8 Network: Organization Level 97 Affiliate Organizations Atchison TCM Entities Hospital/Doctors Offices Part C SPOES Area Agencies on Aging Autism Centers Local Family Organizations Independent Living Center Schools Church Providers (DME, OT/PT) Worth Mercer Nodaway Harrison Gentry Sullivan Adair Holt Grundy Andrew Daviess DeKalb Linn Macon Livingston Buchanan Caldwell Clinton Chariton Platte Clay 6 Jackson Cass Bates Vernon Barton Jasper Newton McDonald Ray Lafayette Johnson Henry St. Clair Cedar Dade Lawrence Barry Carroll Saline Pettis Benton Hickory Polk Greene Stone Putnam Dallas Christian Schuyler Scotland Randolph Moniteau Laclede 4 Knox Shelby Pulaski Monroe Clark Lewis Audrain Howard Boone Cooper Morgan Camden Webster Wright Taney Marion Ralls Pike Montgomery Callaway Warren Lincoln St. Charles St. Louis 4 Cole Osage Franklin Gasconade Miller Jefferson Maries Douglas Ozark Phelps Texas Howell Washington Crawford Ste. Genevieve St. Francois Perry Dent Shannon Oregon Reynolds Carter Ripley Iron Madison St. Louis City Bollinger Wayne Butler Stoddard Cape Girardeau Scott New Madrid Mississippi 75 KM 75 Miles Dunklin Pemiscot
9 Network: Family/Self-Advocate Leaders Legend Total FF Leaders=59 Trained SOS Mentors=4 Partners Policymaking=95
10 System Level: Role of FSC Positions Integrate into system Develop internal seamless referral process Increase investment from staff Disseminate Lifecourse Materials Expand Network Outreach and recruitment of Self-Advocate and Family Leaders Identify new affiliate organizations Facilitate Regional FF Stakeholders
11 Integrating into ENTIRE System Front Door: Intake/Eligibility Eligible and In-Eligible Immediate Planning: Support Coordination Utilization Review: Accessing New Services Business Office: Funding
12 Missouri FF Network: A Collaboration to Support Families FF Statewide Partnership State Systems (DDD and BSHCN) DD Network (UCEDD and DDC) HRSA FF HIC FF Stakeholders Group Regional Sites 97 Local Affiliates 54 Family/SA Leaders Seamless, integrated, and family-centered lifespan approach to support families, individuals with disabilities
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