Citation for published version (APA): Schoenmaker, N. J. (2013). Management & monitoring of paediatric end-stage renal disease

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1 UvA-DARE (Digital Academic Repository) Management & monitoring of paediatric end-stage renal disease Schoenmaker, N.J. Link to publication Citation for published version (APA): Schoenmaker, N. J. (203). Management & monitoring of paediatric end-stage renal disease General rights It is not permitted to download or to forward/distribute the text or part of it without the consent of the author(s) and/or copyright holder(s), other than for strictly personal, individual use, unless the work is under an open content license (like Creative Commons). Disclaimer/Complaints regulations If you believe that digital publication of certain material infringes any of your rights or (privacy) interests, please let the Library know, stating your reasons. In case of a legitimate complaint, the Library will make the material inaccessible and/or remove it from the website. Please Ask the Library: or a letter to: Library of the University of Amsterdam, Secretariat, Singel 425, 02 WP Amsterdam, The Netherlands. You will be contacted as soon as possible. UvA-DARE is a service provided by the library of the University of Amsterdam ( Download date: 20 Dec 208

2 Portfolio & Publications 69

3 AMC Graduate School for Medical Sciences PhD portfolio Summary of PhD training, teaching and parameters of esteem Name PhD student: Nikki Schoenmaker PhD period: June December Promotor: Co-promotores: Prof. dr. M. Offringa Dr. J.W. Groothoff & Dr. J.H. van der Lee I. PhD training Year Workload General courses (ECTS) - Basic course in legislation and organisation for clinical researches - Oral presentation in English - Clinical Epidemiology - Practical Biostatistics - Scientific Writing in English for Publication - PD university basic course, Division of Nephrology Amsterdam Course on Epidemiology, ERA-EDTA Salzburg Oostenrijk - Masterclass of prof. dr. Gordon Guyatt, Emma children s Hospital, Amsterdam Oral Presentations Echocardiography in children with ESRD. Nederlandse Vereniging voor Kindergeneeskunde, Veldhoven - RICH-Q ; Baseline results and Agreement in diagnosing LVH. Nederlandse Nefrologie Dagen, Veldhoven - Renal Insufficiency therapy in Children -Quality assessment and improvement. Hans Mak Instituut Symposium. Toekomst Muziek, Bussum - TDI gevoeliger voor vroege detectie diastolische dysfunctie. Nederlandse Vereniging voor Kindergeneeskunde, Veldhoven. - Agreement in diagnosing LVH. Nederlandse Nefrologie Dagen, Veldhoven

4 - Richtlijnen voor de behandeling van kinderen met terminale nierinsufficiëntie. Nierstichting symposium Uit de kinderschoenen, Driebergen Poster Presentations - Intra and Inter-observer reproducibility in echocardiography in children with ESRD. International Pediatric Nephrology association, New York USA - Peritoneal dialysis-associated complications in Dutch and Belgian children. International Pediatric Nephrology association, New York USA - Current guidelines for the management of chronic dialysis in children: a systematic review. European Society Pediatric Nephrology, Dubrovnik Croatia. - Low agreement between cardiologists in diagnosing LVH in children with ESRD (nominee best poster award). European Society Pediatric Nephrology, Dubrovnik Croatia. - Diastolic function measured by Tissue Doppler Imaging in children with End Stage Renal Disease. European Society Pediatric Nephrology, Dubrovnik Croatia. - Low agreement between cardiologists in diagnosing LVH in children with ESRD. Association of European Paediatric Cardiology, Malaga Spain - Diastolic function measured by Tissue Doppler Imaging in children with End Stage Renal Disease. Association of European Paediatric Cardiology, Malaga Spain International conferences - International Pediatric Nephrology association, New York USA - European Society Pediatric Nephrology, Dubrovnik Croatia. - RICH-Q Advisory Board Meetings, twice a year. Amsterdam, Rotterdam, Utrecht, Antwerp, Liege, Brussels (Belgium) and Cologne (Germany)

5 II. Teaching Year Workload (ECTS) Lecturing - Lecture: Cohort studies. Third year Medical students - Bijscholing Kindernefrologie for dialysis nurses Supervising - Barend Geverd Dynoot. Second year Medical student. The psychosocial background of children with End-stage renal disease. - Silvia Tiebout. Third year Medical student. Primary diagnosis of End-stage renal disease - Tamara den Harink. Third year Medical student. Primary failure of PD catheters - Jelske van den Burg. Masterthesis. Hypertension in non- Western and Western European children III. Parameters of esteem Year Prizes - Low agreement between cardiologists diagnosing left ventricular hypertrophy in children with end stage renal disease. Abstract award, best clinical science. Pediatric Clinics Amsterdam - AMC by night. Poster award, most original study. Pediatric Clinics Amsterdam

6 Publications This thesis Wilma F. Tromp, Nikki J. Schoenmaker, Johanna H. van der Lee, Brigitte Adams, Antonia H. Bouts, Laure Collard, Rita Van Damme-Lombaerts, Koenraad J. Van Hoeck, Nathalie Godefroid, Linda Koster-Kamphuis, Karlien Cransberg, Marc R. Lilien, Ann Raes and Jaap W. Groothoff. Important differences in management policies for children with ESRD in the Netherlands and Belgium. Nephrol Dial Transplant. Nephrol Dial Transplant. May;27(5): Nikki J. Schoenmaker - Maike van Huis, Jaap W. Groothoff, Johanna H. van der Lee, and Karlien Cransberg,on behalf of the RICH-Q group. Policy variation in donor and recipient status in paediatric renal transplantation centres. Pediatr. Nephrol. 203 January; Epub ahead of print Nikki J. Schoenmaker, Wilma F. Tromp, Johanna H. van der Lee, Brigitte Adams, Antonia H. Bouts, Laure Collard, Rita Van Damme-Lombaerts, Koenraad J. Van Hoeck, Nathalie Godefroid, Linda Koster-Kamphuis, Karlien Cransberg, Marc R. Lilien, Ann Raes and Jaap W. Groothoff. Disparities in Dialysis Treatment and Outcomes for non-western children in the Netherlands and Belgium. Pediatr Nephrol. Aug;27(8): Nikki J. Schoenmaker, Irene M. Kuipers, Wilma F.Tromp, Johanna H. van der Lee, Marc Gewillig, Jaap Ottenkamp and Jaap W. Groothoff. Diastolic function measured by Tissue Doppler imaging in pediatric patients with ESRD Report of the RICH-Q study. Cardiol Young. 203 Mar 5; -9:Epub ahead of print Nikki J. Schoenmaker, Wilma F. Tromp, Johanna H. van der Lee, Martin Offringa, Jonathan C. Craig, and Jaap W. Groothoff. Quality and consistency of clinical practice guidelines for the management of children on chronic dialysis. Revision Nephrol Dial Transplant Nikki J. Schoenmaker, Lotte Haverman, Wilma F.Tromp, Johanna H. van der Lee, Martin Offringa, Brigitte Adams, Antonia H. M. Bouts, Laure Collard, Karlien Cransberg, Maria van Dyck, Nathalie Godefroid, Koenraad van Hoeck, Linda Koster-Kamphuis, Marc R. Lilien, Ann Raes, Christina Taylan, M.A. Grootenhuis and J.W. Groothoff. Non-Western immigrant children with end-stage renal disease in the Netherlands, Belgium and a part of Germany have impaired health related quality of life compared to Western children. Submitted Nikki J. Schoenmaker, J.H. van der Lee, J.W. Groothoff, G. van Iperen, I.M.E. Frohn-Mulder, R.B.Tanke, J. Ottenkamp and I.M.Kuipers. Low agreement between cardiologists diagnosing left ventricular hypertrophy in children with end stage renal disease. Revision BMC Nephrology 73

7 Nikki J. Schoenmaker, Jaap W. Groothoff, Johanna H. van der Lee, Maria van Dyck, Marc Gewillig, Linda Koster, Ronald Tanke, Nico A. Blom, Luc Mertens and Irene M. Kuipers. Impaired longitudinal deformation measured by Speckle Tracking Echocardiography in children with End-stage renal disease. Submitted Others: Nikki J. Schoenmaker, Jan J. Weening and Raymond T. Krediet. Ibuprofen-induced HUS: case report. Clinical Nephrology. 2007; volume 68-No3: Nikki J. Schoenmaker, Marianne D. van de Wetering and Dasja Pajkrt. Invasive fungal infections in paediatric patients with a haematological malignancy: a ten years retrospective survey in a Dutch tertiary hematologic centre. Pediatric Clinics Amsterdam. 2009; volume 20(4): 4-6. Jelske W van der Burg, Nikki J. Schoenmaker, Jaap W Groothoff, Johanna H van der Lee; on behalf of the RICH-Q group. Non-Western immigrant children with end-stage renal disease have higher blood pressures than Western European patients. In progress Maike van Huis, Nikki J. Schoenmaker, Johanna H van der Lee, Marc G. Vervloet, Jaap. W. Groothoff. Klotho in anephric children. E letter to Nephrol Dial Transplant. Accepted 74