Viral hepatitis - The patients impact in Bulgaria
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1 Viral hepatitis - The patients impact in Bulgaria HEPASIST NATIONAL ASSOCIATION FOR FIGHTING HEPATITIS
2 CONTENTS: 1. About Hepasist 2. Hepatitis patients rights 3. Hepatitis prevention activities 1. Hepatitis B and C screening actions 2. Hepatitis A and B vaccination
3 ABOUT HEPASIST Founded in 2005 by patients, relatives, doctors, media specialists. Aim: to inform the Bulgarian society about hepatitis issues, prevention, testing and to stand up for patients` rights.
4 ABOUT HEPASIST Our initiatives: Hepatitis information and forum; Toll free line free medical consultation Bulgarian Hepatitis patients rights defense Media conferences and events to raise awareness on hepatitis Hepatitis-testing campaigns in collaboration with all blood-giving centers in the country Vaccination campaigns for hepatitis A and B
5 ABOUT HEPASIST
6 HEPATITIS PATIENTS RIGHTS IN BULGARIA
7 2006 WORLD HEPATITIS DAY Patients refuse to celebrate World Hepatitis Day 2006 due to the postponed Hepatitis C program treatment opening: Rich media coverage Concentration of public attention on the Hepatitis C treatment Opportunities for administrative changes
8 EUROPEAN CAMPAIGN FOR BULGARIAN PATIENTS WITH HEPATITIS C December 2006 February 2007 Vote for improving the treatment circumstances for Hepatitis patients in Bulgaria Information campaign across Bulgaria and Europe 6723 votes
9 EUROPEAN CAMPAIGN FOR BULGARIAN PATIENTS WITH HEPATITIS C
10 2007 OPENING OF THE CHRONIC VIRAL HEPATITIS TREATMENT PROGRAM Opening of the National Hepatitis treatment program after a meeting between Hepasist and the National Health Insurance Fund
11 2007 EXPERT MEETING ON CHRONIC VIRAL HEPATITIS ISSUES Second Expert Meeting on Chronic Viral Hepatitis Issues (April 2007) with regard to the Declaration of the European Parliament on hepatitis C: Ensuring the functioning of the Chronic Viral Hepatitis Treatment Program at the National Health Insurance Fund in Bulgaria To separate the funds for Hepatitis treatment from the general budget of the National Health insurance fund Forming a work group for development of Bulgarian National Strategy for fighting Chronic Viral Hepatitis
12 2007 EXPERT MEETING
13 ASKS 19 May universal asks and 6 Bulgarian asks Ministry of Health National Health Insurance Fund Health Care Committee, National Assembly of the Republic of Bulgaria
14 ASKS
15 2009 HEPATITIS TREATMENT REIMBURSEMENT Due to the strong patients voice hepatitis treatment in Bulgaria is now being reimbursed by the National Health Insurance Fund Hepatitis patients in Bulgaria do not have to wait for treatment in Chronic Viral Hepatitis Program
16 HEPATITIS PREVENTION ACTIVATES Hepatitis B and C screening actions Multiple screening actions through the country Screening campaigns in different Bulgarian cities
17 2009 WORLD HEPATITIS DAY Bulgaria is really taking the lead in 2009 with its Am I Number 12? Campaign. The annual bulletin of World Hepatitis Alliance Means donation for free Hepatitis screening tests by VIP Brother 3 Bulgarian celebrities test themselves for Hepatitis B and C
18 2009 WORLD HEPATITIS DAY
19 HEPATITIS PREVENTION ACTIVATES. HEPATITIS A AND B VACCINATION National information campaign for Hepatitis A and B vaccination encouragement - Hepatitis is dangerous. Get vaccinated! 3 media events in Sofia, Plovdiv and Varna Over 150 publications in media Media partnerships (2 video clips, 2 radio spots, 2 information squares, 2 internet banners) Over 900 broadcasts of the video clips and over 600 transmissions of the radio spots Over 70 publications of the information square and over impressions of the internet banners Over 100 people a day were informed how to prevent themselves form hepatitis, by the toll free line
20 HEPATITIS PREVENTION ACTIVATES. HEPATITIS A AND B VACCINATION
21 SUMMARY Due to the Bulgarian patients efforts: Hepatitis is a priority for the Bulgarian government Hepatitis treatment and treatment access matching the highest international standards Hepatitis prevention awareness among the highest levels of public awareness in the region
22 Thank You for Your Attention!
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