Autism Activities at CDC Act Early Region IX Summit Sacramento, CA June 8, 2009 Georgina Peacock, MD, MPH National Center on Birth Defects and Developmental Disabilities
Autism Activities at CDC Surveillance/Monitoring Address questions on the prevalence/trends Epidemiologic i i Research Examine risk/protective factors Prevention/Translation of Research Learn the Signs. Act Early.
Autism and Developmental Disabilities Monitoring (ADDM) Network Washington Montana North Dakota Minnesota Vermont Maine Oregon Nevada California Idaho Utah Wyoming Colorado South Dakota Nebraska Kansas Iowa Missouri Wisconsin Michigan Illinois Michigan Indiana Kentucky Ohio New York Pennsylvania DC West Virginia Virginia New Hampshire Massachusetts Rhode Island Connecticut New Jersey Delaware Maryland Arizona New Mexico Oklahoma Arkansas Tennessee North Carolina South Carolina Mississippi Georgia Alabama Alaska Texas Louisiana Florida U.S. Virgin Islands Hawaii Puerto Rico Guam CDC 11 ADDM Sites 2006-2010 (10+CDC) 16 ADDM Sites 2001-2006 (15 +CDC) +
Goals: Accurate and comparable population-based p estimates of the prevalence of Autism Spectrum Disorder (ASD) in selected regions of fus U.S. Describe the characteristics of children with Autism Examine trends in prevalence
Prevalence Conclusions Some variation in prevalence ASD prevalence significantly lower in 1 site (AL) and higher in 1 site (NJ). Average of 1 in 150 children (range from about 1 in 100 to 1 in 300) How many children in the U.S. have an ASD? Estimated: 560,000 children between 0-21 years
Research: Study to Explore Early Development (SEED) Multi-state collaborative study to help identify factors that may put children at risk for autism spectrum disorders and other developmental disabilities. California, Colorado, Georgia, Maryland, North Carolina, Pennsylvania Approximately 2,700 children, ages 2 to 5, and their parents will be part of this study.
Study to Explore Early Development (SEED) Main research areas ASD phenotypic variation Subgrouping for etiologic analysis Infection and immune function, including autoimmunity Reproductive and hormonal features Gastrointestinal features Genetic features Sociodemographic features
Challenges Early ASD Surveillance The median age of ASD diagnosis is 4.5-5.5 years of age (ADDM Network) Current surveillance relies on 8 year-old children to understand peak prevalence Goals Develop a valid way to characterize and track the population of children with an ASD in young children (under the age of 4). Linking population-based surveillance with efforts for early identification, screening, and link to intervention.
Benefits of Early ASD surveillance Observe possible trends in awareness and diagnostic practices Study validity of screening instruments and effectiveness of screening process Establish a cohort that can be followed over time to examine developmental course and costs of care. Provide participants the opportunity to seek earlier intervention.
Learn the Signs. Act Early. www.cdc.gov/actearly
Learn the Signs. Act Early. Traditional health communication campaign Capacity building through the Act Early project Partnership engagement Evaluation
Communication Objectives Raise awareness of developmental milestones and early warning signs of developmental delay. Increase knowledge about the benefits of early action and early intervention. Increase parent-provider dialogue on the topic of developmental milestones and disorders. Increase early action for developmental disorders.
Target Audiences Health Care Professionals Pediatricians, family physicians, physician assistants, nurses, allied health professionals Parents of Young Children Ages 4 and younger Early Educators
Materials Flyers Poster Growth Chart Fact Sheets on Milestones and Developmental Disabilities Informational Card
Working Together Ensuring that every child reaches his or her full potential Maternal & Child Health Bureau National Center on Birth Defects & Developmental Disabilities
Capacity building CDC & HRSA Collaboration Act Early Summits Act Early Minigrants Other CDC initiatives Research Topics of Interest (RTOIs) Collaborative Research Awards (CRAs)
Thank you! www.cdc.gov/ncbddd gpeacock@cdc.gov