Ryan White HIV/AIDS Program Reporting and Service Data Ryan White Part B Administrative Reverse Site Visit Meeting November 5 th, 2014 Tracy Matthews CAPT Deputy Director Division of Policy and Data U.S. Department of Health and Human Services (HHS) Health Resources and Services Administration (HRSA) HIV/AIDS Bureau (HAB) 1
Objectives Part B Data Reporting Requirements Review data components of RSR Review HAB uses of data Identify resources available to Part B grantees 2
Data Reporting Requirements 3 Ryan White Services Report (RSR) Allocation and Expenditure Reports (A & E) ADAP Data Report (ADR)
The RSR: Ryan White Program Services Report RSR has three components 1. Grantee Report 2. Provider Report 3. Client Report (Client Level Data) Grantees complete the grantee report; providers complete the provider report; and the grantees and/or provider complete the client level report 4
Client Report (Client-Level Data) Purpose of client level report Provides a record for each client receiving a Ryan White Program funded service Elements Each record will include up to 64 data elements, including: Encrypted Unique Client Identifier (euci) Demographics Ryan White Funded Services received Clinical Information 5
How does the data get used? 6 Bureau/Office Project Officer Grantee Special initiatives Services adequate to address subpopulations Quality improvement Benchmarking Share best practices across grantees Additional services Training and technical assistance Technical assistance and data utilization Strategic planning & Leadership Buy-In
Purpose of Data Collection 7 Benefits For Grantees: Provision of services and care by funded providers Know who the clients are Identify gaps in target populations Identify gaps in services Benefits For PLWH: Identify gaps in services Identify targeted projects Allocations for services
The Ryan White HIV/AIDS Program Retention in Care and Viral Load Suppression by Socio-Economic Demographics
Ryan White Services Report, 2010-2012 Retention in Care & Viral Suppression 9 Retained in care: had at least 1 OAMC visit before September 1, 2012, of the measurement year and had at least 2 visits 90 days or more apart Viral suppression: had at least one OAMC visit, at least one viral load count, and last viral load test <200
Retention in Care and Viral Load Suppression by Age 10 Retained in care: had at least one OAMC visit before September 1, 2012, and had at least 2 visits 90 days or more apart Viral suppression: had at least one OAMC visit, at least one viral load count, and last viral load test <200
Retention in 2012 Care and RSR Viral Data Load Suppression by Transmission Risk Category 11 Retained in care: had at least one OAMC visit before September 1, 2012, and had at least 2 visits 90 days or more apart Viral suppression: had at least one OAMC visit, at least one viral load count, and last viral load test <200
Retention in Care 2012 and RSR Viral Load Data Suppression by Race/Ethnicity 12 Retained in care: had at least one OAMC visit before September 1, 2012, and had at least 2 visits 90 days or more apart Viral suppression: had at least one OAMC visit, at least one viral load count, and last viral load test <200
Retention in 2012 Care and RSR Viral Data Load Suppression by Healthcare Coverage 13 Retained in care: had at least one OAMC visit before September 1, 2012, and had at least 2 visits 90 days or more apart Viral suppression: had at least one OAMC visit, at least one viral load count, and last viral load test <200
HIV and Men Who Have Sex with Men (MSM)
HIV and Men Who Have Sex with Men (MSM) 15 Black MSM: 32.4% of all MSM Represent 66.4% of the MSM ages 13-18 (youth) Represent 61% of the MSM ages 19-24 (young adult) 29.4% are ages 45-54 (older/aging) Approximately two-thirds of Black MSM are 100% below FPL Almost half (48.7%) of Black MSM had no insurance at some time during the year
MSM and IDU Retained in Care and Virally Suppressed 100% 16 90% 80% 70% 60% 50% 82.0% 82.1% 79.6% 74.4% 81.30% 75.1% 76.4% 74.50% 67.8% 52.9% All RSR clients MSM 40% Black MSM 30% 20% Young (13-24) MSM IDU 10% 0% Retained in care Source: 2012 RSR data (preliminary) Virally suppressed Retained in care: had at least one OAMC visit before September 1, 2012, and had at least 2 visits 90 days or more apart Viral suppression: had at least one OAMC visit, at least one viral load count, and last viral load test <200
MSM and IDU Retained in Care and Virally Suppressed 100% 17 90% 80% 70% 60% 50% 82.0% 82.1% 79.6% 74.4% 81.3% 75.1% 76.4% 74.5% 67.8% 52.9% All RSR clients MSM 40% Black MSM 30% 20% Young (13-24) MSM IDU 10% 0% Retained in care Virally suppressed Retained in care: had at least one OAMC visit before September 1, 2012, and had at least 2 visits 90 days or more apart Viral suppression: had at least one OAMC visit, at least one viral load count, and last viral load test <200 Source: 2012 RSR data (preliminary)
MSM and IDU Retained in Care and Virally Suppressed 100% 18 90% 82.0% 80% 70% 60% 50% 82.1% 79.6% 74.4% 81.3% 75.1% 76.39% 74.5% 67.8% 52.9% All RSR clients MSM 40% Black MSM 30% 20% Young (13-24) MSM IDU 10% 0% Retained in care Virally suppressed Retained in care: had at least one OAMC visit before September 1, 2012, and had at least 2 visits 90 days or more apart Viral suppression: had at least one OAMC visit, at least one viral load count, and last viral load test <200 Source: 2012 RSR data (preliminary)
MSM and IDU Retained in Care and Virally Suppressed 100% 19 90% 80% 70% 60% 50% 82.0% 82.1% 79.6% 74.4% 81.3% 75.1% 76.4% 74.5% 67.8% 52.9% All RSR clients MSM 40% Black MSM 30% 20% Young (13-24) MSM IDU 10% 0% Retained in care Virally suppressed Retained in care: had at least one OAMC visit before September 1, 2012, and had at least 2 visits 90 days or more apart Viral suppression: had at least one OAMC visit, at least one viral load count, and last viral load test <200 Source: 2012 RSR data (preliminary)
HIV and Youth
HIV and Youth 21
Youth: Distribution of Race/Ethnicity 22
Youth: Distribution of Transmission Risk 23
Youth: Race/Ethnicity by Transmission Risk 24
Youth and Viral Suppression 25
Viral Suppression by Race/Ethnicity 26
RWHAP Services
Top 10 Medical Services Used, By Year Service 2010 2011 2012 1. Outpatient Ambulatory Medical Care* 56.7% 57.0% 60.6% 2. Medical Case Management* 52.9% 54.2% 54.3% 3. Case Management 26.1% 27.0% 26.1% 4. Oral Health* 15.8% 16.1% 16.9% 5. Transportation 14.2% 14.0% 14.0% 6. Mental Health* 13.6% 13.8% 14.0% 7. Health Education Risk Reduction 12.8% 12.0% 12.0% 8. Food Bank 12.0% 10.7% 10.5% 9. Psychosocial Support 11.4% 10.6% 9.6% 10. Treatment Adherence 9.4% 10.3% 12.2% *Core Medical Services 28
Part B funded Providers: Service Utilization Across Levels 100% 90% 80% 70% 60% 50% 40% 30% 20% 10% 0% 67.1% 61.1% 59.4% 40.3% 80.2% Percent of Clients Receiving OAMC 88.0% 29 43.2% 36.0% 29.2% 29.0% 24.7% 18.9% 16.8% 19.0% 13.0% 12.0% Percent of Clients receiving MCM Percent of Clients receiving NMCM All Part B Patient Population < 5,000 Patient Population 10,000-20,000 Patient Popuation 20,000+ Percent of clients receiving oral health
Total Part B Service Utilization compared within the 5,000-10,000 Patient Population 100% 90% 80% 70% 60% 50% 40% 30% 20% 10% 0% 61.1% 59.4% 43.6% 29.4% Percent receiving OAMC 71.9% 30 91.2% 87.4% 88.4% Percent Receiving MCM 29.2% 63.2% 10.6% 33.3% Percent Receiving NMCM All Part B Part B #1 Part B #2 Part B #3 23.9% 19.0% 17.1% 11.9% Percent Receiving oral health care
Data related Technical Support 31 Data quality DART Data.TA@caiglobal.org CAREWare users Help Desk (877)-294-3571 12pm-5pm ET Monday-Friday cwhelp@jprog.com Questions about EHB HRSA Contact Center (877) 464-4772 8am 8pm ET Monday-Friday. http://www.hrsa.gov/about/contact/ehbhelp.aspx Data content and submission questions Data Support - (888) 640-9356, 9am - 5:30 pm ET Monday-Friday. ryanwhitedatasupport.wrma@csrincorporated.com
Resources 32 Important Notices TARGET Center - https://careacttarget.org/ State information State profiles http://datawarehouse.hrsa.gov/topics/stateprofiles.aspx Questions about program guidance HRSA project officer
Ryan White HIV/AIDS Program State Profiles
2011 and 2012 State Profiles Content Section A State Overview Section B HIV/AIDS Epidemic Section C Program Grantees and Funding Section D Provider Characteristics Section E Client Characteristics Section F Services Section G Clinical Data Section H AIDS Drug Assistance Program Section I Oral Health Section J HHS Indicators Section K National HIV/AIDS Strategy 34
2011-2012 State Profiles Homepage http://hab.hrsa.gov/stateprofiles/ 35
2011-2012 State Profiles Clinical Data http://hab.hrsa.gov/stateprofiles/clinical-data.aspx 36
2011-2012 State Profiles NHAS http://hab.hrsa.gov/stateprofiles/nhas.aspx 37
Questions? 38 HEALTH RESOURCES AND SERVICES ADMINISTRATION HIV/AIDS BUREAU 5600 FISHERS LANE ROCKVILLE, MD 20857 301-443- 7804 TMATTHEWS@HRSA.GOV