Development of multidisciplinary innovative strategies for the care of the Romanian individual with cleft lip and/or palate

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1 Development of multidisciplinary innovative strategies for the care of the Romanian individual with cleft lip and/or palate Bucharest, September 22 nd 24 th, 2014

2 Monday Registration Bucharest, September 22-24, 2014 Meeting schedule Session 1 Moderators: Bill Shaw, Gunvor Semb, representative of UMF Carol Davila Radu Spataru: Introductory speech UMF Carol Davila: Speech from the University representative Bill Shaw: The challenge of improving standards of cleft care. Evidence based care Gunvor Semb: International collaboration in cleft care Lidia Boboc: Eurocleft in Romania Coffee break Session 2 Moderators: Elisabeth Rønning, Nina Lindberg, Ragnhild Aukner Lidia Boboc: Brief terminology of clefts Gunvor Semb: History and development of the Oslo Cleft Team Nina Lindberg: The nurse s role in cleft care; Feeding babies, follow-ups in pregnancy, pre- and postoperative care Michael Matzen: Primary surgery: lip and palate closure Discussions Lunch Session 3 Moderators: Jorunn Lemvik, Pål Skaare, Kristin Billaud Feragen Michael Matzen: Alveolar bone grafting Ragnhild Aukner and Jorunn Lemvik: CLP: Influences and consequences for speech and language. Assessment and interventions Kristin Billaud Feragen: The psychologist s role in the cleft team Elisabeth Rønning and Pål Skaare: Orthodontic protocol and treatment Gunvor Semb: Factors that influence the outcome of alveolar bone grafting. A study of 825 patients Discussions Gala dinner

3 Tuesday Session 4 Moderators: Charles Filip, Gunvor Semb, Dan Enescu Charles Filip: Surgical treatment of velopharyngeal insufficiency Michael Matzen: Secondary Surgery of the cleft lip Elisabeth Rønning and Pål Skaare: Orthodognathic surgery. Prosthodontic treatment Gunvor Semb: 20 years follow-up of patients born with unilateral- and bilateral cleft lip and palate. Burden of care Coffee break Session 5 Moderators: Michael Matzen, Catalin Carstoveanu, Ion Nicolescu Catalin Carstoveanu. "Pierre Robin sequence - neonatal management" Charles Filip: Pierre Robin - Sequence Radu-Iulian Spataru: Challenges and dilemmas in oral surgery Radu Spataru: Surgical approach in our cleft surgery unit Ion Nicolescu: Maxillofacial surgery aspects in patients with clefts Lidia Boboc: Frequent problems encountered by the orthodontists when treating patients with clefts Ionela Ghiozdavu: Speech therapy for children with clefts Discussions Lunch Session 6 Moderators: Emil Urtila, Ileana Ionescu, Marcel Albean, Sidonia Susanu min presentation of Romanian Cleft Centres Lidia Boboc: Romanian Cleft Register Proposal Coffee break Session 7 Moderators: Lidia Boboc, Radu-Iulian Spataru, Mariana Pacurar, Irina Zetu Discussion Romanian Cleft Register Form Radu Spataru: Presentation of Good principles in cleft care and Parents leaflet Discussions Wednesday Session 8 Moderators: Gunvor Semb, Radu-Iulian Spataru, Ionela Ghiozdavu Gunvor Semb: The Scandcleft trials of primary surgery in patients born with

4 unilateral cleft lip and palate Ragnhild Aukner and Jorunn Lemvik: Speech pathologists experience from participating in the Scandcleft and Tops trials Kristin Billaud Feragen: Coping with visible difference and the burden of treatment Radu-Iulian Spataru: Romania Cleft perspectives Break down into specialities groups + Cofee break in the mean time End of meeting

5 The OSLO CLP TEAM Dr. Michael Matzen Cleft Plastic Surgeon Dr. Charles Filip Cleft Plastic Surgeon Nina Lindberg Specialist Cleft Nurse dr. Kristin Billaud Feragen Cleft Psychologist Ragnhild Aukner Speech Pathologist Jorunn Lemvik Speech Pathologist Dr. Elisabeth Rønning Dr. Pål Skaare Prof. Dr. Gunvor Semb Eurocleft steering group Prof. Dr. Bill Shaw Eurocleft steering group Special guest Manchester

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