Engaging individuals in dealing with their hoarding

Transcription

1 Engaging individuals in dealing with their hoarding generic ppt slide Satwant Singh Nurse Consultant in CBT & MH Newham, London, UK copyright Satwant Singh MHASF Nov

2 Aims for today To understand engagement issues and dealing with the complexities To develop creative ways of engaging individuals To improve the quality of life for these individuals copyright Satwant Singh MHASF Nov

3 What are the challenges faced by individuals when dealing with their hoarding issues? copyright Satwant Singh MHASF Nov

4 Challenges identified copyright Satwant Singh MHASF Nov

5 What do we know now? New classification in DSM V Persistent difficulty in discarding or parting with possessions Perceived need for this items Perceived distressed experience A psychological condition and not social It is not a symptom of OCD but may have OCD which makes it more complex- a different kind of hoarding (items are different) copyright Satwant Singh MHASF Nov

6 Definitions Acquisition of and failure to discard possessions which appear to be useless or limited value (Frost & Gross, 1993) Significant distress or impairment in social, financial and occupational functioning caused by the hoarding- (Frost & Hartl, 1996) Compulsive acquisition Living spaces sufficiently cluttered preclude activities for what they are designed for copyright Satwant Singh MHASF Nov

7 Continuum Normal saving Clutter Hoarding copyright Satwant Singh MHASF Nov /19/2014 7

8 Similarities and Differences Individual with hoarding behaviours and non hoarding behaviours and non hoarders save the same things except in the: Quantity Emotional attachments (sentimental) Perceived use of object (instrumental) Over valued beliefs about items and self The object as an extension of self copyright Satwant Singh MHASF Nov /19/2014 8

9 Manifestations 2 subtypes: Compulsive acquisition- bringing items in e.g. buy 1 get 3 free, good value, may need for self or others Non compulsive acquisition- difficulties in discarding copyright Satwant Singh MHASF Nov /19/2014 9

10 The Power of the Visual Image Introducing an image creates the opportunity for a more detailed narrative Depth, clarity and focus An opportunity to reflect An opportunity to express thoughts and feelings which may lead to a better understanding of the situation. copyright Satwant Singh MHASF Nov

11 Value of photographs Visual representation is a powerful tool to aid engagement and motivation The use of pre and post photographs motivates the individual to work on their issues and be open to explore their difficulties e.g. of letting go Provide a record how much has been achieved- the mind is accustomed to disqualify copyright Satwant Singh MHASF Nov

12 Our study 12 Participants Range of photographs of their environment Neutral environment Home environment Used the H.O.A.R.D. acronym tool. We were interested to know the impact it had for them copyright Satwant Singh MHASF Nov

13 HOARD Acronym Tool 5 Key questions developed from our first study using visual methods: H Tell me what HAPPENED in this picture? O What would you like to OVERCOME and what are your goals? A Can you imagine life without ALL of this stuff? R How is your life and RELATIONSHIPS affected by this problem? D What would you like to DO about it? copyright Satwant Singh MHASF Nov

14 Findings Feeling isolated and vulnerable Losing and misplacing Lifestyle disruption Metaphor and clutter Rationalising the acquisition hoarded items Failed previous support Beneficial group support copyright Satwant Singh MHASF Nov

15 Exercise We would like you to look at the photographs that you have brought along- pick one and use the HOARD acronym tool to answer the five questions. You do not have to share your photographs with anyone. copyright Satwant Singh MHASF Nov

16 Feedback Having done the exercise what did you experience? Visually Emotionally Motivationally How has it helped you make sense of your difficulties? copyright Satwant Singh MHASF Nov

17 Next steps Having used the used the H.O.A.R.D. acronym tool what are your next steps? Write them down- remember small steps copyright Satwant Singh MHASF Nov

18 DVD Using the HOARD acronym tool and feedback from participants and family copyright Satwant Singh MHASF Nov

19 Colour and Hoarding Excessive clutter removes light from the environment Plastic bags, cardboard boxes etc make the environment dull, drab and achromatic Colour from furnishings (carpets and seating etc) disappears amidst the clutter Poor light and colour in the environment can exacerbate negative rumination and impact on motivation to change copyright Satwant Singh MHASF Nov

20 Our recent study 15 Participants chose a coloured sheet of card Choice: Red Yellow, Orange, Green Use it in their home environment We were interested to know which colour they chose and why We were interested to know how they used the card copyright Satwant Singh MHASF Nov

21 Findings Most popular choice was green (n=8) Then yellow (n=4) Then orange (n=2) Then Red (n=1) The card was most commonly placed in the kitchen (perhaps because of the association with the need for good hygeine) copyright Satwant Singh MHASF Nov

22 Qualitative Findings Three Major Themes Practical motivator Clarifying Intentions Metaphorical connections copyright Satwant Singh MHASF Nov

23 Practical Motivator Its like having a spy, reminding me to keep going with the clearing I use it as a marker to remind me where to clear up- not too much at a time, but it s a reminder copyright Satwant Singh MHASF Nov

24 Clarifying intentions I cant avoid it, it reminds me that this pile needs sorting It helped me realise that I need colour in my life I almost felt guilty looking at the card because it reminds me that I have to clear up this pile of stuff copyright Satwant Singh MHASF Nov

25 Metaphorical connections It alerts me of things to be done, just like a traffic light in the street Like a traffic light.get ready.go! Green is positive fresh and eye catching, it helps me declare war on clutter copyright Satwant Singh MHASF Nov

26 Some key conclusions from our study The coloured card served as a reminder that items were gradually being removed. The permanent visibility of the card was important in motivation Colours previously hidden were revealed The need for colour and vibrancy was appreciated copyright Satwant Singh MHASF Nov

27 Colour card additional applications Individuals with hoarding disorder may have associated ADHD- difficulties in maintaining or sustained the focus on a task Distraction tends to be feature of avoidance in hoarding disorder- rather engage in activities that are not stressful/emotional- reengaging Progress in made if a continued and sustained focus on a particular task or area is maintained copyright Satwant Singh MHASF Nov

28 Using the colour card (1) Select a colour that is bright and has a personal significance to the individual- often it brings back memories of a happy time- can use these memories to help deal with the difficult emotions Identify an area to be worked on- place the colour card over the area e.g. above the pile to draw attention that this is the area to be worked on (photograph) copyright Satwant Singh MHASF Nov

29 Using the colour card (2) Individuals can write personal statements on the card, draw arrows etc to help them Work along side with them, draw their attention to the card to help with the focus and getting used to the concept of focusing on a specific area Once an area has been cleared photograph it and move the card to the next area copyright Satwant Singh MHASF Nov

30 Drawings Non threatening, non stigmatising, nonjudgmental, allows appropriate disclosure (safe) If shared it allows engagement through discussion and exploration, development of trust and joint working It empowers the individual- they are in control copyright Satwant Singh MHASF Nov

31 Drawings It provides hope- a direction as how they would like their room to look like Allows the planning of stages and areas of work they would engage in A record of their progress Monitoring of the work they have done copyright Satwant Singh MHASF Nov

32 How to do drawings? Provide a rectangle to represent the room they want to work on Instruct them to draw out the furniture, items in the room and shade the areas that are cluttered (can use different colours) Draw out a second as to how they would like the room to look like (end product) Draw and shade on a weekly basis to monitor progress copyright Satwant Singh MHASF Nov

33 Example copyright Satwant Singh MHASF Nov

34 Exercise I would each of you like to draw out the layout of one of your rooms and shade the areas that are covered with things Draw a second one with how you would like your room to look like? Now list the steps that you would need to take to get from how it is to how you would like it to be. copyright Satwant Singh MHASF Nov

35 Clutter Rating Scale copyright Satwant Singh MHASF Nov

36 Clutter Rating Scale Tool to assess and measure degree of clutter usually administered by professional In this instance the individual to undertake the rating- empowerment, full involvement and responsibility Use the rating imaged for change e.g. current is 8 and would like to be 5 Write the steps that need to be undertaken to get to rating 5 copyright Satwant Singh MHASF Nov

37 Clutter Rating Image scale Use the CRI scale to monitor progress Helpful as it has a visual end product to aim for which is motivating Gives the individual control and empowerment and autonomy in dealing with their problem, helps develop skills to problem solve copyright Satwant Singh MHASF Nov

38 Plan Having discussed the Clutter Imagine Rating Scale write down how you could use it in helping you deal with your hoarding issues? copyright Satwant Singh MHASF Nov

39 Conclusion Hoarding/ cluttering disorder is a complex and difficult condition to deal with Remember beneath the hoarding problem is a person- Be aware of your own prejudices- ability, others, services Engagement with the your hoarding issues is vital to help you deal with it. copyright Satwant Singh MHASF Nov

40 Conclusion Engagement is based on understanding, trust, mutual respect and being non judgemental Developing a shared compassionate understanding of the problem is vital in engagement The HOARD acronym tool is an useful tool to help individuals emotionally and physically distance themselves from their hoarding/clutter copyright Satwant Singh MHASF Nov

41 Conclusion The distancing allows the an individual to step back and acknowledge their issues- helps with engagement The colour card is an excellent tool to help focus on the areas are to be cleareddistraction in an avoidance copyright Satwant Singh MHASF Nov

42 Take away message from today We would like you to reflect on your participation in this mini workshop today consider: How would you use these tools to help you with your hoarding issues? How would you put that into practice? copyright Satwant Singh MHASF Nov

43 Thank you Thank you for your participation in the workshop today. If you need to contact me: Satwant Singh Special thanks to Dr Colin Jones for his contributions to the research undertaken in this area and contribution to this presentation. copyright Satwant Singh MHASF Nov

44 References APA (2013) DSM IV. Arlington: American Psychiatric Publishing. Frost R.O. & Gross, R. C. (1993) The hoarding of possessions. Behaviour Research and Therapy, 31, Frost, R.O. & Hartl, T. L. (1996) A Cognitive Behavioural Model of Compulsive Hoarding. Behaviour Research and Therapy, 33, copyright Satwant Singh MHASF Nov

45 References Jones, C. & Singh, S. (2014). The potential benefits of colour in supporting people with compulsive hoarding disorder. Journal of Mental Health Practice, Vol 18(3): Jones, C (2013) Compulsive Hoarding: Visual, Narrative and Metaphor: the Value of the Story In Mendelson Z This mess is a place a collapsible anthology of collections and clutter AND Publications London. Jones, C. & Singh, S. (2013). The Experience of Emotional Distancing in the Management of Compulsive Hoarding: A Visual Method Approach using the HOARD Acronym Tool. Journal of Cognitive Behavioural Psychotherapy Research, 2: copyright Satwant Singh MHASF Nov

46 References Singh, S. (2013). Hoarding- Miss Haversham Syndrome In Mendelson Z This mess is a place a collapsible anthology of collections and clutter AND Publications London Singh, S. & Jones, C. (2013). Engaging in treatment sufferers of compulsive hoarding disorder. Journal of Mental Health Vol 17(4): Singh, S. & Jones, C. (2013). Novel method in engaging compulsive hoarders in treatment. Advances in Cognitive Therapy Vol 14 (2): 8,11. copyright Satwant Singh MHASF Nov

47 References Singh, S. (2012). Behandelopties voor problematische verzmelaars in O.R.V. Van Beers & E. Hoogdin (Eds.) in Problematische verzamelaars. Amsterdam: Uitgeverij Boom. Singh, S. Jones, C. (2012). Visual Research Methods: A novel approach to understanding the experiences of compulsive hoarders. Journal of Cognitive and Behavioural Psychotherapy Research, 1 (1): copyright Satwant Singh MHASF Nov