Working with State Legislators on Autism Issues
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1 Working with State Legislators on Autism Issues National Conference of State Legislatures (NCSL) Jennifer Saunders, MSW Research Analyst II, Health Program October 29,
2 NCSL National membership organization: 7,382 legislators 3 gazillion legislative staff Offices in Denver and Washington, D.C. Goals: To improve the quality and effectiveness of state legislatures To promote policy innovation and communication among state legislatures To ensure states a strong, cohesive voice in the federal system 2
3 Why Focus on State Legislatures? Establish policies and programs Control the state s purse $trings Enact requirements Provide oversight Provide leadership 3
4 Legislators Are Generalists Dozens of topics: A to Z Hundreds of bills Can t be experts in all Agriculture Corrections Education Health Housing Human Services Labor Transportation Zoning... 4
5 Health Issues by the Dozens Medicaid Insurance/mg d care Pharmaceuticals Long-term care Health disparities Uninsured Health professions Health facilities Environmental Public health CHIP Prenatal care Emergency services Chronic diseases Oral health Injury prevention Mental health Disabilities Substance abuse etc.... 5
6 Competing For Legislators Attention Autism A BLIP ON THE POLITICAL RADAR SCREEN 6
7 YOUR Role The Blip Enlarger For Autism Issues Raise awareness Provide information and resources Network with others Advocate 7
8 Overload!! Going through all this information we have here is kind of like trying to drink from a fire hydrant. Colo. Rep. Mark Paschall My seatmate told me this was a bad bill. I was going to vote no on it until I realized it was my own bill. Colo. Sen. Ray Powers 8
9 Context of Budget Woes! Edvard Munch: The Scream 1893 (National Gallery of Norway) 9
10 FY 2010 Budget Gaps as a Percentage of General Fund Budget Rhode Island Delaware 0.1% to 4.9%, n = 6 5% to 9.9%, n = 5 10% to 19.9%, n = 18 More than 20% n= 17 Not applicable or not reporting, n = 5 Source: NCSL survey of state legislative fiscal offices, April, June and July Puerto Rico 10
11 NCSL Services Web-based information Maternal and Child Health Publications NCSL periodicals (magazine, LegisBriefs) Specialized project publications (postcards, booklets) Meetings (NCSL venues and specialized) Technical assistance Respond to requests 11
12 2007 Autism Legislation Nearly 50 bills passed in 2007 Created statewide registries (IL, NH, NJ) Education about importance of early screening and detection Raising awareness Training first responders & teachers about developmental disabilities Established group homes for teens (IL) Research, available funding and financing Created task forces and commissions 12
13 NCSL s Autism Legislation Database 13
14 NCSL s Autism Legislation Database Provides up-to-date information about autism legislation introduced in the 50 states, the District of Columbia and Puerto Rico 2008 session to present Search legislation by state, topic, status, primary sponsor, bill number or keyword 14
15 2008 Autism Legislation 451 bills introduced in 41 states 127 bills enacted or adopted Awareness (69 bills) Education (74 bills) Financing (67 bills) Health and Human Services (163 bills) Infrastructure (95 bills) Topic Areas: Insurance (73 bills) Professional Training (65 bills) Screening (40 bills) Task Force (84 bills) Miscellaneous (9 bills) As of 11/28/08 15
16 2009 Autism Legislation 495 bills in 47 states and Puerto Rico Topic Areas: Awareness (58 bills) Education (89 bills) Financing (167 bills) Health and Human Services (153 bills) Infrastructure (76 bills) As of 10/20/09 Insurance (124 bills) Professional Training (56 bills) Screening (24 bills) Task Force (106 bills) Miscellaneous (20 bills) 16
17 Autism Legislation in Your State Alabama 12 bills Georgia 7 bills Florida 20 bills Mississippi 11 bills 17
18 Autism and Insurance Coverage 15 states require insurers to provide coverage for the treatment of autism 2009: CO, CT, MT, NV, NJ, NM, WI (7 states) 2008: AZ, FL, IL, LA, PA (5 states) 2007: TX, SC 2001: IN NCSL Autism and Insurance Coverage Webpage 18
19 For More Information Jennifer Saunders Research Analyst II National Conference of State Legislatures Visit the NCSL website Maternal and Child Health Project Health Program 19
on Autism Issues Legislatures (NCSL) Martha King Health Program Director June 9, 2009
Working with State Legislators on Autism Issues National Conference of State Legislatures (NCSL) Martha King Health Program Director June 9, 2009 1 NCSL National membership organization: 7,382 legislators
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