Annual Report 2014/15

Annual Report 2014/15

A MESSAGE FROM THE PRESIDENT 03 A message from the President 04 Our Board 06 Our Team 08 Our Support Groups 10 Our Volunteers 11 Warm Water Exercise 12 Fast Facts 14 Camp Twinkletoes CONTENTS 16 William s Walk 17 Advocacy in Action 18 Arthritis Research 19 Kidsflix 20 Statement of Comprehensive Income 21 Statement of Financial Position 22 Statement of Changes in Equity 23 Statement of Cash Flows We would like to acknowledge the following people for capturing the year s many special moments on camera: Blake Davies, Ian Barnes (Ian Barnes Photography), Paul Looyen (Stonemeadow Photography) and Sam Gatsby Lim. Dear Members and Friends, The need for medical and allied services, research and advocacy for Arthritis and Osteoporosis is as urgent as ever. Arthritis affects people of all ages. Six thousand children in New South Wales alone have Juvenile Arthritis, struggling to run and play with their classmates every day. Some forms of juvenile arthritis have mortality rates as high as 20 percent, yet there are only two paediatric rheumatologists in this state. Some children with severe conditions have to wait a year or more to see a specialist. We owe the state s two paediatric rheumatologists, Associate Professor Davinder Singh-Grewal and Dr Jeffrey Chaitow, a great vote of thanks and our commitment to help! Most people who have arthritis are between 15 and 60. Around 2.4 million working-age Australians suffer from arthritis, costing Australian businesses over $300 million a year. Further, a Global Access Partners (2014) report highlighted that nearly 166,000 Australians aged 45 to 65 were not working due to chronic arthritis and other musculoskeletal conditions, representing approximately $3 billion in lost GDP to our economy. For people over the age of 65, arthritis is a major cause of disability, surpassing coronary heart disease, diabetes, depression, stroke or asthma and costs the economy $23.9 billion per year. The Australian Institute of Health & Welfare s report, Australia s Health 2014, stated that over the 10 years to 2011-12 knee and hip replacements increased by 54 percent and 20 percent, respectively! We advocate a coordinated multidisciplinary approach to arthritis management, including education, strength and aerobic based exercise, weight loss, nutritional advice and counselling. Strong supporting evidence is found in the Osteoarthritis Chronic Care Program (refer Arthritis Matters Issue 53) which demonstrated that as many as 16 percent of people who were on waiting lists to receive a hip or knee replacement no longer needed surgery because their pain and function improved so much through conservative management. We need to: Educate the community that arthritis and other musculoskeletal conditions affect people of all ages not just the elderly Urge government and business to fund our research and support programs Engage closely with rheumatologists and other allied health professionals to foster coordinated approaches to disease management, thereby reducing the burden on our health system For us, 2015 has been a year of considerable change. During the year, our Patron of 13 years, Professor The Hon. Dame Marie Bashir AD CVO retired as Governor. We express our gratitude for the wonderful role she has played and our thanks that she has consented to continue to support us. We welcomed as Patron the new Governor of NSW, His Excellency General The Honourable David Hurley AC DSC (Retd). We look forward greatly to his contribution. The Board thanks our committed staff for their valuable efforts, including a number of staff who departed during the year such as Melissa Denham and Clarissa Jones, both with over a dozen years of service. We thank all our dedicated staff, past and present. In addition, Judith Cantor and I are stepping down from our roles as Vice President and President, respectively. On behalf of all directors, I thank Judith for her great contribution to our organisation over the last 5 years as a director, currently as Vice President, for her prior year as President, and as Chair of the Marketing & Fundraising Committee. To all those people who participated in our events, who donated to our appeals, and to those who have bequeathed to Arthritis NSW, thank you from the bottom of our hearts. We could do nothing without you. Lastly, I thank you for the opportunity to serve as President, and thank all our directors, staff, dedicated volunteers, members and other supporters of our cause. I look forward to great progress in the years ahead. GREG MONAGHAN

OUR BOARD Allan Ryan Allan Ryan is an expert facilitator who enables organisations, both in Australia and internationally, to deliver real competitive advantage through innovation. In addition to being the founder and Executive Director of Hargraves Institute, Allan is also Executive Director of Managed Innovation International and Adjunct Professor at the UTS Business School. He provides consulting and coaching advice on organisation-wide growth and performance initiatives. Greg Monaghan, President Greg is an experienced non-executive director on numerous boards of not-forprofit and sporting organisations. He was a career banker specialising in Automatic Teller Machines and other cards and electronic banking media. Greg has severe osteoarthritis in his knee as a result of sporting injuries. He became involved in Arthritis & Osteoporosis NSW through his mother Enid Monaghan, a 40+ year Member with severe rheumatoid arthritis. Amanda Harvey Amanda is an experienced employment lawyer and workplace consultant with complementary qualifications and experience in psychology and social welfare. She is passionate about helping our Members understand their rights in the workplace and the type of flexibility employers should consider to assist with condition management. Amanda understands musculoskeletal and autoimmune conditions, having personal experience with scleroderma. Judith Cantor Judith has extensive experience in direct and interactive marketing, website management and development, relationship and database marketing, media relations, event management, and print, TV and radio production. She joined the Board in late 2010 after a period of working with Arthritis & Osteoporosis NSW on its marketing and fundraising strategy and practice. Evan Manolios, Company Secretary Evan is a practicing lawyer in a commercial law firm. He sought the role of Company Secretary as he had an interest in working for a not-for-profit organisation that was making a positive contribution to the community. He enjoys the challenges of working in a different environment to a law firm and using a different set of skills. Peter Ricketts, Honorary Treasurer Peter has extensive financial leadership responsibility across various-sized businesses, mostly multinational, and predominantly engaged in manufacturing, industrial, consumer goods and distribution. Peter s mother has severe arthritis. For this reason and the desire to give back to the community, Peter was pleased with the opportunity to provide his financial and business expertise to the Board. Cosi Pupo Cosi is a Senior Legal Paraprofessional, has been a member of the Arthritis & Osteoporosis NSW Education Committee since the 1980s of which she is now Chair and joined the Board in 2007. Like the members she serves, Cosi is living with a chronic musculoskeletal disease and in constant pain. She is determined to use her own experiences as a positive way forward for others, especially young working adults in the community. Professor Nick Manolios Nick is an expert rheumatologist who is in constant contact with arthritis patients. He is also a scientist at the forefront of research and is the Chair of the Arthritis & Osteoporosis NSW Research Sub-committee. He brings to the Board a wealth of knowledge about the needs and concerns of patients and can convey information about medicines, treatments and protocols. He also aims to keep the Board abreast of current and ongoing scientific projects. Doris Carrall Doris has been actively involved in the Ryde Branch, where she served as the Secretary, since her retirement in early 2006. With the change to Support Group she took on the responsibility of Coordinator. She is the Arthritis Representative for both the City of Ryde and Hunters Hill Access Committees. Her personal experience with osteoarthritis and osteoporosis has given her a unique understanding of the needs of members. 4 Arthritis & Osteoporosis 2014/15 Annual Report 5

OUR TEAM Chief Executive Officer: Jannine Jackson Our Team We are so proud of the support we provide our members, particularly in the areas of education and advocacy. Many of us have our own arthritis stories or have friends and loved ones affected by this invisible illness. This first hand experience really helps us to understand those who are struggling and drives us to grow our awareness and reach so more people can find support. 6 Arthritis & Osteoporosis 2014/15 Annual Report 7

OUR SUPPORT GROUPS WHERE YOU ARE SUPPORTED AND CONNECTED WITH OTHERS WHO UNDERSTAND YOU - 1800 011 041 Bathurst, Dubbo, Molong, Orange Bathurst, Orange Charlestown, Maitland, Newcastle Armidale, Quirindi, Scone, Tamworth Coffs Harbour, Grafton, Lismore, Lower Clarence, Port Macquarie, Taree Coffs Harbour, Lower Clarence, Lismore Broken Hill Coomealla Support Group Warm Water Location Deniliquin Bourke Western NSW Riverina Griffith Albury-Wodonga, Corowa, Wagga Wagga Albury-Wodonga, Wagga Wagga Leeton Albury Brewarrina ACT, Bowral, Nowra, Southern Highlands, Warilla-Shellharbour, Wollongong, Woonona-Bulli, Young Southern Highlands, Warilla-Shellharbour Mudgee Bathurst Moree New England Goulburn Queanbeyan Illawarra Bega Hunter Nowra Tenterfield Armidale Casino North Coast Taree Central Coast Wyong Gosford Ballina Grafton Coffs Harbour Port Macquarie Blue Mountains, Eastern Suburbs, Hawkesbury, Holroyd- Merrylands, Kogarah, Lithgow, Macarthur, Parramatta, Penrith, Ryde Blue Mountains, Camperdown, Campsie, Castle Hill, Epping, Holroyd, Lane Cove, Lithgow, Macarthur Gardens, Ryde, Potts Point Gosford, Kincumber, Long Jetty, Woy Woy Gosford, Long Jetty, Woy Woy Amy Norman The main thing I say to my patients and people that ask me how I got to where I am now, is that you need to try and eliminate stress from your life and have a support network. There are so many ways you can meet people whether it is an Arthritis & Osteoporosis NSW support group or through Facebook. Charmaine Reynolds I m so grateful for the support I receive from our Macarthur Support Group. You need to find support networks in your area so you never feel like you re alone. 8 Arthritis & Osteoporosis 2014/15 Annual Report 9

OUR VOLUNTEERS WARM WATER EXERCISE WE LOVE OUR VOLUNTEERS! Without you, our incredibly dedicated volunteers, we would cease to function. Whether you re volunteering at one of our children s camps, providing education at an info stall, fundraising at an event or helping us out in the office, we really appreciate your time and commitment. We would also like to thank the many volunteers who coordinate our warm water classes, as well as run our support group and branch networks across the state. Without you, we wouldn t be able to deliver our programs in regional and rural New South Wales. Warm Water Participant It certainly relieves my pain and I find I ve become more flexible in my movement. I m glad I m doing these warm water classes. Thank you for everything you do for the arthritis community. Did you know that warm water exercise is an excellent way for people with arthritis and related conditions to build strength, ease stiff joints and relax sore muscles? We offer a number of warm water exercise classes throughout New South Wales, giving you the opportunity to exercise, with guidance from a trained instructor, in a friendly and social environment. Margo Dent Before warm water I was frustrated with being unable to exercise because of the pain. I enjoy the program and find it really beneficial in managing my condition. Living with constant pain can be very depressing, and I find warm water exercise soothing and uplifting to my spirit as well as my body. 10 Arthritis & Osteoporosis 2014/15 Annual Report 11

FAST FACTS Be Supported: More than 430 support group meetings took place across New South Wales Regional Meetings: Seven regions covering more than 2,000km with over 150 attendees from 27 different support groups attending Be Heard: More than 500 phone calls to our 1800 helpline answered Membership: Over 4,000 active members Gentle Exercise: Be Supported: 30 warm water classes per week in 22 locations state-wide More than 45 branches and support groups across the state (including online) Camp Footloose: 32 children with juvenile arthritis attended camp Camp Twinkletoes: 63 people (32 children and 31 adults) from 16 different families attended camp Be Informed: More than 13,200 copies of Arthritis Matters distributed 12 Arthritis & Osteoporosis 2014/15 Annual Report 13

CAMP TWINKLETOES CAMP FOOTLOOSE The most important aspect of camp for me and the family was for our child to be able to meet other children with JIA of the same age and share stories including how painful their Humira injections are! My kids had a great time and really enjoyed the entertainment on Saturday afternoon. We found it really helpful to be able to talk to nurse Linda. It was great to share medication ideas with her and the feedback she provided to us on Enbrel/Humira was greatly appreciated. I faced my fear of heights in a fun way. My favourite activity at camp was kayaking because it gives you muscles and helps you with strength. I had never done that before. Camp is a great opportunity for our JIA kids to see they re not alone and to build friendships with others like them that will hopefully continue at Camp Footloose. I learnt that it s ok to tell people you re in pain and you need assistance. 14 Arthritis & Osteoporosis 2014/15 Annual Report 15

WILLIAM S WALK ADVOCACY IN ACTION ON SATURDAY, 21 MARCH 2015, HUNDREDS OF WALKERS JOINED US FOR THE FOURTH WILLIAM S WALK IN PARRAMATTA. Together with the help of supporters and the wider community, we raised over $50,000! The money funds a range of muchneeded support services for children with juvenile arthritis, including running our special camps: Camp Twinkletoes and Camp Footloose. More than 6,000 children throughout New South Wales are affected by juvenile arthritis and the condition has a significant impact on the children and their families. Lauren Harris Don t give up. You ll pull strength from places you never had we ll constantly support (the families) we ll always be there for them to try as much as possible and spreading the word and getting it out that we ll never forget their kids. 16 Arthritis & Osteoporosis 2014/15 Annual Report 17

ARTHRITIS RESEARCH KIDSFLIX ALONG WITH PROVIDING EDUCATION AND SUPPORT PROGRAMS FOR PEOPLE WITH ARTHRITIS, WE RE FUNDING THREE (3) EXCITING RESEARCH PROJECTS LOOKING INTO DIFFERENT TREATMENT OPTIONS AND THE CAUSE OF ARTHRITIS. Kidsflix is a program enabling children with Juvenile Idiopathic Arthritis and other disabilities, or from disadvantaged backgrounds, to have an out of the ordinary day with their family at the movies. Around 6,500 children take part in the program every year at various sites across Sydney and major regional areas throughout New South Wales. Families with children who have juvenile arthritis are welcome to all Kidsflix events. To register your interest, please email kidsflix@arthritissa.org.au or call 08 8423 0949. 1. Anti-arthritic compounds Professor Manolios and his team have invented a number of antiarthritic compounds that can suppress arthritis in animals. The new compounds need significant testing to: Ensure they are safe Determine dosage Establish frequency of treatment 2. Using nanoparticle technology In collaboration with the CSIRO, Professor Manolios and his team are examining different ways of delivering drugs to the joints by using nanoparticle technology. The benefit of this type of treatment delivery is that it can deliver anti-arthritic drugs to specific joints. As a result: Less medication would be needed to provide the same results as current drug therapies The risk of systemic side-effects from arthritis drug treatment would be minimised 3. Gene therapy Still in its infancy, research is being conducted into gene therapy to discover if we can develop a carrier to suppress arthritis. Ruth Bunby Thanks for organising this. It s something special for our little girl who has more bad days than a 7 year old should, and for her siblings who also miss out on a lot when she is sick. We really appreciate these events. Keep up the fantastic work! 18 Arthritis & Osteoporosis 2014/15 Annual Report 19

ARTHRITIS NSW ABN 64 528 634 894 ARTHRITIS NSW ABN 64 528 634 894 STATEMENT OF PROFIT OR LOSS AND OTHER COMPREHENSIVE INCOME FOR THE YEAR ENDED 30 JUNE 2015 2015 2014 $ $ Revenue 2,283,391 1,622,547 Other income 205,621 157,015 Employee benefits expense (957,713) (750,874) Depreciation and amortisation expense (47,626) (47,189) Education expenses (91,566) (354,125) Marketing and fundraising expenses (359,976) (207,013) Other expenses (279,365) (403,774) Profit before income tax 752,766 16,587 Income tax expense - - Profit from continuing operations 752,766 16,587 Profit for the year 752,766 16,587 Other comprehensive income: Changes in fair value of available for sale financial assets (83,835) 32,816 Other comprehensive income for the year, net of tax (83,835) 32,816 Total comprehensive profit for the year 668,931 49,403 STATEMENT OF FINANCIAL POSITION AS AT 30 JUNE 2015 2015 2014 $ $ ASSETS CURRENT ASSETS Cash and cash equivalents 2,354,006 1,282,935 Trade and other receivables 1,961,746 2,430,327 Inventories - 3,151 Prepayments 5,907 4,518 TOTAL CURRENT ASSETS 4,321,659 3,720,931 NON CURRENT ASSETS Available for sale financial assets 755,718 684,667 Property, plant and equipment 1,198,973 1,221,258 TOTAL NON CURRENT ASSETS 1,954,691 1,905,925 TOTAL ASSETS 6,276,350 5,626,856 LIABILITIES CURRENT LIABILITIES Trade and other payables 175,303 151,235 Employee benefits 19,412 56,531 TOTAL CURRENT LIABILITIES 194,715 207,766 NON CURRENT LIABILITIES Employee benefits - 6,386 TOTAL NON CURRENT LIABILITIES - 6,386 TOTAL LIABILITIES 194,715 214,152 NET ASSETS 6,081,635 5,412,704 EQUITY Reserves 19,763 103,598 Retained earnings 6,061,872 5,309,106 TOTAL EQUITY 6,081,635 5,412,704 20 Arthritis & Osteoporosis 2014/15 Annual Report 21

ARTHRITIS NSW ABN 64 528 634 894 ARTHRITIS NSW ABN 64 528 634 894 STATEMENT OF CHANGES IN EQUITY FOR THE YEAR ENDED 30 JUNE 2015 2015 The fair value reserve records revaluations of available for sale assets to market value at balance date. 2014 Retained Earnings Fair Value Reserve Specific Reserves Total $ $ $ $ Balance as at 1 July 2014 5,309,106 103,598-5,412,704 Profit attributable to members of the entity 752,766 - - 752,766 Net change in fair value of available for sale - (83,835) - (83,835) financial assets Balance at 30 June 2015 6,061,872 19,763-6,081,635 Retained Earnings Fair Value Reserve Specific Reserves Total $ $ $ $ Balance as at 1 July 2013 5,188,486 70,782 104,033 5,363,301 Profit attributable to members of the entity 16,587 - - 16,587 Net change in fair value of available for sale - 32,816-32,816 financial assets Transfers from specific reserve to retained earnings 104,033 - (104,033) - Balance at 30 June 2014 5,309,106 103,598-5,412,704 STATEMENT OF CASH FLOWS FOR THE YEAR ENDED 30 JUNE 2015 2015 2014 $ $ CASH FLOWS FROM OPERATING ACTIVITIES: Receipts 2,748,245 1,535,437 Payments to suppliers and employees (1,689,966) (1,784,971) Dividends received 75,975 23,171 Interest received 117,045 133,843 Net cash provided by (used by) operating activities 1,251,299 (92,520) CASH FLOWS FROM INVESTING ACTIVITIES: Purchase of property, plant and equipment (25,341) - Purchase of available for sale investments (154,887) (365,135) Net cash provided by (used by) investing activities (180,228) (365,135) CASH FLOWS FROM FINANCING ACTIVITIES: Net increase (decrease) in cash and cash equivalents held 1,071,071 (457,655) Cash and cash equivalents at beginning of year 1,282,935 1,740,590 Cash and cash equivalents at end of financial year 2,354,006 1,282,935 The fair value reserve records revaluations of available for sale assets to market value at balance date. These summarised financial reports are extracts from the full audited financial statements prepared in accordance with the Corporations Act 2001. Full audited financial reports are available to any member who desires to receive a copy, available from either Arthritis & Osteoporosis NSW or CIB Accountants & Advisers. 22 Arthritis & Osteoporosis 2014/15 Annual Report 23

Arthritis & Osteoporosis NSW Locked Bag 2216 North Ryde NSW 1670 Phone: 02 9857 3300 Fax: 02 9857 3399 Toll Free: 1800 011 041 www.arthritisnsw.org.au Authority to fundraise CFN12845 ABN 64 528 634 894