Coeliac Disease - A Guide for Nurses and Other Health Professionals - Brisbane 2016

Transcription

1 QRC: 2651 Price One Day : $451 inc. GST Two Days: $671 inc. GST Date May 2016 Venue Mercure Hotel Brisbane North Quay, Brisbane, QL, 4003 CPD Hours 12 Hours 0 Mins Coeliac Disease - A Guide for Nurses and Other Health Professionals - Brisbane 2016 Includes: Signs & Symptoms; Gluten-Free Diet; Gluten Toxicity; Medical Management; Low FODMAPs diet... Need for Program Coeliac disease is now estimated to affect approximately one in 70 Australians. However, there is a general gap in knowledge regarding this condition. Greater health literacy and known evidence provides an opportunity for health promotion. This leads to informed patients, prevention of complications and improved health outcomes. The benefits of greater clinical knowledge are also important for community awareness and understanding. As nurses and other health professionals who work in community and acute settings are most likely to encounter people with coeliac disease, it is essential they are up-to-date on the identification and management of this condition. Purpose of Program The purpose of this two-day conference is to provide professionals who work in a range of health settings with an opportunity to gain formal CPD education on coeliac disease, so as to provide evidence-based care and improve health outcomes for people living with this condition. Learning Outcomes At the conclusion of this program it is expected that the participants will be able to: Recognise common risk factors to ensure appropriate screening and diagnosis in people who may be predisposed to coeliac disease Gain knowledge of the anatomy, physiology and pathophysiology relating to coeliac disease so as to improve assessment of coeliac disease and its multi-system effects Use evidence-based knowledge of a gluten-free diet for patient education, encouraging adherence to this treatment for coeliac disease Apply correct information about coeliac disease to reduce stigma in the community and improve

2 psychosocial patient outcomes Program Schedule Day One 8:30AM Registration for Day One 9:00 Kim Cass My Experience of Coeliac Disease Coeliac disease is often thought of as an invisible disease, yet it is considered to be one of the most common lifelong diseases worldwide. This enlightening session will revealing what it is like to experience coeliac disease. The perspective of a person living with coeliac disease who is also a nurse will set the scene for this two-day conference. Includes: What is the consequence of coeliac disease being an invisible disease? What is it like to receive healthcare as a patient with coeliac disease? How is coeliac disease viewed in the community and why is this the case? 9:20 Dr Jason Tye-Din Facts about Coeliac Disease Has coeliac disease always existed? Is its prevalence increasing or have modern screening and diagnostic approaches improved our identification of this condition? This session will answer some of these questions and provide: Definition of coeliac disease - what is it and what is it not? History of coeliac disease - how did we get here? Incidence and prevalence - how common is coeliac disease and has this changed over time? Who gets coeliac disease? The 'coeliac iceberg' - understanding the significance of this concept 10:00 Dr Jason Tye-Din How and Why Does Coeliac Disease Develop? Greater research of coeliac disease has moved us closer to understanding the pathogenesis of this multi-factorial disease. This session looks at the many complex factors that cause gluten to activate an immune response and cause damage to a susceptible person. Includes: Why is gluten toxic to people with coeliac disease? How does ingesting gluten damage the intestinal lining and affect food absorption? What are the genetic and environmental factors important in the development of coeliac disease? What is the emerging role for the gut microbiome? Does breastfeeding help reduce the risk for development of coeliac disease?

3 Is there anything parents can do to reduce the risk of coeliac disease in their children? 10:45 Morning Tea 11:15 Dr Jason Tye-Din Clinical Manifestations - Signs and Symptoms of Coeliac Disease Coeliac disease presents in variable ways. Symptoms may not be present at all or may be minor or severe. This means symptoms are at times overlooked due to their non-specific nature. People may not recognise the severity of the disease until they begin to feel the positive effects of treatment. This session explains how coeliac disease presents and includes: What are signs of possible coeliac disease? How can coeliac disease affect other parts of the body and how is this clinically assessed? Why are symptoms often varied? What are typical and atypical presentations and how do they manifest in paediatric, adolescent and adult populations? Autoimmune associations in coeliac disease Malabsorption and nutritional deficiencies e.g. bone and calcium metabolism disorders Non-malignant complications e.g. neurological and reproductive disorders Malignant complications e.g. lymphoma Type I and Type II refractory coeliac disease 12:15 Dr Jason Tye-Din How is Coeliac Disease Diagnosed? Appropriate diagnosis of coeliac disease is not only the key to receiving restorative treatment but also reducing stigma around this frequently misunderstood condition. This session provides a valuable opportunity to increase your knowledge of how coeliac disease is diagnosed, thereby assisting susceptible patients to seek appropriate medical attention and receive treatment. Includes: How is coeliac disease diagnosed? Serology Small bowel biopsy HLA genotyping What is involved in screening for coeliac disease and in whom should this occur? What are the pitfalls of current diagnostic approaches? How might research improve diagnosis in the future? 1:00 Dr Jason Tye-Din Coeliac Disease or Gluten Sensitivity? Approximately 10% of Australians are now following gluten-free or wheat-free diets. In the majority of cases they do not have a formal medical diagnosis of coeliac disease. Why are people doing this? What is wheat and gluten sensitivity and how does it differ from coeliac disease? This session provides the latest information on gluten sensitivity and the medical importance of distinguishing coeliac disease from gluten sensitivity. Includes:

4 What is gluten sensitivity? What kinds of symptoms are reported in gluten sensitivity? Why is it important to distinguish coeliac disease from gluten sensitivity? What does the latest research in this field show? What role do FODMAPs or other food components play in apparent gluten or wheat sensitivity? 1:30PM Lunch Break 2:30 Dr James Daveson Medical Management Principles for a Life with Coeliac Disease Whilst a gluten-free diet is the mainstay of treatment for coeliac disease it is important for health professionals to realise that it is a chronic illness that requires ongoing medical follow-up to optimise long-term health. This session will highlight some of the key principles in ongoing care of patients. Includes: What are the key medical principles in following up patients with coeliac disease? How should compliance with a gluten-free diet be assessed? How often should patients have a small bowel biopsy? What happens when people have persistent symptoms despite a gluten-free diet? What is the role for Nutrient supplementation? Pneumococcal vaccination? Specialist versus the GP? Chronic disease management templates 3:30 Afternoon Tea 3:45 Dr Treasure McGuire Medicines and Coeliac Disease The use of medicines in coeliac disease is not considered a first line therapy for the majority of patients. However, it is important to consider the use of certain medicines, such as vitamin supplements, as a preventative strategy to avoid certain complications associated with nutritional deficiencies caused by malabsorption. This session reviews the role of medicines in coeliac disease and includes: Does an alteration to the small intestine mucosa affect the absorption of medicines? Do some medicine preparations contain gluten? What does the 'gluten free' symbol really mean? The use of complementary medicines - friends or foes? What classes of medicines may be indicated as part of treatment in coeliac disease, particularly in refractory coeliac disease? 4:45 Close of Day One of Program Day Two

5 9:00AM Commencement of Day Two 9:00 Kristina Richardson Treating Coeliac Disease with a Gluten-Free Diet Removing the environmental trigger, or toxin, - gluten - from the diet following a diagnosis of coeliac disease is critical. Understanding the indications for this major dietary change is therefore essential. This session explains the importance of a gluten-free diet and includes: How does a strict gluten-free diet benefit a person with diagnosed coeliac disease? Advocating for a formal diagnosis and the importance of gluten in the diet before testing What are the consequences of not adhering to a strict gluten-free diet, and how do nutritional deficiencies play a role? Is there a 'safe' level of dietary gluten? 9:45 Kristina Richardson Making a Gluten-Free Diet Work Removing gluten from the diet is a lifelong challenge for those living with coeliac disease. While the benefits of a gluten-free diet have been widely established, practically it can be hard to make this change. This session will provide invaluable information for patient advocacy. It will also empower you with the right knowledge to encourage patients with coeliac disease to maintain a strict glutenfree diet. Includes: Which foods can be eaten and which foods shoule be avoided on a GFD? How can you avoid gluten contamination Are gluten-free foods less healthy than their regular counterparts How can you achieve adequate nutrition for a patient Strategies for avoiding the financial burden of a gluten-free diet Practical tips for easy and palpable meal preparation 10:45 Morning Tea 11:15 Kristina Richardson Food Labelling in Australia - Standards and Advice In Australia, food products known to cause hypersensitivity reactions, such as those containing gluten, are required to be declared on packaging. Reading and interpreting this information is integral in maintaining health in coeliac disease by adhering to a strict gluten-free diet. This session aims to provide an overview of food labelling in Australia and help you better understand how to read a food label, with particular focus on recognising products with gluten. Includes: An overview of Australian and New Zealand Food Standards What is required to be declared on a food label and what is exempt? How do you actually read and interpret this information? How do labelling laws apply to alcohol and medications?

6 Practical tips and tricks - are there any apps to assist with reading a food label? 12:00 Nicholas Kerswell Psychosocial Care of the Person with Coeliac Disease The psychosocial burden associated with the diagnosis of a lifelong disorder cannot be underestimated. Nurses are in a primary position to recognise and promote wellness in individuals who may be prone to or who are experiencing adverse psychological effects resulting from this condition. This important session considers some of the negative mental health impacts associated with coeliac disease and its treatment. There will be a special focus on how to promote optimum quality of life. Includes: How do people perceive coeliac disease? What is the link between depression, anxiety and adherence to a gluten-free diet? How can nurses help facilitate emotional adjustment to coeliac disease? Overcoming fear of ingesting gluten Building healthy body image Minimising feelings of burden of care on others 12:45PM Lunch Break 1:45 Glen Harriss The Role of Coeliac Queensland Coeliac societies across the globe are essential providers of support to individuals and families, supplying correct information and helping to raise awareness of coeliac disease in the community. This session will provide an interesting look at the vital role that Coeliac Queensland plays, in conjunction with Coeliac Australia, as well as an overview of useful resources for health professionals. 2:30 Glen Harriss Question and Answer Session This session will provide a valuable opportunity for the audience to ask questions and engage in discussion with a representative from Coeliac Australia. 3:00 Afternoon Tea 3:15 Dale Long Management of Abdominal Pain Although the symptoms of coeliac disease may vary considerably from person to person, abdominal pain and discomfort is likely to be experienced by most. This session looks at an evidence-based update to help refresh your assessment and management skills. Includes:

7 Assessing abdominal pain and tricky types e.g non-specific abdominal pain What is the difference between pain and bloating? Differential diagnosis - when may it be more sinister? Other nursing considerations 4:00 Ashleigh Jones The Low FODMAP Diet and its Relationship to a GF Diet The low FODMAP diet has revolutionised treatment of irritable bowel syndrome. FODMAP is an acronym describing poorly absorbed fermentable carbohydrates found in certain foods (Fermentable Oligo-, Di-, Mono-saccharides and Polyols). Emerging evidence now suggests many people who are wheat- or gluten-sensitive but who do not have coeliac disease may in fact have FODMAP intolerance. As such, their diagnosis has been instrumental in helping people understand the difference between coeliac disease and irritable bowel syndrome (IBS). This session explains: What is a low FODMAP diet? What is FODMAP intolerance? When is a low FODMAP diet recommended? What is the difference between a low FODMAP diet and a gluten free diet? What is it important to understand the difference between coeliac disease and irritable bowel syndrome? 5:00 Close of Day Two of Program Presenters Kim Cass Kim Cass is an Enrolled Nurse currently working in Primary Practice as a Community Nurse in Brisbane. Kim is a clinically diagnosed Coeliac of 16 years and a member of Coeliac Australia, New Zealand and the UK. With over 20 years' experience within the hospitality industry and as a small business owner specialising in gluten-free foods, Kim brings a unique perspective of coeliac disease within the healthcare setting. Kim's passion is the promotion of coeliac disease awareness and education for nurses and she is currently completing an Advanced Certificate in Nutritional Counselling. Jason Tye-Din Dr. Jason Tye-Din is a gastroenterologist who heads the Coeliac Research Group at the Walter and Eliza Hall Institute. Jason completed his medical degree at Melbourne University in 1995 and undertook clinical training at the Royal Melbourne Hospital specialising in gastroenterology. His research has focussed on understanding why dietary gluten is toxic to the immune system to enable better approaches to diagnose and manage coeliac disease. He chairs the Medical Advisory Committee of Coeliac Australia and is involved in medical professional education to improve the care of people with this common but often unrecognised and poorly managed illness.

8 Treasure McGuire Dr Treasure McGuire is a medicines information pharmacist, pharmacologist, educator, and researcher. As assistant director of pharmacy, Mater Health Services, she manages their academic practice unit. She is also a senior conjoint lecturer in the School of Pharmacy, University of Queensland and associate professor of pharmacology, Faculty of Health Sciences & Medicine, Bond University, where she lectures on complementary medicines, reproductive health, medication safety, and communicable diseases. In recognition of her services to medicines information, she received the Lilly International Fellowship in Hospital Pharmacy and the Bowl of Hygeia of the Pharmaceutical Society of Australia. Kristina Richardson Kristina Richardson is an Accredited Practicing Dietitian who has worked with Coeliac Queensland for a number of years after being diagnosed with coeliac disease herself in Kristina studied at the Queensland University of Technology and is a qualified Dietitian accredited with the Dietitians Association of Australia. After receiving an Australian Postgraduate Award, Kristina is now undertaking doctoral research in the field of coeliac disease, investigating health-related outcomes of diagnosis and treatment. Kristina has presented numerous seminars and workshops for hospital staff, health professionals and the general public on coeliac disease, nutrition and healthy eating, as well as hosting regular label-reading workshops for newly diagnosed patients and their families. Kristina is passionate about helping people seek and cope with their diagnosis and achieve a healthy, satisfying gluten-free diet. Nicholas Kerswell Nicholas Kerswell is a Provisional Psychologist currently completing his Doctor of Psychology (Clinical) at Queensland University of Technology. After being diagnosed with coeliac disease in 2009, he developed an interest in the factors associated with the psychosocial adjustment to coeliac disease, including quality of life, social inclusion and adherence to the gluten-free diet. In clinical practice, Nicholas has worked with individuals in a variety of settings to promote positive health behaviours. His research interests continue to include psychological factors associated with promoting physical and mental health. Glen Harriss Glen Harriss is the Executive Officer at Coeliac Queensland, where his role is to provide leadership and direction to all programs and initiatives. Glen represents Coeliac Queensland as part of Coeliac Australia and chairs Coeliac Australia s Operational Management Group. Glen has a great team of staff, Management Committee and volunteers who together work to support Queenslanders with coeliac disease. Glen is a passionate Not-for-Profit professional with experience in fundraising for medical research and supporting families who are faced with a medical diagnosis of a chronic disease. James Daveson Dr James Daveson is a Gastroenterologist with a special interest in coeliac disease. Dr Daveson is a senior lecturer with the University of Queensland School of Medicine, with research and clinical interests including coeliac disease. He has been involved in several trials in coeliac disease, including two first in human trials exploring novel therapeutics in the management of the disease. He has been published internationally in peer-reviewed journals and is regularly asked to speak on coeliac disease. Dr Daveson runs both public and private coeliac clinics. Ashleigh Jones Ashleigh Jones is an Accredited Practising Dietitian and Accredited Nutritionist. She holds a Bachelor of Health Science and a Master of Nutrition & Dietetics, both with research majors, and has published research in a range of areas that includes multiple sclerosis and post-exercise rehydration. She currently splits her time between the food industry and as a private practice dietitian in West End, Brisbane. Here, Ashleigh has a special interest in Irritable Bowel Syndrome and helps patients investigate and manage their symptoms with a low FODMAP diet. She is passionate about helping patients individualise their diet so they can manage their symptoms long term.

9 Dale Long Dale Long is a Registered Nurse who has worked in various cancer care, palliative care, and pain management roles in inpatient and domiciliary settings for the past 25 years in both Victoria and Queensland. She is an experienced presenter with a strong commitment to educating nurses to improve the quality of pain management delivered to patients. Dale is a member of the Australian Pain Society.

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