Dementia Friendly London
Dementia Friendly London Dementia in London Estimated number of people living with dementia in London: 72,000 Estimated number of people under-65 living with dementia in London: 4,200 Average dementia diagnosis rate in London (March 2015): 62.3% The total societal cost of dementia in London is estimated at 2.4 billion per year (2012/13 prices), with an average cost of 32,850 per person per year. 430 million is spent on healthcare costs 925 million is spent on social care costs (publicly and privately funded). 1060 million is contributed by the work of unpaid carers of people with dementia 10 million in spent on other costs, including police costs of missing person enquiries, advocacy services and research Unpaid care accounts for 73% of the total cost of people with dementia living in the community, and 44% of the total cost of the overall dementia population in London 2
Dementia Friendly London People affected by dementia have told us We have the right to be recognised as who we are, to make choices about our lives including taking risks, and to contribute to society. Our diagnosis should not define us, nor should we be ashamed of it. We have the right to continue with day to day and family life, without discrimination or unfair cost, to be accepted and included in our communities and not live in isolation or loneliness. We have the right to an early and accurate diagnosis, and to receive evidence based, appropriate, compassionate and properly funded care and treatment, from trained people who understand us and how dementia affects us. This must meet our needs, wherever we live. We have the right to be respected, and recognised as partners in care, provided with education, support, services, and training which enables us to plan and make decisions about the future. We have the right to know about and decide if we want to be involved in research that looks at cause, cure and care for dementia and be supported to take part. 3
The National Response Prime Minister s Challenge on Dementia launched in launched in 2012 (renewed commitment in 2015) Risk Reduction, Health and Care, continuing investment in research and creation of Dementia Friendly Communities Prime Ministers Champion Group and subgroups tackling different issues National and local government leadership on dementia Prime Ministers Challenge on Dementia 2012-2020 4
The National Response Over 200 communities working towards becoming dementia friendly 2.3 million Dementia Friends (4 million by 2020) British Standards Institute: Code of practice for the recognition of dementia-friendly communities in England Sector- specific guidance 5
Guidance and resources Dementia-Friendly Financial Services Charter Dementia-Friendly Employers Guide Dementia-Friendly Arts Venue Guide Dementia-Friendly Technology Charter Accessing and Sharing Information Dementia-Friendly Churches Guide Dementia-Friendly Retail Guide Dementia-Friendly Housing Charter Dementia-Friendly Business Guide Heritage Cinemas Education Other resources we have supported: Gypsies and Travellers Guide WYP Dementia Friendly Performances CAA Guidance for airports to support passengers with hidden disabilities Faith Action Case studies collection
Dementia Friendly London The London Ambition People affected by dementia in Greater London - no matter who they are or where they live - should be able to enjoy the best possible life. By 2022, London will a dementia-friendly capital city. We want a society where Londoners think and feel differently about dementia. Dementia Friendly London is about transforming the way communities think and act towards people affected by dementia. Alzheimer s Society is working with the GLA, London Health Board and other partners to achieve the following by 2022: 2,000 dementia friendly organisations 500,000 Dementia Friends Every London borough working towards becoming a dementia friendly community Meaningful involvement of people affected by dementia 7
Dementia Friendly London Areas for action Londoners with dementia and their carers have told us the biggest challenges they face living in the capital. To achieve this vision, action will be taken on the following priority areas: Transport Housing and planning Health, care and emergency services Business and retail Social inclusion 8
Dementia Friendly London What is a dementia friendly city? A Dementia Friendly London is an inclusive and compassionate city where all Londoners affected by dementia are empowered and supported to live well. People affected by dementia will: Travel to where they want to go safely Live somewhere they feel supported, understood and included in community life Receive the help they need to access quality health, care and support services when and where they require it Be able to participate in all that London has to offer in arts, culture and leisure Feel confident to visit local high streets and town centres 9
Transport Underground, buses, taxis 27,000 Transport for London staff High level champion appointed Staynton Brown, Direction of Diversity and Social Inclusion Dementia Friends via video route Dementia Friendly air travel Heathrow and Gatwick airports 10 Alzheimer s Society
Housing People Places Processes Staff who manage properties; Landlords People providing services such as modifications and adaptations Repairs Home maintenance Handyperson services Architects and planners The creation and maintenance of suitable housing which incorporates space and design can support people living with dementia. Includes the interior and exterior of buildings Housing systems and infrastructure used in all residential provision, planning, design and development and housing-related services such as repairs, maintenance, adaptations and management. Processes designed to reduce barriers. 11
Health, care and emergency services Dementia friendly health and care settings (hospitals, GP surgeries, care homes, care and support at home) Integrating health and social care services Sharing important information across services (creating integrated systems) Keeping Londoners safe at home and in the community Herbert Protocol (missing people) 12
Business and retail Commitment from national organisations local action (banks, supermarkets etc.) Shopping centres Dementia friendly high streets Business Improvement Districts and London Chamber of Commerce 13
Debneys Opticians Merton means business TWM Solicitors LLP Moss and Coleman Solicitors My Life Films Highgrove Pool and Fitness Centre
Social inclusion 15
Dementia Friendly London Where are we now? 116,880 Dementia Friends in London 673 businesses rolling out Dementia Friends and taking other steps to become dementia friendly Dementia friendly activity in two thirds of London boroughs Cross-sector representation on the Pan- London Dementia Action Alliance 16
London s boroughs 17
Dementia Friendly London The Mayor s Commitment What can the Mayor do? Support dementia-friendly London and speak out in dementia issues Lead by example at City Hall Encourage action across TfL and Met Police Convene: bring people together to commit to take action Leadership through the London Health Board The commitment: GLA to work towards becoming a dementia friendly organisation Matching commitment from TfL and others Dementia summit (21 May 2018) Partnership with Alzheimer s Socety 19
Current progress The GLA Over 100 dementia friends already following 3 training sessions over the last 3 years Alzheimer's Society Stakeholder Relations Manager seconded 1-day a week to lead the work Internal GLA dementia friendly London Group established and meeting 8 Nov Staff engagement plan developed recruit and train champions, programme of activities Xmas party, lunch and learn, social media. 20
Dementia Friendly London How will we get there? Supporting London organisations to take action themselves Vision and supporting narrative Baseline and narrative summary including good practice Targets, milestones and indicators Sector-led action plans supported by Alzheimer s Society Overseen and supported by the London Dementia Action Alliance 21
Dementia Friendly London Annual Dementia Summit 21 May 2018 Up to 100 people, including people affected by dementia and sector leaders, for roundtable event with film, speeches, good practice, and Q&A discussion to panel Involvement and testimonies from people living with dementia and positives impacts that have already been made Media announcement that London has committed to become the first dementia-friendly capital Vision, milestones, and call to action Examples of progress and commitments from leaders across sectors 22
Dementia Friendly London Sector representation and leadership London Dementia Action Alliance Transport Business NHSE London London ADASS The Met + emergency services Culture and leisure industries Science/ research Innovation/ data/ tech Voluntary and community sector Diverse and inclusive Dementia Friendly London: Youth Faith Seldom-heard groups 23
Dementia Friendly GLA Forward planning Year Milestones 2017 GLA announcement to become a dementia friendly organisation: - Mayor and GLA staff to become Dementia Friends - Matching commitment from TfL - Establish internal working group to identify opportunities to extend reach of dementiafriendly London through Mayoral priorities and strategies - Work with HR and internal comms to make a dementia-friendly workplace (advice, support, signposting) Suggested activities up to 2020 2018 - Pan-London Dementia Action Alliance meetings - Dementia Summit key organisations make commitment - Promote Dementia Friends Challenge ambition to create 500,000 Dementia Friends in London. Mobilise individuals, organisations and communities to join our movement - Explore corporate sponsorship and large scale marketing opportunities for a phased public awareness campaign. For example, United Against Dementia wrap for London buses - Identify other parts of the GLA family and sector leaders to extend reach e.g. schools, tourism, emergency services 2019 - At least 2/3 of London boroughs working towards becoming dementia friendly - Announcement Dementia Friends Milestone (XXX,000 Dementia Friends in London) to further promote initiative - Annual Dementia Friendly London celebration event 2020 - All boroughs signed up to Dementia Friendly Communities recognition process - Dementia Friends rolled out across all key organisations - Annual dementia friendly London celebration event 24
Thank you Gus Wilson, Greater London Authority Gus.Wilson@london.gov.uk Fern Howard, Alzheimer s Society Fern.Howard@alzheimers.org.uk 25