PCORI Awarded Research Projects: Massachusetts

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1 PCORI Awarded s: Massachusetts January 2018 Total Number of s: 125 Total Awarded in State: $239,145,366 Title Organization Awarded Type Budget Promoting Autonomy and Improving Shared Decision Making for Older Tufts University $2,130, Adults with Advanced Kidney Disease Comparative Effectiveness Research to Improve the Health of Sexual and Fenway Community Health $2,075, Gender Minority (SGM) Patients through Cultural Competence and Skill Training of Community Health Center (CHC) Providers and Non-clinical Staff Center Reducing Health Disparities for Black Women in the Treatment of Insomnia Trustees of Boston $2,115, University, BUMC Transgender Cohort Study of Gender Affirmation and HIV-related Health Boston Children's $1,977, Predictive Analytics Pilot Study: Assessment of Heterogeneity of Treatment Tufts Medical Center, Inc. $546, Effects in Two Major Clinical Trials Blacks Addressing Mental Health Concerns and Healing Through Comparative The Transformation Center $50, Engagement in Effectiveness Research Healthy Aging in Place for Racial/Ethnic Minority Underserved Populations Community Engagement to Address Tuberculosis Infection in Persons Experiencing Homelessness Building a National Partnership to Identify the Mental Health Priorities of Young Adults with Intellectual and Developmental Disabilities (YA with I/DD) Promoting the Intersection of Research on Health Literacy and Patient- Centered Care Comparative Effectiveness of Early Integrated Telehealth Versus In-Person Palliative Care for Patients with Advanced Lung Cancer Causal Analyses of Nested Case-Control Studies for Comparative Effectiveness Research Comparing the Effectiveness of House Calls and Peer Mentorship to Reduce Racial Disparities in Live Donor Kidney Transplantation Study of Radiation Fractionation on Outcomes After Breast REConstruction (FABREC) Improving Oral Health for Vulnerable Populations - Individuals with IDD - Tier III Center for Community Health Education Research and Service, Inc. $50, Engagement in $50, Engagement in Boston University $50, Engagement in Boston University Medical $249, Engagement in Center $10,744, Harvard T.H. Chan $1,030, of Public Health Beth Israel Deaconess $1,789, Medical Center Dana-Farber Cancer $2,690, Tufts University $49, Engagement in

2 After the ICU - Tier III Community Engagement to Improve Prevention and Treatment of Congenital Cytomegalovirus Infection - Tier II Engaging Cancer Survivors in the Community for Assessing Nutritional Needs and Barriers - Tier II Into the Light: Using Health Technology to Develop a Mother/Family Centered Peer Support Network - Tier II, Pulmonary and Critical Care Department Tufts University, Friedman of Nutrition Science and Policy $50, Engagement in $24, Engagement in $24, Engagement in $24, Engagement in Patient Engagement Efforts to Reduce (PEER) Diabetes Among Vietnamese Americans - Tier II Boston College $25, Engagement in The Tulumbe - Tier II Multicultural AIDS Coalition $25, Engagement in Unhealthy Substance Use Among Community-Based Older Adults: What is the Role of Home Health Aides? - Tier II Home Care Aide Foundation $24, Engagement in Healing Families: Parental Involvement in the Treatment of Low-Income Teens Diagnosed with a Mood Disorder - Tier II Families for Depression Awareness $25, Engagement in Summit and White Paper Report: Patient-Centered Outcomes and Age- Related Macular Degeneration The Angiogenesis Foundation $50, Engagement in Establishing a Mechanism for Patient Centered Cancer Research at a Safety- Net Boston Medical Center $248, Engagement in Improving Diabetes Prevention with Benefit-Based Tailored Treatment: Disseminating Patient-Centered Estimates of Benefit Tufts Medical Center $499, Research Dissemination and Implementation Realization of a Standard of Care for Rare Diseases Using Patient-Engaged Boston Children's $704, Phenotyping Evidence and the Individual Patient: Understanding Heterogeneous Treatment Effects for Patient-Centered Care Tufts Medical Center, Inc. $249, Engagement in The MS Minority Research Engagement Partnership Network Accelerated Cure $249, Engagement in How Well Do Clinical Prediction Models (CPMs) Validate? A Large-Scale Tufts Medical Center $996, Evaluation of Cardiovascular Clinical Prediction Models Improving Outcomes for Low-Income Mothers with Depression: A Comparative Effectiveness Trial of Two Brief Interventions in the Patient- Centered Medical Home Boston Medical Center $2,097,

3 Smoker-to-Smoker (S2S) Peer Marketing and Messaging to Disseminate Tobacco Interventions Comparing Patient-Centered Outcomes for Adults and Children with Asthma in High-Deductible Health Plans with and without Preventive Drug Lists Engaging Patients and Stakeholders to Improve Cancer Outcomes in Navajo Nation Harvard Pilgrim Health Division of Global Health Equity, Brigham and Womenâ s $2,052, $3,211, $248, Engagement in COPE-Navajo Nation Cancer Survivorship Conference Partners in Health $249, Engagement in Boston BRI...DGE Center for Community Health Education Research and Service, Inc. $248, Engagement in Unhealthy Substance Use Among Community-Based Older Adults: What is the role of home health aides? - Tier I Patient Engaged Efforts to Reduce (PEER) Diabetes among Asian Americans - Tier I Community Engagement to Improve Prevention and Treatment of Congenital Cytomegalovirus Infection - Tier I Engaging Cancer Survivors in the Community for Assessing Nutritional Needs and Barriers - Tier I Healing Families: Parental Involvement in the Treatment of Low-Income Teens Diagnosed with a Mood Disorder - Tier I Building Partnerships for Addressing HIV among African Immigrants - Tier I Shared Care: Patient-Centered Management after Hematopoietic Cell Transplantation Linking UDIs to Insurance Claims: A Pilot Demonstration Linking Randomized Clinical Trials and ClaiTRD Data for Enhancing Randomized and Non-Randomized Patient-Centered Outcomes Evidence Generation The Dabigatran, Apixaban, Rivaroxaban, Edoxaban, Warfarin Comparative Effectiveness Research Study (The DARE warfarin CER study) Comparing Three Treatments for Adults with Major Depression That Does Not Respond to First-Line Treatment Home Care Aide Foundation Vietnamese American Initiative for Development (Viet-AID) $14, Engagement in $14, Engagement in $15, Engagement in Tufts University $14, Engagement in Families for Depression $15, Engagement in Awareness Multicultural AIDS $15, Engagement in Coalition Dana-Farber Cancer $2,622, $1,023, $1,049, $2,881, $14,021,

4 Healthy Mind Healthy You Tailoring Patient Options for Medication Adherence Action Plans in Community Pharmacies - Tier II Improving Oral Health for Vulnerable Populations - Individuals with Intellectual and Developmental Disabilities - Tier II After The ICU: A Collaborative to Improve Critical Illness Survivorship - Tier II Improving Methods of Incorporating Racial/Ethnic Minority Patients' Treatment Preferences into Clinical Care Engaging Patients and Caregivers Managing Rare Diseases to Improve the Methods of Clinical Guideline Development Stratified Regression Models for Case-Only Studies $4,030, Northeastern University $25, Engagement in Tufts University $24, Engagement in $24, Engagement in, Pulmonary and Critical Care Department Cambridge Health Alliance $1,059, RAND Corporation $1,015, President & Fellows of $1,017, Harvard College Patient Osteoarthritis Careplan to Inform Optimal Treatment $6,303, Virtual Evidence-based Healthcare for Underserved Patients with Down $2,080, Syndrome Healthy Hearts Healthy Minds: A PPRN Demonstration Pragmatic Trial $2,522, Comparing Asthma Treatments: A Study Focusing on African-American, $13,942, Hispanic, and Latino Adults Helping People with Serious Mental Illness Stop Smoking $10,080, Comparing Ways to Help Patients Decide Whether to Have Surgery to $1,834, Replace a Knee or Hip Acute Community Care to Avoid Unnecessary Emergency Department Visits $1,940, Comparative Effectiveness of Metabolic and Bariatric Surgery using Patient $2,655, Reported Outcome Measures (PROMs) Causal Inference Guidelines for Pragmatic Clinical Trials Harvard University $1,018, of Public Health Enhancing Mental Health Care by Scientifically Matching Patients to $1,784, Providersâ Strengths Massachusetts, Amherst 2016 Massachusetts PFAC Conference Health Care for All $97, Engagement in

5 Understanding How Antibiotic Use Affects Childhood Obesity and Growth Harvard Pilgrim Health $4,553, Connecting Community to Research: Building Skills to Partner in Research Boston Medical Center $200, Engagement in MoodNetwork Phase II $1,802, Research The Multiple Sclerosis Patient-Powered Research Network, iconquermsâ Accelerated Cure for Multiple Sclerosis $1,451, Research Scalable Collaborative for a Learning Healthcare System (SCILHS) President & Fellows of Harvard College $9,135, Research Health Literacy Annual Research Conference Boston Medical Center $249, Engagement in Tailoring Patient Options for Medication Adherence Action Plans in Community Pharmacies Improving Oral Health for Vulnerable Populationsâ Individuals with Intellectual and Developmental Disabilities After The ICU: A Collaborative to Improve Critical Illness Survivorship Research Ethics in Patient-Centered Outcomes Research Integrating Online Weight Management with Primary Care Support: Patient- Centered Strategies for Addressing Overweight and Obesity in Primary Care Impact of High Deductible Health Plans on Patients with Bipolar Disorder ACCCES: A Collaboration to develop Capacity for Community Engaged research in Springfield Engaging Peers in Comparative Effectiveness Research Franciscan Helps Families Connect (FHFC) Privacy-Preserving Analytic and Data-Sharing Methods for Clinical and Patient-Powered Data Networks Improving Communication between Patients and Cancer Doctors Using Patient Feedback on Real Conversations Massachusetts $15, Engagement in Pharmacists Association Tufts University $14, Engagement in $10, Engagement in, Pulmonary and Critical Care Department $1,423, $2,006, Harvard Pilgrim Health $1,465, Baystate Medical Center $249, Engagement in Boston VA Research $250, Engagement in, Inc. Franciscan for $250, Engagement in Children Harvard Pilgrim Health $1,420, Dana-Farber Cancer $1,776, ^

6 Optimization of Home Oxygen Weaning in Premature Infants Preventive Sexual Health Screening Among Female-to-Male Transgender Adult Patients Comparing the Benefits and Harms of Five Different Medicines for Long-Term Treatment of Blood Clots Improving Measurement of Health Care Transitions through Key Stakeholders' Eyes Preventing Serious Falls Among Older Adults: A Supported by PCORI and the National on Aging of the National s of Healthâ The STRIDE Study PCORnet Coordinating Center Phase I (Harvard Pilgrim Health Care) Do Weight Management Programs Involving Health Coaches Improve Body Mass Index and Parent Empowerment for Children with Obesity or Who Are Overweight? Optimizing Patient Engagement in a Novel Pain Management Initiative (OPEN) Persons with Disabilities Generating Quality Metrics to Inform Integrated Care Mobile Application for Improving Symptoms and Adherence to Oral Chemotherapy in Patients with Cancer A Multiple Sclerosis Patient-Powered Research Network ^ Fenway Community Health Center Worcester Harvard Medical ; Yale Medical ; UCLA Medical Harvard Pilgrim Health $1,180, $956, $1,051, $1,100, $29,999, $13,171, Research $2,153, Inflexxion, Inc. $2,080, Accelerated Cure for Multiple Sclerosis $2,019, $1,898, $977, Research ALD Connect ALD Connect, Inc. $675, Research Sleep Apnea Patient Centered Outcomes Network (SAPCON) Mood Patient-Powered Research Network Effectiveness of DECIDE in Patient-Provider Communication, Therapeutic Alliance & Care Continuation ^ (The General Corp.) ^ $1,002, Research $930, Research $2,165,

7 Shared Decision Making and Renal Supportive Care Baystate Medical Center $2,094, Bringing I-PASS to the Bedside: A Communication Bundle to Improve Patient Boston Children's $2,098, Safety and Experience Benchmarking the Comparative Effectiveness of Diabetes Treatments Using Harvard University ( $2,025, Patient-Reported Outcomes and Socio-Demographic Factors of Public Health) Heart Health 4 Moms: Engaging Women with a History of Preeclampsia to $2,234, Reduce their Risk for Cardiovascular Disease Scalable Collaborative for a Learning Healthcare System (SCILHS) Harvard University Medical $6,624, Research Eliminating Patient-Identified Socio-Legal Barriers to Cancer Care Boston Medical Center $1,678, Patient-Centered Approaches to Collect Sexual Orientation/Gender Identity Brigham and Womenâ s $1,549, Information in the Emergency Department ^ Which Treatments for Uterine Fibroids Have the Best Results? Outcome Sciences, Inc. $1,147, Impact of Radiation Therapy on Breast Conservation in DCIS Dana-Farber Cancer $1,203, Cervical Spondylotic Myelopathy Surgical Trial (CSM-S Trial) Lahey Clinic $2,079, Improving Informed Consent for Palliative Chemotherapy: Development of a Regimen-Specific Multi-Media Informed Consent Library to Promote Patient- Centered Decision Making about Treatment of Advanced Gastrointestinal Cancers Causal Inference for Effectiveness Research in Using Secondary Data Methods for Variable Selection and Treatment Effect Estimation in Nonrandomized Studies with Few Outcome Events and Many Confounders Improving the Use of Patient Registries for Comparative Effectiveness Integrating Causal Inference, Evidence Synthesis, and Research Prioritization Methods A Method for Patient-Centered Enrollment in Comparative Effectiveness Trials: Mathematical Equipoise Integrative Medicine Group Visits: A Patient-Centered Approach to Reducing Chronic Pain and Depression in a Disparate Urban Population Evaluating the Navajo Community Outreach and Patient Empowerment (COPE) Program Comparing the Predicted Benefits and Harms of Using Adult versus Child Guidelines for Lipid Testing and Treatment in 17- to 21-Year-Olds Dana-Farber Cancer $1,063, $1,102, $997, $888, Tufts Medical Center $1,095, Tufts Medical Center $1,123, Boston Medical Center $1,929, $1,937, Tufts Medical Center, Inc. $1,045,

8 Pilot : Creating a Decision-Support Computer Program to Help Cancer Dana-Farber Cancer $662, Patients Understand and Manage Their Symptoms Pilot : Testing Computer Programs That Help People Stop Smoking $619, Pilot : Figuring Out Which Patients Are Likely to Return to the Boston University $687, of Medicine/ Boston Medical Center Pilot : Predicting Who Will Respond Best to Medical Treatments Tufts Medical Center Inc. $691, Pilot : Engaging Patients, Doctors, and Healthcare Experts in Creating $693, Guidelines for Cancer Screening Pilot : Figuring Out Why Some Patients Do Not Fill Their Blood $518, Pressure Prescriptions Pilot : Helping People Understand and Use Cancer Screening Recommendations Relative Patient Benefits of a -PCMH Collaboration within an ACO to Improve Care Transitions Relapsed Childhood Neuroblastoma as a Model for Parental End-of-Life Decision-Making, Inc. Dana-Farber Cancer $686, $1,957, $985,

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