FindMyApps, a person-centred tablet programme to support people with mild dementia in their selfmanagement

Size: px

Start display at page:

Download "FindMyApps, a person-centred tablet programme to support people with mild dementia in their selfmanagement"

Jonah Lewis O’Brien’
6 years ago
Views:

FindMyApps, a person-centred tablet programme to support people with mild dementia in their selfmanagement and meaningful activities; userparticipatory development Yvonne KERKHOF 1,2, Myrna PELGRUM

1 FindMyApps, a person-centred tablet programme to support people with mild dementia in their selfmanagement and meaningful activities; userparticipatory development Yvonne KERKHOF 1,2, Myrna PELGRUM 1, Floriana MANGIARACINA 2, Ad BERGSMA 1, Maud GRAFF 3, Rose-Marie DRÖES 2 1. Saxion University of Applied Sciences, Centre for Nursing Research, Deventer/ Enschede, the Netherlands 2. VU University medical center. Department of Psychiatry, Alzheimer Centre, EMGO Institute for Health and Care Research, Amsterdam, the Netherlands. 3. Radboud University Medical Center, Donders Institute for Brain, Cognition and behaviour, Scientific Institute for Quality of Healthcare, Radboud Alzheimer Center, Nijmegen, the Netherlands.

2 Outline Introduction Research questions Method Findings FindMyApps prototype Further development

3 Introduction Person-centred interventions Unmet needs meaningful activities Insufficient support for self-management Current policy

4 What is known about people with dementia and touch screen technology? - User-friendly and valuable; - Increasement of self-confidence and engagement in daytime activities; - Involvement in society. (Riley et al., 2009, Astell et al., 2010, Upton et al., 2011, Meiland et al., 2012, Pringle and Somerville, 2013, Leuty et al., 2013, Nijhof et al., 2013, Lim et al., 2013, Groenewoud and de Lange, 2014, Nordheim et al, 2014; Kerkhof et al., 2015; Astell et al, 2016)

5 Reflections Careful consideration is required to select usable apps Support is needed to learn how to use the touch screen and its apps

The person-centred tablet programme consists off: - A tool to match individual needs, wishes and abilities of people with dementia to features of apps so that tailores apps can be selected, see

6 The person-centred tablet programme consists off: - A tool to match individual needs, wishes and abilities of people with dementia to features of apps so that tailores apps can be selected, see Figure 1. - A training for people with dementia to learn how to use the tablet. - A training for professionals, informal carers (including volunteers) to support people with dementia in using the tablet (Kerkhof et al, 2016).

7 FindMyApps tool and training User studies: focus groups (Kerkhof et al, 2017) Design & Development selection tool: Usertests Systematic literature review: effective coaching intervention FindMy Apps Feasibility study RCT

8 FindMyApps (FMA) selection tool Sets of user and system requirements of apps (filters) Possible apps Carer Most usable apps Person with mild dementia 65% 77% 89%

10 Research question How to develop an interactive selection tool that matches individual needs, wishes and abilities of persons with mild dementia in the area of self-management and meaningful activities (user-profile) to important features of apps (selection criteria)?

11 Research aim The development of a selection tool that meets the needs, wishes and abilities of potential end users (people with mild dementia and informal carers) and other important stakeholders (professionals, experts in dementia, researchers, ICT developers and designers).

12 Content FMA selection tool Front-end (looks like). Back-end consist of: User-environment; Administration environment; Reporting environment.

13 Principles FMA development Participatory design; Person-centered; Self-learning; Iterative.

14 FindMyApps tool and training User studies: focus groups (Kerkhof et al, 2017) Design & Development selection tool: Usertests Systematic literature review: effective coaching intervention FindMy Apps Feasibility study RCT

15 User requirement (1)

16 User requirements (2)

Assessment dementia friendly apps App design Intuitive use: recognizable and not complex Instructions

17 Criteria category Interaction Feedback Description Assessment for dementia friendly apps Intuitive use: format of bottons Visual and audio feedback Esthetic design Text size Contrasts and background Assessment dementia friendly apps App design Intuitive use: recognizable and not complex Instructions or tutorial Customatization Obstacles Age appropriateness Language Advertising or light version Not childisch

18 User profile Personal settings: Visual and language problems: less text and many pictures Visual problems: big letter sizes Language problems: available in Dutch Recognition problems: photo s instead of illustrations or pictograms Skill problems: type of gesture only by tapping or clicking Skill problems: presents of instructions or tutorial

19 Methods(1) - Two iterations: 1. Phase 1: Gathering data for design 2. Phase 2: Creating mock-ups 3. Phase 3: Usability tests - Participatory design - Qualitative research methods Usability tests Gathering data design Mock-ups

20 Methods (2) Usability tests with persons with dementia (n=8), informal carers (n=8) and professionals (n=2). Scenario testing/ assignments Three step test interview (TSTI) 1. Think aloud; 2. Focused interview; 3. Semi structured interview.

21 Data analysis 1. Participant characteristics 2. Video-taped interviews 3. Detailed descriptions of output scenario s 4. Observed participants reported in field notes Deductive content analysis based on framework analysis (Ritchie and Spencer, 1994) Three quality levels of design: system quality; content quality and service quality (Nijland, 2011).

22 Findings Usability tests Gathering data design Mock-ups Quality Iterations 1 & 2 System Content Service With regard to an userfriendly navigation within FindMyApps e.g.: - to select apps for an (sub)activity; - to present the apps and to download; - for operating personal settings. With regard to an understandable and meaningful content e.g.: - what are the main activities and how to devide them into subactivities? - what is the balance between meeting the variety of needs of individuals and simplicity? With regard to an adequately provided service e.g.: - Responsiveness of buttons and touch space.

23 Additional user tests

24 Prototype FMA

26 Further development Feasibility study: - Suitability of parameters and measurements instruments; - Feasibility and user satisfaction of FMA; - Factors influencing the effect and implementation; - Feasibility of research protocol for RCT.

27 Take home message Pleasure and enjoyment Connection and belonging Autonomy and personal identity (Phinney et al., 2007).

28 Contact

29 References Astell, A. J. et al. (2010). 'Using a touch screen computer to support relationships between people with dementia and caregivers', Interacting with Computers, 22(4), pp Astell, A.J., et al. (2016). Does familiarity affect the enjoyment of touchscreen games for people with dementia? International journal of medical informatics, : p. e1-e8. Baaijen, R., J. Boon, and E. Tichelaar (2008). De Nederlandse samenvattende handleiding van de OPHI-II (versie 2.1.) Occupational Performance History Interview-II NL. 2008, Hogeschool van Amsterdam, Expertise Centrum Ergotherapie: The Netherlands: Amsterdam. Graff, M., et al. (2010). Ergotherapie bij ouderen met dementie en hun mantelzorgers [Occupational therapy for dementia patients and their primary caregivers]. The Netherlands: Houten: Bohn Stafleu van Loghum. Kerkhof, Y. J. F., Rabiee, F. and Willems, C. G. (2015) 'Experiences of using a memory aid to structure and support daily activities in a small-scale group accommodation for people with dementia', Dementia: The International Journal of Social Research and Practice, 14(5), pp Kerkhof, Y.J., et al. (2016). Better self-management and meaningful activities thanks to tablets? Development of a person-centered program to support people with mild dementia and their carers through use of hand-held touch screen devices. Int Psychogeriatr, 28(11): Kerkhof, Y.J.F., et al. (2017). Selecting apps for people with mild dementia; development of a requirements based assessment tool for apps enabling meaningful activities and selfmanagement. Journal of Rehabilitation and Assistive Technologies Engineering, 4: 1-21 Leuty, V., Boger, J., Young, L., Hoey, J. and Mihailidis, A. (2013) 'Engaging older adults with dementia in creative occupations using artificially intelligent assistive technology', Assistive Technology, 25(2), pp

30 References Lim, F. S., Wallace, T., Luszcz, M. A. and Reynolds, K. J. (2013) 'Usability of tablet computers by people with early-stage dementia', Gerontology, 59(2), pp Meiland, F. J. M. et al. (2012) 'Usability of a new electronic assistive device for community-dwelling persons with mild dementia', Aging Mental Health, 16(5), pp Nijhof, N., van Gemert-Pijnen, J. E. W. C., Burns, C. M. and Seydel, E. R. (2013) 'A personal assistant for dementia to stay at home safe at reduced cost', Gerontechnology, 11(3), pp Nijland, N. (2011). Grounding ehealth: towards a holistic framework for sustainable ehealth technologies. PhD Thesis, University of Twente. Nordheim, J., Hamm, S., Kuhlmey, A & Suhr, R. (2014). Tablet computers and their benefits for nursing home residents with dementia: Results of a qualitative pilot study. Zeitschrift fur Gerontologie and Geriatrie. Phinney, A., Chaudhury, H. and O connor, D. L. (2007) 'Doing as much as I can do: The meaning of activity for people with dementia', Aging and Mental Health, 11(4), pp Pringle, A. and Somerville, S. (2013) 'Computer-assisted reminiscence therapy: developing practice', Mental Health Practice, 17(4), pp Riley, P., Alm, N. and Newell, A. (2009) 'An interactive tool to promote musical creativity in people with dementia', Computers in Human Behavior, 25(3), pp Ritchie, J. and Spencer, L. (1994). Qualitative data analysis for applied policy research In Bryman, and Burgess, (eds.), Analyzing Qualitative Data (pp ). London: Routledge. Upton, D., Upton, P., Jones, T., Jutlla, K. and Brooker, D. (2011) Evaluation of the impact of touch screen technology on people with dementia and their carers within care home settings, Worcester: University of Worcester. Available at:

ONCOKOMPAS 131 INTERMEZZO

130 INTERMEZZO ONCOKOMPAS 131 INTERMEZZO ONCOKOMPAS: AN ehealth SELF-MANAGEMENT APPLICATION TO MONITOR HEALTH RELATED QUALITY OF LIFE, PROVIDE PERSONALIZED ADVICE AND SUPPORTIVE CARE OPTIONS 132 INTERMEZZO