UvA-DARE (Digital Academic Repository) Functional defecation disorders in children Kuizenga-Wessel, S. Link to publication

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1 UvA-DARE (Digital Academic Repository) Functional defecation disorders in children Kuizenga-Wessel, S. Link to publication Citation for published version (APA): Kuizenga-Wessel, S. (2017). Functional defecation disorders in children: Associated comorbidity and advances in management General rights It is not permitted to download or to forward/distribute the text or part of it without the consent of the author(s) and/or copyright holder(s), other than for strictly personal, individual use, unless the work is under an open content license (like Creative Commons). Disclaimer/Complaints regulations If you believe that digital publication of certain material infringes any of your rights or (privacy) interests, please let the Library know, stating your reasons. In case of a legitimate complaint, the Library will make the material inaccessible and/or remove it from the website. Please Ask the Library: or a letter to: Library of the University of Amsterdam, Secretariat, Singel 425, 1012 WP Amsterdam, The Netherlands. You will be contacted as soon as possible. UvA-DARE is a service provided by the library of the University of Amsterdam ( Download date: 12 Jan 2018

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3 Chapt%r a APPENDIX Contributing authors List of publications Phd portfolio Dankwoord Curriculum vitae 277

4 CONTRIBUTING AUTHORS Marc A. Benninga Michael Groeneweg Department of Pediatrics Maasstad Hospital Rotterdam, the Netherlands Maureen L.R. Beelen Department of Pediatrics Maasstad Hospital Rotterdam, the Netherlands Sascha Heckert Eric M. Butter Department of Behavioral Health, Child Development Center Marcello Costa Department of Human Physiology Flinders University Adelaide, SA, Australia Thierry Devreker Department of Pediatrics Free University of Brusssels Brussels, Belgium Justin R. de Jong Department of Pediatric Surgery Emma Children s Hospital / Academic Medical Center Ilan J. N. Koppen Victoria A. Lane Center for Colorectal and Pelvic Reconstruction, Department of Surgery, Marieke van Dijk Psychosocial Department and Department of Pediatric Gastroenterology and Nutrition Marc A. Levitt Center for Colorectal and Pelvic Reconstruction, Department of Surgery, Phil G. Dinning Department of Human Physiology Flinders University Adelaide, SA, Australia Faridi S. van Etten-Jamalundin Medical Library Carlo Di Lorenzo Division of Pediatric Gastroenterology, Hepatology and Nutrition Peter L. Lu Division of Pediatric Gastroenterology, Hepatology and Nutrition 278

5 Hayat M. Mousa Division of Pediatric Gastroenterology, Hepatology and Nutrition Lisa M. Nicholson Department of Health Research and Policy, School of Public Health, University of Illinois at Chicago Chicago, Illinois, United States Karen L. Ratliff-Schaub Department of Behavioral Health, Child Development Center Columbus, Ohio, Unites States Michael Saps Division of Pediatric Gastroenterology, Hepatology and Nutrition Elena Scarpato Department of Pediatrics University of Naples Federico II Napels, Italy Annemaria Staiano Department of Pediatrics University of Naples Federico II Napels, Italy Nina F. Steutel Reino J. Stoffelsen Department of Child and Adolescent Psychiatry De Bascule/VU University Medical Center Hania Szajewska Department of Pediatrics The Medical University of Warsaw Warsaw, Poland Merit M. Tabbers Willemijn Tros Emma Children s Hospital / Academic Medical Center Yvan Vandenplas Department of Pediatrics The Medical University of Brussels Brussels, Belgium Marijke E. Voskeuijl Department of Pediatric Surgery Center Heleen W. Voogt Department of Pediatric Gastroenterology and Nutrition Mana H. Vriesman Lucas Wiklendt Department of Human Physiology Flinders University Adelaide, SA, Australia Appendix a 279

6 Kent C. Williams Division of Pediatric Gastroenterology, Hepatology and Nutrition Richard J. Wood Center for Colorectal and Pelvic Reconstruction, Department of Surgery, The Ohio State University Descale Yacob Division of Pediatric Gastroenterology, Hepatology and Nutrition Liselotte W. Zwager 280

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8 LIST OF PUBLICTATIONS This thesis Reporting Outcome Measures of Functional Constipation in children from 0 to 4 years of age S Kuizenga-Wessel, MM Tabbers, MA Benninga. Journal of Pediatric Gastroenterology and Nutrition, 2015;60(4): Lack of Agreement on How to Use Antegrade Enemas in Children. S Kuizenga-Wessel, HM Mousa, MA Benninga, C Di Lorenzo. Journal of Pediatric Gastroenterology and Nutrition, 2016;62(1):71-9 Functional defecation disorders in children with excessive body weight; a systematic review. IJN Koppen, S Kuizenga-Wessel, M Saps, C Di Lorenzo, MA Benninga, FS van Etten Jamaludin, MM. Tabbers Pediatrics, 2016;138(3):e Screening for autism spectrum disorders in children with functional defecation disorders S Kuizenga-Wessel, C Di Lorenzo, LM Nicholson, EM Butter, KL Ratliff-Schaub, MA Benninga, KC Williams European Journal of Pediatrics, 2016;175: Reporting on outcome measures of functional constipation in children a systematic review S Kuizenga-Wessel, S Heckert, W Tros, FS van Etten-Jamalundin, MA Benninga, MM Tabbers Journal of Pediatric Gastroenterology and Nutrition, 2016;62(2):840-6 Development of a core outcome set for clinical trials in childhood constipation S Kuizenga-Wessel, NF Steutel, MA Benninga, T Devreker, E Scarpato, A Staiano, Y Vandenplas, H Szajewska, MM Tabbers Submitted Characterizing colonic motility in children with chronic intractable constipation: a look beyond high-amplitude propagating sequences. S Wessel, IJ Koppen, L Wiklendt, M Costa, MA Benninga, P Dinning Neurogastroenterology & Motility, 2016;28(5): Transanal Irrigation in the treatment of children with intractable functional constipation. IJN Koppen, S Kuizenga-Wessel, HW Voogt, ME Voskeuijl, MA Benninga Journal of Pediatric Gastroenterology and Nutrition, 2016 [Epub ahead of print] Surgical management for children with functional constipation S Kuizenga-Wessel, IJN Koppen, LW Zwager, C Di Lorenzo, JR de Jong, MA Benninga Neurogastroenterology & Motility, Accepted ADHD and functional defecation disorders in children S Kuizenga-Wessel, IJN Koppen, MH Vriesman, C Di Lorenzo, M van Dijk, MLR Beelen, M Groeneweg, RJ Stoffelsen, MA Benninga Submitted Surgery for intractable functional constipation in children: what are we doing and are we doing It right? IJN Koppen, S Kuizenga-Wessel, PL Lu, MA Benninga, C Di Lorenzo, VA Lane, MA Levitt, RJ Wood, D Yacob Journal of Pediatric Sugery, 2016;51(10):

9 Other Inter- and intrarater reliability of the Chicago Classification in pediatric high-resolution esophageal manometry recordings MM Singendonk, MJ Smits, IE Heijting, MP van Wijk, S Nurko, R Rosen, PW Weijenborg, R Abu-Assi, DR Hoekman, S Kuizenga-Wessel, G Seiboth, MA Benninga, TI Omari, S Kritas. Neurogastroenterology & Motility, 2015;27(2): Chapter 8: Diagnostic testing of defecation disorders. S Kuizenga-Wessel, MA Benninga. Constipation in Children: Diagnosis and treatment. Nova Science Publisher. 2013, Chapter: Surgical approaches: cecostomy/appendicostomy for constipation. S Kuizenga-Wessel, C Di Lorenzo. Constipation: Current & Emerging Treatments. Future Medicine Ltd. 2013, Chapter 11: Functional constipation and incontinence S Kuizenga-Wessel, MA Benninga Wyllie, Pediatric Gastrointestinal and Liver Disease, 5 th edition. Elsevier. 2016, Manometrie van het gastro-intestinale stelsel SM Mugie, RJ van der Pol, S Kuizenga-Wessel, MA Benninga Werkboek kindergastro-enterologie Sectie Kindergastro-enterologie en Voeding van de Nederlandse Vereniging voor Kindergeneeskunde Appendix a 283

10 PHD PORTFOLIO Name: Sophie Kuizenga-Wessel PhD period: April 2012 September 2016 PhD supervisors: Prof. M.A. Benninga and Prof. C. Di Lorenzo General courses Year Good Clinical Practice 2013 The AMC World of Science 2013 Educational Skills 2013 Oral presentation in English 2013 Clinical Epidemiology 2014 Advanced Topics in Clinical Epidemiology 2014 Project Management 2014 Seminars, workshops, masterclasses Pediatric Gastroenterology research seminar (monthly) Gastroenterology Motility Meeting (two times a month) Oral presentations Lack of agreement on how to use antegrade 2013 enemas in children. European Pediatric Gastrointestinal Motility Meeting. Lack of agreement on how to use antegrade enemas 2013 in children. Annual Conference Dutch Pediatric Federation. Utilizing high-resolution colonic manometry to quantify 2015 dysmotility in children with slow transit constipation. Annual Spring Conference Dutch Society for Gastroenteroloy Autism spectrum disorders in children with functional 2016 defecation disorders. Outcome Measures of functional constipation. Amsterdam Pediatric Symposium. Poster presentations Year Lack of agreement on how to use antegrade enemas 2013 in children. Digestive Disease Week. Autism spectrum disorders in children with functional 2014 defecation disorders. Utilizing high-resolution colonic manometry to quantify 2015 dysmotility in children with slow transit constipation. 284

11 Poster presentations Year Reporting outcome measures of functional constipation 2014 in infants: a systematic review. ESGPHAN Surgical treatment for severe refractory functional 2015 constipation in children. ESPGHAN. Surgery for intractable functional constipation in children: 2016 what are we doing and are we doing It right? ESPGHAN. Reporting on outcome measures of functional constipation 2016 in children 1-18 years. ESPGHAN Transanal irrigation in the treatment of children with 2016 intractable constipation. ESPGHAN (Inter)national conferences Annual Conference Dutch Pediatric Federation 2013 Pediatric Motility Conference 2013 Digestive Disease Week Annual Spring Conference Dutch Society for Gastroenterology 2015 Amsterdam Pediatric Symposium Annual ESPGHAN meeting Tutoring, Mentoring Tutoring / Mentoring of 2 students Supervising scientific internship of 3 bachelor students Medicine Supervising scientific internship of 2 master students Medicine Awards and prizes Poster of distinction Digestive Disease Week 2012, Orlando, USA Best oral presentation, Amsterdam Pediatric Symposium 2016, Amsterdam, The Netherlands Poster Award, ESPGHAN Annual Meeting 2016, Athens, Greece Young Investigator Travel Award, ESPGHAN Annual Meeting 2016 Athens, Greece Appendix a 285

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14 CURRICULUM VITAE Sophie Kuizenga-Wessel werd geboren op 4 mei 1986 te Nijmegen. In 2004 behaalde zij haar VWO-diploma aan het Canisius College te Nijmegen. Het eerste jaar werd zij uitgeloot voor de studie Geneeskunde, waarop zij startte met de studie Rechtsgeleerdheid aan de Universiteit van Amsterdam. Het jaar daarop werd ze nageplaatst en kon ze beginnen met de studie Geneeskunde aan de Vrije Universiteit te Amsterdam. Na het behalen van haar Master in december 2011, kreeg ze de mogelijkheid om in het voorjaar van 2012 te starten met een promotieonderzoek onder leiding van Prof. M.A. Benninga en Prof. C. Di Lorenzo. De eerste 15 maanden van haar onderzoek werkte Sophie in het, Columbus, Ohio waarna het onderzoek werd vervolgd in het Emma Kinderziekenhuis/AMC te Amsterdam. Tijdens deze onderzoeksperiode, die heeft geresulteerd in dit proefschrift, was zij tevens werkzaam op de Poeppoli van het Emma Kinderziekenhuis/AMC en De Kinderkliniek in Almere. Sophie is getrouwd met Robert Kuizenga en heeft een dochter Elle. 288