on Autism Issues Legislatures (NCSL) Martha King Health Program Director June 9, 2009
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1 Working with State Legislators on Autism Issues National Conference of State Legislatures (NCSL) Martha King Health Program Director June 9,
2 NCSL National membership organization: 7,382 legislators 3 gazillion legislative staff Offices in Denver and Washington, D.C. Goals: To improve the quality and effectiveness of state legislatures To promote policy innovation and communication among state legislatures To ensure states a strong, cohesive voice in the federal system 2
3 Why Focus on State Legislatures? Establish policies and programs Control the state s purse $trings Enact requirements Provide oversight sg Provide leadership 3
4 Legislators Are Generalists Dozens of topics: Hundreds of bills Can t be experts in all Agriculture Corrections A to Z Education Health Housing Human Services Labor Transportation Zoning g... 4
5 Health Issues by the Dozens Medicaid Insurance/mg d care Pharmaceuticals Long-term Care Health disparities Uninsured Health professions Health Facilities Environmental Public health SCHIP Prenatal Care Emergency services Chronic diseases Oral health Injury prevention Mental Health Disabilities Substance Abuse etc.... 5
6 Competing For Legislators Attention Autism A BLIP ON THE POLITICAL RADAR SCREEN 6
7 YOUR Role The Blip Enlarger For Autism Issues Raise awareness Provide information and resources Network with others Advocate 7
8 Overload!! Going through all this information we have here is kind of like trying to drink from a fire hydrant. Colo. Rep. Mark Paschall My seatmate told me this was a bad bill. I was going to vote no on it until I realized it was my own bill. Colo. Sen. Ray Powers 8
9 Context of Budget Woes! Edvard Munch: The Scream 1893 (National Gallery of Norway) 9
10 FY 2009 Highest Budget Gaps as a Percentage of General Fund Budget Rhode Island Delaware Less than 1%, n = 2 1% to 4.9%, n = 9 5% to 9.9%, n = 13 More than 10% = 20 Not applicable, n = 7 Source: NCSL survey of state legislative fiscal offices, April Puerto Rico 10
11 FY 2010 Highest Budget Gaps as a Percentage of General Fund Budget Rhode Island Delaware Less than 1%, n = 1 1% to 4.9%, n = 3 5% to 9.9%, n = 6 More than 10% = 33 Not applicable, n = 8 Source: NCSL survey of state legislative fiscal offices, April Puerto Rico 11
12 NCSL Services Web-based information Publications NCSL periodicals (magazine, LegisBriefs) Specialized project publications (postcards, booklets) Meetings (NCSL venues and specialized) Technical assistance Respond to requests 12
13 2007 Autism Legislation Nearly 50 bills passed in 2007 Created statewide registries (IL, NH, NJ) Education about importance of early screening and detection Raising awareness Training first responders & teachers about developmental disabilities Established group homes for teens (IL) Research, available funding and financing Created task forces and commissions 13
14 NCSL s Autism Legislation Database 14
15 NCSL s Autism Legislation Database Provides up-to-date information about autism legislation introduced in the 50 states and the District of Columbia 2008 session to present Search legislation by state, topic, status, primary sponsor, bill number or keyword 15
16 2008 Autism Legislation 451 bills introduced in 41 states 127 bills enacted or adopted Topic Areas: Awareness (69 bills) Insurance (73 bills) Education (74 bills) Professional Training Financing (67 bills) (65 bills) Health and Human Services (163 bills) Screening (40 bills) Infrastructure Task Force (84 bills) (95 bills) Miscellaneous (9 bills) As of 11/28/08 16
17 2009 Autism Legislation 496 bills in 47 states t and Puerto Rico so far! Awareness (62 bills) Education (92 bills) Financing (140 bills) Health and Human Services (161 bills) Infrastructure (86 bills) Topic Areas: Insurance (123 bills) Professional Training (57 bills) Screening g( (32 bills) Task Force (100 bills) Miscellaneous (23 bills) As of 5/18/09 17
18 For More Information Jody Ruskamp-Hatz Jennifer Saunders Program Manager Research Analyst National Conference of State National Conference of State Legislatures Legislatures Visit the NCSL website Maternal and Child Health Project Health Program 18
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