Information Sources and Preferred Information Sources and Online Information Seeking Behaviour of Cancer Patients
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1 Information Sources and Preferred Information Sources and Online Information Seeking Behaviour of Cancer Patients G.P. Chua, RN, MN H.K. Tan, FRCSEd; PhD M. Gandhi, MSc 1
2 Introduction Information provision has been found to help patients with cancer: with decision making cope with the adverse effects of cancer treatment reduce anxiety and depression increase satisfaction with treatment improve communication with family improve the quality of life be an active partner in their care 2
3 Aim & Method 3 Aim: Instrument: To determine the information sources and the preferred information sources and Online information seeking behaviour of cancer patients in order to guide practice A self-administered questionnaire (Pilot tested on 11 patients) Sampling: Convenience sampling over a 5-month period from Site: Inclusion Criteria: Ethical Consideration: A large ambulatory cancer centre in Singapore Diagnosed with cancer and receiving treatment Not cognitively impaired Able to understand and communicate in English/ Mandarin 21 years and above Approved by the Centralized Institutional Review Board of the Singapore Health Services Written informed consent was obtained from all respondents
4 Results: Demographics (N=411) 4
5 Information Sources and Preferred Information Sources Information Sources Received Information Sources Preferred Doctors 58.9 Doctors 65 Healthcare specialist 19.9 Healthcare specialist Written material Written material 10.2 Websites 12.6 Family/ friends Cancer survivor/ other cancer patients Family/ friends Health apps Cancer survivor/ other cancer patients Cancer helplines 1.7 Cancer helplines 4 Video Unanswered Video Others Unanswered
6 Doctors Healthcare specialists Family/friends 22.4 Print materials by NCSS 31.6 Cancer survivor/other cancer patients Cancer helplines Print materials by Cancer Society Videos Usefulness of source of information received at NCCS % 10% 20% 30% 40% 50% 60% 70% 80% 90% 100% NA/unanswered Not useful Quite useful Neutral Useful Very useful 6
7 Online Information Seeking Behaviour 7
8 Association between demographic characteristics and online information search 8 Online information search Yes No P-value Characteristics, n (%) N (Sometimes, Often) (Never, Rarely) Age < years (77.8) 10 (22.2) years (61.8) 84 (38.2) > 60 years (27.7) 102 (72.3) Sex Male (44.0) 84 (56.0) Female (56.0) 113 (44.0) Education level <0.001 Primary or less (17.5) 66 (82.5) Secondary/higher secondary (51.9) 101 (48.1) Tertiary or higher (76.1) 26 (23.9)
9 Results Physicians, healthcare specialists and written information materials were the main sources and most preferred sources for cancer information 59.1% of the respondents used the internet to search on cancer related information, namely diagnosis and treatment options, side effects of treatment, and complementary and alternative therapy; demonstrating the importance of the above information Younger and more educated were statistically significantly associated with online information search Female patients are more likely to go online to search for cancer information 9
10 Practice Implications Develop a tailored individualized information treatment toolkit Enhance information delivery through the Institution s website Provide patients a list of trusted information sources that match their information needs Establish guidelines on how to evaluate health information on the internet Continuous evaluation to ensure that information and mode of delivery best match patients needs 10
11 Acknowledgements All patients who participated in the survey Community Cancer Fund [COMCF-YR2015-MAY-NS1] 11
12 Our New Centre 12
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