Like Life. Organ Donation Marketing and Campaigns Bulletin

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Like Life Organ Donation Marketing and Campaigns Bulletin 8th Edition February 2017 Introduction We re already one month into 2017, but we wanted to wish you a Happy New Year! In this edition of the bulletin we will be reflecting on some of the brilliant work that took place in 2016 to promote organ donation, and sharing our plans for 2017 so we can continue working together to save and improve even more lives. This bulletin isn t just a forum for us to share what we ve done and are planning. It s very much an opportunity for all of you to share what you have done with others committed to promoting organ donation. So please send any stories or pictures from your promotional activity to marketing.comms@nhsbt.nhs.uk. Best wishes, The organ donation marketing and campaigns team, NHS Blood and Transplant Quick links 2016: Reflections Internal Communications External Affairs Partnerships Highlights Digital Initiatives Looking Ahead to 2017: Valentine s Campaign Hothouse Pilots and World Kidney Day Sign for Life Organ Donation Week Organ donor photo wall mounts around Intensive Care Units Eyes and Tissues Strategy Get in touch and who s who

2016: Reflections Lots of promotional activity took place in 2016 as part of the Behaviour Change Strategy. And this activity contributed to the more than 1 million opt in registrations to the NHS Organ Donor Register we saw during the year. Campaigns such as Better Left Unsaid, Waste or Save, Sign for Life and our recent What are you Waiting for campaign continued to raise the profile and awareness of organ donation. Through our work we have been trying to rebalance the Organ Donor Register, specifically targeting over 50s and people from lower socio-economic groups as they are under-represented. We re pleased to report that a higher proportion of the total number registering to donate between September and December 2016 were over 50 or from lower socio-economic groups compared to the previous three quarters. Our Organ Donation Week campaign in September saw yet again a brilliant collaboration of work to encourage conversations about organ donation across the country. Our previous issue of Like Life, which was dedicated to the campaign week, highlighted just how much excellent activity was carried out by internal colleagues, stakeholders, hospitals and local volunteers. Here are some promotional highlights from 2016: Internal Communications Throughout 2016 NHS Blood and Transplant s Internal Communications team promoted organ donation activity to colleagues including; Sign for Life, Hot Housing, Organ Donation Week and What Are You Waiting For?. All campaigns have been promoted via a variety of channels, such as Connect Magazine, TeamTalk, and Connect Online (our employee website). We also shared patient stories and blogs from ODT colleagues on Inside NHSBT. Screen savers and information stands were on display at all centres and we have actively encouraged our employees to share information and messages through our social media channels and to have the organ donation conversation with friends and family. Finally we engaged with a number of communications teams in other UK government organisations encouraging them to share our campaign and encourage their staff to sign the NHS Organ Donor Register.

External Affairs In 2016 we took the Yes I Donate campaign to parliament and launched a toolkit for MPs that they can use to highlight the need for more Asian and black organ donors in their constituencies. We also held a stall during Organ Donation Week and were able to speak with hundreds of MPs, parliamentary staff and the now former Public Health Minister Lord Prior about the importance of having a conversation. Mike Gapes, MP for Ilford South, and Charlotte Crowl, an African Caribbean Lukaemia Trust (ACLT) supporter, at the launch of our MP toolkit Partnerships highlights: Royal Mail came on board as a new partner in August 2016, supporting both Organ Donation Week and the What are you waiting for? campaign with a bespoke postmark to promote donation with a combined reach of around 50 million. They also promoted organ donation internally to their workforce. Enfield Council were the first council to introduce a prompt on their website to encourage residents and visitors to join the ODR. We also have received partnership support from Parkrun who supported Organ Donation Week by featuring a recipient story as the main feature on their weekly email to 1.2m runners. Plymouth City Council introduced a campaign to encourage all residents in Plymouth to sign up and worked with several local partners to amplify the message across the city. Other councils who came on board to support the Behaviour Change Strategy in 2016 include London Borough of Tower Hamlets and Thurrock Council, helping us to reach new audiences in key areas of England. Widnes Vikings became the first Rugby League team to partner with us to promote organ donation to their players and fans in December 2016. We ve formed a year long partnership and they will be carrying out different activities throughout the year to encourage sign ups.

Digital Initiatives Organ Donation Winter Campaign landing page tests The Customer Marketing Digital team have been looking for ways to improve the usability of our web pages, to ensure more people join the Organ Donor Register when they visit the organdonation.nhs.uk website. During the What Are You Waiting For? campaign we tested a number of different landing web pages focused on improving the proportion of people who land on the page and who go on to sign up to the Organ Donor Register. This included creating a campaign landing page with a short registration form, so that people can start the registration process without having to click through to another web page. This was a successful test with 29.37% completing a sign up online compared to 26.13% when landing on the page without the short form. Web page with form Web page without form We also directed people coming to the website as a result of the advert and insert in The Sun on Christmas Eve to a tailored registration page this included a picture that people will have seen in the paper and text encouraging people to sign up. While the numbers going to the site was much smaller than we had hoped for, a good proportion of people visiting the page went on to sign up to the Register. We are now looking to take the learnings above to inform future campaign and business as usual activity to optimise online sign ups. These are just a few examples of the work that has taken place in the Marketing and Communications Directorate towards the Behaviour Change Strategy. We know that there is a huge amount of promotional work taking place in local areas. Thank you for all the work you have done throughout 2016 and continue to do.

Looking ahead to 2017: Valentine s Campaign: Kidney Shaped Love 6th 14th February 2017 Following the success of our Valentine s campaign Better Left Unsaid in 2016 we will be running another campaign on and around this Valentine s Day. The campaign will focus on living donation, to raise awareness of kidney donation, not just to a person you know, but also to a stranger. The campaign will run from Monday 6th Tuesday 14th February 2017. Living donors make a significant contribution across the UK with 1,075 living donors in 2015/16, with the majority donating a kidney (96% of living donors). The overall number of living donors decreased slightly for the second year running and NHS Blood and Transplant is working with transplant units to reverse this trend. Nevertheless, the living kidney programme is responsible for around one third of UK kidney transplants. We are excited to be focussing on living donation for our Valentine s campaign and would be delighted for any support you can give. Similarly to the previous Valentine s campaign, the activity will be primarily on social and digital channels and we will be producing various content for use on these channels. There will be opportunities to get involved so do look out for information on our social channels and on the organ donation website to raise awareness for living donation. We have also produced some pull up banners promoting living donation for hospitals where kidney transplants take place. We will be sending these out to hospitals in England, Wales and Northern Ireland. For more information about living donation please click here

Hothouse Pilots launch and World Kidney Day 9th March 2017 The Behaviour Change Strategy outlined a range of communication interventions that are required to deliver a revolution in public behaviour for organ donation, including the implementation of locally delivered, centrally supported communication activity, using multiple communications channels which we refer to as hothousing. The hothouse activity is due to launch the second week of March and will take place again in the North and the Midlands. These regions were identified as the focus areas for this activity due to their low numbers on the NHS Organ Donor Register verses UK average, high potential donor numbers and their combined ability to address the three main target audiences of BAME, over 50s and financially hard-pressed (DE) socio-economic groups. Our first wave of marketing activity in the hothouse areas was carried out between December 2015 and March 2016 in the seven key areas: North: Manchester, Rotherham, Salford Midlands: Leicester, Nottingham, Burton on Trent, Derby In both regions the campaign included the use of the Operation Donation game at events, outdoor media and local partnerships. Following research and evaluation of the activity, the key findings were as follows: Higher levels of awareness generated in the hothouse areas has translated into higher levels of action by audiences, predominately prompting conversations but is also supported by registration patterns. Hothouse activity reached and engaged higher numbers of people who were not already on the ODR The Midlands region out-performed the Northern hothouse on a number of key metrics, with the radio activity emerging as a key contributing factor The profile of registrants was broadly representative of the general population in terms of social grade and age Activity has also successfully stimulated local conversation about organ donation. As a result of this we will be working closely with the hothousing areas again in 2017 to build on the knowledge and insight that we already have and further develop our local communication approach. Key to supporting this activity is gaining support from ambassadors for organ donation such as volunteers, people with personal stories to share, local campaigners within the community or links with companies, organisations or charities who might be able to share our organ donation message. We have been making contact with colleagues in the relevant hothouse areas with more detailed information. If you have any good company or community group contacts in the areas outlined above, please email marketing.comms@nhsbt.nhs.uk.

Sign for Life: 24th March 9th April 2017 Our Sign for Life campaign returns in 2017 from Friday 24th March Sunday 9th April. The campaign focuses on sport from clubs at grassroots level right up to the Premiership, football associations, fan clubs and particularly the fans themselves. By harnessing the passion people have for sport and sharing powerful stories about organ donation, we hope to reach new audiences through these key partners. Our aim is to encourage more football fans to join the Organ Donor Register and talk about their donation decision with their loved ones. To date Sign for Life has reached over 13 million people and achieved over 3.5k registrations. It s also been successful at reaching more of the hard to reach audiences identified in the Behaviour Change Strategy. In 2016 we saw around 40 clubs and associations get on board to show their support sharing photos and messages with their fans over social media, displaying screen announcements at half time and several teams wore Sign for Life T Shirts during the pre-match warm up which was filmed and shared on Facebook. This year our aim is to get at least 50 clubs involved and supporting Sign for Life. In 2016 we also saw support from several rugby clubs and we d like to increase this in 2017. That s where you come in. In our previous campaigns SNODs and CLODs have been hugely helpful in providing links and contacts at football and rugby clubs. Last year a team of SNODs attended Gloucester Rugby Club to sign up fans, and invited heart recipient Jack, 5, along. Stories like these help us portray a more emotional side to organ donation and are a key driver in terms of getting people to sign the Organ Donor Register. So we will be asking for fans who also have a connection to organ donation or transplantation to help us spread the campaign messages further. This year s campaign will be more digitally focussed so we re not asking for teams of volunteers to go along to matches. But if you do know someone who works in a football or rugby club or you know a player please email partnerships@nhsbt.nhs.uk or call Claire Dolling on 01923 366856 as we d love to hear from you. We will provide a toolkit to make it as easy as possible for them to support, for example by asking them to: Share our messages, photos and stories on social media, with a tracked link to sign up to the register Film a short video selfie in a Sign for Life T Shirt about why they support organ donation Display leaflets or posters they can print out themselves and display in the club shop or bar areas Include an advert or feature a recipient or donor family story in the match day programme Provide a quote we can use in a press release With your help we hope to make 2017 the most successful Sign for Life yet.

Organ Donation Week: 4th 10th September 2017 Save the date Don t forget our annual Organ Donation Week campaign will be running from Monday 4th Sunday 10th September 2017 so please make a note in your diaries. We will be in touch with updates once we have confirmed the theme for the campaign and how to get involved. Organ Donation Week 4-10th September 2017! Organ donor photo wall mounts around Intensive Care Units Look out for an invitation from NHS Blood and Transplant to create inspirational photo wall mounts about organ donors who donated at your hospital. These would be installed by your hospital onto walls near or within your hospital s Intensive Care Unit. NHS Blood and Transplant will fund, design and produce up to three inspirational photo wall mounts for each hospital providing that the hospital supplies high quality photos and quotes approved by donor families to our design team by 24th February 2017. The aim of the project is to inspire families who find themselves in an intensive care unit that there could still be hope even if, despite all their efforts, the hospital cannot save their relative s life. Some good can come out of the deaths of people who die in intensive care they can transform the lives of others. We hope these photo wall mounts will help to sensitively get organ donation onto the radar of families who are visiting relatives in an intensive care unit. This means that if they are then faced with the upsetting death of their relative, it will come as less of a shock to them if they are approached about organ donation. Some hospitals have installed photos of organ donors in Intensive Care Units themselves over the last few years. We hope that funding and rolling this out will help increase donation consent rates. To take part, hospitals will need to identify and approach donor families, source photos and quotes and provide these to the NHS Blood and Transplant by 24th February. Further information and guidance was communicated to SNODS, CLODS and committee chairs in England, Wales and Northern Ireland in early January. If you need this sending to you again, please email sarah.beale@nhsbt.nhs.uk

Eyes and Tissues Cornea transplantation or surgery is not life saving, but it completely transforms the lives of those who receive a transplant. Such surgery depends on people being willing to donate sight after their own death, ending the blindness of others. We currently need more eye donors 10 donors every single day to meet the current clinical need. The long term objectives of the Eyes and Tissues Strategy are to increase awareness of eye donation, increase willingness to donate corneas with the ultimate aim to increase consent rates. We are planning to launch a nine-month highly localised marketing pilot (date TBC) across specified hospitals which act as Referral Super Centres. This pilot will include Salford (plus Wigan and Bolton), Bristol, Romford and Northumbria Specialist Care Hospital. All the marketing and communications will focus on the donation of sight or ending blindness. The plans for the strategy are currently in discussions so we will share any activity and opportunities to support as soon as we can. Get in touch and who s who: Please get in touch with us to let us know about any activity that is taking place in your area. Any information received from you, or the Communications leads in your hospitals will help us work more closely together and share the great work that is being done to promote organ donation. For further information relating to this bulletin or if you have anything to contribute to the next bulletin please contact marketing.comms@nhsbt.nhs.uk The members of the national Organ Donation Campaigns team are listed below. Andrea Ttofa Head of Organ Donation Marketing Sarah Hanner Hopwood Marketing and Campaigns Manager Caroline Rodaway Senior Marketing and Campaigns Officer Jennifer Hobbs Senior Marketing and Campaigns Officer Holly Mason Marketing and Campaigns Manager