Europa Donna in Europe and in Slovenia Mojca Sencar EUROPA DONNA, The Slovenian Breast Cancer Association LJUBLJANA, SLOVENIA
ED The European Breast Cancer Founded in 1994 Affiliates national forums from 29 European countries Coalition
Austria Belgium Croatia Cyprus Czech Republic Denmark Estonia France Germany Greece Hungary Ireland Israel Italy Lithuania Luxembourg Monaco The Netherlands Poland Portugal Russia Slovenia Spain Sweden Switzerland Turkey Ukraine United Kingdom Yugoslavia
ED The Slovenian Breast Cancer Association Founded in 1997 700 members in 2002
History of ED The concept first expounded by Professor Umberto Veronesi at the Congress EUSOMA Paris 1993 ED started life as an educational project of the European School of Oncology First Conference of independent organisation ED in 1994 in Milan - Delegates from 20 European countries
EUROPA DONNA's Ten Goals 1 To promote the dissemination and exchange of factual, up-todate information on breast cancer throughout Europe To promote breast cancer awareness To emphasise the need for appropriate screening and early detection To campaign for provision of optimal treatment To ensure quality supportive care throughout and after treatment
EUROPA DONNA's Ten Goals 2 To advocate appropriate training of health professionals To acknowledge good practice and promote its development To demand regular quality assessment of medical equipment To ensure that all women fully understand any proposed treatment option,including entry into clinical trials, and their right to a second opinion To promote the advancement of breast cancer research
Organisation 1 The European Breast Cancer Coalition is an independent non-profit organisation whose members are affiliated groups from countries throughout Europe.
It is affiliating 29 national forums Organisation 2 Forums autonomous units, which are choosing the sequence of importance of the 10 goals ED by themselves, and are Participating in conferences, workshops and NEWS ED
Realisation of 10 goals: Activities 1 Development of educational projects Organisation of practical workshops Organisation of International Conference every two years Participation in International Conferences
Activities 2 ED worked in partnership with EUSOMA and EORTC Co-chaired the first, second and third European Conference on Breast Cancer
Activities 3 Each year ED organises for the members of national forums the European Breast Cancer Advocacy Training Course.
Activities 4 Other activities of ED with the aim: to make available for all women in Europe equal access to best practice in breast cancer service, i.e. early detection of the disease and immediate treatment.
The Slovenian ED In early eighties the movement»a Reach to Recovery«A representative at the foundation Conference ED in Milan 1994 The Slovenian ED 1997
Support to the 10 Goals of ED Promotion of awareness NEWS ED 3-4 times a year Poster»BE PREPARED«Folder Activities 1 Media TV, Radio, Newspapers, Magazines Website
SOS Telephone Personal counselling Groups for self-help Activities 2 individual help
Activities 3 December 2002: Seminar for Radiologists»Fit for Screening«
Priority Tasks To press the health politicians and government to awake their awareness Organised programme of screening mammography for all women after 50 years of age to take place every two years Completion of the construction of the new Oncological Institute
»Every woman has a voice. Every woman's voice tells a highly personal story which, when blended with the voices of a thousand other women, becomes a rising wave of similar hopes and dreams, fears and concerns«. Vivian Infantino
Literature: 1. EUROPA DONNA Upt-to-Date News about breast cancer, Spring 1995 2. EUROPA DONNA NEWS, Vol. 2, Issue 1, 1996 3. EUROPA DONNA NEWS, Winter 1997 4. EUROPADONNA NEWS, Summer/Autumn l999 5. Advancing European Breast Cancer and Advocacy, December 1999 6. EUROPA DONNA UPDATE, January 2000 7. EUROPA DONNA NEWS, Summer/Autumn 2000 8. EUROPA DONNA UPDATE, March 2002 9. EUROPA DONNA NEWS, Summer/Autumn 2002 10.Cancer Future, Vol. 1, March 2002, p. 95-99 11.M. Vegelj-Pirc: Zbornik Rak dojke:»živimo drug za drugega«(compilation Breast Cancer:»We live for one another«(društvo onkoloških bolnikov, Ljubljana, November 1999 (Coalition of Oncological Patients, Ljubljana)