CDC activities with Autism Spectrum Disorders Georgina Peacock, MD, MPH Centers for Disease Control and Prevention National Center on Birth Defects and Developmental Disabilities The findings and conclusions in this presentation ti have not been formally disseminated i d by the Centers for Disease Control and Prevention. They do not represent and should not be construed to represent any agency determination or policy.
Public Health Model Surveillance Research Prevention Health Promotion
CDC Programs Specific to ASDs Surveillance/Monitoring Address questions on the prevalence/trends Epidemiologic Research Examine risk/protective factors Prevention Translation of research and monitoring activities
Surveillance/Monitoring
CDC Establishing a Network to Monitor ASDs and other DDs in the United States Washington Montana North Dakota Minnesota Vermont Maine Oregon Nevada California Idaho Utah Wyoming Colorado South Dakota Nebraska Kansas Iowa Missouri Wisconsin Michigan Illinois Michigan Indiana Kentucky Ohio New York Pennsylvania DC West Virginia Virginia New Hampshire Massachusetts Rhode Island Connecticut New Jersey Delaware Maryland Arizona New Mexico Oklahoma Arkansas Tennessee North Carolina South Carolina Mississippi Georgia Alabama Alaska Texas Louisiana Florida U.S. Virgin Islands Hawaii Puerto Rico CDC Guam + 11 ADDM Sites 2006-2010 (10+CDC) 16 ADDM Sites 2001-2006 (15 +CDC)
Surveillance Year 2002 (8-year-olds born in 1994) Sites represented approximately 10% of US 8-year-old children - 2,685 children were identified with an ASD. The average prevalence across all sites was very similar to 2000 at 6.6 per 1,000. There was also a range 3.33 (AL) to 10.6 (NJ) per 1,000 children Between 1:100 and 1:300 with an average of 1:150 children with ASD.
Epidemiologic Research What are risk and protective factors?
Study to Explore Early Development (SEED) Multi-state collaborative study to help identify factors that may put children at risk for autism spectrum disorders and other developmental disabilities. California, Colorado, Georgia, Maryland, North Carolina, Pennsylvania Approximately 2,700 children, ages 2 to 5, and their parents will be part of this study.
Research Areas Included Infection and immune function, including autoimmunity Reproductive and hormonal features Gastrointestinal t i t ti l features Genetic features Investigation I of the broader ASD phenotype Sociodemographic characteristics Substance use, hospitalizations and injuries, sleep disorders, and mercury exposure
Parent Education Campaign Developmental milestones and early warning signs of delay Every child should meet their full potential. ti
Communication Learn the Signs.
Target Audiences Health Care Professionals (HCPs) Pediatricians, family physicians, physician assistants, nurse practitioners, nurses, and others Parents of Young Children Ages 4 and younger Early Educators (EEs) Preschool teachers, day care providers, and others
Communication Objectives Raise awareness of developmental milestones and early warning signs of developmental delay. Increase knowledge about the benefits of early action and early intervention. Increase parent-provider dialogue on the topic of developmental milestones and disorders. Increase early action for developmental disorders.
Learn the Signs
Mobilization Act Early Regional Summits
Act Early Regional Summits Bringing i together th key stakeholders in states t to improve early identification and early intervention. 2007-2008 Regions V, VI, and VII 2009 Regions IVa, VIII, II 2009 Minigrants for participants in the 2007-20082008 summits
Proposed Outcomes of the Regional Summits Increase awareness of Learn the Signs. Act Early, campaign and its impact in target regions Develop state teams to initiate and/or enhance state wide early identification, diagnosis and service provision and coordination for families with ASD
Proposed Outcomes of Regional Summits (continued) Develop common understanding di among stakeholders of opportunities, challenges and barriers to early identification and diagnosis Create national web-based forum to disseminate promising evidence-based practices for stakeholders to use to develop innovative approaches in their states
Other campaign activities
2008 Research Topics of Interest (RTOI) Helping Family Practitioners Improve Developmental Services in Primary Care Oklahoma Project 3D: Developmental Delays and Disabilities Screening and Referral Project Wisconsin
2008 Collaborative Research Awards (CRA) Using Positive Parenting to Teach Child Development Involving Allied Health Care Professionals in Helping Parents to Navigate Systems for Autism Spectrum Disorder (ASD)
Promatora trainings i in partnership with Organization for Autism Research (OAR) NCSL database of autism legislation Milestone Moments
References www.cdc.gov/actearly www.cdc.gov/pronto (campaign website in Spanish) www.cdc.gov/autism (autism information center) www.aucd.org (regional summits website and NCSL autism legislative database)
Questions? www.cdc.gov/ncbddd gpeacock@cdc.gov g Centers for Disease Control and Prevention National Center on Birth Defects and Developmental Disabilities The findings and conclusions in this presentation ti have not been formally disseminated i d by the Centers for Disease Control and Prevention. They do not represent and should not be construed to represent any agency determination or policy.