AphasiaAccess 2017 Leadership Summit Michelle Bourgeois, Vanessa Burshnic, Alyssa Lanzi University of South Florida, Tampa Jackie Hinckley Voices of Hope for Aphasia Measure Description Design/Scoring Reliability/Validity Key Reference/ Availability Theme: Communication Measure of Skill in Supported Conversation (MSC) Couples' Communication Scale (CCS) Rates the partner s ability to acknowledge and reveal competence of the person with aphasia. Measures the success in mutual and the amount of information the couple can solve together when presented with tasks. Observational ratings of acknowledging and revealing competence. E.g., from no use of techniques to reveal competence to technically outstanding Observational ratings, from 0 to 10, that code the frequency of strategy use by the person with aphasia and the partner Good reliability and validity Single-study tool Available through the Aphasia Institute: www.aphasia.ca Nykänen, A., Nyrkkö, H., Nykänen, M. Brunou, R., Rautakoski. P., Communication therapy for people with aphasia and their partners (APPUTE). Aphasiology, 27 (2013), pp. 1159 1179.
Communication Strategies of Communication Partners Questionnaire Carer COAST Geriatric Depression Scale (GDS) Measures frequency of strategy use by partner. Assesses self-perceived effectiveness for people with impairments. Screening tool for major depression. Assesses severity of depression. May be used with healthy, medically ill and mild to moderately cognitively impaired Visual analogue scale measuring frequency of different strategies. Likert scale from 1-5 with 20 items addressing interactive,, and quality of life issues from the perspective of the partner. Theme: Mood Yes/no questions to 20 items screen for depression. Can be administered orally or in writing. Investigator-constructed measure Internal consistency high (0.94), test-retest reliability high (0.91), construct validity good. Good validity and reliability; frequently used across studies. Rautakoski, P., Partners' self-perceptions of the use of different strategies during total intervention. Aphasiology, 25 (2011), pp. 1523 1542 Long, A. F., Hesketh, A., Paszek, G., Booth, M., & Bowen, A. (2008). Development of a reliable self-report outcome measure for pragmatic trials of therapy following stroke: the Communication Outcome after Stroke (COAST) scale. Clinical Rehabilitation, 22(12), 1083-1094. Yesavage, J. A., Brink, T. L., Rose, T. L., Lum, O., Huang, V., Adey, M., & Leirer, V. O. (1983). Development and validation of a geriatric depression screening Page 2 of 6
older adults. scale: a preliminary report. Journal of psychiatric research, 17(1), 37-49. Caregiver Strain Index (CSI) Caregiver Burden Scale Bakas Caregiver Outcome Scale (BCOS) Brief measurement of strain in care providers. Assesses perceived burden among people caring for others with disabilities. Measures life changes in caregivers of persons with chronic illness (Michalos, 2009) Theme: Caregiver Coping 18 yes/no questions High validity and about the burden of reliability. caregiving. Measures the caregivers' perceived burden associated with 15 possible tasks. Allows evaluator to narrow down possible sources of stress. 5-point rating scale of perceived difficulty for completing various caregiving tasks. A valid and reliable instrument in the assessment of caregiver burden. Acceptable validity and reliability. Thornton, M. & Travis, S. (2003). Analysis of the reliability of the modified Caregiver Strain Index. The Journals of Gerontology, 58, S127-133. Zarit, S. H., Reever, K. E., Back-Peterson, J. (1980). Relatives of the impaired elderly: correlates of feelings of burden. The Gerontologist, 20, 649-655. Bakas T, Champion V, Perkins SM, Farran CJ, Williams LS. Psychometric testing of the revised 15-item Bakas Caregiving Outcomes Scale. Nurs Res. 2006;55(5):346 55 Page 3 of 6
Ways of Coping Questionnaire Measures different dimensions of coping strategies and their use. 4-point Likert scale rating the frequency of using various behavioral and emotional coping strategies, 66 items One of the most frequently used coping assessments (Schwarzer & Schwarzer, 1996). Folkman, S. & Lazarus, R. S. (1988). Ways of Coping Questionnaire: Research Edition. Palo Alto, CA: Consulting Psychologists Press. Family Assessment Device Assesses six dimensions of family adjustment, including Problem Solving, Communication, Roles, Affective Responsiveness, Affective Involvement, Behavior Control and General Functioning. Used extensively and translated into 27 languages. Mansfield, A. K., Keitnor, G. I., Dealy, J. (2015). The Family Assessment Device: An update. Family Process, 54 (1) 82-93. Page 4 of 6
Reference List Bakas, T., & Champion, V. (1999). Development and psychometric testing of the Bakas Caregiving Outcomes Scale. Nursing Research, 48(5), 250-259. Folkman, S., & Lazarus, R.S. (1988). Manual for the ways of coping scale. Palo Alto, CA: Consulting Psychology Press. Kagan, A., Winckel, J., Black, S., Duchan, J. F., Simmons-Mackie, N., & Square, P. (2004). A set of observational measures for rating support and participation in conversation between adults with aphasia and their conversation partners. Topics in Stroke Rehabilitation, 11(1), 67-83. Long, A. F., Hesketh, A., Paszek, G., Booth, M., & Bowen, A. (2008). Development of a reliable self-report outcome measure for pragmatic trials of therapy following stroke: the Communication Outcome after Stroke (COAST) scale. Clinical Rehabilitation, 22(12), 1083-1094. Mansfield, A. K., Keitner, G. I., & Dealy, J. (2015). The family assessment device: an update. Family Process, 54(1), 82-93. Nykänen, A., Nyrkkö, H., Nykänen, M., Brunou, R., & Rautakoski, P. (2013). Communication Page 5 of 6
therapy for people with aphasia and their partners (APPUTE). Aphasiology, 27(10), 1159-1179. Rautakoski, P. (2011). Partners' self-perceptions of the use of different strategies during total intervention. Aphasiology, 25(12), 1523-1542. Sullivan, M. T. (2002). Caregiver strain index (CSI). Journal of Gerontological Nursing, 28(8), 4-5. Yesavage, J. A., Brink, T. L., Rose, T. L., Lum, O., Huang, V., Adey, M., & Leirer, V. O. (1983). Development and validation of a geriatric depression screening scale: a preliminary report. Journal of psychiatric research, 17(1), 37-49. Zarit, S. H., Reever, K. E., Back-Peterson, J. (1980). Relatives of the impaired elderly: correlates of feelings of burden. The Gerontologist, 20, 649-655. Page 6 of 6