21th PanCare Meeting Prague April 2018
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1 Meeeting is held under the auspices 21th PanCare Meeting Prague April 2018 Programme information Page 1
2 PanCare Board 2018 Chairperson Secretary Members Katie Rizvi Lars Hjorth Riccardo Haupt Rod Skinner Edit Bárdi Desiree Grabow Treasurer Jaap den Hartogh Vesna Pavasovic Lucie Hrdlickova Gill Levitt Gisela Michel Monica Terenziani Amilia Tsirou Page 2
3 Wednesday 18 April :00 13:15 Registration Chairpersons: Jarmila Kruseova / Wednesday 18 April : WELCOME 13:30-13:50 Presenter Jarmila Kruseova prof. Josef Koutecky Jarmila Kruseova Topic/Title Welcome and General introduction to PanCare Prague LTFU care in numbers 13:50-14:05 Lucie Hrdlickova MY NEW LIFE movie invitation SESSION 1 14:05-14:20 Michaela Cepelova Metabolic syndrome HL 14:20-14:40 14:40-15:00 Czech Republic LTFU care Jan Fric Brno LTFU care for adult CCS Accerelated aging of immune the immune system in neuroblastoma survivor submitted Weight-status in a population-based sample of adult survivors of childhood 15:00-15:15 May Grydeland cancer compared to controlspreliminary findings from the NOR- CAYASCS STUDY 15:15-15:30 Trends in anti-müllerian hormone and Anne-Lotte van der inhibin b before and after childhood Kooi cancer treatment Chairpersons: Lars Hjorth / Lieke Feijen Presenter Topic/Title Risks and causes SPNs - evidence 16: from the PanCareSurFup cohort Raoul Reulen and case-control studies Risks of SPNs among survivors of 16:25-16:50 Mike Hawkins TYA cancer - a population-based study of over 200,0005-year survivors in the UK Dose-volume considerations in investigation radiation doseresponse relationships - 16:50-17:15 SESSION 2 Florent de Vathaire implications for PanCareSurFup Subsequent SPN case-control studies Wednesday Neoplasms Subsequent neoplasm after BMT 18 April 17:15-17:30 Petra Keslova Czech Republic :30-17:45 17:.45-18:00 submitted Charlotte Demmor- Goldschmidt Lorna Zadravec Zaletel 18:00 Photo All Group photo 18:15-20:00 MOVIE MY NEW LIFE DeNaCaPST programme- a French national breast and thyroid cancer screening programme for survivors of childhood, adolescent and young adult cancer Screening for secondary colon cancer in patients treated for Hodgkin disease with abdominal radiotherapy Slovenian experience Page 3
4 Chairpersons: Julianne Byrne / Raoul Reulen Presenter Topic/Title Survival varies across 9:00-9:20 Gemma Gatta Europe and possible explanations Reducing inequalities 9:20-9:40 Rod Skinner in care of children with 9:40-10:00 cancer within the UK SESSION 3 Anja Borgmann- Inequalities in fertility Staudt preservation in Europe Inequalities in survival after childhood cancer 10:00-10:20 Zsuzsanna Jakab submitted abstract 10:20-10:35 Manon Heijltjes 10:35-11:00 Cofee Differences in causes of late death between diagnostic subgroups of childhood cancer in Hungary ( ) The challenge of building a survivorship clinic in a national childhood cancer hospital, the PRINSES MAXIMA CENTER Chairpersons: Gisela Michel / Edit Bardi Presenter Topic/Title 11:00-12:00 Jaap den Hartogh SESSION 4 Katie Rizvi 12:00-13:00 PanCare Jaap den Hartogh PanCare General Assembly Future of PanCare 13:00 14:00 Lunch at the Lindner Hotel Page 4
5 Zuzka lessons for survivors (in memory of Zuzka Wimmerova) Chairpersons: Lucie Hrdlickova / Katie Rizvi 14:00-14:05 14:05-14:20 Presenter Zuzka Somosova Eliska Podzimkova Topic/Title Words about Zuzka Wimmerova My life after cancer treatment for Hodgkin lymphoma 14:20-14:35 Erik Sturesson SESSION 5 14:35-14:50 14:50-15:00 15:00-15:10 Survivors lessons parents organization lessons Emanuel Schipor Katie Rizvi Menia Koukougianni Gloria Alvarez- Benito 15:10-15:20 Klara Knop- Kostkova 15:20-15:30 Carina Schneider 15:30-16:00 Coffee A decade after childhood cancer treatment: my battle with fatigue and severe depression Peer matching mobile application for cancer survivors. A way forward to more effective support services? (Presentation includes live demo) Meet the new NGO Karkinaki from greece The Hero Tool Presentation of activities of patient organization in the Czech republic Moving forward together the survivors network Chairpersons: / Cecile Ronckers Presenter Topic/Title Roderick Skinner 16: Guidelines Leontien Kremer Knowledge and attitudes Agnes Dumas towards late effects of childhood cancer: A SESSION 6 Guidelines submitted Agata Salvador Salome Christen Anneli Mellblom 18:00-19:00 Guided tour Prague castle 19:00-23:00 Networking dinner qualitative peer research Psychological well-being of pediatric cancer patients: assessment of demographic, clinical and family risk factors Supportive needs of pediatric cancer survivors parents Developing and pilottesting a brief intervention to improve the follow-up consultation with adolescent cancer survivors Page 5
6 Friday 20 April 2018 Chairpersons: Gill Levitt / Lorna Zadravec Zaletel Presenter Topic/Title Friday 20 April :45-9:00 Gisela Michel 9:00-9:15 Julie Byrne PanCareLife update SESSION 7 9:15-9:30 9:30-9:45 PanCare projects Submitted Abstracts Eva Clemens Cecile Ronckers Update on PanCareSurFup Publication policy Genetic Variation of cisplatininduced ototoxicity during childhood cancer treatment: design of a PanCarelife study Side effects of 3D planned RT High cumulative burden of Nina Streefkerk morbidity in long-term 9: childhood cancer survivors: a DCOG-LATER study 10:00-10:30 Leontien Kremer Horizon 2020 application 10:30-11:00 Coffee Chairpersons: Rod Skinner / Jacqueline Loonen Presenter Topic/Title A systematic review comparing emotional Jowhara Mohamed functioning in adolescent brain tumour survivors with 11:00-11:15 survivors of other cancers 11:15-11:30 Erika Harju A systematic review on the use of the emotion thermometer in individuals diagnosed with cancer 11:30-11:45 SESSION 8 Manya Hendrinks Life after cancer-needs for psychososcial support in swiss childhood cancer Friday survivors Submitted 20 April Internet and mobile phone 2018 interventions for improving social functioning in 11:45-12:00 PanCare Timothy Gomm adolescent and young adult survivors of childhood brain injury 12:00-12:15 Ales Luks PanCare Website 12:15-12:30 12:30-12:40 Lunch Florent de Vathaire Jarmila Kruseova Presentation of next PanCare conference, Paris, France Summary and Farewell Page 6
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