The Brain Storms Village Epilepsy in our World by Steven Schachter & Lisa Andermann
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1 Epilepsy In Africa
2 The Brain Storms Village Epilepsy in our World by Steven Schachter & Lisa Andermann People with Epilepsy 21 different countries Global village: world events, technology & advances in Medical science. Daily concerns: very similar yet worlds apart
3 Focus of the book How people cope with Seizures Impact of Epilepsy on their lives/relationships Variety of terms to describe Seizures Attacks, crises, fits, breakouts, trembling, convulsions & insults
4 Recurring Themes Search for answers to their Epilepsy Importance of family & friends Isolation, fear Rejection, Stigmatization Shame, self-blame Alternative therapies Need for Public Education Faith & Hope for the future
5 The International League against Epilepsy ( ILAE) International Congress of Medicine held in 1909 in Budapest decision to start a World wide organization: ILAE Goal of ILAE: with the cooperation of all countries, to make the Epilepsy problem the object of special study, to make practical use of the Result of such studies. By papers, demonstrations & personal exchange of ideas knowledge of the disease may be advanced, its deleterious effect diminished
6 ILAE-IBE-WHO WWI & WW2 interrupted ILAE activities Regrouped in 1933: Social care of people with Epilepsy & Scientific research in Epilepsy International Bureau for Epilepsy (IBE): 1961 a group within ILAE World Health Organization (WHO): In 1971 the ILAE was accepted by WHO as a nongovernmental organization to support people with Epilepsy
7 Collaborative work for Epilepsy ILAE: professional arm IBE : public arm WHO: political arm GCAE: Global Campaign against Epilepsy: launched in Geneva on June 19, 1997 ILAE/IBE/WHO/GCAE: improvement of diagnosis, treatment, prevention, & social acceptability of the disorder
8 Africa Declaration on Epilepsy A conference on Epilepsy: A Healthcare Priority in Africa held in Dakar, Senegal, Africa on May 5-6, 2000 Epilepsy is the most common serious chronic brain disorder, irrespective of race, religion, sex, age, or socioeconomic status, & is estimated to affect at least 50 million people world wide & 10 million people in Africa alone
9 Cameroon, W Africa
10 Epilepsy in Cameroon Believed to be caused by ill will, supernatural forces and witchcraft Beliefs lead to high levels of stigmatism, incrimination & discrimination Implication socially: may be hidden away by their family, most do not receive education or work in addition to immense human tragedy Devastating social & economic problem
11 Patient seen at Ngoundere
12 Cameroon: Medical Experts Investigate Epilepsy Epidemic Epilepsy becoming apparent epidemic in Momo Division, Northwest Province 40 % of their adult population have Epilepsy Early childhood onset seizure disorder lasts into adulthood, often life long The cause of Epilepsy in this area is from the parasitic infection: Neuro-cysticerosis caused by taenia solium. Affects man & pigs.
13 Neuro-cysticerocosis The most common parasitic infection of the brain & a leading cause of Epilepsy in the developing world, especially Latin America, India, Africa & China. Cysticercosis is a parasitic infection, that results from ingestion of eggs from the adult tapeworm When cysticercosis involves the central nervous system it is call Neuro-cysticercosis Higher % of Neurocysticercosis in area where pigs are raised as a food source.
14 International Bureau for Epilepsy: Project in Cameroon IBE: Committed to finding new & innovative solutions to the problems impacting people with Epilepsy & their families Cammeroon Association against Epilepsy (ACCE) - Tomoto Growing Project People with Epilepsy: the living dead Community Plots : develop self sufficiency Combat: Misguided beliefs
15 Treating Epilepsy Phenobarbital Drug- most used medication Antiparasitic drugs: Albendazole & Praziquantel to treat Neurocysticercosis Educationional sessions We must combat misguided beliefs
16 Education is so Important
17 You can never have too much Education
18 The Cameroonians are interested in Learning!
19 Trying to Prevent Burns
20 Getting the Patients history
21 The Team!
22 Questions??
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