Community Connect to Research: Engaging Patients

Transcription

1 Moderators Community Connect to Research: Engaging Patients Harvard Medical School: Alexa T. McCray, PhD Boston University: Richard Kalish, MD, MPH, MS May 11, 2011 Hyannis, Massachusetts Awardees Codman Square Health Center: Stephen M. Tringale, MD & Susan Kelliher Duffy Health Center: Jane de Groot & Isobel Thomas Somerville Primary Care/Cambridge Health Alliance: Ruth Hertzman-Miller, MD, MPH & Gaenslie Lamour, MA, MBA The Dimock Center: Debra J. Reid, PharmD, BC-ADM, CDE & Maureen McQueeney, PharmD, BCPS

2 Initiating a Project in Public Communication As part of the NIH-sponsored Clinical and Translational Science Award (CTSA) effort, the Harvard Catalyst launched a public communication initiative in 2009 Clinical and translational science is the process of turning biomedical laboratory discoveries into real outcomes that benefit patients and communities Less than optimal health communication and inadequate health literacy remain serious problems when attempting to access, understand, and use health information To begin to address these problems, we Developed Community Connect to Research Formed a collaborative of all Massachusetts-based CTSA s Invited proposals from Massachusetts Community Health Centers

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4 The Collaborative for Community Engagement and Research (CCER) A partnership among all four Massachusetts-based Clinical and Translational Science groups Boston University, Harvard University, Tufts University, and the University of Massachusetts Goal Work together to engage with the community in the health research process Projects include Development of a Request for Proposals to work with Community Health Centers (spring 2010)

5 Request for Proposals Increasing Communication about Health Topics and Clinical Research through Dialogue with Community Health Centers in Massachusetts Accessing Identifying challenges to providing or obtaining information about health topics and clinical research Understanding Exploring strategies for improving comprehension of available, high quality, information about health topics and clinical research Applying Assessing how individuals might use high quality health and clinical research information to make better health decisions

6 Awardees Codman Square Health Center: Improving Access to Health Communications and Research Through Digital Media Duffy Health Center: Duffy Health Connect Project Somerville Primary Care/Cambridge Health Alliance: Using the Internet for Sexual and Reproductive Health Information: Exploring the Experience of Young Brazilian Patients The Dimock Center: Healthy Life Initiative

7 Codman Square Health Center Improving Access to Health Communications and Research Through Digital Media Stephen M. Tringale, MD & Sue Kelliher About Codman Square Health Center Founded in 1979 in Dorchester Diverse Community 20,000 Patients, 100,000 Clinical Visits Yearly Collaboration with BMC Partnership with Dorchester House Multi-Service Center, known as DotWel Project Overview Goals Objectives Status

8 Codman Square Health Center Improving Access to Health Communications and Research Through Digital Media 81% African-American or Afro-Caribbean,8% Hispanic, 4% White, 1% Asian 55% Medicaid, 15% Health Safety Net (Uninsured), 5% Medicare, 25% Commercial Insurance 1579 adults with DM2 Pap rate 69% Mammogram rate 65% Colorectal Screening Rate 41%

9 Codman Square Health Center Improving Access to Health Communications and Research Through Digital Media Goals Health Literacy and Awareness of Local research as opportunities to participate in research Objectives Use Digital Signage as Methods of Communication with Health Center visitors Status Ongoing implementation and data collection

10 Codman Square Health Center Improving Access to Health Communications and Research Through Digital Media Goals Health Literacy To improve our patients experience at the health center through Asking About Your Health initiative. To improve our cancer screening rates and help us reach our improvement goals in our clinical indicators of patient well-being Goals Research Recruitment Improve our patients understanding of and willingness to participate in the rich and varied research taking place at CSHC and in Boston. To improve rates of participation in our in-house programs and research by better explaining what s involved and what we are hoping to learn.

11 Codman Square Health Center Improving Access to Health Communications and Research Through Digital Media Objectives Health Literacy Through our digital signage system we would deliver specific content about health topics and messages to patients sitting in our waiting rooms. Health topics would include: basic cancer screenings, exercise programs, preparing for medical appointments, etc. Research Recruitment CSHC is often asked to help recruit patients for research studies. The Digital Signage system would help educate patients about these studies, help with recruitment and increase participation.

12 Codman Square Health Center Improving Access to Health Communications and Research Through Digital Media Status The Digital Signage system is up and running on three television sets located in our waiting rooms. Each month we change the health topic to measure any changes in patients health indicators. We have developed supporting collateral material to reinforce digital signage messaging. Status We have not begun to recruit for research projects. We are waiting to recruit for a Yoga for Chronic Back Pain study. Recruitment will only be done via digital signage messaging at CSHC. We continue to add new messaging every day and the feedback we have received from both staff and patients has been positive.

13 Duffy Health Center Duffy Health Connect Project Jane de Groot & Isobel Thomas About Duffy Health Center A HRSA 330(h) program, serving over 2600 homeless or at risk individuals through over 26,500 visits in 2010 Project Overview Goals Objectives Status

14 Duffy Health Center Duffy Health Connect Project Goals Increase health literacy through computer literacy among Duffy s clients. Increase access to reliable information on health topics and clinical research throughout Barnstable County. Status Objectives Empower Duffy clients through basic health and computer literacy training. Promote the Community Connect to Research website to community partners. Duffy s computer literacy classes are expanding to reach more people. Outreach has been ongoing to community college, libraries and senior centers.

15 Duffy Health Center Duffy Health Connect Project Goals Increase health literacy through computer literacy among Duffy s clients. Increase access to reliable information on health topics and clinical research throughout Barnstable County Rationale While people are turning to the Internet for information, our population does either not have access to the Internet or lacks the skills to use it effectively. Lack of computer literacy creates barriers to access to health information.

16 Duffy Health Center Duffy Health Connect Project Objectives 1. Empower Duffy clients through basic health and computer literacy training. Focus Teach clients basic computer and health literacy skills Provide a safe and welcome environment for clients to learn and practice skills Measure the improvement of each patient by using pre and post training surveys Provide additional support for clients depending on their needs Encourage clients to seek out places where they can access computers upon graduating

17 Duffy Health Center Duffy Health Connect Project Objectives (cont.) 2. Promote the Community Connect to Research website to community agencies. Focus Cape Cod Community College Library Promotion Senior Centers

18 Duffy Health Center Duffy Health Connect Project Status Computer/Health Literacy: focus is on individual needs and skill reinforcement Results As of April,2011,18 participants: 6 have completed the training 5 are currently active in the program Referrals are ongoing Clients who have completed the training show a clear improvement in skill and confidence level Graduates now use public access computers or have sought out their own personal computers Increases client empowerment

19 Duffy Health Center Duffy Health Connect Project Status Community Connections: sites have welcomed outreach Activities Presentation to CCCC faculty Web training to ESL students Academy for Life-Long Learning included CCR website in their program Computers for Seniors Three libraries are highlighting the CCR website A link is being posted on the Cape Libraries Automated Material Sharing (CLAMS) database under Medical

20 Somerville Hospital Primary Care: Cambridge Health Alliance Using the Internet for Sexual and Reproductive Health Information: Exploring the Experience of Young Brazilian Patients About Somerville Primary Care Project Overview Goals Objectives Status Ruth Hertzman-Miller, MD, MPH & Gaenslie Lamour, MA, MBA

21 Somerville Hospital Primary Care: Cambridge Health Alliance -Using the Internet for Sexual and Reproductive Health Information: Exploring the Experience of Young Brazilian Patients SHPC sees 5,400 patients yearly. Services include Primary Care, Family Planning, HIV testing & counseling. 87% under age 65 69% publicly insured 27% Portuguese speaking

22 Goals Somerville Hospital Primary Care: Cambridge Health Alliance Using the Internet for Sexual and Reproductive Health Information: Exploring the Experience of Young Brazilian Patients 1. Develop a health communications model, thereby increasing the number of Brazilian patients (age 18-30) accessing quality sexual and reproductive health information 2. Increase the number of Brazilian patients getting quality reproductive health information Objectives 1.1. Make locally & culturally appropriate recommendations for increasing access to health communications Outputs - Blog/website/brochure 2.1. By FY2012, 50% of SHPC Brazilian patients will have increased access to quality sexual and reproductive health information.

23 Somerville Hospital Primary Care: Cambridge Health Alliance We surveyed Brazilians age on demographics/health status, internet use and sexual health knowledge. (N=185) Mean age 26 yrs. Female 58% >= High school education 52% Fair or good health 62% CHA patients 36%

24 Somerville Hospital Primary Care: Cambridge Health Alliance - Respondents used the internet frequently for medical and non-medical questions. 97% had internet at home.

25 Somerville Hospital Primary Care: Cambridge Health Alliance - Men and women differed as to which websites they used most often for sexual health questions. Websites used for STI Information Male Female Wikipedia 19% 23% Medical Center Sites 11% 21% Government Sites 10% 20% Sites Specific to Sexual Health 11% 20% Orkut 18% 13% Do Not Go to Sexual Health Websites 29% 11%

26 Somerville Hospital Primary Care: Cambridge Health Alliance - Respondents STD knowledge was poor. Percentage of Respondents (%) Infections Identified as Transmitted by Sexual Contact (N=175) HIV Genital Warts HPV Chlamydia Trichomonas

27 Somerville Hospital Primary Care: Cambridge Health Alliance - In a follow-up survey, only 5% said their provider had ever suggested a website. Patients said they d use sites if recommended. How much would the following encourage you to visit a website? (N=39) Provider gives written info Link on hospital website Provider looks at site with you

28 The Dimock Center Healthy Life Initiative Debra J. Reid, Pharm.D., BC-ADM, CDE & Maureen McQueeney, PharmD, BCPS About The Dimock Center Serves inner city neighborhoods of Roxbury, Dorchester, and Mattapan Over 14,000 patients and 73,000 visits annually 82% African American or Latino Project Overview Goals Objectives Status

29 The Dimock Center Healthy Life Initiative Goals Establish a quality Health and Wellness Certificate Program Access to health information Employ strategies for comprehension of information Demonstrate ways to effectively use health information Remove barriers to accessing health information Goals Improve patient-perceived well-being and knowledge of health topics Knowledge regarding clinical research and potential benefits of involvement

30 The Dimock Center Healthy Life Initiative Objectives Complete a six week health and wellness education program Introduce participants to clinical research Objectives Identify reliable sources of health information on the Internet Install computer kiosks in 2 patient waiting areas to increase knowledge of health topics

31 The Dimock Center Healthy Life Initiative Status Health and Wellness Education and Certificate Program Classes led by pharmacists with assistance of pharmacy students Curriculum includes nutrition, physical activity, accessing health information and an introduction to clinical research Activities include maintaining a food/exercise diary, using a pedometer, grocery shopping on a budget, and recipe makeovers

32 The Dimock Center Healthy Life Initiative Status First program session completed 7 participants started 3 completers Second program session is underway 10 participants enrolled Program satisfaction survey is being created Survey will be mailed to all participants who completed the program First Session Demographic Characteristics of Participants (n = 7) Mean + age, years Gender, n Male Female Race, n Puerto Rican Black Education, n Grades 6-8 Grades 9-12 Some college Graduated college or vocational school

33 The Dimock Center Healthy Life Initiative Assessment Healthy Days Measure Survey (HRQOL-14) Fourteen questions designed to assess HRQOL Developed and validated by the Centers for Disease Control and Prevention SPSS 17 used to analyze the change in scores pre and post program A change of 1 day in any of the measures is considered meaningful Participants surveyed before and after completion of program Preliminary Results of Pilot Age/Gender Race Education Pre-program unhealthy days Post-program unhealthy days 51 / F AA Some college / F AA Some college / F PR Some college 4 3

34 The Dimock Center Healthy Life Initiative Status - Kiosks Kiosks installed in adult medicine and pharmacy waiting areas Status - Kiosks X-Plain patient education software installed Month Number of Number in Users Spanish Nov Dec Jan Feb Mar Apr

35 Moderators Community Connect to Research: Engaging Patients Harvard Medical School: Alexa T. McCray, PhD Boston University: Richard Kalish, MD, MPH, MS May 11, 2011 Hyannis, Massachusetts Awardees Codman Square Health Center: Stephen M. Tringale, MD & Susan Kelliher Duffy Health Center: Jane de Groot & Isobel Thomas Somerville Primary Care/Cambridge Health Alliance: Ruth Hertzman-Miller, MD, MPH & Gaenslie Lamour, MA, MBA The Dimock Center: Debra J. Reid, PharmD, BC-ADM, CDE & Maureen McQueeney, PharmD, BCPS