DHSS/DPH Section of Women s Children s and Family Health The State of Alaska s Title V Program s Role in Building Systems of Care for Children and Youth with Autism Spectrum Disorder & Other Developmental Disabilities
Objectives and Goals participants will learn how 1. The State of Alaska s Title V program was an integral part of developing the 2006 State of Alaska Autism Plan 2. The State of Alaska organized autism and other developmental disabilities (DD) services as a part of the Children and Youth with Special Health Care needs programs 3. Examples of Success 4. Sustaining Activities
Division of Public Health Sections Women s, Children s and Family Health (WCFH) Children s Health Unit Women s and Adolescent Health Unit MCH Epidemiology Unit Public Health Nursing Chronic Disease Prevention and Health Promotion Epidemiology Public Health Laboratories (Anchorage & Fairbanks) Disaster Preparedness and Emergency Medical Services State Medical Examiner Vital Statistics Health Planning & Rural Health Care
Mission of WCFH To promote optimum health outcomes for all Alaskan women, children and their families by: Providing leadership Coordinating with the primary and public entities with the health care system Delivering preventive, rehabilitative and education services targeting women, children, and families Collecting, analyzing and reporting reliable and statistically accurate information
Funding Streams for WCFH Title V MCH Block Grant Tile X Family Planning Centers for Disease Control and Prevention (CDC) Health and Human Services Resource Administration (HRSA) Administration for Children, Youth and Families Office of Adolescent Health Association of Maternal Child Health Programs Mental Health Trust Authority (MHTAAR)-State Medicaid State General Fund
The Governor Council on Disabilities and Special Education 2006 Alaska State Autism Plan Autism Ad Hoc Committee Medical & Health Funding & Policy Family & Child Education & Training Family Support Srvs
Alaska Autism Plan Universal Screening Diagnostic Clinic Expansion Enhance Referral and Training Workforce Training Time Limited Intensive Autism Services
Families Statewide Autism Resources Governor s Council on Disabilities and Special Education AK Department of Juvenile Justice Division of Public Assistance Alaska Community Health Aide Program ANCHORAGE SCHOOL DISTRICT Disability Law Center of Alaska Public Health Nursing
Combating Autism Act Initiative CAAI State Demonstration Grant Goal #1: In rural Alaska, develop new processes to support the system of early identification, developmental screening and diagnosis of children suspected with autism and other neurodevelopmental disorders Goal # 2: Children 0 to 3 will be successfully connected with early intervention services and a medical home, leading to earlier initiation of services Goal #3: The project will be aligned with the goals established by the Autism Alliance and the ECCS plan to assure continuity and work collaboratively on a long term sustainability plan
AK Partners as a System of Early Intervention and Care for CYSHCN Public Health Nursing Services Early Intervention/Infant Learning Program 10
Goals of Outreach Clinic Expansion Establish a process in rural Alaska to support PND screening clinics in hub communities to improve rural Alaskan s access to diagnosis, earlier intervention, and treatment Through print materials, training, and 1:1 discussions, establish practice of proper identification of appropriate patients for referral to Providence Autism Diagnostic Network Collaborate and support rural community providers on efforts to implement EPSDT (routine screenings) for earlier identification to ensure referral to EI/ILP
Homer Dillingham Bethel Fairbanks Ketchikan Juneau Barrow Kotzebue Valdez Kodiak Nome Medical Providers: Ron Brennan, MD ; Teresa Hirst, ANP; William Walker, MD Clinic Coordinator: Kris Green Parent Navigator: Stone Soup Group
2009 2011 Patient Referrals (n=409) 120 100 80 60 2009 2010 2011 40 20 0 Autism/ASD concern Prenatal Exp Behavioral Sp, Cog, Comm, Acad Other Neuro Follow-up
2009 2011 Outcome Recommendations 60 33 % (n=73) rec d recommendation for DX work-up 50 40 30 2009 2010 2011 20 10 0 DX workup Ref local srvs Other screens Watch
Providence Autism Diagnostic Center (PADN) Autism Diagnosis Overview: Multi-disciplinary neurodevelopmental assessment: MD, Psych/Neuro Testing, OT, PT, SLP, Hearing, Vision, Early Intervention Parent Navigator works to link family and child to community supports, resources and providers Staff: Pediatric Neurodevelopmental Specialists Pediatric Advanced Practice Nurse Practitioner SSG parent navigation staff Ancillary: Pediatric Therapies (OT, PT, Speech) Pediatric Psychologists Pediatric Neurologists State Board of Education & Early Development adds ANP to list of medical personnel that can make an autism diagnosis; accepts for service needs
Capacity Building & Workforce Development 1. Leadership & Education in Neurodevelopmental & related Disabilities (LEND) 2. Autism Summer Institutes 3. Board Certified Behavior Analyst (BCBA) trainees certification 4. Internet based modules State - UCEDD Partnerships 5. Online course work with Georgetown and University of Arizona for learning collaborative, degree, and certifications by both EI/ILP and UCEDD
Learn the Signs. Act Early Alaska s 2011 Campaign 1. Identify Target Audience 2. Gather Focus Group Data 3. Plan Outreach Campaign 4. Implement Outreach Campaign 5. Evaluation and Lessons Learned
Learn the Signs. Act Early Alaska s 2011 Campaign Identify Target Audience PRIMARY: Southcentral Alaska families with children ages 0-5 years SECONDARY: Health care, Child care, Early Intervention providers in Southcentral Alaska
Learn the Signs. Act Early Alaska s 2011 Campaign Gather Focus Group Data Institute of Social & Economic Research (UAA) gather focus group data from parents in target audience
Learn the Signs. Act Early Alaska s 2011 Campaign Plan Outreach Campaign Partner Visits (health care providers and state agency partners) Introduce campaign Advise of focus group feedback Offer materials Gather feedback Request engagement
Early Intervention (ILP) Partnership ILP Primary Partner Defined: Early Intervention/Infant Learning Program (aka Part C ) ILP supports campaign as Child Find activity ILP initiates expanded scope of direct mail of materials Radio PSA component added www.earlyintervention.alaska.gov is born!
Learn the Signs. Act Early Alaska s 2011 Campaign Lessons Learned ASK and LISTEN to families Primary partnership with ILP developed organically during planning process and will offer sustainability beyond federal funding (annual mailing of materials planned) Take time to inform health care community Providers can be great partners!
The Impact of a Comprehensive Autism Plan in Alaska an enhanced statewide access to a fully developed comprehensive and culturally sensitive system of care so that Alaskans with ASD and related developmental disabilities will reach their full potential through timely and coordinated transitional planning.
Thank You Stephanie Birch & Jimael Johnson State of Alaska, Title V, Section of Women s Children and Family Health s Stephanie.birch@alaska.gov Jimael.johnson@alaska.gov 907.269.3400