State Team Coordinators Webinar

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Act Early Regional Summit Project REGION 4A SUMMIT Tennessee Kentucky North Carolina South Carolina State Team Coordinators Webinar David Morrissey Karla Kmetz Sue Lin

Agenda for Today s Call Background Region 4A Summit State teams formulation Invitation materials Summit activities Pre-Summit team activities

Act Early Regional Summit Project BACKGROUND National Center on Birth Defects and Developmental Disabilities (NCBDDD) -Center for Disease Control and Prevention (CDC) launched the Learn the Signs. Act Early.(LSAE) campaign in 004 To reach out and educate parents, health care professionals, and child care providers about developmental milestones and the importance of early identification and intervention for children with signs of autism spectrum disorder (ASD) and related disabilities. 3

Act Early Regional Summit Project BACKGROUND Maternal Child Health Bureau (MCHB), Health Resources and Services Administration (HRSA) implementation of the Combating Autism Act Initiative The goal of the Combating Autism Act Initiative (CAAI) projects is to enable all children to reach their full potential by developing a system of services that includes screening children early for possible ASD and other DD; conducting early interdisciplinary evaluations to confirm or rule out ASD and other DD; and if a diagnosis is confirmed, providing evidence-based early interventions. 4

Overall Summit Framework Principles Focus on early identification, assessment, provision of services and coordination Include individuals from all important sectors Provide venue for shared learning & sharing across and within states Work toward actionable plans and priorities Summit as step in the process of developing comprehensive, family friendly system 5

Region 4A Act Early Summit Note: HHS Region 4 was split into two 4A and 4B regions Date: January 8-9, 009 (Tentative, will be finalized by next week) Location: Nashville, TN States: Kentucky, North Carolina, South Carolina, and Tennessee 6

State teams formulation Quick State of the State update State systems, Current initiative, and Future plans Identification and invitation of team members How can AUCD assist you in further formulation of your state team Identification and invitation of team members 7

State teams formulation:regional Summit Participants Invited Stakeholders in Phase I Summits Part C Early Intervention Program Preschool Special Education Section 69 of IDEA Children with Special Health Care Needs Title V Mental Retardation Developmental Disabilities Office (MRDD) State Public Health Child Care Resource and Referral Foster Care Bureau Head Start and Early Head Start American Academy of Pediatrics State Chapter Representative UCEDD Representative LEND Representative Autism Organizations Autism Society of America, Autism Speaks, Easter Seals, NATTAP, etc. Parent Organizations Parent Training Center, Family Support, or Parent Health Information Center Medicaid and Health Insurance Program (non-attended) Legislature- member or staff 8

AR LA NM OK TX IA KS MO NE Past Summits Participant Representation Part C of IDEA Section 69 of IDEA Title V State Agencies State MRDD Agency State Public Health Head Start and Early Head Start State Dept. of Education 3 DD-Council; P&A Academics UCEDD, LEND, other academic institutions 5 4 3 4 5 4 5 AAP and Pediatricians 3 Providers & Advocates Autism and Disability Orgs (service providers, training, T/A entities) Parent Advocacy Orgs 6 4 3 Policy Maker/Legislative Staff Other 4 Total Participants 4 8 4 5 0 7 6 4 Average state attendance 4 9

Invitation materials Drs. Trevathan (NCBDDD Director) and Van Dyke (MCHB Associate Administrator) joint invitation letter Invitation letter template to be customized by each AUCD member Center Travel Reimbursement Policies for those requiring financial assistance to attend the meeting Tentative Agenda 0

Summit activities Tentative Agenda Welcome Keynote Overview of Learn the Signs. Act Early. Campaign State Presentations Reaction Discussion Cross-State Breakouts: of individuals with similar functions Speaker Presentation Overview of Logic Model to Guide Discussion State Plan Development- working break-out meetings State Outcomes Presentation Question and Answer Participant Reflection (Open Mic) Closing Remarks

Pre-Summit team activities Pre-Summit Team Teleconferences Introduction of team members Learning briefly about each other s role and activities in the area of ASD Generating ideas for your state of the state presentation Identifying a sub-group to finalize and deliver the state of the state presentation Begin developing two modules in the state plan logic model

State Plan Logic Model 3

What we will do next? Assist in formulating teams if needed Launch online registration at AUCD Facilitate state team conference calls Start scheduling pre-summit activities conference call Others? 4

Questions? OR Comments? 5

For assistance at any time David Morrissey dmorrissey@aucd.org Karla Kmetz kkmetz@aucd.org Sue Lin slin@aucd.org George Jesien gjesien@aucd.org (30) 588-85 6