Advocate for. Service Quality ANNUAL REPORT 2016/17

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Advocate for Service Quality ANNUAL REPORT 2016/17

September 2017 Dear Minister Simpson, It is my pleasure to present the 2016/17 Annual Report of the Office of the Advocate for Service Quality, reporting on the period of April 1, 2016 to March 31, 2017. This is the 25th annual report of the office but my first as Advocate for Service Quality. The focus of my first year as Advocate was to contemplate and implement as appropriate the recommendations from the 2015 report, Advocate for Service Quality: Review and Recommendations. I emphasized: ` Increasing the profile and community presence of the Advocate by visiting rural and remote communities; ` Implementing more rigorous accountability measures by creating a new Program Advisor position and evaluating the Advocate s data management system; ` Participating in Community Living BC s (CLBC) quality improvement processes by building relationships with CLBC staff and conducting an impartial file review; and ` Enhancing the inter-ministry role by re-engaging and leading a committee tasked to assess and promote the continuation of the Provincial Medical and Clinical Consultant Services. Throughout the year I spent time with and heard from many individuals with a developmental disability and their families. Given the nature of my role, it is expected that I will hear most about what is not working for people. I was heartened, though, by the resilience, patience, and also the perseverance of the families that I spoke with. Together, we were able to find a path forward on many issues. In the coming year I will continue to focus on improving the quality of service for people with a developmental disability, monitoring systemic issues, and building relationships. I will also implement the Advocate s Advisory Committee which will serve as a sounding board and conduit to my office for local issues. Acknowledging your new role as Minister of Social Development and Poverty Reduction, I wish to extend my congratulations. I look forward to working with you. Sincerely, Leanne Dospital Advocate for Service Quality Office of the Advocate For Service Quality 1800-1050 W. Pender Street Vancouver, BC V6E 3S7 Email: ASQ@gov.bc.ca Vancouver: 604-775-1238 Victoria Enquiry BC: 250-387-6121 Enquiry BC: 1-800-663-7867 2

Who is the Advocate for Service Quality? L ea nn e D ospital Connector, Advisor, Problem-Solver ` Leanne Dospital is BC s Advocate for Service Quality. She was appointed by an Order in Council in April 2016 and reports directly to the Minister of Social Development and Poverty Reduction. ` The Advocate helps government to better support people with a developmental disability, which includes Autism Spectrum Disorder and Fetal Alcohol Spectrum Disorder. ` The Advocate is: INDEPENDENT NEUTRAL OBJECTIVE ` Did You Know? The Advocate position was established 25 years ago in 1992 to help individuals with developmental disabilities and their families during the process of downsizing and closure of institutions. ` Over the years the Advocate s role has expanded to: Ð Identify and raise awareness of systemic issues Ð Increase connections to remote and rural communities Ð Enhance the inter-ministry role Ð Promote a cooperative approach to problem solving FAIR 3

The Office of the Advocate for Service Quality s VISION 1 ``To be a champion for the rights of people with a developmental disability ``To amplify their voices ``To support them to get quality service STRATEGIC PRIORITIES ``Individual advocacy ``Systemic change ``Building advocacy across the systems of support MISSION ``To keep the interests of people with a developmental disability at the centre of the decision making process ``To provide autonomous, expert advice to the Minister of Social Development and Poverty Reduction that will help produce positive outcomes for people with a developmental disability and their families 1 The Advocate for Service Quality s vision, mission, and strategic priorities will be refreshed once the Advocate s Advisory Committee is established (see page 10). 4

What Does the Office of the Advocate for Service Quality Do? The Advocate helps adults and transitioning youth who have a developmental disability (including Autism and Fetal Alcohol Spectrum Disorders), their families, and service providers when they need a neutral third party to step in to help solve problems and find solutions to concerns and complaints. The Advocate works in cooperation with, but independently from: ` Government ` Community Living BC (CLBC) ` Community agencies The Advocate s goal is to ensure that individuals and their families receive quality service from these organizations. The Advocate helps you seek quality service by: Asking questions Empowering you to advocate for yourself Listening and making sure you have a voice Finding common ground Building relationships Being collaborative When you work with the Advocate, they will: Give you information and advice Refer you to supports and services Support your ability to work through the system Give an outside perspective Work with you to help solve problems 5

Relationships When the Advocate identifies a systemic issue, they will: ` Research the issue to better understand the impacts and community involvement ` Help identify possible solutions ` Make recommendations for improvements or change Advocate Anecdote Leanne travelled to a number of B.C. s rural and remote communities and heard from many individuals, their families and service providers. One individual Leanne spent some time with was a young First Nations mother. She is eligible to receive CLBC funding for services but there was no one to provide these services in her home community. She was asked if she would like to move to the closest town that had the services she needed a two hour drive from her home, family and community but she said no; she does not want to be separated from her family and community. Leanne followed up with CLBC to explore options and raised this issue with the Minister. The Advocate has strong working relationships with: ` Community advocacy organizations, such as the Family Support Institute and Inclusion BC ` Community Living BC (CLBC) ` Service providers ` The ministries of Health, Children and Family Development, and Social Development and Poverty Reduction ` The Office of the Representative for Children and Youth ` The Office of the Ombudsperson ` The Public Guardian and Trustee 6

STATS Note: The Advocate has identified areas of improvement in their data collection and reporting. The data for 2016/17 does not fully capture the work and priorities of the Advocate. A refreshed and more comprehensive data management system has been prioritized for 2017/18. Total Calls: 254 Where did people call from? (% of calls by Health Authority) 1/2 Advocate became involved 1/2 Provided information and advice 28.7% 17.7% Fraser 32.7% Vancouver Coastal Island 25% were from the Victoria area 7.9% North Who called? 10.9% Interior 17% CLBC staff 13% individuals 37% family members 33% community and government 7

The Issues ``More than 50% of calls to the Advocate were complaints about CLBC s services and no funding being received ``Approximately 25% were about youth transitioning, including eligibility and assessments ``Approximately 25% were about Persons with Disabilities (PWD) benefits and SDPR services In addition to contacting the Office of the Advocate for Service Quality with concerns specific to their own situation, individuals, their families, and community stakeholders also spoke with the Advocate about systemic challenges facing people with a developmental disability in relation to: ``Affordable and inclusive housing ``Access to health and mental health services ``Ageing parents ``Access to SDPR services Advocate Anecdote A mother called the Advocate very concerned for her adult daughter who is a person with Fetal Alcohol Spectrum Disorder. The mother is no longer able to provide care for her daughter due to the mother s declining health. Change is difficult for her daughter and she worries about what will happen to her without her support. Leanne helped the mother articulate her concerns with CLBC and assisted them to find a path forward to a solution. 8

Community Outreach and Engagement The Advocate visited 17 communities in 2016/17 Gitanyow Nation (Kitwanga) Hazelton Nisga a Nation (New Aiyansh) Terrace Smithers Prince George Williams Lake Campbell River Kelowna Parksville Nanaimo Sc ianew Nation (Beecher Bay) Victoria Vancouver Richmond Burnaby New Westminster Made 31 presentations Coordinated 30 stakeholder meetings Attended 10 conferences, events and committees Met with and heard from dozens of individuals and their families in their communities 9

Accountability Impartial File Reviews ` Requested by Minister ` Provides objective assessment of issues Advocate Advisory Committee ` Serves as sounding board for the Advocate ` Informs Advocate about local issues ` Makes recommendations The Advocate Advisor to the Minister ` Meets with the Minister at least quarterly ` Submits annual report Advocate Anecdote Leanne talked to many parents about their children transitioning into adulthood without adequate supports. The individuals and their families participated in intense planning but when the children turned 19, there was no funding to support their independence or inclusion in their community. Leanne worked with each family and CLBC to help identify solutions and continues to monitor this issue. 10

Operations $ Annual Budget 2016/17 Actuals TOTAL EXPENSES $212,600 $161,069 TOTAL SALARIES & BENEFITS $196,600 $148,646 TOTAL OPERATING COSTS Travel, Info Systems, Office Expenses $16,000 $12,423 STAFFING The Advocate is a two person office. A new Program Advisor position was created with greater responsibility; the position was filled in January 2016. SPACE While the Advocate is an independent office, they save money by sharing office space with SDPR. SYSTEM Implementing more rigorous accountability measures is a priority for the Advocate. The Advocate identified areas of improvement and is working to update and enhance data collection and reporting. 11

Contact Email: ASQ@gov.bc.ca Visit our website: gov.bc.ca/advocateforservicequality In Vancouver call: 604 775-1238 In Victoria call Enquiry BC: 250 387-6121 Elsewhere in B.C. call Enquiry BC: 1 800 663-7867 Twitter: @ASQ_BC Mailing address: Office of the Advocate for Service Quality 18th Floor, 1050 West Pender Street Vancouver, BC V6E 3S7 12