Healthcare Social Media Transcript

Transcription

1 Page 1 of 16 #CCSRIChat transcript Healthcare Social Media Transcript From: Wed Nov 26 8:55:00 PST 2014 To: Wed Nov 26 10:10:00 PST 2014 change time period What is #CCSRIChat? Who were the influencers during this time period? #CCSRIChat analytics Healthcare Conference - Healthcare Tweet Chats - Healthcare Analytics We'll be starting our tweet chat soon - if you want to follow this chat, try a chat room like tchat.io and enter the hashtag Wed Nov 26 8:56:51 PST 2014 Looking forward to! Wed Nov 26 8:57:02 PST 2014 One of our panel has joined us - - anyone else? Wed Nov 26 8:57:55 PST 2014 Once everyone's joined, I'll ask the panel to introduce themselves Wed Nov 26 8:58:14 PST 2014 I'm ready to chat here in rainy Vancouver as well! Wed Nov 26 8:58:39 PST 2014 Wed Nov 26 8:59:20 PST 2014 Do we have Dr Leia Minaker from Propel on? Wed Nov 26 8:59:48 PST 2014 Some childhood cancers are driven by "immature cells" that lack drugs against them. #CCSRIChat Wed Nov 26 9:00:10 PST 2014

2 Page 2 of 16 Wed Nov 26 9:00:40 PST 2014 Looking forward to the #CCSRIChat Wed Nov 26 9:00:40 PST 2014 I'm here in Windsor - Lisa Porter - - already jumping ahead of myself :) #CCSRIChat Wed Nov 26 9:00:54 PST perhaps you could say your area of expertise? Wed Nov 26 9:01:22 PST 2014 cancersociety tweet chat on tackling the toughest cancers has begun. Follow along with the hashtag #CCSRIChat Wed Nov 26 9:01:57 PST 2014 Welcome everyone! We'll get started - our panel is all here. Could each of you briefly type your area or research? Wed Nov 26 9:02:52 PST 2014 *write your area of research* please :) Wed Nov 26 9:03:33 PST 2014 I'm focused on cancer prevention-particularly tobacco control. Lung cancer is the leading cause of death from cancer in Canada Wed Nov 26 9:03:35 PST I'm a cell/molecular biologist - specialty is understanding how cells grow differently throughout life #CCSRIChat Wed Nov 26 9:04:09 PST 2014 Topic 1 will be announced in a few minutes - waiting until more participants join Wed Nov 26 9:04:39 PST 2014 My research is in ovarian cancer prevention. We've not had a lot of success in detection or treatment so prevention reigns. Wed Nov 26 9:04:51 PST 2014 I'm Leia Minaker and I'm a Propel Scientist who does research in the area of tobacco control and nutrition #CCSRIChat Wed Nov 26 9:05:00 PST 2014 Excited to participate and to learn about hard to treat cancers from our experts Wed Nov 26 9:05:15 PST 2014

3 Page 3 of 16 Great thank you all! Wed Nov 26 9:05:16 PST 2014 T1: What are some of the risk factors for hard-to-treat cancers and what can we do to address them? Wed Nov 26 9:05:28 PST 2014 The really high risk women when it comes to ovarian cancer are the BRCA1 and BRCA2 mutation carriers. Wed Nov 26 9:06:16 PST 2014 What about lung cancer - or is that too obvious? Wed Nov 26 9:07:29 PST 2014 is there a test to determine if you are a BRCA1 or 2 carrier? #CCSRIchat Wed Nov 26 9:07:36 PST 2014 Lung cancer is the leading cause of cancer death in Canada. Smoking is related to 85% of lung cancer, so we need to prevent it! Wed Nov 26 9:07:41 PST 2014 Fortunately when we identify high-risk women early, we can screen more, perform risk-reducing surgery and other interventions. Wed Nov 26 9:07:42 PST Are genetic tests to find out if you're a carrier covered in Canada? Do you think women should get tested? Wed Nov 26 9:07:50 PST 2014 Only a very small number of brain cancers have known genetic risk factors ~5% #CCSRIChat Wed Nov 26 9:08:05 PST 2014 To reduce smoking, we need population-level policies that make tobacco-free lives the default option #CCSRIChat Wed Nov 26 9:08:16 PST 2014 Yes, there is a test that is available in most province through hereditary cancer programs. Wed Nov 26 9:08:20 PST 2014 We are currently on T1: What are some of the risk factors for hard-to-treat cancers and what can we do to address them? Wed Nov 26 9:09:10 PST Lung cancer is the leading cause of cancer death in Canada!

4 Page 4 of 16 #CCSRIChat Wed Nov 26 9:09:10 PST 2014 Any woman who has been diagnosed with the most common form of ovarian cancer should get tested. Wed Nov 26 9:09:20 PST 2014 If that woman is a carrier, then her female relatives should also be tested. Wed Nov 26 9:09:34 PST 2014 Great to know that if high-risk women are identified early that there are things that can be done Wed Nov 26 9:09:47 PST 2014 We also want women with family histories of breast and ovarian cancer to inquire about testing. Wed Nov 26 9:10:15 PST 2014 I keep hearing sitting or sugar is the new smoking. What does the panel think about sound bites like that? Wed Nov 26 9:10:18 PST 2014 is there anything genetic carriers can do to reduce their risk? #CCSRIchat Wed Nov 26 9:10:21 PST 2014 I think there's a perception among many people that "we already KNOW" tobacco causes cancer. But we're not done tobacco control! #CCSRIChat Wed Nov 26 9:10:25 PST 2014 Women diagnosed with breast cancer at a young age may also be carriers of BRCA1/2 mutations. #CCSRIChat Wed Nov 26 9:11:01 PST 2014 Tobacco is also an important rf for pancreatic Quitting smoking is hard but imprves survival at any point Wed Nov 26 9:11:04 PST 2014 what are some risk factors for colorectal cancer? Wed Nov 26 9:11:22 PST Yes. Those women would be followed closely, and offered riskreducing surgeries when appropriate. Wed Nov 26 9:11:27 PST 2014 Thank you for bringing in pancreatic! Def a hard to treat cancer Wed Nov 26 9:11:29 PST 2014

5 Page 5 of 16 ccshollandriver tweet chat on tackling the toughest cancers has begun. Follow along with the hashtag #CCSRIChat Wed Nov 26 9:11:43 PST Smoking is still the leading cause of preventable death. Sugar and sitting are important, but smoking still kills more #CCSRIChat Wed Nov 26 9:12:07 PST also tobacco treatment and control important after diagnosis Wed Nov 26 9:12:12 PST 2014 riverdaleshare radon exposure is also a risk factor for lung cancer Wed Nov 26 9:12:19 PST 2014 Profile on Society-funded research: Poop that lights up when cancer is present Wed Nov 26 9:12:31 PST Smoking is still the leading cause of preventable death. Sugar and sitting are important, but smoking still kills Wed Nov 26 9:12:57 PST Agreed, Michael! #CCSRIChat Wed Nov 26 9:13:23 PST 2014 Profile on Society-funded research: Poop that lights up when cancer is present Wed Nov 26 9:13:52 What do you think about joint messaging w smoking and other risk factors? (radon, asbestos) Wed Nov 26 9:14:15 PST 2014 Profile on Society-funded research: Poop that lights up when cancer is present Wed Nov 26 9:14:26 PST 2014 We're on T1: risk reduction and prevention for a few more minutes - any other questions for our experts? Wed Nov 26 9:14:30 PST 2014 Inactivity is an important risk factor in gynecologic cancers because hormones play a key role and fat cells secrete estrogen.

6 Page 6 of 16 Wed Nov 26 9:14:53 PST 2014 lung cancer isn't too obvious when many don't know all risk factors - Radon #CCSRIchat Wed Nov 26 9:15:19 That can be very important. Particularly for people who are exposed to higher levels: mining, construction Wed Nov 26 9:15:35 It's great to be able to work together to reduce cancer! But messaging is different depending on issue #CCSRIChat Wed Nov 26 9:16:43 PST 2014 T1 question from the room - can we say anything more about other cancers where tobacco is Wed Nov 26 9:17:08 PST 2014 eefholmes for people who don't smoke, are there lifestyle changes they can make to reduce risk of hard to treat cancers? Wed Nov 26 9:17:12 PST Good point! Are there are pop'ns at higher risk of lung or other hardtotreat cancers? Wed Nov 26 9:17:15 true especially because of the interaction. ~80% of lung cancer is attributable to smoking Wed Nov 26 9:17:35 PST 2014 The #1 risk factor for cancer is aging - while good to protect yourself you can't always 'prevent' cancer #CCSRIChat Wed Nov 26 9:18:44 PST 2014 Little known fact...using oral contraceptive pills is very protective against ovarian cancer. Wed Nov 26 9:19:05 PST 2014 OK we'll get ready to move to T2: Detection soon - last call for questions Wed Nov 26 9:19:06 PST 2014 Last call for T1 questions, rather :) Wed Nov 26 9:19:24 PST physical activity and preventing obesity could also help. Wed Nov 26 9:19:29 PST 2014

7 Page 7 of For sure...can be hard to raise awareness about risk factors for lung cancer w/out downplaying tobacco. Wed Nov 26 9:19:42 PST 2014 Get ready for T2 Wed Nov 26 9:19:48 PST 2014 T2: Why is it difficult to detect some hard-to-treat cancers? Wed Nov 26 9:20:00 PST Thanks! :) Wed Nov 26 9:20:22 PST 2014 Lack of awareness of screening tests available Wed Nov 26 9:20:45 Tobacco-related cancers include: bladder, cervix, colon, mouth & throat, pancreas, stomach, liver, Wed Nov 26 9:20:47 PST 2014 For those just joining, we're chatting today about hard to treat cancers (lung, brain, pancreas, ovarian, etc) Wed Nov 26 9:20:52 PST 2014 welcome Susflynn! Wed Nov 26 9:21:04 PST 2014 We've not been able to find a good screening test in ovarian cancer test, despite tremendous international effort. Wed Nov 26 9:21:26 PST 2014 Susan could you say more about screening for Wed Nov 26 9:21:26 PST 2014 Thanks, it's Susan from Screening Saves Lives ON Division Wed Nov 26 9:21:40 PST 2014 Thoughts about lung cancer screening for early detection? Wed Nov 26 9:22:03 PST 2014 There are new screening for lung cancer that seems promising

8 Page 8 of 16 Wed Nov 26 9:22:09 PST 2014 what are some of the problems these international efforts are facing? Wed Nov 26 9:22:16 PST 2014 You read my Wed Nov 26 9:22:46 PST 2014 Screening for colorectal is lower in some communities due to lack of tailored screening information Wed Nov 26 9:22:47 PST Screening for hard to treat can be tricky especially if treatment doesn't help, but there is promise for lung (1) Wed Nov 26 9:23:08 PST 2014 The large RCTs to date have shown that what we thought might be effective, simply isn't unfortunately. Wed Nov 26 9:23:14 PST @MichaelChaiton Tobacco-related cancers include: bladder, cervix, colon, mouth & throat, pancreas, stomach, Wed Nov 26 9:23:40 PST 2014 Brain cancers are often not detected because symptoms (headaches, nausea, numbness) are often attributed to other factors. #CCSRIChat Wed Nov 26 9:23:43 PST 2014 We have tried ultrasound, transvaginal ultrasound, CA125 screening and a combination of the three. Wed Nov 26 9:24:06 PST if screening includes smoking cessation (either naturally or formally) then it may be clearly helpful! Wed Nov 26 9:24:17 PST Great point! That is also true in ovarian cancer. Symptoms are nonspecific...bloating, cramping, etc. Wed Nov 26 9:24:46 PST 2014 If no symptoms present, people tend not to get screened and miss early detection and less invasive treatment options Wed Nov 26 9:25:08 PST 2014 Do we have anything to learn from breast cancer for these hard to treat cancers,

9 Page 9 of Wed Nov 26 9:25:11 PST 2014 There's also the issue of inequitable access to cancer screening across Canada Wed Nov 26 9:25:18 PST 2014 What are some of the reasons for limitations to Wed Nov 26 9:26:03 PST 2014 Also talk about obstacles to access? Wed Nov 26 9:26:39 Research $$$ pay off. #CCSRIChat Wed Nov 26 9:27:19 PST In addition, financial access is a barrier for some people - tests are free, but transportation is not Wed Nov 26 9:27:43 PST 2014 Travel from remote communities, cost of parking at hospitals, fear that provider will not understand cultural or language needs Wed Nov 26 9:28:00 PST 2014 You can find info about screening on cancer.ca, for example colorectal Wed Nov 26 9:28:34 Certainly using BRCA1/2 as a tool to determine risk has been advanced in breast.@gillianehanley #CCSRIChat Wed Nov 26 9:29:00 PST 2014 Profile on Society-funded research: Major international lung cancer clinical trial launched Wed Nov 26 9:29:38 PST 2014 We've had huge success with organized provincial cervical cancer screening programs. That level of organization seems key. Wed Nov 26 9:29:53 PST 2014 Want to read more about Lisa Porter s research? Unraveling The Mystery Of Brain Cancer Wed Nov 26 9:30:14 PST 2014 You can learn more on colorectal, breast and cervical screening for LGBT communities on

10 Page 10 of 16 Wed Nov 26 9:30:21 PST 2014 jennybyford Important! MT Inactivity is a risk factor for gynecologic cancers because of role of hormones and fat cells Wed Nov 26 9:30:31 Yes, and I think as costs of genetic testing continue to decrease we will continue to see benefits. Wed Nov 26 9:30:56 PST 2014 What could be the next organized screening program, in our panel's opinion? Wed Nov 26 9:31:09 PST Awareness of the importance of these symptoms, by patients and physicians, alone would improve detection. #CCSRIChat Wed Nov 26 9:31:16 PST 2014 For those joining the chat - we're talking about hard to treat cancers and currently on T2: the challenges of detection... Wed Nov 26 9:32:23 PST Agreed. The problem is that by the time women seek care for symptoms, they are usually at advanced stage. Wed Nov 26 9:32:25 PST 2014 bupatii tweet chat on tackling the toughest cancers has begun. Follow along with the hashtag #CCSRIChat Wed Nov 26 9:32:55 PST 2014 Promotion of provincial screening programs needs to be tailored specifically to UNS communities to increase screening Wed Nov 26 9:33:06 PST 2014 From the room - the same thing could be said for pancreatic - by the time symptoms appear, it's already at an advanced stage Wed Nov 26 9:33:19 PST 2014 UNS = under or never screened, Wed Nov 26 9:33:37 New study in lancet found that 5.4% of cancer attributable to BMI in women Wed Nov 26 9:34:23 How are we doing with provincial colorectal screening programs? Does Ontario have organized screening?

11 Page 11 of 16 Wed Nov 26 9:34:26 Do you think following Ca125 will ever be reliable enough for a large scale screening tool? #CCSRIChat Wed Nov 26 9:34:37 PST correct Wed Nov 26 9:34:42 PST 2014 Let's talk a bit more about lung cancer screening too - what is the promising method? Wed Nov 26 9:34:45 PST 2014 Another important thing to consider is coordination of the health care system so screening happens appropriately and universally Wed Nov 26 9:35:02 PST 2014 I didn't know this screening resource for LGBTQ communities existed - thank you for sharing! #CCSRIChat Wed Nov 26 9:35:19 PST 2014 I didn't know this screening resource for LGBTQ communities existed - thank you for sharing! #CCSRIChat Wed Nov 26 9:35:19 PST There are some promising results looking at a CA125 algorithm combined with transvaginal ultrasound for Ov Cancer. Wed Nov 26 9:36:30 PST 2014 There is a Canadian Partnership Against Cancer report on screening Wed Nov 26 9:36:39 PST 2014 We'll be moving to T3: treatment soon. Any last questions on T2: detection for our panel? Wed Nov 26 9:37:45 PST RCT of lung cancer CT screening has been shown to be effective in the US Wed Nov 26 9:38:34 @ Yes, rates very below targets especially in First Nations, South Asian, newcomer Wed Nov 26 9:38:50 PST 2014 Promoting healthy lifestyle is important but many cancers are not preventable. #CCSRIChat

12 Page 12 of 16 Wed Nov 26 9:40:01 PST 2014 Such an important risk factor that many don't realize! "5.4% of cancer attributable to BMI in women" Wed Nov 26 9:40:25 PST There is some indication that it might be cost effective as well according to recent NEJM article. Wed Nov 26 9:40:42 PST 2014 Society-funded research on underscreened Wed Nov 26 9:40:52 PST 2014 drgwen23 Now this is an interesting one Poop that lights up when cancer is present Wed Nov 26 9:40:58 PST 2014 Profile on Society-funded research: BRCA gene mutation can also lead to pancreatic cancer Wed Nov 26 9:41:13 PST 2014 khushsaxena22 Profile on Society-funded research: BRCA gene mutation can also lead to pancreatic cancer Wed Nov 26 9:41:14 PST 2014 Profile on Society-funded research: BRCA gene mutation can also lead to pancreatic cancer #ccsric Wed Nov 26 9:41:32 PST I think the cost effectiveness and effectiveness depend on successful in getting those screened to quit Wed Nov 26 9:41:39 PST 2014 Get ready for T3 Wed Nov 26 9:41:51 PST 2014 T3: What are some of the ways hard-to-treat cancers defy treatment and what are we learning about how to overcome this? Wed Nov 26 9:42:01 PST 2014 If you want to ask a question still about T1 (risk/prevention) or T2 (detection) you can use the topic numbers :) Wed Nov 26 9:42:30 PST 2014 Dr Kelly Fathers from the Society notes there are treatment options emerging for hard to treat

13 Page 13 of 16 Wed Nov 26 9:43:46 PST 2014 Now I can post :) Some childhood cancers are driven by immature cells with no previous drugs to target. #CCSRIChat Wed Nov 26 9:44:06 PST 2014 Ovarian cancers are almost always diagnosed in advanced stages where treatment is challenging and overall survival is low. Wed Nov 26 9:44:07 PST 2014 zummachd I think there's a perception among many people that "we already KNOW" tobacco causes cancer. But we're not done tobacco c Wed Nov 26 9:44:34 PST 2014 Dr Fathers continues: these cancers often become resistant to these treatments - ie. lung cancer Wed Nov 26 9:44:41 PST 2014 Generally speaking, ov cancer responds to treatment initially but recurs as treatment resistant disease. Wed Nov 26 9:44:53 PST The same can be said for pancreatic cancer Wed Nov 26 9:45:48 PST Can you say more about your work on neuroblastoma? Wed Nov 26 9:46:32 PST 2014 Is there any promising research on hart-to-treat cancers? Wed Nov 26 9:47:13 PST 2014 Some promising research on hard to treats based in UK Wed Nov 26 9:48:17 PST We are focused on determining where neuroblastomas start so we can target the cells driving them. #CCSRIChat Wed Nov 26 9:49:10 PST 2014 We're seeing some small advances as new drugs are being intrdoduced Wed Nov 26 9:49:22 PST Question from the room: do the cells driving NB cause relapse? Are you studying that? Wed Nov 26 9:51:04 PST 2014

14 Page 14 of could you also say a bit more about the work you're planning with your Capacity Development Grant? Wed Nov 26 9:52:06 PST 2014 We have discovered one protein that plays a role in making some brain cancers resist therapy. #CCSRIChat Wed Nov 26 9:52:10 PST the NCIC clinical lung cancer trial is a great example of that Wed Nov 26 9:52:27 PST We also are funding a trial led by Chris Booth on exercise to reduce recurrence of colorectal cancer Wed Nov 26 9:52:51 PST 2014 Last call for questions on T3: treatment - we have about 7 minutes left... Wed Nov 26 9:53:46 PST 2014 Are there other lifestyle factors that can impact response to treatment? Wed Nov 26 9:53:51 PST We are researching primary ovarian cancer prevention by removing the cells where most ovarian cancer originate. Wed Nov 26 9:55:05 PST smoking cessation, of course. Also exercise (CCSRI funded research) Wed Nov 26 9:55:20 PST We are examining the role of fallopian tube removal at the time of hysterectomy or in lieu of tubal ligation. Wed Nov 26 9:55:59 PST 2014 Question from the - where are you removing the cells from? Wed Nov 26 9:56:28 PST 2014 It's important to remember connections from prevention to treatment - treating fewer people because of prevention is ideal Wed Nov 26 9:56:35 PST 2014 Question from the do you see targeted therapy as the way to treat brain cancer and NB? Wed Nov 26 9:57:06 PST great point!

15 Page 15 of 16 Wed Nov 26 9:57:27 PST we now know that most ovarian cancer (~70%) originate in the fallopian tube and not the ovary. Wed Nov 26 9:57:38 PST 2014 OK we'll get ready to wrap up Wed Nov 26 9:58:07 PST 2014 Thank you to our Dr for a great chat! Wed Nov 26 9:59:02 PST I couldn't agree more! Wed Nov 26 9:59:03 PST 2014 Thanks for hosting the informative chat! #CCSRIChat Wed Nov 26 9:59:17 PST 2014 Many thanks! Wed Nov 26 9:59:25 PST 2014 Drs Hanley, Chaiton, Minaker and Porter have been chatting today about hard to treat cancers Wed Nov 26 9:59:30 PST absolutely - targeting the mechanism driving the most aggressive cell populations appears to be key! #CCSRIChat Wed Nov 26 9:59:38 PST 2014 Watch for our next in the new year Wed Nov 26 9:59:44 @ Thanks everyone! Wed Nov 26 9:59:50 PST 2014 We'll post the transcript online soon... :) Wed Nov 26 10:00:09 Thanks for a great chat! Wed Nov 26 10:01:02 PST 2014

16 Page 16 Thanks everyone! #CCSRIChat Wed Nov 26 10:03:41 PST 2014 jennybyford Great information Transcript to come #CCSRIchat Wed Nov 26 10:03:52 PST 2014