Janet Farmer, Ph.D. Association of Maternal and Child Health Programs February 1, 2012

Transcription

1 Janet Farmer, Ph.D. Association of Maternal and Child Health Programs February 1, 2012 University of Missouri Thompson Center for Autism & Neurodevelopmental Disorders 1

2 Improve access to comprehensive and coordinated care Support successful adolescent transition to adulthood for youth with ASD State Implementation Grant #H6MMC11059, Health Resources and Services Administration, MCHB

3 Missouri s Title V program is not the lead agency for those with Autism Spectrum Disorders The Division of Developmental Disabilities in the Department of Mental Health is the lead agency. Why was Missouri selected for a State Implementation grant on ASD?

4 1991 Initial state supports for individuals with ASD and their families 1995 Title V partners with UCEDD and MU for LEND training program 1998 Title V partners with MU for Medical Home Initiative Statewide Autism Symposium 2003 Missouri Autism Research & Response Agenda 2005 MU Thompson Center for Autism & NDs established st Rapid Response Community Collaborative Missouri Blue Ribbon Panel on ASD 2008 Office of Autism Services Missouri Autism Commission University-affiliated Missouri Autism Centers (3) UCEDD application for F2F Health Information Center with Title V Partnership between MU and Interactive Autism Network (IAN)

5 Family-centered Comprehensive Continuous Coordinated Accessible Community-based Culturally competent

6 Community Hospitals MO Department of Health/Title V CYSHCN program Local School Districts Behavioral Health Family Organizations Medicaid Waivers/ Public Assistance Childcare Families, Parents & Children Children s Hospital Part C Private Agencies/ Providers University Centers for Excellence in Dev Disabilities/LEND/ Family-to-Family Health Info Center State/Governor s Autism Council Head Start Private Foundations Local Health Departments Legal/Justice System Military MO Dept Mental Health/ Developmental Disabilities Department of Education Higher Education-- MU Thompson Center MO Autism Centers Vocational Rehabilitation Disability Organizations

7 University of MO Thompson Center MO Autism Centers MO State Capital Potential growth area

8 Project Activities Data to Guide Policy & Practices Community Supports Partnerships Awareness & Outreach Family Supports

9 Partnership with Interactive Autism Network (IAN), a national online ASD registry, to identify needs of Missouri children Survey of health care services (N = 318), enriched by IAN dataset Access to Care Issue Brief 9

10 (Farmer et al., 2011)

11 (Farmer et al., 2011)

12 Percent of youth with Autism Spectrum Disorder receiving transition services (N = 118) Had Transition 15% Transition to an adult provider 23% Discussing adult health care needs 18% Discussing maintenance of health insurance coverage 19% Encouraging youth to take age-appropriate responsibility 30% Adequate services associated with older age, having a medical home, Asperger s diagnosis. (Cheak-Zamora et al., 2011)

13 Brochures and Guides (English & Spanish) Developmental Milestones (CDC) Could My Child Have Autism? Help for You and Your Child (5 MO regions) Missouri ASD Navigation Guide Missouri Financial Resources Guide for ASD/DDs, including the 2010 ASD Health Insurance law and Autism/DD Medicaid waivers 13

14 Online Training Modules through MU Extension Understanding Autism Autism Screening and Referral Evidence-Based Practice in ASD Family-Professional Partnerships Youth Transition Missouri Autism Guidelines Initiative Best Practice Guide to Screening, Diagnosis, & Assessment for Treatment Planning (April, 2010) Guide to Evidence-based Interventions (June, 2012) 14

15 Youth Transition ASD Youth Coalition including new partners (Voc. Rehab, Centers for Indep. Living, Self-advocates) Transition Training Online training module Free pre-conference workshop National Peer-to-Peer Exchange Transition Website 15

16 Family Resource Service expansion Family Mentors (F2F Sharing our Strengths) Family-Professional Partnerships Parent Advisory Group model for quality improvements 16

17 Missouri Rapid Response Initiative RR Mission: To promote the collaborative work of community agencies and organizations in response to Autism Spectrum Disorders through effective screening, diagnosis, interventions, and education for families, professionals and the community at large.

18 Rapid Response Community Collaboratives Central MO (2007) St. Louis City (2010) Cape Girardeau (2011) Kansas City (2011) State Peer-to-Peer Exchange results in the addition of a 5 th region in Springfield St. Louis collaborative serves as the Advisory Board for the MO Learn the Signs project with WIC programs in the city. 18

19 Community Hospitals Medicaid Waivers/ Public Assistance Childcare University Centers for Excellence in Dev Disabilities/LEND/ Family-to-Family Health Info Center MO Autism Commission MO Department of Health/Title V CYSHCN program Head Start Private Foundations Local Health Departments Legal/Justice System Local School Districts Families, Parents & Children Behavioral Health Disability Organizations Military Children s Hospital MO Dept Mental Health/ Developmental Disabilities Family Organizations Part C Private Agencies/ Providers Department of Education/ Special Education Higher Education-- MU Thompson Center MO Autism Centers Vocational Rehabilitation

20 Missouri s Community Collaboration Model Missouri Autism Guidelines Initiative,