UvA-DARE (Digital Academic Repository) Improving aspects of palliative care for children Jagt, C.T. Link to publication Citation for published version (APA): Jagt, C. T. (2017). Improving aspects of palliative care for children General rights It is not permitted to download or to forward/distribute the text or part of it without the consent of the author(s) and/or copyright holder(s), other than for strictly personal, individual use, unless the work is under an open content license (like Creative Commons). Disclaimer/Complaints regulations If you believe that digital publication of certain material infringes any of your rights or (privacy) interests, please let the Library know, stating your reasons. In case of a legitimate complaint, the Library will make the material inaccessible and/or remove it from the website. Please Ask the Library: http://uba.uva.nl/en/contact, or a letter to: Library of the University of Amsterdam, Secretariat, Singel 425, 1012 WP Amsterdam, The Netherlands. You will be contacted as soon as possible. UvA-DARE is a service provided by the library of the University of Amsterdam (http://dare.uva.nl) Download date: 19 Jan 2019
Improving Aspects of Palliative Care for Children Improving Aspects of Palliative Care for Children Charissa Jagt van Kampen Charissa Jagt van Kampen
ImprovingAspectsofPalliativeCareforChildren CharissaJagt vankampen
The studies presented in this thesis were financially supported by AGIS healthcare, and KIKA. Theprintingofthisthesiswasfinanciallysupportedby: PsychosocialDepartmentEmmaChildren shospital,amc ReiniervanArkel/Herlaarhof StichtingPAL StichtingKinderoncologischeCentraAmsterdam Press: Haveka ISBN/EAN: 9789402808292 Nopartofthisthesismaybereproduced,storedinaretrievalsystem,ortransmittedin anyformorbyanymeanswithoutpriorpermissioninwritingfromtheauthor.
ImprovingAspectsofPalliativeCareforChildren ACADEMISCHPROEFSCHRIFT terverkrijgingvandegraadvandoctor aandeuniversiteitvanamsterdam opgezagvanderectormagnificus prof.dr.ir.k.i.j.maex tenoverstaanvaneendoorhetcollegevoorpromotiesingestelde commissie, inhetopenbaarteverdedigenindeagnietenkapel opwoensdag29november2017,te10.00uur doorcharissatharijagt GeborenteLelystad
Promotiecommissie Promotor: Prof.dr.H.N.Caron Prof.dr.M.A.Grootenhuis Copromotor: Dr.A.Y.N.Schouten vanmeeteren Dr.M.C.Kars Overigeleden: Prof.dr.J.B.M.vanWoensel Prof.dr.J.B.Goudoever Prof.dr.A.A.E.Verhagen Prof.dr.J.J.M.vanDelden Dr.J.H.Merks Dr.E.M.C.Michiels Faculteitdergeneeskunde
Contents Chapter1 GeneralIntroduction 9 Insightinthepalliativecourseofdiseaseofchildrenwithmalignantdisease Chapter2 Thetiming,duration,andmanagementofsymptoms 27 ofchildrenwithanincurablebraintumor:aretrospective studyofthepalliativephase NeuroOncologyPractice2(2),70 77,2015 Chapter3 Thetiming,durationandmanagementofsymptomsofchildren 43 withanincurablenoncnsmalignancy:aretrospectivestudy ofthepalliativephase. Inpreparationforsubmission Insightintheintensityandcontentofcareprovidedbyapediatricpalliativecareteam Chapter4 Aspectsandintensityofpediatricpalliativecasemanagement 61 providedbyahospitalbasedcasemanagementteam:a comparativestudybetweenchildrenwithmalignantand nonmalignantdisease AmJHospPalliatCare.2017Jan Chapter5 Aprospectivestudyonthecharacteristicsandsubjectsof 77 Pediatricpalliativecarecasemanagementprovided byahospitalbasedpalliativecareteam BMCPalliatCare.2017;16:1.
ComplianceofthePPCTtothenationalclinicalguidelinepediatricpalliativecare Chapter6 Impactofamultifacetededucationprogramonimplementinga99 pediatricpalliativecareguideline:apilotstudy BMCMedEduc.2015;15:194 Chapter7 GeneralDiscussionandSummary 115 Appendices Summaryofthethesis(English) 143 Summaryofthethesis(Dutch) 153 Listofcontributingauthors 163 Wordofthanks(Dutch) 171 Portfolio 175 Publications 179 CurriculumVitae 183