TREATMENT ORGANISER HORMONE THERAPY FOR PROSTATE CANCER
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1 HORMONE THERAPY FOR PROSTATE CANCER TREATMENT ORGANISER
2 Supporting men with prostate cancer through evidence-based resources and support is a Cancer Australia initiative, funded by the Australian Government. This book is for men who have made a decision to have hormone treatment or have already received hormone therapy for prostate cancer. It provides you with somewhere to record your treatment information. NOTE TO READER Because what is known about prostate cancer and its treatment is constantly changing and being updated, your treating health professionals will give you information that is specific to your unique needs and situation. If you would like further information please contact PCFA (telephone: or freecall , enquiries@pcfa.org.au, website: or the place where you obtained this booklet. DISCLAIMER PCFA develops materials based on the best available evidence and takes advice from recognised experts; however, it cannot guarantee and assumes no legal responsibility for the currency or completeness of the information. PERIODIC UPDATES It is planned that PCFA will review this booklet after a period of, but not exceeding, four years. Copyright Prostate Cancer Foundation of Australia 2014 This work is copyright. Apart from any use as permitted under the Copyright Act 1968 no part might be reproduced by any process without prior written permission from Prostate Cancer Foundation of Australia. Requests and enquiries concerning reproduction and rights should be addressed to the Chief Executive Officer, Prostate Cancer Foundation of Australia, PO Box 499, St Leonards, NSW 1590 Australia. Website: enquiries@pcfa.org.au PCFA is a broad-based community organisation and the peak national body for prostate cancer in Australia. We are dedicated to reducing the impact of prostate cancer on Australian men, their partners, families and the wider community. 2
3 Introduction This treatment organiser is for you to record useful and important information when you re having hormone therapy. In this organiser you have the space to record: the details of members of your healthcare team and other support people your medical appointments your hormone therapy medication your PSA levels symptoms or side effects that you may be experiencing your weight 3
4 My healthcare team Name Role Address Telephone 4
5 Appointments record This is your record of appointments with the healthcare team. Date Time Name Address Telephone 5
6 Appointments record Date Time Name Address Telephone 6
7 Appointments record Date Time Name Address Telephone 7
8 Therapy program This is your record of the hormone therapy medication you take. Your healthcare team can assist you with the relevant information. These medications will also be listed on your original and repeat prescriptions. NOTE: Remember to have a PSA check prior to your injections. Hormone Therapy Medication Dose Route Date Given Next Due 8
9 Therapy program Hormone Therapy Medication Dose Route Date Given Next Due 9
10 Therapy program Hormone Therapy Medication Dose Route Date Given Next Due 10
11 PSA level chart Prostate-Specific Antigen (PSA) levels are used to monitor your prostate cancer and response to treatment. Use this table to record the results of your PSA tests. Your healthcare team will be able to assist you with this information. Date PSA Level Date PSA Level 11
12 PSA level chart Date PSA Level Date PSA Level 12
13 Symptoms diary Treatment can cause changes in your symptoms or sometimes new side effects may arise. This is your record of the symptoms/side effects that you may be experiencing. This information will help you remember what happened and when, and will be useful when you talk to your healthcare team. Date Time Symptoms/side effect Possible trigger (e.g. diet, activity) Length of time & how did you feel 13
14 Weight chart To improve my health: My goal is to weigh kilograms. My target waist measurement is cm. Weight and waist measurement are indicators of health status. Your treatment can also cause weight variation. This is your record of weight and waist measurements. Discuss these targets with a member of you healthcare team. NOTE: Speak to your healthcare team if you have any concerns about diet, exercise or weight. Week Date Weight (kg) Weight change (+/-kg) Weight measurement (cm) Comment
15 Weight chart Week Date Weight (kg) Weight change (+/-kg) Weight measurement (cm) Comment
16 Support services and other resources Listed below are some of the leading organisations and services that can provide accurate information and support about prostate cancer. Prostate Cancer Foundation of Australia (PCFA): PCFA has information and support groups for people affected by prostate cancer. Tel: (02) / (freecall) (PCFA state offices are listed on the website). Cancer Australia: providing national leadership in cancer control and improving outcomes for Australians affected by cancer Cancer Council Australia: reducing the impact of cancer in Australia through advocacy, research, education and support Cancer Councils: providing practical and emotional support, financial and legal assistance, information services and more. Cancer Council Helpline: a free, confidential telephone information and support service run by Cancer Councils in each State and Territory Tel: Impotence Australia: providing information about impotence, treatments and accessing support Tel: (02) / (freecall) E: admin@impotenceaustralia.com.au Andrology Australia: providing information about prostate cancer and male reproductive health Tel: info@andrologyaustralia.org Continence Foundation of Australia: providing information about bladder and bowel health and accessing support Tel: (03) or (free helpline staffed by continence nurse advisors) info@continence.org.au Fertility Society of Australia: providing information about fertility issues and accessing services Tel: (03) Cancer Councils: Cancer Council ACT Tel: (02) reception@actcancer.org Cancer Council Northern Territory Tel: (08) admin@cancernt.org.au Cancer Council NSW Tel: (02) feedback@nswcc.org.au Cancer Council Queensland Tel: (07) info@cancerqld.org.au Cancer Council South Australia Tel: (08) tcc@cancersa.org.au Cancer Council Tasmania Tel: (03) infotas@cancertas.org.au Cancer Council Victoria Tel: (03) enquiries@cancervic.org.au Cancer Council Western Australia Tel: (08) inquiries@cancerwa.asn.au 16
17 Notes You may wish to use this note section to record your progress or questions about symptoms, treatments or side effects. 17
18 Notes 18
19 PCFA is a broad-based community organisation and the peak national body for prostate cancer in Australia. We are dedicated to reducing the impact of prostate cancer on Australian men, their partners, families and the wider community. We do this by: Promoting and funding world leading, innovative research in prostate cancer Implementing awareness campaigns and education programs for the Australian community, health professionals and Government Supporting men and their families affected by prostate cancer, through evidence-based information and resources, support groups and Prostate Cancer Specialist Nurses. Follow us on: facebook.com/pcfa1 twitter.com/pcfa youtube.com/pcfaweb pcfa.org.au
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