The librarian will see you now: The role of information professionals in shared decision-making. Dr Caroline De Brún, DipLIS

Transcription

1 The librarian will see you now: The role of information professionals in shared decision-making Dr Caroline De Brún, DipLIS

2 Background Access to NHS Summary Care Records Department of Health Equity and excellence: Liberating the NHS No decision about me without me Shared decision-making Information = data not evidence Salzburg Statement on Shared Decision-making 18 countries, 58 people patients have a right to be equal participants Lack of information support for patients and carers 15 million people, in England, with at least one chronic condition 2 The role of information professionals in shared decision-making

3 Evidence-Based Patient Choice (EBPC) Source: (Sackett, 1997, De Brún et al., 2012) 3 The role of information professionals in shared decision-making

4 Mixed methods research methodology Literature review: Summary care records Digitally excluded Quality of online health information Shared decision-making Evolution of mobile technology Health information literacy Knowledge management and the future of public library services Surveys: London Borough of Tower Hamlets Haughton and Thornley Medical Centres, Cheshire and Manchester Alzheimer s Show, London Public and medical librarians, England 4 The role of information professionals in shared decision-making

5 Key findings patients and carers Want to be involved in the treatment decision-making process; Do search for health information online, particularly those with chronic conditions; Are unaware of all the resources available to them; Experience difficulties finding good quality consumer health information; Would like easier access to good quality health information; Would like to either learn to search more effectively or to have someone to search for them, or resources to help them with their searching. Don t have access to the range of evidence-based products and support that clinicians have. 5 The role of information professionals in shared decision-making

6 Access to information services Medical libraries: 33 UK medical librarians responded NHS Direct 500,000 enquiries per year Service provision varies from reference-only to answering specific questions Information skills training is not provided to the general public 2 libraries provided training to public librarians 1 library provided mediated searches (patient working with the librarian) 1 Trust trains hospital volunteers to help them advise patients and carers on good quality Internet resources Public libraries: 9 UK librarians responded 8 answer health information queries 1 answers 25,000 enquiries per year 6 The role of information professionals in shared decision-making

7 Barriers to EBPC Lack of awareness of existing consumer health information products, and lack of information skills; Variation in health information service provision for the general public; Low quality online consumer health information and variation in terminology; Lack of information skills; Poor access to full-text research papers. 7 The role of information professionals in shared decision-making

8 Recent NHS products Resource name Access details Behind the Headlines Established HealthSpace Closed March 2013 HealthTalk Online Established HealthVault Established May Information Prescriptions Established January The Information Standard Established NHS 111 Established NHS Choices Established NHS Direct Closed March 2014 NHS Shared Decision-Making Established Patient.co.uk Established Patient Online Established May The role of information professionals in shared decision-making

9 Barriers to EBPC Lack of awareness of existing consumer health information products, and lack of information skills; Variation in health information service provision for the general public; Low quality online consumer health information and variation in terminology; Lack of information skills; Poor access to full-text research papers. 9 The role of information professionals in shared decision-making

10 Benefits of the expert patient Patient empowerment Improved treatment adherence Reduced length of stay and re-admissions Fewer incidences of medical errors and litigation 10 The role of information professionals in shared decision-making

11 Librarians and shared decision-making Peripatetic librarian extension of outreach/clinical librarians Collaborations: among the library sector with PALS (Patient Advisory and Liaison Services) NHS England Information Standard Technical solution with an Ask a librarian option 11 The role of information professionals in shared decision-making

12 Peripatetic librarian concept 12 The role of information professionals in shared decision-making

13 Librarians and shared decision-making Peripatetic librarian extension of outreach/clinical librarians Collaborations: among the library sector with PALS (Patient Advisory and Liaison Services) NHS England Information Standard Technical solution with an Ask a librarian option 13 The role of information professionals in shared decision-making

14 COCO Database Gateway to quality health information for patients and carers Condition Option Choice Outcome [Enter name of condition] [Enter name of treatment] optional [Enter name of treatment alternatives] optional [Enter brief details of what you would like the outcome to be, e.g. pain relief, improved mobility] optional Fill in as many of the boxes as required and click on Search (for a computer facilitated search), or Ask A Librarian. Search Ask A Librarian My electronic health record 2013 Caroline De Brún Further resources About us Help The role of information professionals in shared decision-making 14

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16 Any questions? Dr Caroline De Brún DipLIS Knowledge and Evidence Specialist South West and Thames Valley Public Health England 16 The role of information professionals in shared decision-making