Results (continued) Accuracy of Self-Reported Eye Conditions by Patients with Retinal Conditions**

Size: px

Start display at page:

Download "Results (continued) Accuracy of Self-Reported Eye Conditions by Patients with Retinal Conditions**"

Maurice Charles
5 years ago
Views:

How Accurately Do Retina Patients Report Their Ocular History? Results from an On-Site Screening Program in Senior Living Communities.

2 Warner School for Education and Human Development, University of Rochester, Rochester, NY, USA Objectives & Background Among Americans over age 65, one in three have vision-impairing eye disease.

Little is known, however, about how accurately retina patients report their ocular history.

Methods Subjects in this IRB approved study were volunteers age 55 and older from two senior living communities in Rochester, NY (N=204) who participated in a screening and education program.

1 How Accurately Do Retina Patients Report Their Ocular History? Results from an On-Site Screening Program in Senior Living Communities. Brian Harrow, MD 1, Silvia Sörensen, PhD 1,2, Kevin Kirk, MD 1, Rajeev S. Ramchandran, MD, MBA 1 1 Department of Ophthalmology, University of Rochester Medical Center, Rochester, NY, USA,. 2 Warner School for Education and Human Development, University of Rochester, Rochester, NY, USA Objectives & Background Among Americans over age 65, one in three have vision-impairing eye disease. The most widely administered population based survey, the Behavioral Risk Factor Surveillance System, uses telephone self-reporting to collect data on vision. Little is known, however, about how accurately retina patients report their ocular history. This study assessed how accurately older adults report their prior ocular history in comparison with their ophthalmology records. Methods Subjects in this IRB approved study were volunteers age 55 and older from two senior living communities in Rochester, NY (N=204) who participated in a screening and education program. We assessed their recall of their eye disease and self-reported amount of time from their last eye exam (ATLEE) (responses grouped by months (M) as follows: M<1, 1<M<12, 12<M<24, M>24), and we compared them to the last visit notes from their self-reported eye doctor, which served as the gold standard for accuracy and contingency table analysis. Results Accuracy of Self-Reported Eye Conditions by Patients with Retinal Conditions** ** Retinal Conditions: Diabetic Retinopathy (3), ARMD (28), Retinal Detachments (2), and Retinal Tears (5). N: The number of patients reporting on whether they do or do not they have a condition. % Acc. (Accuracy): In this context, the proportion of patients who correctly report whether they do or do not have a condition. For example, 13 patients reported on whether or not they have diabetic retinopathy. Even though only 3 actually have it, most of the patients correctly identified that they do not have it. Sn (Sensitivity): In this context, the proportion of patients with a condition that correctly report having the condition. Sp (Specificity): In this context, the proportion of patients without a condition that correctly report not having the condition. PPV (Positive Predictive Value): In this context, the proportion of patients who report having a condition that actually have the condition. Acknowledgements: The research reported on this poster was primarily supported by NIH National Institute on Aging Award # R03AG048111; with additional support by NIH Clinical and Translational Science Institute Grant # UL1 TR and Research to Prevent Blindness (RPB). The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health or Research to Prevent Blindness. Amount of Time from Last Eye Exam (ATLEE): Characteristics of a Self-Reported Measure Ø Correctly reported ATLEEs were smaller than incorrectly reported ones (7.8 vs months, p<0.001). Ø Correctly reported ATLEE depended strongly on actual ATLEE (p<0.000), but not on other measures. Conclusions Retina patients self-reported their retinal conditions very accurately. Compared to non-retina patients, they had more recent eye exams, and better recall of how much time had passed since having one. Recency of eye exams strongly correlated to a measure of patient eye-health knowledge, suggesting that more frequent eye care engagement could improve other aspects of patient eye-health knowledge.

2 Methods 1. Seniors (n = 204) from two SLFs were screened for eye disease and completed baseline questionnaires. 2. Eye screening included visual acuity, fundus photography and ocular coherence tomography (OCT) scan. 3. A follow-up session included group education on eye health and eye diseases affecting older adults, and review of a personalized eye screening report containing the subject s own fundus and OCT images. 4. Subjects completed eye health knowledge quizzes and surveys on quality of life, vision function (VFQ- 25), health status, and service satisfaction. 5. Survey responses from subjects with self-reported retinal conditions* ( retinal patients ) and without self-reported retinal conditions ( other eye patients ) were compared. * Retinal conditions included diabetic retinopathy, age-related macular degeneration, retinal tear and/or retinal detachment.

3 Results

4 Amount of Time from Last Eye Exam (ATLEE): Characteristics of a Self-Reported Measure ØCorrectly reported ATLEEs were smaller than incorrectly reported ones (7.8 vs months, p<0.001). ØCorrectly reported ATLEE depended strongly on actual ATLEE (p<0.000), but not on other measures.

5 How Accurate Are Self-Reported Eye Conditions by Patients with Retinal Conditions**? ** Retinal Conditions: Diabetic Retinopathy (3), ARMD (28), Retinal Detachments (2), and Retinal Tears (5). N: The number of patients reporting on whether they do or do not they have a condition. % Acc. (Accuracy): In this context, the proportion of patients who correctly report whether they do or do not have a condition. For example, 13 patients reported on whether or not they have diabetic retinopathy. Even though only 3 actually have it, most of the patients correctly identified that they do not have it. Sn (Sensitivity): In this context, the proportion of patients with a condition that correctly report having the condition. Sp (Specificity): In this context, the proportion of patients without a condition that correctly report not having the condition. PPV (Positive Predictive Value): In this context, the proportion of patients who report having a condition that actually have the condition.

6 Conclusions Retina patients self-reported their retinal conditions very accurately. Compared to non-retina patients, they had more recent eye exams, and better recall of how much time had passed since having one. Recency of eye exams strongly correlated to a measure of patient eye-health knowledge, suggesting that more frequent eye care engagement could improve other aspects of patient eye-health knowledge. THANK YOU The research reported on this poster was primarily supported by NIH National Institute on Aging Award # R03AG048111; with additional support by NIH Clinical and Translational Science Institute Grant # UL1 TR and Research to Prevent Blindness (RPB). The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health or Research to Prevent Blindness.

Diagnosis and treatment of diabetic retinopathy. Blake Cooper MD Ophthalmologist Vitreoretinal Surgeon Retina Associates Kansas City

Diagnosis and treatment of diabetic retinopathy Blake Cooper MD Ophthalmologist Vitreoretinal Surgeon Retina Associates Kansas City Disclosures Consulted for Novo Nordisk 2017,2018. Will be discussing