A prospective pilot study to evaluate the feasibility of group education for endometriosis patients
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1 A prospective pilot study to evaluate the feasibility of group education for endometriosis patients K. Arendas, N. Zito, E. Davison, A. Bullen, N. A. Leyland Department of Obstetrics and Gynaecology McMaster University, Hamilton Health Sciences Hamilton, ON, Canada
2 Background Endometriosis Chronic condition -1% general female population Various symptoms including: Chronic pelvic pain Infertility Significant impact on quality of life
3 Background In the setting of chronic conditions, patient education and self-management programs Improve quality of life Improve clinical outcomes Group education sessions Effective means of disseminating knowledge and self-management techniques
4 Objective To evaluate whether group education for women with endometriosis is feasible and well received by patients
5 Methods Tertiary care endometriosis clinic Invitation to participate in a physician-lead, one-hour education session covering the following topics: What is endometriosis? Current medical and surgical treatment options Alternative therapies and coping strategies Opportunity to: Listen to a patient s personal journey with endometriosis Share their stories Have a group discussion
6 Methods Surveys Demographics Knowledge on endometriosis prior to session start Evaluation of session Knowledge questionnaire repeat at follow-up appointment Treatment initiated and response to treatment Satisfaction with care
7 Methods Control group Cohort of women meeting inclusion criteria but not interested in attending the session Demographics Knowledge on endometriosis at initial consult Knowledge questionnaire repeat at follow-up appointment Satisfaction with care
8 Results 8 women attended the education session 9 women agreed to be controls
9 Results Baseline data: Age range: Intervention group: 28-1 Control group: Average # MD's seen: Intervention group:. Control group:.4 Average # gynecologists seen: Intervention group: 1.9 Control group: 1.9
10 Results Baseline data: symptoms 9 7 Intervention Control 2 Dysmenorrhea Acyclic pelvic pain Dyspareunia Dyschezia Dysuria Infertility Other
11 Results Endometriosis knowledge Short questionnaire about: Symptoms of endometriosis Diagnosis Management No baseline difference between groups
12 Results Session received unanimously positive reviews from all participants
13 Group session provided answers to I have more knowledge about Disagree Neutral Agree 1 Disagree Neutral Agree 1 Session was well-organized and 6 Session addressed most Disagree Neutral Agree 1 Disagree Neutral Agree 1
14 6 Session leaders demonstrated Session leaders answered Disagree Neutral Agree 1 Disagree Neutral Agree 1 6 Session leaders were 6 Session leaders delivered 2 2 Disagree Neutral Agree 1 Disagree Neutral Agree 1
15 6 Holding the session in a group format did not prevent me from asking questions or feeling 2 Disagree Neutral Agree 1
16 6 I would attend other group 6 I would recommend this 2 2 Disagree Neutral Agree 1 Disagree Neutral Agree 1 7 Overall, attending a group 4 2 Disagree Neutral Agree 1
17 Results Follow up questionnaire revealed no significant difference in the endometriosis knowledge between groups Satisfaction with care was similar between groups
18 Discussion Pilot study Small sample size Not adequately powered to detect significant differences between groups Short knowledge questionnaire Short follow-up time No standardized measure of clinical outcome
19 Discussion Knowledge gained Recruitment was carried out without difficulty Sessions are feasible Well received by patients Questionnaire to assess knowledge needs to be amended and improved
20 Conclusion Knowledge and self-management tools may improve health outcomes Promising opportunity: Patient education Improved patient satisfaction Improved clinical outcomes? Hope, by Jodie Dunne Clinic efficiency? Further assessment needed
21 Acknowledgement Thank you to Dr. Leyland Thank you to project team members: Elainne Davison, PA Annette Bullen, RN Nicole Zito, MD candidate
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