CASE STUDY. Improving the Patient Flow of Scleroderma Patients at Chapel Allerton Hospital. Client: Diagnostic Evidence Co-operative (DEC) Leeds

Similar documents
Scleroderma Facts. The Scleroderma Foundation is here to help!

SCLERODERMA 101. Maureen D. Mayes, MD, MPH Professor of Medicine University of Texas - Houston

Peripheral (digital) vasculopathy in systemic. sclerosis. Ariane Herrick

Myositis and Your Lungs

Chapter 1 Introduction

associated conditions a closer look at connective tissue disease and PAH

SCLERODERMA: An Update. What You Need To Know

SCLERODERMA LUNG DISEASE: WHAT THE PATIENT SHOULD KNOW

LUPUS. and Associated Conditions LUPUSUK 2018

The First Year: Scleroderma: An Essential Guide For The Newly Diagnosed By Karen Gottesman, Daniel E. Furst

How Is Scleroderma Treated?


Update in Systemic Sclerosis! Lauren Kim MD! NW Rheumatology Associates

What You Need to Know About LEMTRADA (alemtuzumab) Treatment: A Patient Guide

Reporting Autoimmune Diseases in Hematopoietic Stem Cell Transplantation

LUPUS. and Associated Conditions LUPUSUK 2015

What will we discuss today?

Convulsive Disorder and Cardiac Disease. Running Rachael, Active Ashlee, Sassy Savannah

The Egyptian Journal of Hospital Medicine (July 2017) Vol.68 (2), Page

Lupus and Social Security Disability Programs LISA GONZALEZ GOETZ, PA GONZALEZ & GOETZ, LLC

CTD-related Lung Disease

Clinical Oncology Radiotherapy to the larynx (4 week treatment) Consent information for patients

Scleroderma FAQ. About this Document

Author's response to reviews

8 th EULAR Course on Capillaroscopy in Rheumatic Diseases

Raynaud's Phenomenon. Information for patients Sheffield Vascular Institute

Congestive Heart Failure

Have a healthy discussion. Use this guide to start a. conversation. with your. healthcare provider

Citation The Journal of dermatology, 37(1), available at

Scleroderma What is Scleroderma? What Causes Scleroderma? Who gets Scleroderma? What are the symptoms of Scleroderma? - 1 -

2

Understanding & Managing Scleroderma

Femoro-popliteal bypass surgery. Brought to you in association with EIDO Healthcare and endorsed by the Royal College of Surgeons England.

HE Model for Sepsis POCT

Because we care about your health

The Leeds Teaching Hospitals NHS Trust Renal hyperparathyroidism - Parathyroidectomy

OPTION 1 SF-DCT INFORMATION FOR MIXED CONNECTIVE TISSUE DISEASE (MCTD) CLAIMS. (MCTD claims are not eligible for Disease Option 2)

ANGIOPLASTY AND STENTING

ENROLLMENT : Line of Business Summary

Measures of Systemic Sclerosis (Scleroderma)

SEVERE ORGAN INVOLVEMENT IN SYSTEMIC SCLEROSIS WITH DIFFUSE SCLERODERMA

BSR and BHPR guideline for the treatment of systemic sclerosis

Scleroderma and PAH Overview. PH Resource Network Martha Kingman, FNP C UTSW Medical Center at Dallas

Patient information Raynaud s, Scleroderma and Associated Vasomotor Disorder. Patient information. Vascular Directorate PIF 1697 V1 PIF

Northumbria Healthcare NHS Foundation Trust. Bronchiectasis. Issued by Respiratory Medicine

Summary of the risk management plan (RMP) for Moventig (naloxegol)

Case Study: Type 2 Diabetes Management Care Pathway

Keep It Pumping. Talking to your doctors

Atrial Fibrillation & Arrhythmias

Your home exercise and activity diary. Information for thoracic patients having lung resection surgery

The Leeds Teaching Hospitals NHS Trust Primary hyperparathyroidism - Parathyroidectomy

Evidence Review: Title. Month/ Year. Evidence Review:

A Patient s Guide to Understanding Pulmonary Arterial Hypertension in Systemic Sclerosis

NICE support for commissioning for urinary tract infection in infants, children and young people under 16

The Leeds Teaching Hospitals NHS Trust Renal artery angioplasty and stenting

Abnormal abdominal ultrasound icd 10

Tools to Aid in the Accurate Diagnosis of. Connective Tissue Disease

Femoro-femoral bypass surgery. Brought to you in association with EIDO Healthcare and endorsed by the Royal College of Surgeons England.

Stroke Prevention. For more information about stroke, call University Hospital s Heart Line at 706/ or toll free at 866/

Having a stem cell transplant for scleroderma a patient and doctor perspective

Raynaud's Phenomenon. What is Raynaud's phenomenon? What are the symptoms of Raynaud's? What causes Raynaud's?

Summary of the risk management plan (RMP) for Kyprolis (carfilzomib)

Henoch-Schӧnlein Purpura (HSP) Child Health Patient Information Leaflet

Do more at the point of care.

The Circulatory System. Lesson Overview. Lesson Overview The Circulatory System

Why are cells shaped the way they are?

different phenotypes

10/8/2018. Lecture 9. Cardiovascular Health. Lecture Heart 2. Cardiovascular Health 3. Stroke 4. Contributing Factor

Elements for a Public Summary

VERONICA EDMADZE ADDICO RAYNAUD S DISEASE

Lower Extremity Arterial Disease

Understanding and Managing Scleroderma

Lower limb angioplasty and stenting. Information for patients Sheffield Vascular Institute

Comparison of qualitative and quantitative analysis of capillaroscopic findings in patients with rheumatic diseases

Scleroderma. Nomenclature Synonyms. Scleroderma. Progressive Systemic Sclerosis. Systemic Sclerosis. Edward Dwyer, M.D. Division of Rheumatology

Scleroderma. Nomenclature Synonyms. Scleroderma. Progressive Systemic Sclerosis. Systemic Sclerosis. Limited vs. Diffuse Scleroderma.

Lung Function Reporting Course

Cholecystectomy (removal of the gallbladder) Patient Information

Hypersensitivity Pneumonitis (HP)

DOCTOR REFERRAL LETTER

Antibiotic Therapy for Systemic Scleroderma

Contents. Welcome Address... iii EULAR 2017 Abstracts Reviewers... iv. Speakers Abstracts

PACES Station 2: HISTORY TAKING

TREPROSTINIL INJECTION

Patient Information. Department of Rheumatology. Ciclosporin. What is Ciclosporin? How should I take Ciclosporin?

Trans-catheter aortic valve implantation (TAVI) work up

Blood Pressure Passport Simply fill in

RHEUMATOLOGY OVERVIEW. Carmelita J. Colbert, MD Assistant Professor of Medicine Division of Rheumatology Loyola University Medical Center

Scholars Journal of Medical Case Reports

What is Raynaud s? Copyright Raynaud s Association, Inc. All rights reserved.

Keep It Pumping. Talking to your doctors

Elements for a Public Summary

Oral Medicine QUICK Referral Guide (QRG)

Putting NICE guidance into practice. Resource impact report: Asthma: diagnosis, monitoring and chronic asthma management (NG80)

Chronic Pancreatitis (1 of 4) i

Systemic Sclerosis (Scleroderma) with Hypothyroidism in a Four and Half Year Old Child: A Case Report

Atrial Fibrillation. Damage to your heart caused by a heart attack or rheumatic heart disease

Volar plate avulsion injury. Information for patients The Sheffield Hand Centre

Transcription:

CSE STUDY Improving the Patient Flow of Scleroderma Patients at Chapel llerton Hospital Client: Diagnostic Evidence Co-operative (DEC) Leeds

1 NETIMIS Overview Chapel llerton Hospital is a leader in the investigation of rheumatic and musculoskeletal diseases. The Rheumatology Department acts as a regional hub for the Yorkshire and Humber. The department s main aim is to provide a service for patients who have been diagnosed, or are undergoing a diagnosis, with Scleroderma. Scleroderma is an autoimmune and rheumatic disease that affects the body by hardening the skin and connective tissues. This case study details how NETIMIS was used as a simulation tool to allow the comparison of the current process of diagnosis for Scleroderma with a future state redesigned process which includes a proposed Point of Care Testing (POCT) device. This POCT device will reduce the number of patients being held in the diagnostic process due to inconclusive results. bout Scleroderma is a chronic, autoimmune connective tissues disease which is classified as a rheumatic disease. It is caused by the patient s immune system becoming overactive and attacking the connective tissue beneath the skin and surrounding the internal organs and blood vessels. This causes thick scarring and the thickening of tissue which can sometimes lead to problems with patient s internal organs. The thickening of the skin is one of the first noticeable symptoms. There are two main types of Scleroderma: Localised Scleroderma Systemic Sclerosis In Localised Scleroderma, the condition mainly affects the skin and is the mildest form of the condition. In Systemic Sclerosis (SSc) the condition is more severe and internal organs such as the heart, oesophagus, blood vessels, kidneys, lungs, blood pressure and digestive system can be affected as well. Within SSc there are two types, Limited SSc and Diffuse SSc. In Limited SSc the hands, lower arms, feet, lower legs, and face are mainly affected. Typical symptoms are thickening of the skin over the hands, feet and face, red spots on the skin, and problems with swallowing. In Diffuse SSc internal organs are more likely to be affected. Changes to skin can be seen all over the body and are not limited to certain areas. Symptoms may come on suddenly and worsen quicker over the first few years but the condition will normally settle. In some cases, both

2 NETIMIS Limited and Diffuse SSc can affect other organs and can potentially lead to more serious conditions such as Pulmonary Hypertension and Interstitial Lung Disease. Challenges The main problem with the current care process of SSc is the time that patients are spending within the care pathways as well as the total cost this incurs. During the investigation stage, it was stated that patients can spend up to five years within the pathway before they are either referred or medically managed. Certain conditions, such as Raynaud s Phenomenon (RP - a common condition that affects the blood supply to certain parts of the body) are early signs of SSc. Patients need to be tested for RP but the results are never 100% accurate, resulting in a retest. This retest takes place every six months for up to five years if the test results are negative which is the time it takes to ensure an accurate diagnosis. How NETIMIS helped NETIMIS provided an easy way to model the patient pathway. It also provided a way to visualise both pathways side by side and view a comparison report, identifying inefficiencies in the current pathway. Solution To improve the current state process, a POCT device can be implemented within the pathway to increase the accuracy of diagnosis. This ensures patients are correctly referred to their GP or screened for further tests at an earlier stage in the process.

3 NETIMIS Current State Pathway elow is the current state process that takes place within Chapel llerton Hospital. In the current state process the patients are classified and reffered.

4 NETIMIS Future State Pathway The proposed redesign of the process is that a retest will be carried out with the POCT device. In the future state, patients are going through various POCT tests for more efficient analysis.

5 NETIMIS The report provides a comparison of the current and future state pathway. The future state pathway includes the implementation of the new POCT device. oth models were simulated using 400 patients as a population. From the comparison report produced by NETIMIS, it is clear to see a cost reduction in the process because of the redesign and the implementation of the POCT device. The cost calculations are based on the reimbursement costs for a patient s first visit and capillaroscopy (new referrals cost 605, a six month follow up visit costs 80 and an annual capillaroscopy costs 250). Similarly, the cost of echocardiograms, pulmonary function tests and high-resolution computed tomographies (HRCTs) have been included in the model as per Leeds Teaching Hospital Trust s costing template. The assumption is that once the patient has had a Rheumatology + Capillaroscopy + Clinical ssessment, there will be a cost involved each time the patient is diagnosed with either a Positive or Negative result. The costs are specified in the Pathway Settings for each pathway within NETIMIS, and an example has been included below:

6 NETIMIS Conclusion NETIMIS proved useful in creating and simulating complex healthcare scenarios. It made the assessment and evaluation of the POCT device and any risks, easy to understand. From this, the benefits of implementing the POCT device were also realised and they are as follows: Cost benefits More efficient care leading to: -- Increased patient satisfaction -- Reducing patients staying in the process for longer than necessary